Iris @irisbio.bsky.social The life sciences network run by + for life scientists. A platform for the community to share their exciting science and connect with others. We welcome scientists, editors, and those in industry who are passionate about the life sciences. irisbio.org
ME Advocates Ireland (MEAI) @meadvocatesireland.bsky.social Advocating for People with Myalgic Encephalomyelitis (ME) of all ages & severities.
Webpages:
https://meadvocatesireland.blogspot.com
Email: info@meadvocatesireland.com
Feral Weirdo @lostsoulsalliance.bsky.social I'm not a bot, no bot is stuck in a mental prison of its own making from which it will never be free
simulacramaxxing and plasticpilled
Miri @miri2.bsky.social Idk man I’m just here to get weather news and talk about being chronically ill
Stephani Sutherland @sutherlandphd.bsky.social Neuroscientist, freelance journalist, pain researcher. Comms Director for @a2cps-pain.bsky.social Former SciWriter at NIH. Words at Scientific American, New Scientist, Knowable. Having fun outdoors in SoCal. stephanisutherland.com
@benzoate.bsky.social @benzoate.bsky.social
@verdantspace.bsky.social @verdantspace.bsky.social
Susan K @susankmecfs.bsky.social Scientist. Current interest in #IACC. Progressive worsening of #mecfs triggered by virus, Feb 1996.
Vic GenXer @genxer22.bsky.social Climate & social justice warrior. Double Green Party riding! Prov BC MLA R. Botterell. Canada MP. E. May.
Settler crone grateful to reside on unceded Wsanec territory on Vancouver Island! #yyj- O okaatski.bsky.social @okaatski.bsky.social
Vindara Health @vindarahealth.bsky.social Vindara Health is a virtual clinic for Long COVID, ME/CFS, MCAS, POTS and more. Patient-led and co-founded with Dr. David Kaufman.
Rae Rae @desiraemessenger.bsky.social former trombonist
former content writer
tai chi
me/cfs/longcovid
she/her
Niko Bussey @niko2057.bsky.social E Pluribus Unum, y’all!
Tech Enthusiast/Bemoaner
Thoughts, observations, and implicit beliefs
Prohibition Blunder @prohibitionblund1.bsky.social ProhibitionBlunder.org outlines the case against Drug Prohibition and connects voices against it.
Chronic Illness Resource Library @spoonieresources.bsky.social Sharing fact sheets, how-to guides, online tools, worksheets, research, and other helpful info for people living with chronic illness(es).
Not a health professional.
Requests/suggestions welcome.
🚫 No AI
linktr.ee/chronicillnessresourcelibrary
rachel @rachlke.bsky.social reader🌙🔮📚she/her
Liz Ellis (She/Her) 🏴 @lizellisphd.bsky.social New Scot. Opinionated & sweary af. Rural sociology and health with a side order of coproduction and weird recipes. Living with Long Covid.
Racists, TERFs, misogynists, and fascists blocked.
Richard Lewis @z3r0gravitas.bsky.social Extropian sci/tech geek. Improving moderate #MEcfs, #non24-hour sleep. #ADHD-PI, #AuDHD, #dyslexic. "ZeroGravitas" in PC gaming. He/him. 43. Please correct me. https://linktr.ee/ZeroGravitas
@stripeyfruit.bsky.social @stripeyfruit.bsky.social They/them etcetc
Cassandra @impossiblebird.bsky.social Everything is exhausting, but I’m still trying!
Librocubicularist GenXer who digs nature and fancies a fine fabric. Still covid conscious in New England. She/her
Watch ‘Our Flag Means Death’ 🏴☠️💖 if u haven’t
Patricia Donnellan, MPH 🇺🇦📎 @stpaulsbay.bsky.social Patricia Donnellan, MPH | Found the unifying cause of chronic disease: rs5522-driven inflammation. Cured my own 29-yr CFS. Proving it’s fluid, not fat—from Long COVID to Maternal Mortality. 🧬
www.beyondbloodtests.org
Brooke Clark @brookemclark.bsky.social Editor, accessibility advocate, wrangler of my neurodivergent fam, cat lover, book lover. Australia.- A @asts.bsky.social @asts.bsky.social
FND Research Alliance @fndresearcha.bsky.social A new group dedicated to advancing research into Functional Neurological Disorder.
Julie Patchouly @juliepatchouly.bsky.social Psychologist, Clinical Therapist, Writer, Avid Reader and Lover of Humanity. I am salt and light.
Jon Tilley @jtilley80.bsky.social American living in Baden-Württemberg. Husband. Father. MBA. Internationalist. Learning to write. Learning to be German.
http://untillblog.blogspot.com/
Defenestra Andropov The Fall of the new Rome is in the air...🗽🍂 @defenestraandropov.bsky.social This too shall pass; and by this, I mean THAT.
I'm a "pushover" for politics.
Vancouver Island, British Columbia🌅
Living with non-visible disability 🥄
🇨🇦❤️🇺🇦
Free🇵🇸 IT IS A GENOCIDE.
Celebrate diversity!🏳️🌈🏳️⚧️
🍞&🌹✊
Banner: Painting:1618 defenestrations of Prague.
@nikki-992.bsky.social @nikki-992.bsky.social #MECFS #longcovid
Witch Aileen 🏳️⚧️ @witchaileen.bsky.social (she/her) 30s 🏳️⚧️🏳️🌈
Front Page OSRS HC
I might stream sometimes as my disability allows 😅
Twitch.tv/Witch_Aileen
Ghost of Crystal’s Past @gothicr0se.bsky.social Trans MECFS ASD fag. Multiple/#pluralgang. Future Polygamist. Misandry Empress.
she/they
Rebecca @softgothkitten.bsky.social She/her, chronically ill, writer.
BA degree in Disability Studies
Anti-eugenics, pro-masking & clean air.
RFK Jr & MAHA hater
Free Palestine
Linda Bringedal @libri.bsky.social ME-mamma, hageglad og grønn
Chris Hopkins @chrishopkins.bsky.social Policy / Research / Green Transitions
@ LSE Sustainability Regulation Observatory (SRO) @gsos-lse.bsky.social
Prev - Policy Dir. @GECoalition.bsky.social, @IIED.bsky.social
💚 Personal views & 🌭🐶 content + 🤓 econ, env, politics, football stuff. He/Him.
@torontocrockett.bsky.social @torontocrockett.bsky.social Antifascist, Movement Offence Committee, IWW-GDC28, Community Anarcho-Horticulturist Network, they/them, PROFESSIONAL GRADE LOGISTICS
Open Ulysses @open-ulys.bsky.social Creating the most realistic portrait of the world. Add your link. See what others have added.
https://openulysses.substack.com/p/chapter-1
monique d'hooghe ♿ they/she @moniquedhooghe.bsky.social They, she
♿ peace & social justice activist
anarchist
Nothing about us without us
Chiko | Digital Creator @chikocfm.bsky.social Digital Creator | #FibroWarrior 💜
Turning pain into purpose, one post at a time. “Strength isn’t the absence of struggle – it’s creating something beautiful in spite of it.” Learn more>>> https://theleap.co/creator/chikocfm /
https://ko-fi.com/chikocfm
Colleen Steckel @colleensteckel.bsky.social Advocate for #MyalgicEncephalomyelitis using ME-ICC.
Contracted ME in 1989
Substack: https://colleensteckelmeiccinfo.substack.com/
Volunteer at www.MEadvocacy.org
Aspiring writer of paranormal fiction
Meri Levy, LMFT, PMH-C @merilevy.com I'm a perinatal, chronic pain and neuroplastic symptoms psychotherapist in Lafayette, CA. Empty nester, neuroplastic symptom recoverer, dance enthusiast, cat mom.
amyamynluv @amyamynluv.bsky.social She/Her 🌈 Lesbian 🏳️🌈 Feminist ♀️
Cat Mom 🐈⬛ Leftist ✊ Reader 📚
Humanist🧍Atheist ⚛️ Ozarker 🌄
EDS 🦓 POTS 🧂 MCAS
FND 🧡 CPTSD ❤️🩹 Migraine 🤕
Bipolar 🎢 OCD 🧼 SFN 🔥
Occipital Neuralgia ⚡️Prosopagnosia 😶
#AbolishICE 🚫🧊
#FUCKTRUMP 🖕
Daydreamer 💭 Night Thinker 🌠
Jay Gatties @jaygatties.bsky.social • Pokégnek Bodéwadmik • Pragmatic Liberal • Functioning Stoner • Baron of Sealand •
⚽️🏈🏏🏉
Vanessa Global @vanessaglobal.bsky.social 209K LIBRARY: universities,libraries,politicians,scientists,academics, lawyers,economists,linguists,historians,writers,BLUE, ANTIFA!
Me: brown NA,Oregonian,veteran,globetrotter,critical thinker,linguist,teacher,reader,atheist,constructive,ANTI-TRUMPIST
Princess in the Tower @apainprincess.bsky.social Healing Portal for everyone affected by severe #ChronicPain & #ChronicIllness~by a princess with full body #CRPS.
Resources, community, awareness | www.princessinthetower.org
#YouAreNotAlone ~ wishing you support, strength & hope for far kinder days.♥
Michael Kessler @mickessler.bsky.social Global Health Media Consultant
#hiv #tb #infectiousdiseases #CRDs #drugpolicy #ncds #pandemics
Au Contraire @jcontraire.bsky.social Interests: Civility | Democracy
| Long Covid | ME/CFS | MCAS | Autism | PDA | Alexithymia | Repost/Follow/Like doesn't imply endorsement
Moi m'EM @nofutureforme.bsky.social #EM encéphalomyélite myalgique (c'est pas une maladie rare mais elle n'est pas enseignée en France) #MECFS #pwME #POTS
Hamburgerabroad @hamburgerabroad.bsky.social A Hamburger on the Isle of Man. Living and pacing one day at a time while waiting for more treatment, research and answers for ME/CFS and POTS. In the meantime being kept company and being kept sane by two Miniature Schnauzers.
@rosa1111s.bsky.social @rosa1111s.bsky.social
Mid Class Gal @jgarciabobe.bsky.social Lifelong Democrat
Mystery aficionado
Supporter human rights
person of crime @jessistafford.bsky.social orca fan account | operations strategist | chronic illness advocate
NYC
Emma The Teddy Bear Shark @teddybearshark.bsky.social Just a confused potato posting art, games and positivity
Hopefully, you'll find something that gives you a smile. :)
~No Ai - just good vibes ~
~25 years old~
~She/Her ~
Youtube channel > @Teddy_Bear_Shark
Instagram (just art)> @Teddy_Bear_Shark
A Chronic Voice @achronicvoice.com I share #ChronicIllness, #ChronicPain, #disability & #MentalHealth info from VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy Open to constructive chat, will block overly opinionated people.
https://achronicvoice.com/
Navigate MS @navigatems.bsky.social Building a mobile health app for people living with #multiplesclerosis at @kingsioppn.bsky.social funded by @mssocietyuk.bsky.social
Judy Joy @judy-joy.bsky.social Writer, creator of handmade bookmarks, living with CFS. Kindness for ALL, including spiders. Queen of typos. Smiles are free. No DMs please.
#AdoptDontShop
#AdoptingSavesLives
#FosteringSavesLives
#AnimalsMatter
#KindnessMatters
#VeganForThem
#NeverAgain
Zaina Alkurdi @zainaalkurdi.bsky.social Clinical Psychology PhD at URI | UBC psych alum
PozzyWozzy 🇬🇧🍪 @pozzywozzy.medsky.social 🇪🇺🇬🇧 Ex-NHS, retired, looks at things, checks some things.
Interested in Health and anti-disinformation
"A blend of seriousness and sarcasm, like an NHS pamphlet with a side of snark."
Lives with #FND
X.com/PozzyWozzy
Jeni Baykoca @jenibaykoca.bsky.social PhD student developing @navigatems.bsky.social
Building an app for people living with MS who experience distress.
Sorry it's Aspen @sorryitsaspen.bsky.social open minded bi homoerotic fun chat dms open ask for signal
@drpegmg.bsky.social @drpegmg.bsky.social - M Marian @marian.marian-social.de
💛🌷Coast Salish Poet🌷💛 @coastsalishpoet.bsky.social MUCKLESHOOT INDIAN TRIBE.Yakama. Umatilla.Puyallup.Nisqually.♡Writer. Poet. Playwright.♡| Once, a bison 🦬 & I were face to face. The connection was powerful. Similarly, like when we're on The Puget Sound in our cedar canoes.|Seattle,Wa. •Kindness Matters•
Michelle Teasdale (Yeshe Lhatso) she/they @michelleteasdale.bsky.social https://michelleteasdale.net
https://michelle-teasdale.beehiiv.com/
TEND: an online sanctuary for seasonal embodiment and community
Queer | Vajrayana Buddhist | bohemian | slow and simple living | frame drummer | home educator | bookworm
Michael Swan @michael-swan.bsky.social
Macarena Tejos Bravo @macatejosb.bsky.social Biochemist and PhD in Neuroscience 🇨🇱| Postdoc at Karolinska Institutet @molecularpain.bsky.social 🇸🇪 | Pain + Itch + Skin
Mahavideh Kshetra 🍉 (עדן) @mahavideh.bsky.social Parasparopagraho Jīvānām
परस्परोपग्रहो जीवानाम्
"All life is bound together by mutual support and interdependence."
☮️🌱
Blog: https://aspirationalahimsa.substack.com/
he/him
Tess Rugg @tessuob.bsky.social Hi! I'm a third year PhD student at the University of Bath, Department of Psychology. My research focus is young adult's identity development in the context of living with chronic pain. Views my own!
Joe Hrdina @hrdcpy.bsky.social 👻 infj - systems thinker
Recovering car crash survivor - Vision, PTSD, Grief
I look okay, but I'm not okay
https://bandcamp.com/hrdcpy
Rachie PNW @rachelpnw.bsky.social I spend as much time as I can in the wilds of the PNW.
I’m here mainly to follow authors, scientists, journalists, and policymakers.
she/her
Boulder Center for NeuroHealth @boulderneurohealth.bsky.social An Embodied Approach to the Treatment of Pediatric and Adult Functional Neurological Disorder (FND)
@anitam09.bsky.social @anitam09.bsky.social
ling0n 🍉 @ling0n.bsky.social Pratigast i universum. Fattig arbetare i restaurangbranschen. Har 1000+ intressen. Vegan. Sverigefinsk. Protector of the Female Gaze. Leviterar i Göteborg.
Har lite konstiga ljud på: https://soundcloud.com/ling0n
Fred Rossi @darthfoo.bsky.social I write about shrinking reserves from #LongCOVID and #MECFS with brutal honesty and zero fluff. Also: Star Wars, comics, cats, and Penguins goals. 🚨 #LetsGoPens #PwME
https://darthfoo.substack.com
J in the North @jnannapolis.bsky.social Nature-inspired, science-promoting, Maryland-based human for good govt & school policies. Air Force x 2 🇺🇸 🫡 parent. St Lawrence River rat. Hiker 🥾. UMich Natural Resources. Retired Fed, Loves life
Dr Priest @pennypriest.bsky.social Mum, retired consultant clinical psychologist, singer, songwriter, ironman, writer, one of 5 members of the Midlands Psychology Group http://midpsy.uk
Laura Glancey @lglancey.bsky.social Refugee from the other place, just trying to find my way. Two eyes/ears and one mouth, so I read more than I post, but interested in people and the planet, pretty much.
as always, in need of hope 🪷 @tikvahchai.bsky.social * Scots Jew hoping to find some community & safe haven
* chronically ill, often bed bound, limits to how much stress can subject myself to, which complicates most attempts to socialise incl online
* niche joy is Thai 🇹🇭 films & telly; writing a lakorn🤯
Jean Arnold @jeanarnold.bsky.social Visual artist & concerned citizen.
https://www.jeanarnold.com/
Lisa Morrison @lisalisalemoncurd.bsky.social Mum, Wife, Analytical Hypnotherapist, Amateur Cook/Baker, Lover of Music, Novice Bass Guitarist.
I'm saving up to buy Emu so I can go round biting people in the supermarket.
Rehabilitation Psychology @apadiv22.bsky.social Established 1958 | Div 22 #APA 𝚿 | Working to enhance the well-being of people living with disability and chronic health conditions #RehabPsych
2026 Meeting in Charlotte NC 2/19-22 ✨
Cyberflaneurs @cyberflaneurs.bsky.social
David Lapp @davidlapp.bsky.social Ed law and policy research (through a mostly Pennsylvania lens) and then an embarrassing amount of Sixers angst.
Hummer Pedersen @hummerpedersen.eurosky.social #Journalismus #Kultur #PR #TeamWissenschaft #NoCovid #Antikapitalismus #Antirassismus #Antifaschismus #Humor #Sarkasmus
Psydetracked @singomuse.bsky.social Millennial ex-Millennialist. Movies, meals, meditations on the anthropocene. Also, sometimes, healthcare.
@integratepsyc.bsky.social @integratepsyc.bsky.social
Valerie Eliot Smith @valerieeliotsmith.bsky.social Independent researcher living with myalgic encephalomyelitis (ME) since 1981. Barrister (ret'd) #TMTlaw Visiting scholar @QMUL Blog at http://valerieeliotsmith.com
Based in London, UK
Tom Nerli @tfnerli.bsky.social
Signe Flottorp @signefl.bsky.social
Dr. Giacomo Carta @drgiacomocarta.bsky.social PT, MSc, PhD in Exp. Med. and Ther. Senior Scientist
@univienna
Systems Biology of Pain. 🧑🔬👀 effective therapies for neuropathic pain, from 🧫 to Social #PainIsInThePerson
Betty the tired teapot @bettyteapot.bsky.social