Miri @miri2.bsky.social Idk man I’m just here to get weather news and talk about being chronically ill
Jonathan Oppenheim @postquantum.bsky.social Quantum mechanic with a lot of ontological baggage.
https://www.ucl.ac.uk/oppenheim/
Liz Burlingame @lizmeactga.bsky.social Living with ME/CFS since 1991. Here for the long haul. I am one of the #MillionsMissing.
Douglas @dfolk.bsky.social No mud, no lotus.
Alan Levinovitz @alanlevinovitz.bsky.social Professor: religion, science, dao. "Natural" on how to love nature without worshipping it: tinyurl.com/y75tpmog. Opinions my own.
Brooke Clark @brookemclark.bsky.social Editor, accessibility advocate, wrangler of my neurodivergent fam, cat lover, book lover. Australia.
Audrey Ryback @aryback.bsky.social ME researcher at the University of Edinburgh.
Arthur @arthurzqx.bsky.social Doet onderzoek naar kosmische straling met radiotelescopen (LOFAR, simulaties voor SKA). Postdoc, parttime.
Samantha Höttemann-Vos @tracesofsam.bsky.social 2e: overthinking existence in words, paint and music. The universe stays unimpressed.
(Also: Coach for the gifted | Currently on a recovery break)
🇳🇱 🇩🇪 🇪🇺 🌍
@dizd1.bsky.social @dizd1.bsky.social
John Gooch @johngooch.bsky.social Artist, European, did a bit in telly, Dawkins, Carlin, Partridge, Ferrell, Beethoven, Orwell, Matisse.
Graham Murray @gkmurray.bsky.social Professor of Psychiatry and Neuroscience at Cambridge University and Cambridgeshire and Peterborough NHS Trust. Interested in early intervention and personalised medicine.
ME Research UK @meresearchuk.bsky.social ME Research UK is a charity which funds scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS (charity number SC036942)- A Andrea Putica @andreaputica.bsky.social
Sean Gibbins @basculethefule.bsky.social
@nick-pwme.bsky.social @nick-pwme.bsky.social 🙋♂️ 20+ years severe #MEcfs.
Mostly horizontal. Dorset uk.
⛵🏎
Signe Flottorp @signefl.bsky.social
Northern Michigan Baylis @mkbaylis.bsky.social If you DM me for any reason, I will block you.
Paul Garner @paulgarnerwoof.bsky.social Professor emeritus (public health, infectious diseases, evidence synthesis)
Laura L. @redchickn.bsky.social Writer/editor and ad hoc political activist proudly from Oakland, CA, raising awareness about chronic illness and disability. Fight the Trump-Musk dismantling of the fed govt— now is not the time for defeatism.
Open Medicine Foundation (OMF) @openmedf.bsky.social OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
Mo Perry @momoperry.bsky.social Writer, editor, health journalist, theater artist. Contributing editor at Experience Life magazine, co-founder of Logosphere Storysmiths.
Adam Gaffney @awgaffney.bsky.social Pulmonary & ICU doctor, assistant professor at Harvard Medical School, past president PNHP, author "To Heal Humankind", dabbler, tweets my own.
Webpage: https://dradamgaffney.com/
Google scholar: https://scholar.google.com/citations?user=KChlDTsAAAAJ&hl
Community Notes and Violations @cmnotesandviations.bsky.social Community Notes and Violations research team.
@snuffleufagus.bsky.social @snuffleufagus.bsky.social
Sami Berry @fighting-4-me.bsky.social Advocate for disabled people, campaigning for change for those with MCAS, cPOTS with mutli-systemic Dysautomnia, EDS, SevereME, Haemophilia, Gastroparisis and the list goes on.
Trying to make change within the health care system!
David L Perez MD, MMSc @davidlewisperez.bsky.social Clinician-Scientist, Neurologist-Psychiatrist at Harvard Medical School | Chief, Mass General Brigham Division of Behavioral Neurology | Director, FND Unit & Research Group | Views My Own
https://connects.catalyst.harvard.edu/Profiles/display/Person/8655
DecodeME @decodemestudy.bsky.social 🧬 The world’s biggest study of genetic causes of #MECFS. Launched September 2022. 🧬 decodeme.ed.ac.uk
Delyth Owen @delytheluned.bsky.social Student nurse.
Functional Neurological Disorder advocate.
@livingmybestlyf.bsky.social @livingmybestlyf.bsky.social
Matthew Burke @mattburkemd.bsky.social Cognitive Neurologist specializing in Neuropsychiatry at Sunnybrook Health Sciences Centre and the University of Toronto
Tom Plender @tomplender.bsky.social Musician, Artist, chairman of FND Action
Carri With FND @carriwithfnd.bsky.social FND is hell.
Diagnosed with Functional Neurological Disorder in March 2022. I do my best to advocate and educate when I have the energy.
Main: @carrifjell.bsky.social
Tara F, PhD, MPH @taraf.bsky.social Health Equity & Translational health researcher | Improving healthcare services & experiences for marginalized | Part-time research associate | Renegade Research volunteer
Tampa, FL
😷🌈☮️📊📚🫂🩼♿️🗣️
#Disabled #LongCovid #PostVax #MECFS #POTS #hEDS #Lyme #AuDHD
Jon Stone @jonstoneneuro.bsky.social Professor of Neurology, University of Edinburgh. FND Research. Creator of http://neurosymptoms.org. President Elect of http://fndsociety.org
Chris Ponting @cgatist.bsky.social Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
Matthew Hotopf @matthewhotopf.bsky.social Mental health researcher and Executive Dean of Institute of Psychiatry Psychology and Neuroscience, King's College London. Views my own
Basphem @lizvius.bsky.social Actually I am an artist dog lover and avid reader
Louise Nicholls @lounicholls.bsky.social Homeowner, Brighton Marathon finisher 2017 & 2018, Auntie & friend. Living with CFS/ME 🦋🏳️🌈
@globalwellbeing.bsky.social @globalwellbeing.bsky.social
Dr Phil Parker @drphilparker.bsky.social Health and happiness researcher. Brain/mind/body innovator. Lightning Process. PhD in psychology of health. Long term side hustle -Recording artist and producer. Loves dogs and Americana.
Aaron Teasdale @aaronteasdale.bsky.social Writer, editor, photographer, adventure seeker.
Alan Carson @alancarson15.bsky.social Neuropsychiatrist Royal Infirmary of Edinburgh. Professor University of Edinburgh.
Ricky Buchanan @jeshyr.bsky.social Geek-Creative-Writer-Disabled-Bedridden-Queer-Agender-Internet Citizen. They/them
feeblebeabull @feeblebeable.bsky.social
Dr Leo Russell @leoistdp.bsky.social Psychology for Functional Symptoms - Devon Partnership NHS Trust 🏥
Intensive Short-term Dynamic Psychotherapy - Teacher & Supervisor
Researcher and Functional Symptoms Specialist. #FBPE
www.ISTDPHealth.com
@mixtapehero.bsky.social @mixtapehero.bsky.social
Niki @fizzbw.bsky.social Life~Pain~Wellbeing Coach (inc prescribed med taper support). Persistent Pain advocate, LEX, Patient Partner. “Recovery is Possible” @Fizzbw on twitter
@drgeraldcoakley.bsky.social @drgeraldcoakley.bsky.social
Zachary Grin, PT, DPT @zacharygrin.bsky.social Doctor of Physical Therapy | 🏳️🌈 he/him
Owner of Rethink Physical Therapy, PLLC | NYC
I help people living with FND take back control.
www.fnd.physio
Dr. Rachel Zoffness @drzoffness.bsky.social Pain scientist. Asst Clinical prof @ UCSF, lecture @ Stanford. Psychologist. Disruptor. Author📚 Tell Me Where It Hurts. Neuroscience nerd 🧠 #medsky #medtwitter #SciComm #neuroskyence
www.zoffness.com
Devon @devonbrady.bsky.social I daylight as a biotech girlie but tbh this account is gonna be 90% my pets- S Simon McGrath @simonmcg.bsky.social I occasionally try to explain and comment on ME research, or even contribute to it. And I advocate for more and better research.
Daniel Missailidis, PhD @danielmissailidis.bsky.social Researching the cell biology of ME/CFS since 2016, now also Long COVID and PD. Papers: https://scholars.latrobe.edu.au/d2missailidi/publications
Mady Hornig, MA, MD @mhornig.bsky.social Translational MD-scientist, mom, 🎶 | Bklyn born + bred
Pathogen/microbe-host interactions + 🧠outcomes across the life course | gut-immune-🧠 axis
#ASD #ADHD #PANS/#PANDAS #OCD affective disorders/#TRD Alzheimer’s #MECFS #LongCOVID
All posts = my views
Paul Glasziou @paulglasziou.bsky.social GP researcher @BondUniversity focused on 4 big neglected healthcare problems (non-drug treatments; overdiagnosis; AMR & waste in research); fan of #evidence-based decision making, uncommon sense & surfing. https://healthy-evidence.com/about-2/
@garmc.bsky.social @garmc.bsky.social
Rona Moss-Morris @ronamoss-morris.bsky.social Prof of Psychology as Applied to Medicine, King’s College Lindon. Trying to enhance integrated care for people with long term health conditions. Views my own
Dan Elton @delton.bsky.social Founder of @metascienceobs.bsky.social and @thegenewizard.bsky.social. I write about science, metascience, progress studies, AI, and other topics at moreisdifferent.blog.
speak the truth, even if your voice shakes.
ME/CFS Science @mecfsscience.org In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Formerly known as ME/CFS Skeptic.
https://mecfsscience.org/
EF Mallone, MSc, LLB. @erynfaye.com Behavioural scientist • Whisky’s “Nana Ferfy” • Explores life with @MissingTipsy.ca • 🧪NeuroNerd skeets on the What’s Science feed • Toronto 🇨🇦 • She/her • ♿️- B Bettje37 @bettje37.bsky.social one of the #MillionsMissing, book lover, moderate/severe ME, favorite artists Amy Winehouse and J.S. Bach, not creative at all. Brain fog very bad, please excuse weird language now and then. More of a reacting type person than initiating threads. #ME/CFS
FND Portal @fndportal.bsky.social A person with Functional Neurological Disorder. News and musings on FND, disability, and brain science. Starting a Neuroscience MSc at KCL. Research contributor at various places. When we work together we can change it for the better. He/him.
Nick Else @nick2155.bsky.social ME/POTS/FIBRO/PVFS - Mod/Admin for Millions Missing Voice Global #InstitutionalisedDiscrimination #MECFS #LongCovid