̷L̷o̷r̷e̷n̷z̷ ̷ #MECFS #pwME #POTS #LongCovid How do you handle changes in Atmospheric/Barometric Pressure? How do you feel them? Do you adjust your pacing strategy on impending ‘drops’?
ME/CFS
by @knivesonly.bsky.social
This feed picks up ME/CFS specific acronyms: MyalgicE, MECFS, ME/CFS, CFS, PwME, CFS/ME, PEM, PESE
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̷L̷o̷r̷e̷n̷z̷ ̷ 
Kim R 🇨🇦 Every time you resist negativity & choose gratitude, you rewire your brain to react kinder, calmer, & more loving. #recovered #anxiety #eatingdisorder #NeverGiveUp #AlwaysKeepFighting #fibromyalgia #MECFS #Erythromelalgia
Tom Kindlon The team at La Trobe University in Australia, including Drs Sarah Annesley & Daniel Missailidis, have published a study acknowledging funding from ME Research UK, which provides evidence of altered lipid metabolism in ME/CFS. Read more tinyurl.com/yv4mmvtn #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Chiko | Digital Creator “But you look fine.” If you’ve heard this, you’re not imagining it. Looking fine can mean spending energy you’ll pay for tomorrow. You don’t have to prove your pain to be believed. #Fibromyalgia #MECFS #InvisibleIllness
Tom Kindlon ME Research UK: As part of our Symptom Saturday series over the past 2 months, we’ve been exploring research insights into the core symptoms of ME/CFS. For ease of access & sharing, we’ve collated & summarised the info. Follow link for full overview. tinyurl.com/MEcoresympto... #MEcfs #CFS #PwME
Tom Kindlon 🧵 ME Research UK As part of our Symptom Saturday series over the past 2 months,we’ve been exploring lived experiences relating to core symptoms of ME/CFS.For ease of access & sharing, we’ve collated & summarised the info.Follow link for full overview. tinyurl.com/MEcoresympto... #mecfs #pwme #cfs 1/
European ME Alliance CS Caritas Socialis Hosts the First Specialist Congress on ME/CFS in Vienna "What can we do now for people with ME/CFS?" www.europeanmealliance.org/news-Q42026-... #MECFS #Austria #Wien #CSNordlicht #EuropeanMEAlliance
Adam “I can’t even get dressed by myself anymore or press buttons or things like that.” 9 year old Annabelle describes the impact of #MECFS which she developed following Covid, and how exertion can make her symptoms worse. #LongCovid
Marion Friedl 1 / 4
en.wikipedia.org/wiki/Myalgic... Due to ME/CFS I´ll go offline for today, after my Gmail inbox´s been so empty today that I posted 6 (!!!) hilarious #Cheezburger posts instead of checking a gazillion newsletters, like usual. #ByeBye to my online f(ur)riends with 4 cute #TrashPandas. 🦝🦝🦝💖💖💖
Liz Nevra A. From Nevra's drafts: Young heart for love Not heartache Dark hair for catching the wind Not to veil the sight of a cold world gofundme.com/f/save-nevra paypal.me/SaveLizNevra #VerySevereME #MillionsMissing #DisabilityJusticeForGlobalSouth #MyalgicEncephalomyelitis
A6NE_kize💔❤️🩹🖤 Are you gonna propose or what? #e137 #mortycest #pemorty
NichtGenesen 1 / 4
Das ist keine Forschungslücke. Das ist eine Förderlücke mit Ansage! Deutschland ist stark in der Grundlagenforschung. Aber ausgerechnet dort, wo aus Erkenntnissen Medikamente für ME/CFS und Long COVID werden könnten, beginnt das institutionelle Pingpong.
ME/CFS Science 1 🇳🇴) In this Norwegian study, therapists using a psychosomatic approach to ME/CFS expressed "concern about how current approaches might be viewed if future research were to establish a treatable biological dysfunction."
Emerge Australia 💙 For Carers Week, we revisit Henry Barker and his mother Jen’s powerful story of long COVID, ME/CFS, caring, stigma and resilience. Hear how illness has shaped their lives, healthcare experiences and hopes for the future. 🎙️ Listen: zurl.co/e1Qfv