Tiffany @tiffanyandlupus.bsky.social 🗽NYC native | Da Bronx | Virgo ♍️ |
| anime enthusiast | 🩷💛🩵 |Foodie | Lupus Patient Advocate 💜 | Bookish Baddie |
2026 📚: 6/100 - 📕: Davale & Tavi by Teisha Reid
💜⚽🇭🇹♊ Xtel Bond @xtel007.bsky.social The #Gemini world is one of duality. They like this & its opposite. They do good & they do evil.
#Nerazzurri #Cityzen #TeamWoy #LupusWarrior || Co-host #LupusChat
Dr. Erin Tree @drtinytree.bsky.social Pediatric rheumatologist, mother, foodie, reader, traveler, sports fan, chocoholic | #MedSky #RheumSky #PedsRheumSky
@trishareads8.bsky.social @trishareads8.bsky.social Baking, books & coffee. Financial Services. Medical Advocacy. Opinions are solely my own. #curelupus
SQUEEZE project @squeezeproject.bsky.social Horizon Europe-funded consortium that aims to improve Rheumatoid Arthritis care through precision medicine, patient-centered approaches, and optimizing existing treatments led by @danielaletaha.bsky.social at @meduniwien.ac.at
@smallpawses.bsky.social @smallpawses.bsky.social
Bharat Kumar @bharatkumarmd.bsky.social I’m a rheumatologist, allergist, and immunologist interested in medical education and health systems research.
Ms Amanda Greene @msamandagreene.bsky.social Healthcare advocate who strives to thrive living with #lupus. #LAlupusLady #ChronicHealthPlan #CannabisCoach
Anna Fryxelius @annafryxelius.bsky.social Leder i MDGs Funkisnettverk.
Dynamisk funksjonshemmet: Går når jeg kan - ruller ellers ♿
Jobb: Fagsjef i helsefrivilligheten
🏳️🌈🏳️⚧️ She/her
Osteoarthritis Action Alliance @oaactionalliance.bsky.social We envision a nation where osteoarthritis (OA) is prevented and managed to improve the quality of life for all Americans.
linktr.ee/oaactionalliance
Juvenile Arthritis Research @jarproject.bsky.social Juvenile Arthritis Research UK charity no. 1219440
The only UK-wide charity focusing solely on Juvenile Idiopathic Arthritis, bringing hope to those with #JIA.
This account is not monitored. Please contact us via website.
Visit www.jarproject.org
Cristiana Sieiro Santos @cristianasieiro.bsky.social Rheumatologist and Clinical Researcher | JovReum | EMEUNET| University of Manchester, UK | bmj_rmdopen | #lupus #systemicsclerosis #pregnancy #epidemiology |🇵🇹🇬🇧🇪🇸
Loreto Carmona @loreto-carmona.bsky.social Rheumaepidemiologist, whatever that is, or sophisticated secretary, most seemingly. Things are fun if you look at them from the proper perspective, although some make me cry... 🍉❤️🩹 Sumud
https://orcid.org/0000-0002-4401-2551
Chris Wincup @chriswincup.bsky.social Rheumatologist specialising in lupus based at King’s College Hospital, London 🏥
Adjunct Senior Lecturer at King’s College London 🧬
PhD in Immunology from University College London 🧪
Arthritis Action @arthritisaction.org.uk We're the UK charity helping people with arthritis to live fuller lives with less pain.
www.arthritisaction.org.uk
Inflammatory Arthritis UK @inflamarthritis.bsky.social Only UK charity dedicated to all types of autoimmune inflammatory arthritis. Together we are building a future where everyone affected by IA feels seen, supported and never alone.
Weekly podcast 🎙Inflammatory! website: inflammatoryarthritis.org
Annals of the Rheumatic Diseases @ard.eular.org ARD is the leading rheumatology journal and it is committed to promoting the highest standards of scientific exchange and education.
Lupus Europe @lupuseurope.bsky.social Lupus Europe is the umbrella association of currently 31 national lupus self-help organisations throughout Europe, and supports people with lupus in Europe.
Daniel Aletaha @danielaletaha.bsky.social Rheumatologist, Medical University Vienna - Past-President of EULAR
Rosemary Ainley @rainley.bsky.social Editor/Advocacy Manager for CreakyJoints Australia/GHLF Australia. Patient advocate. Chronic conditions. Spoonie. She/her. 🇦🇺 Bunurong Country, Naarm/Melbourne.
Please share what part of the world you're in in your bio. Thanks.
The European Alliance of Associations for Rheumatology @eular.org
Dr. Che-Tzu Chang, MD, MS (AIR Jack) @air-jack.bsky.social Rheumatologist of Taiwan
Assistant Professor, Division of Rheumatology, Chang Gung memorial hospital
Former Attending Physician of Traditional Chinese Medicine
Study focus on how to integrate herbal medicine, acupuncture, and therapy of rheumatic diseases.
Dr Simon Stones @simonrstones.bsky.social 🏳️🌈 he/him • Global Patient Engagement Leader & Medical Communications Specialist • EULAR PARE Committee Chair • ✈️ • 🎭 • 📸
Cristina Montoya RD @arthritisdietitian.bsky.social Arthritis Dietitian | Living with Sjogren's/RA | Speaker | Blogger | Views my own 🇨🇴🇨🇦
Suleman Bhana, MD @drbhana.bsky.social Rheumatologist and tech nerd. OG Rheum Twitter alumni and former podcaster. Work in biopharma. Views are my own. #RheumSky
Yoga for Arthritis @yogaforarthritis.bsky.social Founded by Dr. Steffany Moonaz, Yoga for Arthritis was founded so that findings from our clinical trials could improve the safety, accessibility, and effectiveness of yoga practices for people living with arthritis in its many forms.
Cheryl Crow, Arthritis Life @arthritischeryl.bsky.social ❤️ RA patient and Occupational Therapist helping others live life to the fullest *with* arthritis.
🎤 Arthritis Life Podcast
❤️ Rheum to THRIVE: evidence based self management & support program.
https://arthritis.theenthusiasticlife.com
Atanas G. Atanasov @atanas-g-atanasov.bsky.social Lead Editor: #CRBIOTECH & #ExplorDHT | Chair of Pharmacology at DPU | Prof of IGAB-PAS | Leader: #DHPSP & #INPST | Author of #HealthHacksThatWork
🔗Web: https://digitalpatientsafety.com/atanas-g-atanasov/
❤️🔥Life of a Rheum Showgirl❤️🔥🇧🇸 @nartherheumie.bsky.social 🐛"Nevertheless, she persisted."🦋
Dublin N1
The Lancet Rheumatology @thelancetrheum.bsky.social The #LancetRheumatology is a clinical #rheumatology journal publishing innovative & practice-changing research & opinion across all #rheumatic & #MSK disorders.
🌐 https://www.thelancet.com/journals/lanrhe/home
Dr. John Cush @rheumnow.bsky.social Know-it-Now. Info on RA, Stills disease, Lupus, Gout, Pregnancy, Spondylitis, Psoriasis, Drug Safety, Rheumatology Research, Medical Education & Drug Evaluation
Rheumnow.com
WashU Medicine Division of Rheumatology @washumedrheum.bsky.social Washu Medicine Division of Rheumatology applies a multidisciplinary approach to the understanding and advancement of research, education and medical care related to rheum.
Https://rheumatology.washu.edu
BU/BMC Rheumatology @bu-bmc-rheum.bsky.social The Section of Rheumatology @BUMedicine & @The_BMC has a rich and strong history in conducting high quality, world-renowned research.
http://bumc.bu.edu/Rheumatology
#RheumSky #MedSky #Rheumatology
Donald Thomas, MD @lupusencyclopedia.bsky.social Rheumatologist empowering patients with knowledge #lupus #Sjogrens #MCTD #UCTD Tweets are my own. 🏳️🌈💜
Arthritis National Research Foundation @curearthritis.bsky.social 🔬 Advancing Arthritis Research | Funding early-career scientists to drive breakthroughs in arthritis & autoimmune disease treatments.
The Immune-Mediated Inflammatory Disease Forum @theimidforum.bsky.social The IMID Forum is an educational platform dedicated to educating clinicians around the globe on the science of immune-mediated inflammatory diseases.
CanStroke Recovery Trials Platform @canstroke.bsky.social Transforming lives through clinical trials | CanStroke is the world's first multi-site clinical trial platform dedicated exclusively to stroke recovery.
www.CanadianStroke.ca
International Patient and Public Involvement Network @ippin.bsky.social The International PPI Network connects individuals working in, involved with and interested in patient and public involvement across the globe. Join us at https://intppinetwork.wixsite.com/ippin
Lora Giangregorio, PhD @loragiangregorio.bsky.social Professor, Dept. of Kinesiology and Health Sciences, University of Waterloo, Canada
Research: clinical trials and implementation science related to exercise physiology, osteoporosis, and fall and fracture prevention.
David A. Robertson @davidarobertson.bsky.social 2-time Governor General’s Literary Award winner, podcaster, public speaker, Editorial Director at Tundra Books.
Timothy Caulfield @caulfieldtim.bsky.social Professor of health law and science policy, author, speaker, and commentator. #ScienceUpFirst
Linktree: https://linktr.ee/caulfieldtim
Vancouver Writers Fest @writersfest.bc.ca Connecting people to exceptional books, ideas, and dialogue.
📚 Special Events Year-Round
💡 Books & Ideas series January–June
📖 2026 Festival Oct 18–25
@ubcosot.bsky.social @ubcosot.bsky.social We are the Department of Occupational Science & Occupational Therapy at the University of British Columbia, Canada - OTs Grow Here
Skye Barbic @skyebarbic.bsky.social Canada Research Chair in Integrated Youth Services, Associate Professor UBC, passionate about health services, engagement, measurement, and innovation.
Daniel Silveyra @dsilveyra.bsky.social "If we are to make reality endurable, we must all nourish a fantasy or two.” Soy de Monterrey, MX. Living in unceded Tsleil-Waututh land. (He/Him)
Mark Hobraczk @mhobraczk.bsky.social Ai Arthritis Director of Public Policy based in Tampa Bay. Soccer dad and patient living with ankylosing spondylitis. University of Denver, JD. George Washington, MPA. Rutgers, BA. Opinions my own.
Jeffrey Sparks MD MMSc @jeffsparks.bsky.social Rheumatologist | Associate Professor of Medicine | @BrighamWomens | @harvardmed | Investigating rheumatoid arthritis susceptibility, RA-ILD, and outcomes
Tina Aswani-Omprakash, MPH @ownyourcrohns.bsky.social #IBD #DGBI #AIH Patient Thought Leader
CEO & Co-Founder of the nonprofit SAIA / IBDesis
Founder of OwnYourCrohns.com
Seth Ginsberg (GHLF) @seth-d-ginsberg.bsky.social Passionate health advocate | Co-Founder of GHLF & CreakyJoints | Champion for equitable healthcare access | Let’s reimagine chronic disease care together.
Monika Szpunar @monikaszpunar.bsky.social PhD in Health & Rehab Sci. Knowledge Mobilization Associate at Arthritis Research Canada. Sectional instructor at Western University. Views are my own.
Arthritis Research Canada @arthritisresearch.bsky.social We are a national hub dedicated to clinical arthritis research, with over 100 scientists, trainees, and staff working across five provinces.
Alyssa Howren @alyssahowren.bsky.social Postdoc Fellow @Stanford EPH • PhD @UBC • studying #arthritis and #mentalhealth
Author Lauren Logan @authorlaurenlogan.bsky.social Project info on my website ✨🦂
Dark Scifi Romance Author 👽🌶️🦇
Disabled-RA 💉
ADHD/INTJ 🏳️🌈🏳️⚧️
She/they anything works
Art by Zach Simpson
Jaime Holland @prettyrottenguts.bsky.social Professional loudmouth (public speaker) with a crush on public policy. I also write, edit, and manage projects for humans in the healthcare and chronic disease space.
Shinji Izuka @shinjiizuka.bsky.social Rheumatologist, M.D., Ph.D. | myositis, lupus, bioinformatics | @bmj_rmdopen, @ACRheum International Adviser, @lindaunobel | 🏐⚽️🐕
Minister Denzil Carnegie @lloydmill.bsky.social 🇨🇦 🍁 🇨🇦 Faith Family Outreach Ministry focuses on sharing the good news of salvation to all nations Jesus Christ teaching on repentance and forgiveness of sins to all nations Toronto Ontario Canada 🇨🇦 ♥️ ❤️ 💙
CMcG Rheum @medicastra.medsky.social #Hospital, #MD, #Rheumatology, UK based.
A chemistry PhD & pharma bg, came to medicine late
Scrolling is a distraction from taking action. Pick some concrete way to help & get to it.
@twofishnocat.bsky.social for the likes/hobbies stuff
CANTRAIN - Clinical Trials Training Programs @cantrain.bsky.social Competency-based clinical trials training driving Canadian access to healthcare innovations and better patient outcomes. wecantrain.ca
ACR Journals @acr-journals.bsky.social Official journals of the American College of Rheumatology:
Arthritis & Rheumatology
Arthritis Care & Research
ACR Open Rheumatology
SoMe Editor: Karen Costenbader, MD, MPH
Gracefully Jen @gracefullyjen.bsky.social Patient Leader
Founder of My Spoonie Sisters Pod Supporting YOU through diagnosis #rheumatoidarthritis #psoriasis
Pain News Network @painnewsnetwork.bsky.social PNN is an independent, non-profit online news service that provides in-depth coverage about pain from the patient perspective, without corporate or government influence. Sign up for our free newsletter here: https://rebrand.ly/survey-powered-4d995b
Cathy Browne 🇨🇦 @cathybrowne.bsky.social Proud Canadian 🇨🇦 Award-winning journalist/host at CBC Vancouver. Creator #AccessDenied #BetterLate. Blind photographer, disability advocate, speaker, hugger. Loves curling, cats, politics and trivia. She/her.
Carrie Marshall - MySeveralWorlds.com @myseveralworlds.com ✒️ I write about life with severe #ChronicPain related to #SpA #PsA #MEcfs #fibromyalgia #APS
🦋 MySeveralWorlds.com
👩🦼 #DisabilityAdvocate
🤝 Team Fibro & Spondylitis
🎨 DISABLED ARTIST
🌴 https://linktr.ee/myseveralworlds
crohnsguy @tattoobrit.bsky.social
Pat Rich @pathealth.bsky.social Canadian medical writer, editor and content curator
Alison Hoens @physioktbroker.bsky.social Clinical Professor, Knowledge Broker, Physical Therapist, Knowledge mobilization specialist
Frank Beier @beierlab.bsky.social Researcher working on skeletal biology & #osteoarthritis. Chair of Physiology and Pharmacology @westernu. Living with stage 4 #AdenoidCysticCarcinoma. Interested in environment, EDI, & other woke things.
www.westernconnect.ca/beier
Rhiann Johns @serenebutterfly.bsky.social Blogger documenting life with chronic illness and disability. Aside from posts about the chronic life, I am an avid reader, and a square-eyed binge-watcher of TV and films
http://brainlesionandme.com
@angeladegrassi.bsky.social @angeladegrassi.bsky.social
CreakyJoints® @creakyjoints.bsky.social Community of people living with arthritis & rheumatic disease.
EST 1999.
Asociación AMELyA Lupus Madrid @lupusmadrid.bsky.social 🌟 Asociación Madrileña de Lupus 🌟
🦋 Apoyo, visibilidad y recursos para personas con lupus.
📢 Difundimos información fiable y promovemos la investigación.
🌍 Únete a nuestra comunidad y ayúdanos a marcar la diferencia.
www.lupusmadrid.org
A @gilled7440.bsky.social
Paula Lindner @drpaulalindner.bsky.social Scientific Product Manager at Gentian
#Biomarkers
#CardioSky #HeartFailure
Views expressed are my own.
Mark Goldfield @murasakinobiba.bsky.social Science fiction and fantasy reader and fan since childhood. Retired. I love cooking. I have been trying to learn Japanese language and brush calligraphy, but am not very good at either. Interested in rheumatology.
Mrinalini Dey @drminidey.bsky.social Clinical Research Fellow and Registrar in Rheumatology & Internal Medicine at King’s College London. Interested in social determinants of health, comorbidities and inflammatory arthritis.
miravox @miravox.bsky.social Aotearoa New Zealand
Profile Pic: 'Out of Step', Donau Kanal (2016)
Banner: Albatross fountain, Wellington
Geographer
Specialist subject: health services access- RA/autoimmune arthritis
Opinions my own
Sorry for the typos 🧐
Kristen @kristenyoung.bsky.social rheumatologist & patient/advocate | #meded & #rheumatology, #rheumsky, #medsky
Kate Dunn @katemdunn.bsky.social Professor of Epidemiology. Musculoskeletal pain and primary care researcher. Interested in research on pain in children, young people & over the lifecourse. #KeeleMSK Views are my own.
Una Makris @unamakris.bsky.social Rheumatologist, #Aging research. Dallas VA #hsr #UTSW. Improving outcomes most relevant to older adults w #mskpain #GeriRheum
Also mama, wife and mentor
@estelamata.bsky.social @estelamata.bsky.social
@juanamata.bsky.social @juanamata.bsky.social
Familiar Study @familiarstudy.bsky.social Research project looking to improve Shared Decision Making in family planning for women with an Inflammatory Arthritis. FAMILIAR Study participants and stakeholders have co-produced intervention, to support patients & NHS staff create personalised care.
Arthritis & Implementation Science Lab at UBC @arthritis-ubc.bsky.social We focus on research in #Arthritis #PhysicalActivity #eHealth #KnowledgeTranslation #ImplementationScience #PatientEngagement
https://arthritis.rehab.med.ubc.ca/
Linda Li @lli-1.bsky.social Professor of Physical Therapy | Harold Robinson Chair in Arthritic Diseases @UBC @Arthritis-UBC | health services & implementation scientist
https://arthritis.rehab.med.ubc.ca/
Codie Primeau (he/him; il) @codieprimeau.bsky.social 🇨🇦🏳️🌈 EN/FR
• Physio & Research - #arthritis, #pain, #rehab, #LGBTQ+, #engagement
• Assistant Professor - Western University
• Arthritis Research Canada
📍 Anishinaabek, Haudenosaunee, Lūnaapéewak and Attawandaron territory - colonially London, ON
Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social Writer | Educator | Patient Advocate
floatlikeabuttahfly.blogspot.com 🦋 buttahflyk.substack.com
🦋 Kaleidoscope Rare Disease Stories a.co/d/ia0zSim
🦋 Columnist | Sarcoidosis News
🥄🕊️ #BLM #defy🧹#resist #SarcStrong #ZebraStrong🦓 #AlwaysCoordinated😘 she/her
@afternoonnap.bsky.social @afternoonnap.bsky.social
Nicole Rennie 🇿🇦 @nicolerennieza.bsky.social EdTech Coach | #GoogleET | Common Sense Educator | Sharing the empowering tools of @Kamiapp with Teachers & Students around the World 🌍
Bob Pickard @pr.bobpickard.com Principal, Leadership Communication Inc. Public relations for newsmakers. 30+ year comms career @ 🇺🇸🇨🇳🇯🇵🇨🇦🇰🇷🇸🇬 Served as CEO of Burson in Asia and North Asia of Edelman. Former MDB global comms chief. PRC state media says I perform “purely sensational hype.”
A Chronic Voice @achronicvoice.com I share #ChronicIllness, #ChronicPain, #disability & #MentalHealth info from VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy Open to constructive chat, will block overly opinionated people.
https://achronicvoice.com/
@joannanobbe.bsky.social @joannanobbe.bsky.social
Libby Humphris @libbyhumphris.bsky.social Public contributor | Honorary Research Associate @CardiffUni | Advocate for women’s health, rare diseases & shared decision-making | Co-lead, Public Engagement @EvidenceCentre | Breaking down barriers for patients & the public ✨ Crocheter & Rescue Dog Mum
Andrea Tricco @andreatricco.bsky.social Executive Director & Tier 1 Canada Research Chair, Li Ka Shing Knowledge Institute; Full Professor, University of Toronto; Co-Editor in Chief, Journal of Clinical Epidemiology
Michelle Ronback @mronback.bsky.social Introverted extrovert, lover of animals, underdog supporter and nerdy music nut!