by @longcovidadvoc.com
👋Hi and welcome to the Long Covid & ME Feed. It's aim is to build our community! It will collate: Keywords: long covid, mecfs, myalgic encephalomyelitis Hashtags: #longcovid #mecfs, #pwME, #pwLC, #PASC, #longcovidkids, #millionsmissing, #FBLC & more (not case sensitive) Managed by LCA
☁️Now🤖Breezing💨 Bluesky's Top 10 Trending Words (past 10min): 💨x4* - ukraine 🔓 💨x50 - anfield 💨x1* - iran 🔓 💨x1* - democracy 🔓 💨x1* - epstein 🔓 💨x23 - janones 💨x21 - ceasefire 💨x20 - 1﹐940 💨x1* - gaza 🔓 💨x16 - zelenskyy *🔓 = Unlocked Emergency Words (see img) #йобанарусня 🇺🇦 (Something not right? Reply!)
̷L̷o̷r̷e̷n̷z̷ ̷ #MECFS #pwME #POTS #LongCovid How do you handle changes in Atmospheric/Barometric Pressure? How do you feel them? Do you adjust your pacing strategy on impending ‘drops’?
Kim R 🇨🇦 Every time you resist negativity & choose gratitude, you rewire your brain to react kinder, calmer, & more loving. #recovered #anxiety #eatingdisorder #NeverGiveUp #AlwaysKeepFighting #fibromyalgia #MECFS #Erythromelalgia
Tom Kindlon The team at La Trobe University in Australia, including Drs Sarah Annesley & Daniel Missailidis, have published a study acknowledging funding from ME Research UK, which provides evidence of altered lipid metabolism in ME/CFS. Read more tinyurl.com/yv4mmvtn #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Chiko | Digital Creator “But you look fine.” If you’ve heard this, you’re not imagining it. Looking fine can mean spending energy you’ll pay for tomorrow. You don’t have to prove your pain to be believed. #Fibromyalgia #MECFS #InvisibleIllness
Tom Kindlon ME Research UK: As part of our Symptom Saturday series over the past 2 months, we’ve been exploring research insights into the core symptoms of ME/CFS. For ease of access & sharing, we’ve collated & summarised the info. Follow link for full overview. tinyurl.com/MEcoresympto... #MEcfs #CFS #PwME
Tom Kindlon 🧵 ME Research UK As part of our Symptom Saturday series over the past 2 months,we’ve been exploring lived experiences relating to core symptoms of ME/CFS.For ease of access & sharing, we’ve collated & summarised the info.Follow link for full overview. tinyurl.com/MEcoresympto... #mecfs #pwme #cfs 1/
Edgeneer Ordered a new #facemask for #eXXXotica from #omnimask while doing better with #longCOVID I still have issues, and do not want another round Plan to do a #review of it after the event
European ME Alliance CS Caritas Socialis Hosts the First Specialist Congress on ME/CFS in Vienna "What can we do now for people with ME/CFS?" www.europeanmealliance.org/news-Q42026-... #MECFS #Austria #Wien #CSNordlicht #EuropeanMEAlliance
Adrian Marius Popa Playing with light is fun : Colored light effects: PLUG_light_color_scale #GameDev #CastleGameEngine #Pascal github.com/castle-engin...
Adam “I can’t even get dressed by myself anymore or press buttons or things like that.” 9 year old Annabelle describes the impact of #MECFS which she developed following Covid, and how exertion can make her symptoms worse. #LongCovid
ME/cvs Vereniging 𝗕𝗲𝗴𝗿𝗶𝗷𝗽 𝗷𝗲 𝗺𝗲? 𝗚𝗲𝗹𝘂𝗶𝗱 𝗲𝗻 𝗹𝗮𝘄𝗮𝗮𝗶, 𝗹𝗶𝗰𝗵𝘁 𝗲𝗻 𝗽𝗿𝗶𝗸𝗸𝗲𝗹𝘀 𝗸𝘂𝗻𝗻𝗲𝗻 𝗼𝘃𝗲𝗿𝘄𝗲𝗹𝗱𝗶𝗴𝗲𝗻𝗱 𝘇𝗶𝗷𝗻 Bij ME/cvs kunnen prikkels zoals geluid, fel licht en drukke omgevingen veel #mecvs #pwme #me #mecvsvereniging #contact #erkenning
Liz Nevra A. From Nevra's drafts: Young heart for love Not heartache Dark hair for catching the wind Not to veil the sight of a cold world gofundme.com/f/save-nevra paypal.me/SaveLizNevra #VerySevereME #MillionsMissing #DisabilityJusticeForGlobalSouth #MyalgicEncephalomyelitis
NichtGenesen Das ist keine Forschungslücke. Das ist eine Förderlücke mit Ansage! Deutschland ist stark in der Grundlagenforschung. Aber ausgerechnet dort, wo aus Erkenntnissen Medikamente für ME/CFS und Long COVID werden könnten, beginnt das institutionelle Pingpong.