Andrew Gifford @andrewgiffordphoto.bsky.social Depleted human. Slowly making photographs about a life with ME/CFS, like Long Covid.
https://linktr.ee/andrewgifford.photography
Bristol, UK. 335.42 ppm. He/him/oi.
ME/CFS Science @mecfsscience.org In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Formerly known as ME/CFS Skeptic.
https://mecfsscience.org/
ME/CFS News @mecfsnews.bsky.social News, interesting information and commentary on ME/CFS.
Kevin Roose @kevinroose.com NYT tech columnist, Hard Fork co-host, best at 0.8x speed
lukelukeluke @lukelukeluke.bsky.social I’m not here to post my THOUGHTS. I’m not here to share IDEAS. I’m here to post PICTURES OF MUSHROOMS and BE AN IDIOT
Get your mushie-mail! > cheerful letters filled with mushroom-themed stickers, news, and more! Patreon.com/luke_venechuk
Geoffrey Mesbahi @geoffreymesbahi.bsky.social PhD - Agroecology and animal husbandry.
Grasslands, agroforestry, ruminant nutrition and animal behaviour. FiBL, Switzerland 🇨🇭
He/Him
Sue McBean🇺🇦⛵️💚🌱✍️📸🔸🐸 @organicbotanic.bsky.social Public Health academic, #IDSky, sailor⛵, photographer, botanist🌿, writer: memoir, poetry, children’s stories. Identiplant, AI, education, climate, UCU, 🦠Covid 🇪🇺N Ireland 🐸 Resist
Blue Sky 3/9/23
🚫🚫b0ts, zero posts, accounts with ++b0ts following, no biog
Lyric Rain @rainsong.cloud Artist, AuDHD, disabled, bi & non-binary.
Pfp is white lightly fem-presenting face, smiling, short dark hair, glasses, blue lipstick. Banner is abstract kalaidescope swirls.
Here for news, real people, and to be nice to artists.
(Used to be Rune)
Linz @chronicallylinz.bsky.social scientist, artist, stack of illnesses in a trenchcoat; listening, learning, trying to do better. disabled #pwME - no energy for anything much. she/they.- H James Foulger @harrysgame.bsky.social Engineer, ME/CFS
Kathleen Dennis @kathdennis.bsky.social Advocate Post-Acute Infection conditions, ME, LC, West Nile virus|prev @MSF|prev RN| disabled by a 🦟
ME Advocacy Project @meadvocacyproject.bsky.social The ME Advocacy Project is a grassroots initiative founded by individuals living with post-infectious illnesses Myalgic Encephalomyelitis and/or Long COVID.
Unceded Canada
ME/cvs Vereniging @mecvsvereniging.bsky.social Patiëntenvereniging die zich inzet voor mensen met ME/cvs en hun omgeving. Op naar meer erkenning, kennis, steun en zorg voor ME/cvs patiënten.
www.me-cvsvereniging.nl
Dx Revision Watch @dxrevisionwatch.bsky.social Formerly monitoring/reporting on developments with ICD-11, ICD-10-CM, DSM-5, SNOMED CT & other classification and terminology systems
Jacqz-MEwarrior_au @mewarriorau.bsky.social ME advocate longing for a cure, or some form of treatment. Mum of 3, grandmum of 3. Lived with the horrendous & disabling disease #ME (not CFS) for 28 years.
#MyalgicEncephalomyelitis #pwME #MyalgicE (#MECFS #CFS) #LongCovid #ChronicIllness
Millions Missing France @millionsmissingfr.bsky.social Asso de patient·e·s. Pour la prise en charge de l'encéphalomyélite myalgique #EM en France et le développement de la recherche.
Entraide & soutien 🤝 www.millionsmissing.fr
🔴 Membre de World ME Alliance.
The Real ME 🏴👩🦽➡️♿️ 👩🦼🇵🇸 @therealmecfs.bsky.social Chronically ill & disabled person with lots of personal opinions, who sometimes likes a hat. Occasionally an advocate for PwME, gamer and proudly on the Autism spectrum. I’ve low tolerance for ignorance and assholery so if you come for a fight, expect one.
sarah boothby @swastrosarah.bsky.social Speaking up for everyone affected by severe/very severe ME/LongCovidME. #MEKills #MaeveInquest #pwME
backstory: https://x.com/swastrosarah?lang=en-GB Justice4ME.uk
ME is much more than chronic fatigue; it kills every year.
Daryll Marie @daryllmarie.bsky.social Bioacoustician & PhD candidate using sound to study baleen whale movement ecology 🐋 Wildlife photographer, birder, nature nerd 🪶
IG: instagram.com/daryllmariephotos
Ko-fi: https://ko-fi.com/daryllmarie
Hachi Lola @lolahachi.bsky.social Love reading about wildlife and science. Chronically ill and disabled
SevereME LongCovid ME/cfs 
Stephanie Grach M.D. M.S. @grachstephanie.bsky.social Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers | https://t.co/TkYm2MXvir
Cyrus @cyruxime.bsky.social Energetically compromised (bedridden) by severe #MECFS. All systems operating at minimum capacity & overloaded. In a previous life: comp sci x math, powerlifting. #LongCovid ally.
dSavannah @dsavannah.bsky.social ~ Life stolen by MEcfs-hEDS-fibro-POTS-&c; FT sick since 12/2014
~ #LiveInBedButIAintDead
~ When brain & body behave: Chronic Illness Advocate
~ Discworldian, Browncoat
~🐱(x3)🐢💐🌻🌷📸📚🖼️
~ she / her ~ Love Is Love ❤️💚🧡💛🩵💙💜🤎🖤🩶🤍🩷
https://linktr.ee/thedsavannah- S Simon McGrath @simonmcg.bsky.social I occasionally try to explain and comment on ME research, or even contribute to it. And I advocate for more and better research.
Daniel Moore @talmandaniel.bsky.social Curious & exhausted peace seeker, co-host of Post-Exertional Mayonnaise podcast, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
@valebodi.bsky.social @valebodi.bsky.social Surviving MyalgicE aka ME/CFS & AAG to tell the story, pwME & advocate w/ a JD. Into MEdical, Social, Climate Justice & Arts. ME-dical apolide, Human Neutrino, Gnarled pacer
MEssland Worldwide https://www.tandfonline.com/doi/pdf/10.2217/fmb-2022-0031
Long Covid Lad @longcovidlad.bsky.social Long covid since April 2020. R 50 participant. Trying to navigate a plethora of health conditions without any NHS support. #ME/CFS #POTS, #Long Covid, BBB dysfunction, #SIBO, #Leaky Gut, reactivated infections, #MCAS, Clots 
jamelle @jamellebouie.net The real jbouie. Columnist for the New York Times Opinion section. Co-host of the Unclear and Present Danger podcast. b-boy-bouiebaisse on TikTok. jbouienyt on Twitch. National program director of the CHUM Group.
Send me your mutual aid requests.
kate @bookhaven.bsky.social Neurodivergent library ghost 👻
Napping instead of making lemonade 😴
♿🦓🛏️ 😷 📚🚀
🪫 Often limited capacity #pwME
Don't share my posts on other platforms without asking.
Header: Will Santino 🍋🥛
PFP: Pies Are Awesome 🥧- J LeeJale @jaleme.bsky.social
Chloë Lum @compulsiveobserver.bsky.social Installation artist. Perfume fanatic. Chronically ill. Concordia University PhD student(disability studies + performance studies + practice-based research.) Ex jammer, current failure. She/her Montréaler in Edmonton. https://linktr.ee/ChloeLum
̷L̷o̷r̷e̷n̷z̷ ̷ @restthingever.bsky.social formerly{{Passionate Software Developer. Guitarist, singer, songwriter. Foodie and traveller}}. Lover of Art Déco, geometry & Sci-Fi.
Struggling with ME/CFS since 2020. Currently at Bell 50.
Based in 🇨🇭
#MECFS #pwME #MyalgicEncephalomyelitis
jo @moerakijo.bsky.social Living with Long Covid and ME
Love books, libraries, histories
she/her
Aotearoa New Zealand
#LongCovid #ME #WearAMask😷
#CovidIsNotOver
#LongCovidAwareness
Rachel Graves @rachelgraves.bsky.social Haver of all the diseases. Mask wearer. Political obsessive, JD, (former-ish) newspaper reporter. Lover of Tacoma & the PNW. In a relationship. She/her.
MoleyME Caroline @moleyme.bsky.social Lancashire Lass with #MECFS likes flowers 🌸trees 🌳nature 🌱climate ⛈️ justice for all 👩🦽 interested in #longcovid prefer to interact a with community of kind humans ! . North West England . Feel like a Mole in an #MECFS hole trying to dig my way out!♿️
elisa @mildtin.bsky.social Usually a lurker, Chronically Online for #LongCovid and other #IACC | Australia
Louise @louiseathome.bsky.social Patiently (mostly) persevering with pacing #LongCovid #pwME #MECFS #POTS 🏳️🌈😷
cats • science • cats • FPL • cats
Paul Frazee @pfrazee.com CTO at Bluesky. Not a nerd.
Bluesky Safety @safety.bsky.app Sharing updates about trust and safety on Bluesky.
This account’s mentions are not actively monitored. To report a post or account, use the in-app reporting feature.
Community Guidelines: https://bsky.social/about/support/community-guidelines
Alice Wong @sfdirewolf.bsky.social Author, editor, activist, cat lover. Founder of the Disability Visibility Project.
#DisabilityJustice feed I created:
https://bsky.app/profile/did:plc:65kss3ewg5ida5mjyuk73v5r/feed/aaaba7ikg4sho
More about me
https://linktr.ee/disability_visibility
Janet Dafoe @janetdafoe.bsky.social ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist. 
Carole Bruce @cabruce.bsky.social Previously a psychotherapist.
Bedridden #ME 32years
Daughter severe ME, eldest son MS.
I like art, nature, books, people, music, poetry and podcasts!
Guus @guusontheinternet.bsky.social Creative turned activist #NietHersteld - Long Covid since jan’21 ♿️ - posts with brain fog, so pls bear with me - eager to learn - posts in 🇬🇧 & 🇳🇱
Sabrina Poirier @sabrinapoirier.bsky.social #CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis +
#MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability
(Unceded) #Canada
https://linktr.ee/sabrinapoiriercanada
Carrie Anna McGinn @carriemcginn.bsky.social Infection-associated chronic illness advocate | Life sidelined by #LongCovid #MECFS #POTS | #PatientPartner | MSc | Mom | She/Her | 🇨🇦 #Canada #Quebec
#CovidConscious #StillMasking
#MyalgicEncephalomyelitis #pwME #EMSFC
#CovidLongue #CovidLong #pwLC
Erin Biba @erinbiba.bsky.social She/Her
Freelance Science Journalist. Fact Checker.
NatGeo, BBC, SciAm, NBC News, PopSci, WIRED, and others.
Hire me to fact check your book.
I post about Jewish stuff, disability, Star Trek, and The Buffalo Bills.
Jersey girl.
Julie is a REAL BIRD @joolie.bsky.social I'm @jmatwood on Twitter. Featuring: Immature/informative/TMI posts about: birds, plants, bees, disability, chronic illness, silliness, my own health, etc 🦜🌱🐝♿😷🪿🏥
#pwME
NO TERFS, NO UNSOLICITED ADVICE
User pic is from Effin Birds (used w/permission)
Long Covid Advocacy @longcovidadvoc.com A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time...
💙📚Home to the #cripademia book club.
https://www.longcovidadvoc.com/
🛍️ https://longcovidadvoc.shop/- W Name can not be blank @whatsthepoint.bsky.social Everything sucks so fucking much
laurie allee (inactive account) @laurieallee.bsky.social ✌ 😷 Mom, writer, photographer & compiler of Covid studies (as seen on pandemic Twitter.) I still update my compilations here: https://www.laurieallee.com/general-5
Not active on any social media.
Sawyer 🌪️ @idea-alchemist.bsky.social LC July 2020 🧠 🌿 Idea Alchemist, #LongCovid explorer, virology & neuroscience nerd.
Tristate Area 📍
Twitter/X: idea_alchemist
Nina @verlorenezeit.bsky.social Industrial engineer with severe M.E.
Art, astronomy, writing, podcasts, thunderstorms. 
MAIKEONE[big] @maosbot.bsky.social Mother, wife, Australian, Professor of Machine Learning in Oxford. Long Covid, trans rights, music, reggae, AI must be good for humans, https://www.robots.ox.ac.uk/~mosb. She/her 🏳️⚧️🏳️🌈
SharonR_MECFS 🇨🇦 @sharonrmecfs.bsky.social Nature Science politics. Elbows Up💪post my own 📸🍄🌱🐝🐸
Ben H @benhmecfs.bsky.social ME/CFS patient advocate, Open Medicine Foundation science correspondent. Bedbound. Former: exercise physiology, biochemist in training, athlete-Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
Dr. Johnathan Flowers, Bisexual of the Blade (Alt-text or DIE) @shengokai.blacksky.app Martial artist, motorcyclist, pragmatist, comics philosopher, queer phenomenologist.
Assistant Prof @CSUN. Japanese philosophy, race, gender, disability, tech/AI. Inquiries: johnathan.flowers@csun.edu
IRON LORD. Rider of the mind shaitan. He/Him/His 🏳️🌈
Ody @odyody.bsky.social Chronically ill. Medical research, better care for underresearched & rare conditions, disability rights & ethics. @OdyO11 at 🐦
Irish ME/CFS Association @irishmecfsassoc.bsky.social Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association-for Information, Support & Research
NB: Posts ≠ advice.
Registered Charity RCN 20100254.
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
European ME Coalition (EMEC) @emec.bsky.social Advocacy organization for ME/CFS patients and their carers in Europe
Jay 🦋 @jay.bsky.team Founder & Chief Innovation Officer @ Bluesky
Working on @attie.ai
🌱 🪴 🌳
AT Protocol Developers @atproto.com Social networking technology created by Bluesky.
Developer-focused account. Follow @bsky.app for general announcements!
Bluesky API docs: docs.bsky.app
AT Protocol specs: atproto.com
George Takei @georgetakei.bsky.social Husband, Actor, Activist, Uncle George to the Internet 🖖
Kim @kimduke.bsky.social Long Covid MCAS POTS Vax injured Still wearing a mask!; Spoonie, Politics but it sucks now, cats. Thr*ads kimduke62, P*st & Spo*tible & the bird KimDuke, Slava Ukraini!, cynical AF, profanity, especially now. Dark humor to survive. RESIST
It's ME(Jaime) @exceedhergrasp1.bsky.social Scientific Director, #MEAction
Affiliations: Stanford Genome, Université de Montréal
TIME100 Health
#ME, #EDS, #POTS, #LongCOVID
Views my own
Nele @nelehelena.bsky.social I'll "tweet" here about the things I don't like if the other app goes down
Cate @midcatecrisis.bsky.social I have had myalgic encephalomyelitis (ME) since 2020 and spend the majority of my time in bed, of necessity. Mostly homebound. I used to be a climate activist, but spend any available energy parenting now. FUNCAP 2.5
Toronto, Canada
Autigender She/they 😷
emily fraser 🌿🐌✨ @emilyesfraser.bsky.social Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
Billy Hanlon @bhanlon15.bsky.social ME/CFS | Long COVID | IACC
Lia Pas @liapas.bsky.social #SciArt symptomatology and #anatomy #embroidery, writing, and #MECFS. A bit of music too. Canadian settler. she/her. https://linktr.ee/lia_pas
Debra Guckenheimer, PhD @debraguckenheimer.com Writer, activist, artist, teacher, sociologist, 🥄 , neurodivergent, disabled, queer, single mom.
🏳️🌈 Pronouns: she/they
debraguckenheimer.com
#livingwithableism #resist
Naomi Harvey PhD @naomidharvey.bsky.social Zoologist & veterinary research. She/her.
22yrs with #MEcfs Pro-vax but vaccine injured. Life on pause due to moderate/severe ME/CFS ♿️
Patient Expert in ME/CFS, POTS and syndromic Long Covid.
Please excuse my typos.
TwoShaws @twoshaws.bsky.social #MyalgicEncephalomyelitis #pwME #SevereME #HyperPOTS #MCAS #PEM #PostExertionalNeuroImmuneExhaustion #PostExertionalSymptomExacerbation 😷
Julie Rehmeyer @julierehmeyer.bsky.social Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.
Tom Kindlon @tomkindlon.bsky.social 95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.
With ME/CFS 37 years, severe ME 32 years.
@IrishMECFSAssoc trustee 29 years
26 publications in peer-reviewed journals
Social media: https://me-pedia.org/wiki/Tom_Kindlon
Sparrow / Liz @untonuggan.myatproto.social angry mast cells (HaT and #MCAS) + #POTS + neurodivergent. Disabled queer. white. emperor of typos. brain fog zone ⚠️. they/them
🎶 iii'm still masking 🎶
working on porting more of my body science infodumps and such to:
liminalnest.wordpress.com
#NEISvoid
Geeky Suzanne, Narrator @geekysuzanne.bsky.social Audiobook narrator in a chronically dramatic body.
Elizabeth Snow @elizabeth-snow.bsky.social Call me Ez, baiman (both woman/werman), any/ae/aer (air)
Chronically ill AuDHD queer faithful parent
Writer. Queer. Nerd.
Attendance will be spotty-Please ignore absences
LionsToothPublishing.com
https://books2read.com/A-Fate-Unmoored
Ralf Wittenbrink @ralfwittenbrink.bsky.social Es gibt immer noch eine große Lücke zwischen dem, was die Öffentlichkeit über COVID-19 weiß, und dem, was sie wissen sollte. Deshalb hier Infos über COVID-19.
DrCWerner @drcwerner.bsky.social #Familydoctor #GP
#InternalMedicine #MedicalTribune #nutritionalMedicine #0-
TonAllgemeinmedizin
Long Covid Switzerland @longcovidch.bsky.social Long Covid Switzerland. The voice of people affected by long covid and long covid kids. Evidence-based, provaxx, promask, protect the kids. 
Long COVID Justice @longcovidjustice.org We are leading grassroots efforts to confront the Long COVID crisis, while centering racial, social, economic & disability justice. Our work is done by and for chronically ill & disabled people, our families and communities. linktr.ee/longcovidjustice
Bluesky @bsky.app official Bluesky account (check username👆)
Bugs, feature requests, feedback: support@bsky.app