Spinal CSF Leak Australia @spinalcsfleakau.bsky.social Our Purpose is to improve the quality of life of people with Spinal CSF Leaks and Intracranial Hypotension in Australia through improved access to timely, effective, and supportive care.
Healthawareness... @healthawarenessger.bsky.social Admina & Advocate for #CSFLeak Germany
B.A. Heilpädagogin| Therapeutic Educator (Private Activities) coming soon here
https://www.facebook.com/share/g/1D6TxVt66S/
European Medical Journal @emjreviews.com #1 open access destination for healthcare professionals globally.
🔗 emjreviews.com
American Medical Journal @americanmedicaljournal.com AMJ: #1 open access destination for HCPs. Peer-reviewed journals & diverse content hub. Interviews, podcasts, webinars, infographics.
🔗: https://www.emjreviews.com/en-us/amj/
Paul Sandars🏴 @paulsandars.bsky.social Born in England, but would much rather be a Celt. I only seek Celtic followers.Lives in Neath Port Talbot. Survivor of a brain haemorrhage. Plaid Cymru,was Labour cllr.
I shall always love my late partner Nikki Thomson and our late daughter Eilidh Thomson.
Borghild Halmrast @bolla64.bsky.social Crazy old gamer :)
Ken @msbsongs.bsky.social Musician, retired teacher, creating and producing songs and sharing them. The name of my group is MRS SMITH'S BASEMENT. I hope you will give us a listen.
Richard Stromberg @rstromberg.bsky.social I don't think I have any more apps left in me
Alex Kanefsky (he/him) @alexkanefsky.bsky.social Writer, theatre-maker, bread enthusiast.
Book-writer: Cable Street.
AD of Paper Balloon Theatre.
Living/working with chronic illness
OUFC 💛
AlexKanefsky.com
JBR Creative Management- W @workmania.bsky.social @workmania.bsky.social
anOAKeye @anoakeye.bsky.social Equal-Opportunity Misanthrope
Curmudgeon Extraordinaire
"My Kinda Dark Is Kinda Bright"
Graphics, Stickers, Tshirts, Pixel Art, 3D, Animation, Video, Vending Machines
anoakeye.com
anoakeye.neocities.org
anoakeye.tumblr.com
teepublic.com/user/anoakeye
@artandlongcovid.bsky.social @artandlongcovid.bsky.social Living w/ Long Covid, still trying to make art.
@drkatielane.bsky.social @drkatielane.bsky.social
Dura Mater @toughmothers.bsky.social We are on the precipice of medical discovery. Twice as many women are incapacitated with cerebrospinal fluid leaks and enduring unneccesary suffering as the specialty clinics scale up. Please send George Clooney. Meanwhile, we must fight together.
Ali Kapan @albertkapan.bsky.social
Zoe Aldridge @zald18.bsky.social ☀️
Ani @atina2025.bsky.social Awareness for #chronicPDPH and #SIH #Liquorunterdrucksyndrom #Liquorverlustsyndrom #postpunktionellesSyndrom
@zarajohnson.bsky.social @zarajohnson.bsky.social
Ftravassos_art @ftravassosart.bsky.social Design & fashion 🎨🖌️
Prompting a brave new world.
💎 AI Fashion, Art, Film
🌐 Featured @digitalfashionweekNYC, London, Paris | Tokyo Fashion Week | BitBasel | SHOWStudio
@marlauk.bsky.social @marlauk.bsky.social
IAMJB @iamjbd.bsky.social 🤗 ML at Hugging Face
🌲 Academic Staff at Stanford University (AIMI Center)
🦴 Radiology AI is my stuff
@cmj25.bsky.social @cmj25.bsky.social
@dolanrider.bsky.social @dolanrider.bsky.social 20 year spinal VF CSF leak. Every day is a learning curve 🙂 💜💙
Jasmine Forte, MD @jastheneurodoc.bsky.social Child neurologist | Headache & concussion specialist @Emory & Children’s Healthcare ATL | Residency PD | Wife, Mom 👶🏾👶🏾 & master multitasker | Sharing science and other insights 🧠🤓💡✝️ #MedEd #MedSky
Migraine Canada @migrainecanada.bsky.social Migraine Awareness, Advocacy and Education 🇨🇦
Nonprofit organization
Migraine impacts 5 Million Canadians. Help us Eliminate Stigma. 🧠
https://migrainecanada.org/
dbRotas @dbrotas.bsky.social dbRotas.com ⋅ 📧 help@dbrotas.com ⋅ Creating bespoke rotas around leave request + preferences 🗓️ ⋅ Algorithm driven personalised rota creation 📈
Extinction @extinctionxyz.bsky.social Fuck Fascism. Eat the Rich.
https://extinctionsupply.com
Bossy Bessy @b2thesculls.bsky.social Tree sloth, political junkie, rage walker, recipe hoarder, musician herder, mom of giants.
🐐
(she/her)
#blacklivesmatter
#HarrisWalz2024
@beccerab.bsky.social @beccerab.bsky.social Some of y’all haven’t read books like Fahrenheit 451, Animal Farm, and 1984 and it shows.
Krista @kristacatlady.bsky.social Mcas, migraine, and dysautonomia, oh my. Cat lover, especially seniors. Cusses online when in pain. She/her
@leakybrain.bsky.social @leakybrain.bsky.social
Edward A. Rowe @edwardarowe1.bsky.social RESIST! Managing Principal at ARK Real Estate Advisors, MBA University of Chicago - Booth School of Business, B.S. Northwestern University - Kellogg School of Management-
Beth Morton @migrainechat.bsky.social Education researcher turned migraine advocate
#MigraineChat moderator
VT maple syrup aficionado
🚫 Unsolicited advice
She/Her/Dr (PhD kind)
Header: Dinosaurcouch
MigraineChat Resources & Discord:
https://campsite.bio/migrainechat
MC feed/starter pack👇🏻
m🌻 @chronicpains.bsky.social chronically ill • cat mom • anti-capitalist • covid isn’t over • wear a mask
Meghan O'Connor @meghan0c.bsky.social Bostonian, rescue dog mom, professional patient. there will be swears, typos & emojis. she/her
The Chronic @thechronicinfo.bsky.social https://www.thechronic.info/
The Chronic is a guide of curated resources for those with endometriosis who are navigating a broken healthcare system.
Created in 2020 by me & @themarquisdesheric.bsky.social
@flhoosier.bsky.social @flhoosier.bsky.social Alice: “Would you tell me, please, which way I ought to go from here?”
The Cheshire Cat: “That depends a good deal on where you want to get to.”
Robin ✨🏳️⚧️🏳️🌈✨ @msrobinhosking.bsky.social All things music, science, sport and chat. Heart belongs to house music, arsenal women, arsenal men and neuroscience in particular.
I only make donations to reputable charities or people I know personally.
✨🏳️⚧️🏳️🌈✨
@jacqs606.bsky.social @jacqs606.bsky.social - L @lpmccort.bsky.social @lpmccort.bsky.social
Wiconi Counseling Center @wiconicc.bsky.social Layton Utah
Counseling
Therapy
Book Dragon
LGBTQ+
https://www.bonfire.com/store/wiconi-counseling-center/
Lynne Johnson @zaralynne.bsky.social
@jellycole.bsky.social @jellycole.bsky.social
@niklasluetzen.bsky.social @niklasluetzen.bsky.social
Joy of Napping @joyofnapping.bsky.social
Paul Kaufmann @pmkmann.bsky.social CSF leaker since 2015. Personal researcher into CSF leak cause, detection and treatment. My profile picture is from when I was a healthy human being.
Jodi Ettenberg @legalnomads.com Once a lawyer, then a celiac travel writer. Now disabled, writing about curiosity & health.
Travel writing & gluten-free guides: legalnomads.com
The best things I read each month: jodiettenberg.substack.com
MCAS, meditation, & health: jodiettenberg.com
Jamie Clarke, MD, MS @jamieclarkerad.bsky.social Neuroradiology Trainee, Researcher, & Innovator!
@RadiologyUcla PGY3 #RadRes 👩🏼⚕️🩻🧠
🇨🇦 Spinal CSF Leak Canada @spinalcsfleakca.bsky.social National health charity, with a mission to improve the lives of patients suffering from spontaneous intracranial hypotension (SIH) or spinal CSF leak.
@hippidippi.bsky.social @hippidippi.bsky.social
Aubrey B. @aubreybolan.bsky.social Recovered from #spinalCSFleak 🧠💧
Support @spinalcsfleak.org if you can! 💜
@ceecee81.bsky.social @ceecee81.bsky.social
Carol Norris @carolnorris.bsky.social Progressive political activist. Always peaceful. ☮️ 💟 ✊ Social justice-focused, integrative psychotherapist. (🚫 No psychological advice.) Writer. Astrophysicist wanna-be. Unabashed lover of dinosaurs. 🦖 #BLM She/her #Resist
Connie Deline @conniedelinemd.bsky.social medicine / follow the science / critical thinking / ecosystem health / climate / overshoot / #CleanTheAir / #spinalCSFleak / food / nutrition
@energyworks.bsky.social @energyworks.bsky.social
@rachlynne.bsky.social @rachlynne.bsky.social
@elinorv.bsky.social @elinorv.bsky.social
Malka_G @malkag.bsky.social Writer/editor. Chronically ill. Slowly working on setting up this account.
Hoping to reconnect with #NEISvoid, #DisabilityTwitter, #CovidIsntOver, #StillMasking, etc.
@oneleak.bsky.social @oneleak.bsky.social
@kjohn69.bsky.social @kjohn69.bsky.social
@chan-s.bsky.social @chan-s.bsky.social
Tammie Burke Stanford @tammiebstanford.bsky.social
@emily-dale.bsky.social @emily-dale.bsky.social
Elizabeth Modder @emodder.bsky.social • Writing as Resistance • Intersectionality • Feminism • Film Theory • Victorian Literature • The New Woman in the Postmodern Era • Dry, Inappropriate Humor • Dogs • INFJ • Woodworking + Inlay • Thinking too Much
@lexielou.bsky.social @lexielou.bsky.social
@mindola1.bsky.social @mindola1.bsky.social
@ribbonrx.bsky.social @ribbonrx.bsky.social She/her. Autism mama. Medically retired peds #pharmacist. Prolific maker of CSF-venous fistulas, flattened for 4 years and counting by #spinalcsfleak. Fierce advocate for leak care! Science/medicine loving liberal #exvangelical Christian. www.ribbonrx.com
Sara Price Powell @sppowell.bsky.social people, passion, presence, purpose, peace
living for the greater good ☮️
Essie ⸆⸉🩷 @genx.swifties.social GenX Swiftie✨ Cat Mom ✨Boy Mom ✨Tayvis stan 💙Midnights, Folklore girlie🩶 Chronic Pain warrior
Lauren @laurenzoe.bsky.social Trying my best parenting through climate and covid crises. HCW. Cancer survivor x2. Apiarist. Gardener. Knitter. Repairer. Daydreamer. Too many to do lists. Demanding clean air, liveable climate, better walking and riding infrastructure.
Nolan Kagetsu, MD (he/him) @nkagetsu.bsky.social 🇨🇦born #sansei | MIT Chem E -> Professor of #Radiology and #MedEd at Mount Sinai NYC | #ACR, #healthequity, #DEI, #allyship, #neurodiversity, #SDGs |posts mine
@realsarahmead.bsky.social @realsarahmead.bsky.social
@ellekearnsartist.bsky.social @ellekearnsartist.bsky.social
Carrie King @carrieakingfw.bsky.social Avid reader and occasional writer. Erstwhile attorney. Music lover and lyric rememberer. Accidental #spinalcsfleak, #hEDS, #MCAS patient and advocate.
Maya the Bee 🐝 @spriggley.bsky.social Cherishes small joys in mad world.
Jamie Knight @jamie-k1127.bsky.social Dressage rider who’s not complying in advance. Panic following politics but mostly here for the aliens.
Merlin V. Nelson @mvnelson.bsky.social Neurologist. Skeptic. Grandfather.
msamct75 @amcteague.bsky.social A Mom first and foremost
Development Director for non profit * Photographer * Volunteer * Passionate about women’s freedoms and healthcare * Swiftie* Chicago Sports lover- multiple CSF leak survivor/ VP shunt/ arachnoiditis/CRPS
Spinal CSF Leak Foundation @spinalcsfleak.org We are a United States 501(c)3 nonprofit organization that helps raise awareness, educate, and support research on intracranial hypotension and spinal cerebrospinal fluid (CSF) leaks.
spinalcsfleak.org
@bluspirit7.bsky.social @bluspirit7.bsky.social
Peter Kranz, M.D. @petergkranz.bsky.social Division Chief of Neuroradiology at Duke University Medical Center. Research in #spinalCSFleak #SIH. Tweets my own. No discussion of individual patient care. #radsky #neurorad
@pnewton.bsky.social @pnewton.bsky.social
Sarah @snorman99.bsky.social Scuba Junkie 🤿 | Travel Bug 🏝️| Incompetent Crew ⛵️
Lesley McG @lesleymac.bsky.social Social justice warrior, Scottish Independence, I want my EU citizenship back. She/her tree hugger, in the words of the great Mr Weller once a mod always a mod. No DM's please Anti-racist Anti-fascist Trans Ally free palestine Woke As Fuck
Brooke! @helpingfriendly.bsky.social She/Her. Phillies. Live Music. Books. Award Shows. Song contests. Off-the-rails ramblings.
Dr Susan @siac1.bsky.social Counselling Psychologist, existentialist, writer, mother, CSF leaker, TM sufferer, proud Scot - independence is normal and monarchy is not. No DMs please unless we know each other. If you ignore this polite request and DM me anyway I will block you.