Ronan Chaligné @ronanchaligne.bsky.social Scientist. Director of the Single-cell Analysis Innovation Lab @MSKcancercenter. sail.mskcc.org - Opinions are my own
David Kuster @rnadavid.bsky.social RNA & Metabolism. Ancient companions for Life. RNA as spatial organizer of the Cell. IDPs, condensates, RNA fun & chromatin @Rosen&HymanLab, EMBL. MBL Physiology '25 🌊. And birds 🦜.
ebird.org/profile/MjcyMDU0Nw
inaturalist.org/people/9261834
Zeynep Baharoglu @zeynepbaharoglu.bsky.social RNA modifications, antibiotic tolerance, bacterial stress, non coding RNAs, Vibrio cholerae.
EPICS lab - Institut Pasteur & EGM (IBPC, CNRS)
American Society of Clinical Pharmacology & Therapeutics @ascptclinpharm.bsky.social ASCPT was founded in 1900, and consists of over 3,000 professionals whose primary interest is to advance the science and practice of clinical pharmacology and translational science for the benefit of ALL patients.
CureDuchenne @cureduchenne.bsky.social Our mission is to cure Duchenne muscular dystrophy with our innovative venture philanthropy model that funds groundbreaking research, early diagnosis and treatment access.
Helen Albert @helen-albert.bsky.social Freelance journalist. Focus: medicine, life sciences, bioanthropology, environment & biotech. Bylines: Inside Precision Medicine, C&EN, BioWorld, BMJ, New Scientist, Chemistry World, Labiotech, Forbes & more.
Jonathan D. Grinstein @grinsteinj.bsky.social North American Editor @ Inside Precision Medicine
🧬🧫🚅🏗️ @jdboucher.bsky.social Synthetic biology, cell and gene therapy. Member of the Leonard Lab at Northwestern University. Public transit and techno enthusiast. Views are my own.- J @johnnypelayo.bsky.social @johnnypelayo.bsky.social
Sean Ryder @seanryderphd.bsky.social RNA biochemist turned CRISPR geneticist. Professor and Vice Chair in Biochemistry and Molecular Biotechnology at UMass Chan Medical School. Proud parent of two wonderful children. Believer in compassion, kindness, mutual respect
Rick Livesey @ricklivesey.bsky.social Cellular and molecular neuroscience, neurodegeneration & drug discovery. Founder and CEO of Talisman Therapeutics & Gen2 Neuroscience, honorary prof at UCL. Cambridge UK.
Elisa Vilardo @vilardoelisa.bsky.social Molecular biologist, RNA modification enthusiast, mom in academia. 
Xisca Aguilo @xis-aguilo.bsky.social Associate Professor at Umeå University, RNA biology, RNA modifications, cancer. I love traveling, music and books. Mother of two.
Gregor Diensthuber @gdiensthuber.bsky.social PhD student @NovoaLab @CRGenomica |Wet-Lab 🔁 Dry-Lab | RNA modifications | Method Development 🧬⚒
Shawna Williams @coloradan.bsky.social Freelance editor & writer, serial mover, mom. https://shawnawilliams.com/
Dika Ojiakor @dikaojiakor.bsky.social 
Timothée Lionnet @successprocess.bsky.social faculty at NYU School of Medicine. We use advanced microscopy techniques to understand gene expression. Opinions my own. timotheelionnet.net
BC Children's Hospital Research Institute @bcchresearch.bsky.social BC Children's Hospital Research Institute conducts discovery, translational and clinical #research to benefit the #health of children and their families.
Lorenzo Calviello @translatomics.bsky.social RNA Biology, Computing, Heavy music, Videogames, and other horrible things.
MSc:
Unipisa
PhD:
MDC_Berlin
Postdoc:
UCSF
First supporter of the
Calviello Lab https://humantechnopole.it/en/research-groups/calviello-group/
Haissi Cui @haissi-cui.bsky.social Assistant Professor in Biological Chemistry at the University of Toronto. Former postdoc at Scripps Research. Aminoacyl-tRNA synthetases make me happy.
Richard Sever @richardsever.bsky.social Chief Science and Strategy Officer, openRxiv. Co-Founder, bioRxiv and medRxiv.
Rowan Walrath @rowanwalrath.bsky.social Associate editor, life sciences reporter @cenmag.bsky.social. Texan Bostonian. she/her. r_walrath@acs.org. For sensitive tips, I'm on Signal @rowanwalrath.01 or email rowan.walrath@proton.me
Laurel Oldach @laureloldach.bsky.social Biochemistry, chemical biology & instrumentation at Chemical & Engineering News. I'm just a reporter, standing in front of 2026, asking for some epistemological clarifications. Signal: Laurel_Oldach.07
Ben Comer @benmcomer.bsky.social Biopharma journalist and editor. 
Sarah Ellinwood @sarahellinwood.bsky.social immunologist-turned-science communicator 🎤 | freelance biotech sciwriting and PR 📝 | tea fiend 🍵| infectious disease nerd 🦠️| stained glass novice 🎨 | mostly here for the dogs 🐶
Alex Keown @alexkeown.bsky.social Journalist, Author, Storyteller
Bri Barbu @bribarbu.bsky.social science reporter @ Chemical & Engineering News | please talk to me about carbon-based molecules | she/her | views mine | @bribarbu.95 on signal
Endpoints News @endpts.com We're where the business of medicine gets answers. An independent news media organization covering biotech, pharma, science, policy, finance, venture capital and markets, and how they drive the life sciences industry. Read us at www.endpts.com. 
Andrew Dunn @andrewedunn.bsky.social Reporter @ Endpoints News
Covering biotech, pharma, AI, and more — the future of medicine
adunn@endpointsnews.com
Kyle LaHucik @kylelahucik.bsky.social reporting on the $, people & startups in the biotech world for Endpoints News | klahucik@endpointsnews.com | also coach high school XC + Track & Field team | askin Qs, joggin 26.2 | 🌎🏳️🌈🏃🏻♂️🗞️💨
Lei Lei Wu @leileiwu.bsky.social reporting on drugs and biotechs @endpoints • email me: lwu@endpointsnews.com • Signal: leileiwu.24 • ✌️
@lydiapflanzer.bsky.social @lydiapflanzer.bsky.social 
Max Gelman @maxgelman.bsky.social Reporting on pharma and biotech for Endpoints News. Baseball fan, Northwestern alum. Message me on Signal: maxgelman.37
Nicole Wetsman @nicolewetsman.bsky.social deputy editor @endpts.com // formerly the verge & abc news
Shelby Livingston @shelbylivingston.bsky.social Reporter covering health tech for Endpoints News. Formerly Business Insider and Modern Healthcare. Charleston native, Clemson alum. Go Tigers! 
Zachary Brennan @zacharybrennan.bsky.social Senior editor, Endpoints News
Jared Whitlock @jaredwhitlock.bsky.social features editor @endpts.com / fall 2021 fellow
@ksjatmit.bsky.social
Writing (and editing) stories on rare disease medicine, diagnostics and China
Reach out privately on Signal: jaredwhitlock.73
Nicole DeFeudis @nicoledefeudis.bsky.social Biopharma reporter at Endpoints News | nicole@endpointsnews.com
Andrea @downing.bsky.social Co-founder of The Light Collective
www.lightcollective.org
Security Researcher
Health Infosec
Views are my own.
Shannon Stirone @shannonstirone.bsky.social Writer in nyc. Space nerd. Mars is a Hellhole. Bylines in NYT’s, The Atlantic, Wired, Esquire, Longreads, & others. Anti fascist. Opinions are mine. Climate by day.
signal: shannonstirone.78
https://natureofthings.substack.com/
shannonstirone.com
Julian A Nowogrodzki @plantnerd.bsky.social Science editor at @sentientmedia.org covering the intersection of food and climate
Words in Nature, NYTimes, MIT Tech Review & more
They/them
JulianN.88 on Signal
Rachel Henderson, PhD @rachelhenderson.bsky.social Freelance science writer with expertise in neuroscience, biology, institutional communications, and higher ed. She/her #scicomm
https://www.rachelhendersonscience.com/
Claire McCarthy @clairem402.bsky.social scientist with a PhD in toxicology | views are my own
Cathleen O'Grady @cathleenogrady.bsky.social Science journo, mainly at @science.org, writing about science & society, research integrity, and other places where the scientific rubber hits the road.
cathleenogrady.com
Jennifer Tsang @jtsangwrites.bsky.social Freelance science writer, microbiologist at heart.
Blogging at The Microbial Menagerie microbialmenagerie.com
Content marketing for life science companies
https://linktr.ee/jennifertsangwrites
Max G. Levy @maxlevy.bsky.social ✍️freelance science journalist: Wired, Quanta, TED-Ed & elsewhere
cofounder @sequencermag.bsky.social
https://maxglevy.com/
los angeles
Margaret Osborne @margaretosborne.bsky.social Freelance science writer, editor, reporter and producer
Clips in Smithsonian, Live Science, WSHU Public Radio, Yale Medicine
(she/her)
Malissa Rodenburg @malissaonthemove.bsky.social Science Writer
Bylines: Well + Good, 5280 Magazine, Outside, Women's Running, Weill Cornell Medicine, Science
Catherine Dold @catherinedold.bsky.social Freelance science writer/editor: health, biopharm, addiction. Coauthor, The Recovery Book. ASJA Outstanding Book Award. NYU SHERP. SWARM. RVer. Boulder, Colorado
Ada Hagan, Ph.D. @dradawrites.bsky.social Making Science Accessible @ alliancescc.com | Intersectional Feminist, Trekie, #scimom, microbiologist, #ADHD, & writing coach | Oxford comma advocate
Mark English @markenglish.bsky.social Medical writer, publication manager, manager of running injuries, gardener, a bit of a lefty, lover of NZ (dual UK-NZ citizenship) and The Lake District. PhD oncology.
@chriswinchester.bsky.social @chriswinchester.bsky.social 
Jane Tricker @jytricker.bsky.social Freelance medical writer, editor and proofreader. You can also find me on LinkedIn (https://www.linkedin.com/in/jytricker/) or on WordPress (http://trickerishallsorts.wordpress.com).
Emma Marshman @emmamarshman.bsky.social Freelance medical writer with 20+ years of experience. Specialising in cardiology, diabetes and oncology but with lots of other interests
Dr Simon Stones @simonrstones.bsky.social 🏳️🌈 he/him • Global Patient Engagement Leader & Medical Communications Specialist • EULAR PARE Committee Chair • ✈️ • 🎭 • 📸
Peter Llewellyn @networkpharma.bsky.social Championing more use of accessible video to inform and educate Pharma | Ex (!) Community Facilitator for #MedComms | Digital Disruption | Open Access
Helen French @helenfrench.bsky.social medcomms writer by day, fiction writer by night. Dork.
Paul Sobol @leftynorthof49.bsky.social Torontonian — Eccentric MedComms wordsmith — Loves non sequiturs.
He/him 🏳️🌈
Steph Carter @lyricalmedical.bsky.social Medical writer by day ✍️ | Learning the piano one note at a time 🎶 | Cat's best friend 🐱
For more information, go to: www.lyricalmedical.com
@carolynbowler.bsky.social @carolynbowler.bsky.social 
Michelle Preston @prestonpanacea.bsky.social Medical writer, keen sports watcher and dog lover
Neuromuscular Disease Network for Canada @nmd4c.ca Canadian network connecting clinicians, scientists, patients, and industry to improve neuromuscular disease outcomes.
Funded through CIHR-IMHA and Muscular Dystrophy Canada
Visit us at: https://neuromuscularnetwork.ca/
Krishnan Guru-Murthy @krishgm.bsky.social Channel 4 News, Unreported World, Ways to Change the World, The Fourcast, Class of 2023 on Strictly
Also Chairman of Duchenne UK
The Blue Wizard on Wheels💍🧙♂️👨🦼 @bluewizardonwheels.bsky.social Living with Duchenne Muscular Dystrophy and winning, #LOTRO lifer, Massive Tolkien geek - Eat. Sleep. Shill. Repeat. for #TheRingsofPower😉😉- 💍🧙♂️🔥⚔️🧝
Will Wright @electricwill.com 40 - Sheffield - Duchenne muscular dystrophy
linktr.ee/Electricwill
World Duchenne Organization @worldduchenne.bsky.social Global organization to find a cure and viable treatment for those lives affected by dystrophinopathies: Duchenne and Becker Muscular Dystrophy. RT ≠ endorsement
🔗 https://www.worldduchenne.org/
DESSA @dessa-ireland.bsky.social Disability rights are human rights!
DESSA was established in 2001 as an independent, not-for-profit organisation committed to supporting the rights of disabled people and their families.
RCN: 20057077
GREGoR Consortium @gregor-research.bsky.social The GREGoR Consortium (Genomics Research to Elucidate the Genetics of Rare diseases) seeks to develop and apply approaches to discover the cause of currently unexplained rare genetic disorders.
https://gregorconsortium.org/
Courageous Parents Network @courageousparentsnetwork.org CPN is a nonprofit org established to help caregivers & others caring for children with serious medical conditions navigate the journey with support.
https://courageousparentsnetwork.org/
ERN eUROGEN @erneurogen.bsky.social The European Reference Network for Rare Urogenital Diseases and Complex Conditions - https://eurogen-ern.eu/
The Zebra Alliance Community @thezebraalliance.bsky.social The Zebra Alliance represents a beacon of solidarity for navigating the challenging waters of Ehlers-Danlos Syndrome, Rare Diseases, and Chronic Illness.
Education • Resources • Advocacy
https://linktr.ee/thezebraalliance
Rare Ireland @rareireland.bsky.social 
ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social ERKNet is devoted to improving the lives of patients with rare kidney diseases.
https://www.erknet.org
Rebecca Stewart @rebecca-stewart.bsky.social Co-Founder of RARE Revolution Magazine dedicated to elevating the voices of the #raredisease community and bringing together stakeholders from the field.
Logan Cohen @logancohen.bsky.social Poet. Dad. Fly guy. PhD student.
🪰🧬💻
Dare to be Rare @daretoberare.org Our mission: CURE THIS
All sales from Dare to be Rare go directly to funding research for the cause you choose at checkout. To shop, learn more, or become a partner, check out daretoberare.org
RealiseD @realised-ihi.bsky.social Transforming Clinical Trials for Ultra-Rare Diseases.
🔗 https://realised-ihi.eu/
The PSP Association @pspassociation.bsky.social Helping people living with Progressive Supranuclear Palsy & Corticobasal Degeneration to live the best life they can #TeamPSPA🧠
Sign-up to our Pathway to Progress Challenge here: https://www.pspassociation.org.uk/pathway-to-progress/
Oxford-Harrington Rare Disease Centre @oxfordharrington.bsky.social Partnership of the University of Oxford and Harrington Discovery Institute. Combining expertise in discovery science and therapeutics development to accelerate cures for rare diseases.
Visit us at: www.oxfordharrington.org
Global Healthcare Innovation Alliance Accelerator (GHIAA) @ghiaa.bsky.social Our Vision: A world in which medical innovations are promptly available to all populations in need.
RAREvolution @rarevolution.bsky.social Account for the BLACKSWAN Foundation and RE(ACT) Community #RAREvolution, stand up for research on #rarediseases
blackswanfoundation.ch
http://www.react-congress.org 🦓
Rare Disease Clinical Trial Network @rarediseasectn.bsky.social HRB-funded clinical trial network aiming to increase the quantity and quality of rare disease clinical trials in Ireland, keeping the patient voice at our core.
Tom Nichols @radiofreetom.bsky.social Staff writer at The Atlantic. Cat guy, Jeopardy champ. New Englander and curmudgeon. Speaker info: https://www.leighbureau.com/speakers/tnichols
Jake Yeston @jakeyeston.bsky.social Editor at @science.org, shepherding chemistry papers; views here are my own; he/him
Erin Schumaker @erinlschumaker.bsky.social Deputy health care editor at POLITICO
Tips: eschumaker@politico.com
Signal: ErinSchumaker.01
Sarah Karlin-Smith @sarahkarlin-smith.bsky.social Research Director at Public Citizen's Access to Medicines program.
Former journalist covering intersection of pharma, health policy & politics.
On Signal at SarahKarlinSmith.34
Views are mine.
Rachel Lense is Professionally Curious @rachellense.bsky.social Science communicator, writer, artist | She/They 🏳️🌈 | Views = mine
📃 Online Portfolio (rachellense.com)
Saloni @scientificdiscovery.dev Co-founder & editor, Works in Progress. Writer, Scientific Discovery. Podcaster, Hard Drugs. Advisor, Coefficient Giving.
Newsletter: https://scientificdiscovery.dev
Podcast: https://harddrugs.worksinprogress.co
🏳️🌈
Emily Mullin @emilymullin.bsky.social Staff writer @wired.com covering health+biotech. Uses em dashes without AI.
Author page: https://www.wired.com/author/emily-mullin/
Email: emily_mullin@wired.com
Signal: emullin.06
Max Bayer @maxbayer.bsky.social Pharma reporter at Endpoints News | Past: Fierce Biotech and CBS News | mbayer@endpointsnews.com or maxbayer.10 on Signal. he/him
C&EN (Chemical & Engineering News) @cenmag.bsky.social https://cen.acs.org/
Sharing the world of #chemistry: News🗞 Research⚗️ Infographics #PeriodicGraphics ℹ Pictures #CENChemPics 📷 Comics #SketchChemistry 🗯 #FluorescenceFriday ❇️
Lauren Testa, Ph.D. @laurenctesta.bsky.social PhD, Gene Therapy & Vaccines @ Penn. Project Lead, Innovative Genomics Institute, UC Berkeley. #RareDisease patient-scientist interested in genetic therapies, connective tissue, dogs, and climbing. Go Bills. 🧗♀️
Matt Hall @cispt2.bsky.social 🇦🇺 SD at NCATS, all about treatments for rare diseases, drug discovery and technologies. Views my own. Etc.
Juan S. Bonifacino @juanbonifacino.bsky.social Cell biologist at NIH researching mechanisms of protein and organelle transport, and related diseases. Special interest in neurons and neurodevelopmental disorders. Science, nature, travel, and music enthusiast. Views are my own.
Rare Disease Mom @rarediseasemom.bsky.social Lindsay. Democratic nominee for VA House of Delegates district 69 (I had to resign from running sadly due to unexpected health emergency) Super focused on my local community ( Hampton Roads ) and rare disease advocacy.
RareDiseasePatient @rarediseasepatient.bsky.social #RareDisease patient, missing life: Polymath, classical musician, linguist, UNI instructor, minister, metaphysicist, intuitive, naturalist, #vegan ARA
rare.Disease 💙 @raredisease.bsky.social I love gaming, probably a bit too much.
@rarediseases.bsky.social @rarediseases.bsky.social 
Rare Disease and Neurodevelopmental Disorders Lab @rdndlab.bsky.social RDND Lab at King’s College London led by Cristina Dias. Clinical Geneticist and Rare Disease researcher. Rare Conditions, neurodevelopmental disorders of chromatin regulation and chromatin remodeller-TF interactions.
https://tinyurl.com/rdndkcl
JB Manent @jbmanent.bsky.social Developmental neurobiologist studying cortical malformations (grey matter heterotopia) and #epilepsy at INMED, INSERM in Marseille, France
https://orcid.org/0000-0002-2436-8593