Annet Kirabo D.V.M., M.Sc., Ph.D., F.A.H.A. @annetkiraboc1.bsky.social Professor @VanderbiltHealth #Hypertension, #kidney, #immunology #HostMicrobiotaInteraction. Mother of 2, wife. Associate Editor @CircRes
Alt National Park Service @altnps.bsky.social The official "Resistance" team of U.S. National Park Service. Our website: www.ourparks.org
Hank Green @hankgreen.bsky.social Long Time Internet Guy
RikkaPik @rikkapik.bsky.social Suffering from ME/CFS, turning to art to keep (almost) sane. PTSD survior, broken brain lefty and demiace Gen X.
Some stuff:https://www.deviantart.com/rikkapik
Brianne Benness @bennessb.bsky.social currently: sick / haunted in Western Mass, host of No End In Sight - a podcast about life with chronic illness, creator of #NEISVoid | previously: Stories We Don’t Tell in Toronto | she / her
Richelle Sepulveda @richellesepulveda.bsky.social Long Covid, MECFS, ADHD, etc.
Patient-led research is my jam.
A bit obsessed with GIP.
Whitney is Wicked @itswhitneywitch.bsky.social Disability Justice
Living with ME, EDS, POTS, MCAS, vascular compressions, spinal comorbidities & more
Ambulatory wheelchair user
Cozy gamer, lazy gardener, hopeful baker
Wendy Kloiber @wendykloiber.bsky.social So did the divine right of kings. Long covid class of March 2020, the kind with ME. Would like one more tattoo, minimum. She/her. Ashland, WI —> MSP.
Matthew Cortland (they) @matthewcort.land Chronically ill public health JD writing to make sense of the policy hellscape so you don't have to do it alone. Actionable analysis & trustworthy guidance for people the system wasn't built to protect. Free & paid: ShouldntNeed.com
Sr. Fellow DFP. 🏳️⚧️nb
Imani Barbarin @imanibarbarin.bsky.social Disabled Loudmouth.
https://www.canva.com/design/DAFjqA7WtS0/11YO6Ql6Yl9J792_jipiwQ/edit?utm_content=DAFjqA7WtS0&utm_campaign=designshare&utm_medium=link2&utm_source=sharebutton
María Richardson @diatoma.bsky.social Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS #LongCovid
Brian Vastag @brianvastag.sciencemastodon.com.ap.brid.gy Occasional science reporter at The Washington Post and elsewhere. Disabled by complex chronic post-viral illness. Living on #Kauai #Hawaii. Sometimes […]
🌉 bridged from https://sciencemastodon.com/@brianvastag on the fediverse by https://fed.brid.gy/
Debra Guckenheimer, PhD @debraguckenheimer.com Writer, activist, artist, teacher, sociologist, 🥄 , neurodivergent, disabled, queer, single mom.
🏳️🌈 Pronouns: she/they
debraguckenheimer.com
#livingwithableism #resist
Angela MV (she.he.they) @angelamswinca.bsky.social 🦠😷♿️#LongCovid disabled | 📢 fmr prez Body Politic | 🏠LAX | ⚖️health justice | ✊🏽✊🏾✊🏿racial justice
alt text profile pic: tan skinned person in a tan KN95 mask and suit, dark wavy hair with short bangs
Jodi Ettenberg @legalnomads.com Once a lawyer, then a celiac travel writer. Now disabled, writing about curiosity & health.
Travel writing & gluten-free guides: legalnomads.com
The best things I read each month: jodiettenberg.substack.com
MCAS, meditation, & health: jodiettenberg.com
Sabrina Poirier @sabrinapoirier.bsky.social #CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis +
#MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability
(Unceded) #Canada
https://linktr.ee/sabrinapoiriercanada
Dr. Sabine Hermisson 🦋 @sabinehermisson.bsky.social PD Dr. (religion, empirical education research)
mother of Mila who suffers from very severe ME/CFS (Bell 0)
https://milaandmecfs.files.wordpress.com/2022/05/mila-spiegel.pdf
Vienna, Austria
#CleanAir
Tess Falor, Ph.D. @tessfalor.bsky.social Founder - Renegade Research
#MECFS #LongCovid
Bridget Copley PhD @moppety.bsky.social Parisienne Buffalonian linguist spoonie mom. http://bcopley.com "The line separating good and evil passes...right through every human heart." -Solzhenitsyn
Kerstin @sannara.bsky.social #MECFS #MILLIONSMISSING #MEAwareness
#PEM #POTS #MCAS
#PostCovid #LongCovid
#TeamWissenschaft #GdB
https://www.mecfs.de/was-ist-me-cfs/
https://www.psychotherapie-mecfs.de/
Ben H @benhmecfs.bsky.social ME/CFS patient advocate, Open Medicine Foundation science correspondent. Bedbound. Former: exercise physiology, biochemist in training, athlete-Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
Cort Johnson @cortjohnson.bsky.social Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
elisa @mildtin.bsky.social Usually a lurker, Chronically Online for #LongCovid and other #IACC | Australia
Cate @midcatecrisis.bsky.social I have had myalgic encephalomyelitis (ME) since 2020 and spend the majority of my time in bed, of necessity. Mostly homebound. I used to be a climate activist, but spend any available energy parenting now. FUNCAP 2.5
Toronto, Canada
Autigender She/they 😷
Emmi Skyten @emmiskyten.bsky.social Sustainability science studies on hold because of POTS + Long covid / suspected ME. Previously interesting, now mostly into resting.
Here to connect with other sick people and for science stuff.
TwoShaws @twoshaws.bsky.social #MyalgicEncephalomyelitis #pwME #SevereME #HyperPOTS #MCAS #PEM #PostExertionalNeuroImmuneExhaustion #PostExertionalSymptomExacerbation 😷
melinda_is_done 💦 @melindaiscomplex.bsky.social My body has given up but I haven't...
Bed-tethered disabled Advocate on hiatus (but RESISTing) due to severe ME & LC & comorbids. Co-founder #MEAction Maryland.
Orioles/Ravens/Caps fan. She/her
🩷💜💙
Fen van Rhijn, MD @fvrhijn.bsky.social MD | rheumatology resident
#ME due to #LongCovid
Nonbinary 🌈🌈🌈🌈 | views are mine. 
Josh @properchels34.bsky.social Long Covid, ME/CFS, POTS…. For now 
Guus @guusontheinternet.bsky.social Creative turned activist #NietHersteld - Long Covid since jan’21 ♿️ - posts with brain fog, so pls bear with me - eager to learn - posts in 🇬🇧 & 🇳🇱
Brian Fog @uselesspriest.bsky.social Long COVID, mild, since Apr 2022
ME / Long COVID diagnosed May 2024
Michael Sieverts @yogafogie.bsky.social DMV native. COVID long hauler. Patient-Led Research Collaborative.
Julia MV @julialmv.bsky.social Long COVID patient-researcher
@ Scripps Research & Patient-Led Research Collaborative
Katie Klocksin, by the wayside @katieklocksin.bsky.social One of the #MillionsMissing with #LongCovid #MECFS JohnVsJon.com // Once a radio and podcast producer, always a Transom alum // native plants
🌻🪻🌼
Lonnie R Marcum, PT BSHCA @lonniemarcumpt.bsky.social Wife/Mother, Science Writer, PT, HC Admin, Disease Detective, Voracious Reader, Connoisseur of Coffee, Graduate CSUN, Olive Farmer, HHS 2019-2022 Tick-Borne Disease Working Group, CDC Fdn ICUE patient advocate. 
Cindy L @cuboidalhug.bsky.social 
Anna Kerr @annajk.bsky.social ME patient, art appreciator, advocate, mother.
Rachel Riggs @rachelriggs.bsky.social Author of IN GOOD HEALTH: Uncomplicated, Allergen-Aware Recipes For a Nourished Life
instagram.com/the.rachel.riggs
#EDS #MECFS #Food
#paleo #glutenfree #dairyfree
C Barrel @carolbarrel.bsky.social I enjoy cats and bicycles. I much less enjoy my chronic illnesses. #pwME 
Christina Steiger @steigerecon.bsky.social Assistant professor of economics on medical leave from Northeastern University; macroeconomics, growth and development. Severely ill with MCAS/POTS/EDS/ME. Catholic convert who loves the balance of faith and reason. Native Oregonian. 
Naomi Harvey PhD @naomidharvey.bsky.social Zoologist & veterinary research. She/her.
22yrs with #MEcfs Pro-vax but vaccine injured. Life on pause due to moderate/severe ME/CFS ♿️
Patient Expert in ME/CFS, POTS and syndromic Long Covid.
Please excuse my typos.
Julie for M.E./LC treatment 😷 @dualiejulie.bsky.social In LongCOVID/M.E. hell looking for a way out! First wave Longhauler.
Trying to get my personality back from the disease.
Very cute dog.
Shelley Jules @shelleyjules.bsky.social MECFS from the long before times but not diagnosed for 23 years…LC since 2020 - interested in advancing patient led research (Renegade Research & Remission Biome) & all avenues that lead to effective treatments for everyone. She/her. Love is my language. 💖
Riemerville @riemerville.bsky.social Salty | #LongCovid,#POTS & #ME | Books, Music, Food, Art #ATXRE | Excuse my typos
We are living in a choose-your-own dystopian novel
victoria @vashetc.blacksky.app † doktora | research+policy | perpetually horizontal
ID’s: Brown skin grl w/ curly hair wearing shirt that says hot girls arent ableist. Banner: Sepia picture of a couple married w/ family around.
vashetc.com | restandmecfs.com | survivorsandallies.com
Regina M @rejayjay.bsky.social Silly Chicago girl, marketing professional, long covid patient. No DMs unless you donate to the mutual aid I repost. 💜
Kayli Jamieson @wanderingkayli.bsky.social @wandering on Instagram ✍🏻
Disabled with Long Covid 52+ months
Long COVID Researcher @sfu-fhs.bsky.social
Master’s in Communication
kaylijamieson.notion.site/research
Wilhelmina Jenkins @wilhelminaj.bsky.social Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
Brian Shuell @bshuell.bsky.social 
Karrie @karriehiggins.bsky.social Writer, Artist, Ink-Maker, Psychogeographer. Two Best American Essays notables; Schiff Award; NEA/Iowa Arts Council grantee. http://www.karriehiggins.com
Jen Dupuis @jendupuis.bsky.social Disabled librarian turned writer • 📚 • Mom to rescue dog Clara & cat lover • #amquerying GenX nostalgia book club fiction • 🚫GenAI
📚 🐕 🐈 💙
jendupuis.com | Detroit, MI | she/her
Marie Follayttar @mariefollayttar.bsky.social
Sea Glass Collector -Advocate - Artist - Poet-Community Organizer - Political Strategist
Disabled Director of Mainers for Accountable Leadership(leave)
Rare Chronic Cancer survivor
Long Covid, Me/CFS
Autistic
Occupied wabanaki
Paula Knight 🎨✒️♿ @paulaknight.bsky.social Author, illustrator, comics creator
THE FACTS OF LIFE (Myriad) Kidlit Books x3
Words and pictures
https://linktr.ee/paulajknight
https://www.redbubble.com/people/PaulaJKnight
https://ko-fi.com/bedscapepaula
Bedridden #MEcfs ♿ TAC/ Migraine
CK DexterHaven 🍂🍁🍂 @ckshowalter.bsky.social Chief Cat wrangler @HouseOfPotats. I foster cats and tiny kittens. I also do pet hospice mentoring. companionanimalpawspice@gmail.com
Home of KittenHappyHour/Emergency Kitten
♿️ Long🦠,🐈, TexPat, CO, Wx
Colleen Steckel @colleensteckel.bsky.social Advocate for #MyalgicEncephalomyelitis using ME-ICC.
Contracted ME in 1989
Substack: https://colleensteckelmeiccinfo.substack.com/
Volunteer at www.MEadvocacy.org
Aspiring writer of paranormal fiction
Rachel Bean, still sick but less @colocharachel.bsky.social living on SSDI since 2/24; disabled out of work since 9/21
• I SAID I LOVED YOU AND I WANTED
GENOCIDE TO STOP -June Jordan
• “All flourishing is mutual” -Robin Wall Kimmerer
• “aching and alive” -Florence Welch
• Ojibwe land; Pine County, MN
• she/her
sleepy midwife @sleepymidwife.bsky.social Midwife on a sleepy sabbatical; Listening for those as yet unheard; Mama to many; DJ; Lover of history, botany, physiology, music, justice, & kindness; Trans rights are human rights; Black Lives Matter
~living with ME/CFS 🫘
Tyffiboo 💃🏽 @tyffiboo.bsky.social 👩🏽🦯🦓🥄 ~Tiff E. Boo ~My love languages are oxtail and mangoes ~Pronouns: Her/She/G ~Adjectives: Bootylicious ~Hoochie Mama Advocate
~Perfecta of the Osteogenesis 💅🏽🦴
-Wear yo MASK 😷
SandyLee🍁 @leeram.bsky.social What the hell is going on? Dabble in many art forms when able. 📎 goldendoodlemama
#ME
Brent Forman 🇨🇦 @joeblow604.bsky.social Living with Myalgic Encephalomyelitis since 2011. Artist, Advocate, Creative
Former Electro-Mechanical Prototyper
Inclusive
#pwME #MECFS #MCAS #POTS #Fibro #LongCovid #Disability #chronicillness
#art #artist #painting #oilpainting #digitalart #photography
Anjali Forber-Pratt, Ph.D. @anjalifp.bsky.social 2-time Paralympian & Medalist. Disabled Researcher. Disability Activist.
Linda @lindaoh.bsky.social Interested in
history, disability, politics, chronic illness. Loves animals, dry white wine, chocolate and my bed. Irish.
ADHD, ME sufferer. Cat and dog person.
FionaMECFS @fioname.bsky.social Victoria, Australia. Former professional wordsmith. 16 years living with the hell of myalgic encephalomyelitis (ME/CFS). Prone to so-called left-wing views & bingeing good TV 🤓- A Andrew Green @andrewg76201347.bsky.social ME/CFS, POTS, MCAS, lupus, Hashimoto’s. Patient & carer. Disabled scientist. Female - using fake name bc I post about son's illness. Location: Australia
Carrie Anna McGinn @carriemcginn.bsky.social Infection-associated chronic illness advocate | Life sidelined by #LongCovid #MECFS #POTS | #PatientPartner | MSc | Mom | She/Her | 🇨🇦 #Canada #Quebec
#CovidConscious #StillMasking
#MyalgicEncephalomyelitis #pwME #EMSFC
#CovidLongue #CovidLong #pwLC
Andrew Gifford @andrewgiffordphoto.bsky.social Depleted human. Slowly making photographs about a life with ME/CFS, like Long Covid.
https://linktr.ee/andrewgifford.photography
Bristol, UK. 335.42 ppm. He/him/oi.
Jeannemaire @jeannemcardle.bsky.social 
Skibbity Flee @skibbityflee.bsky.social Health and mental health advocate
Schizoaffective BP1, BPD, CPTSD
Leukemia, Fibromyalgia, CFS
Sarah Hodges @slh82.bsky.social Lover of animals and wildlife/nature 🐶🌷 TV dramas, films, photography, art, news/current affairs
Living with severe M.E #pwme #mecfs #fibromyalgia
Chloe | Writer, Journalist ✨✒️ @wordsbychloe.bsky.social freelance books, culture & ♿ journo/editor/copy | author 🖋️ romantasy w/ messy, disabled girls | rep: Maria Whelan @ Inkwell | words: Independent, R29, Grammys, Fast Company, Bookseller etc | AuDHD | https://linktr.ee/WordsbyChloe | chloe@wordsbychloe.com
Hugo @mxworldwide.bsky.social They/them | 28 | ME/CFS since 2016, very/severe since 2022 after covid | Severe hyperacusis
Mostly post about ME but will share things relating to disability justice, leftist & queer issues and Palestine 🇵🇸
In "Australia" on Wurundjeri Country
Heather @celticghirl1888.bsky.social Family & Friends .. Celtic FC .. Scottish Independence Supporter .. Walking .. Music .. Cats .. Darts .. Festivals .. Theme Parks .. Laughter .. Mental Health Awareness .. Chronic Pain Warrior 💚
Graeme Murray @gmuzz.bsky.social Looking for a quieter life away from X.
20+ years in #sustainability and still fighting the good fight. Also championing / struggling with #mentalhealth and #MECFS since 2017. #PwME.
Might even mention #LFC occasionally. #YNWA
Feel free to connect. 😁
Resilience Beast @resiliencebeast.bsky.social Ecology-botany nerd, agricultural policy, #Herbalism, sustainable #Organic food, farming, leftist, #Disability and chronic illness advocate, trans non-binary queer, writer and artist 🚫 AI! #Agroecology #HumanRights 🍉♿️
alana @birdbone.bsky.social life on pause. mostly here for #LongCovid #MECFS community. currently very severe. other interests may include climate, music, sports, queer stuff (she/her)
Stewartoons @stewartoons.com Creator of Vamps' Scamps, an indie animated family comedy. Ringo Award Nominated writer. Visually impaired goof.
♿ POTS/MALS/EDS
😎 Bro-nouns: He/Him
🚫 No AI
🧠All art made by an Actual Idiot
🏳🌈Trans Rights or I Bite
Prev: Freelance Animator @ Adult Swim
Phil Latouche @platouche.com Business Analyst | #longcovid #PASC #patientpartner | Long Covid advocate
Analyste d'affaires | #covidlongue #covidlong #PACL #patientpartenaire #quebec | Défenseur de la COVID longue
Abby @abbyneedsanap.bsky.social Housebound neurodivergent artist with Myalgic Encephalomyelitis #MECFS, POTS, MCAS, FM.
Enjoyer of cozy fluffy things, tea, books, and the way the light filters through the forest.
Passionate about animal welfare + nutrition, the paranormal, & weather.
@iamowl.bsky.social @iamowl.bsky.social
Public Health & Social Welfare Advocate
Hobbies: reading, arts, learning, exploring, planning ahead, finding ways to be useful.
Shevi @radicalchick24.bsky.social Disabled former special collections archival processor and historian. Severe ME/CFS, POTS, Long COVID, MCAS, Chronic Migraine,
Connective Tissue Disorder, CSF leak, etc. 😷 Mask up and protect both yourself and everyone else!♿️
She/Her
There will be cats 🐈⬛️
Clairemont @americanabroad.bsky.social Dual 🇺🇸🇬🇧citizen
Politics poster ... 🌏🏳️🌈AuDHD ME/CFS 🏳️⚧️🇺🇦🇵🇸
DMs only if we've an established relationship.
Hippymum @hippymum.bsky.social Happily married. Fighting to get through one day at a time. 43 years with M.E., hEDS, POTS, COPD, Fibromyalgia, Osteoarthritis, Scoliosis, Reynauds, and a whole heap of other crap. I've no quality of life, mostly bedbound and hate it.
@lifeatthewindow.bsky.social @lifeatthewindow.bsky.social Disabled. Living with severe M.E. Watching the world from the window while bedbound. Excuse typos etc, sometimes the cognitive bits don’t work. Also posting on endometriosis and a little on mental illness too 🏴
Mik Rosenhofer @mikrosenhofer.bsky.social Formerly Mik Everett. Author of MEMOIRS OF A HOMELESS BOOKSTORE OWNER. Believer in hope & holobionts. My W.I.P. is called either LAND OF PLENTY or BANANALAND depending on my mood.
https://linktr.ee/mikrosenhofer
Jackie @4eyedgoat.bsky.social She/her
#millionsmissing #pwME since 2021
click clack kleck, the 12 finger turbo telegrapher @isntbel.bsky.social 23 🏳️🌈🏳️⚧️♿️ cursed by god but can’t die
jew for a free palestine 🇵🇸
former: biggest baby in the NICU
current: out of work with a 2nd TBI and living in the moment 🤪
gender: twink with big naturals
hobbies include: going on the internet & telling lies
CIDSA sec 🌹
Meg Samuelson @coastalthinking.bsky.social Sea-creature, shore-dweller, gardener. #LongCovid #MECFS #POTS. Engaged Buddhism.
i used to think read write teach (literatures of the South/Africa/Australasia/Indian Ocean & climate, colonialism, environment, littorals, the sea, water, women’s stories)
Sanni Winter @sannibenke.bsky.social Originally a creator of colorful things but all i have left is my sword of words written in the dark. Former psychologist. Mom x 2. Life on hold by very severe #mecfs. Here to join the #pwme community.
Sharing #bookrewievs and #liMEricks.
Kassidy | Technodivergent @technodivergent.bsky.social Information Security Professional | 🏳️⚧️🏳️🌈 Nonbinary Lesbian | #ActuallyAutistic #ADHD | she/they
beck @beckisliving.bsky.social 22 yo w/ ME, PoTS, MCAS & ASD
wheelchair user
covid cautious
previously severe, now moderate-severe
she/he, genderfluid lesbian
http://lifeasbeck.wordpress.com
Michael Nobbs @michaelnobbs.bsky.social Artist and tea drinker living on a hillside in Wales.
Learning to live a gentle creative life and encouraging others to do the same.
Diagnosed with #MECFS in 1997.
www.patreon.com/gogently
https://linktr.ee/michaelnobbs
✍️🧶
Snazzy Pants! 🌹🌈❤️🧡💛💚💙🩵💜🌈 @snazzypants01.bsky.social 🦋 #Resister 🌎Amateur Wordsmith | 🐢Introverted Soul w/ Extroverted Moments | 💜Animals 🧡Music 💚Nature 🩵Photography | 🦚Optimistic Survivor | 🦥 Weirdo, but in a good way | 🏳️🌈 #LGBTQ+ | 🦔 #Booster | 🦩Married | 🦒Quirky | 🐳 🚫Crypto 🚫Porn 🚫DMs
Angel @acap42.bsky.social Surviving on spite & Eurovision hype*
Reading The Wheel of Time. Again. 🔄
She/her 💖💜💙
Masked Queen in her revenge era 😷🥄🦓
*Side-eyes EBU… 99% fuelled by spite.
Litsa Dremousis @litsadremousis.bsky.social ALTITUDE SICKNESS (Future Tense Books). Upcoming: A EULOGY FOR THE LIVING. Left WaPo b/c of Bezos. The Blvr, Esquire, Flare Lit Mag, McSwy's, NPR, NY Mag, NYT, Pictura Journal, P&W, PW, The Rumpus, Short Beasts, et al. #pwME https://litsadremousis.com
ashe 🥄 ♿ 🏳️🌈 @themeeplife.bsky.social #pwME since 2004, when I was 22. Homebound, mostly bed bound. Currently battling breast cancer. #postviral #MECFS / #POTS / probably #MCAS #actuallyautistic
I make websites.
G+ person.
AutumnSun9 @autumnsun9.bsky.social Joined Bluesky Nov 7, 2024. Ocean girl forever 🐬
I ❤️🔥 science, nursing, film noir, art, guitars, protecting animals, people, ocean & earth, 60s70s rock, lite jazz, giive me humor.
Medically Induced Hermit @fallsthroughcracks.bsky.social • Spoonie🥄 • I ❤️ Nature & Wildlife photos 📷 • #ME/CFS • Healthcare worker (COTA) until disabled with multiple chronic illnesses & chronic pain • HERmit • Armchair Traveler • Slipping through the cracks = Medically Induced Hermit 👎•
Tiff @creativetiff78.bsky.social I'm in N. California, 47 y/o Married, Chronically Ill ( #SmallFiberNeuropathy, #mecfs, #migraine, #dysautonomia, #hEDS, #fibromyalgia, #HS) retired LCSW, disabled
#artist #knitter #witch #advocate #writer
Bi 🌈🧙♀️🦥🥄🧶🎨🌻💙🌊
https://linktr.ee/CreativeTiff78
MichiganGoat @michigangoat.bsky.social A Chicago #Cubs fan. Suffering from #MultipleSclerosis for 30 years. F-CK the Orange King! He will prevent any life-changing medical breakthroughs to keep me alive. I am the #marxist #communist, #wokeAF #liberal you hear about.
🤬I WILL NOT BE SILENCED! 😡