Eric Salsburg…Grow The Resistance. @ericsalsburg.bsky.social 🟦Fuck trump, Fuck Fascists, Fuck Netanyahu…Save Our Democracy.
Save us, VOTE BLUE MIDTERMS/2028. LOVE YOUR NEIGHBORS!
Philly Sports Lifer. Animal Rights/Animal Welfare, Climate Change, Human/Civil Rights, Fighting For The Underdog, Standing with Ukraine 🇺🇦
Virginia Arechavala @varechavala.bsky.social Scientist and mum. Ikerbasque Professor @ Biobizkaia HRI
Interested in #RNAtherapy for #neuromuscular disorders. De Bilbao de toda la vida and adopted Londoner.
https://www.linkedin.com/in/virginia-arechavala-gomeza-a482509/
Rare Disease Advisor @rarediseaseadvisor.bsky.social Trusted knowledge base of practical information and resources focused on treating and diagnosing #RareDisease.
https://www.rarediseaseadvisor.com/
DMD WarrioR @dmdwarrior.com Stay informed on #DMD cures, clinical trials, and #Duchenne muscular dystrophy research. Visit DMDWarrior.com for updates and support.
Søren (Average Joe) @npjoe.bsky.social he/him
Hamilton's cool Hamilton's fun it's too bad he lost to Aaron Burr's gun.
Emma Rybalka, Ph.D. @emmarybalka.bsky.social Passionate about (in no specific order) rare neuromuscular diseases, finding treatments when there are none, all things science (especially space and muscle), my kids, architecture, photography, travel, and....did I mention, science?
Junior Einsteins Science Club® @junioreinsteins.bsky.social Award-winning Science events for kids. Founded Ireland☘️ Scientist, Mum, speaker United Nations 🇺🇳 Fun, messy, screen-free hands-on, STEM fun Ireland 🇮🇪 UK 🇬🇧 Canada 🇨🇦 Saudi Arabia 🇸🇦 Luxembourg 🇱🇺 Ukraine 🇺🇦 International Schools partnerships. Franchise.
Open Research and Public Engagement Roadmap @engagedroadmap.bsky.social Co-Creating Ireland's Public Involvement in Open Research Roadmap
ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.
Anarqxista @anarqxista.bsky.social 🖤 Scientist by Day, Cosmic Cataclysm at Night.
#resist #resistrfk #nokings #fdjt #fdt #StopICE #defendscience 🧬🧬🧬 🏳️⚧️🤍🏳️⚧️🇺🇦💙🇺🇦
Alltrna @alltrna.bsky.social Alltrna is the world’s first transfer RNA (tRNA) platform company, and we are unlocking the vast therapeutic potential within #tRNA biology. #StopCodonDisease
Learn more: https://www.alltrna.com/
Jenny Montooth @montoj.bsky.social Science Communicator in Genomics, Lead Public Affairs at NHGRI, lover of pop culture and romcoms
The Science Underground @scienceunderground.bsky.social Tell us your science. We'll tell the world.
Science communicators. Former federal employees. Still full-time genomics-enthusiasts.
@markcstahlmd-phd.bsky.social @markcstahlmd-phd.bsky.social
Robert Muní Lofra @rmunil.bsky.social PT PhD, Consultant Physiotherapist, Honorary Clinical Senior Lecturer at @jwmdrc.bsky.social John Walton Muscular Dystrophy Research Centre-Newcastle Upon Tyne
SMA Europe @sma-europe.bsky.social SMA Europe is a non-profit umbrella organisation of spinal muscular atrophy (SMA) patient organisations from across Europe. All together. One goal.
Visit our website: https://www.sma-europe.eu/
Maurice @maurice002.bsky.social
BEN-G Research Group @ben-gresearchgroup.bsky.social Bone, Endocrine & Nutrition Research Group in Glasgow
Russell Rogers, Ph.D. @russellrogers.bsky.social Associate Professor, @SmidtHeart.bsky.social
Regenerative biology of heart and skeletal muscle.
Lab Website: https://www.cedars-sinai.edu/health-sciences-university/research/labs/rogers.html
Views are my own.
ZachTakes @zachtakes.bsky.social Hawkeyes, Cubs, Chiefs, Blackhawks
@commsma.bsky.social @commsma.bsky.social
@mheel91.bsky.social @mheel91.bsky.social
Melissa Bowerman @bowermanlab.bsky.social Professor of Neuromuscular & Skeletal Disorders, Keele University. I research pathologies and new treatments in rare neuromuscular & skeletal disorders.
www.thebowermanlab.com
Marie-Pier Roussel 🇨🇦 @mproussel.bsky.social
Neuromuscular Disease Network for Canada @nmd4c.ca Canadian network connecting clinicians, scientists, patients, and industry to improve neuromuscular disease outcomes.
Funded through CIHR-IMHA and Muscular Dystrophy Canada
Visit us at: https://neuromuscularnetwork.ca/
@scschuler.bsky.social @scschuler.bsky.social
@RNAiAnalyst @rnaianalyst.bsky.social aka Dirk Haussecker. Biotech enthusiast with expertise in sequence-directed therapeutics (RNAi, ASO, ADAR, CRISPR...) enjoying drug development and trying to make a buck along the way.
Jon @jonu235.bsky.social $SRPT #Duchenne #Elevidys #GeneTherapy data which STATnews, Fierce Biotech, BiopharmaDIVE, and BioCentury REFUSE to report! https://investorrelations.sarepta.com/news-releases/news-release-details/sarepta-therapeutics-announces-results-part-2-embark-study- K KaltheGC @khalie.bsky.social
@liannaorlando.bsky.social @liannaorlando.bsky.social
Francoise Helmbacher @fhelmbacher.bsky.social Developmental Biologist, #CNRS researcher, studying morphogenesis, muscle regeneration and pathologies, and curious for all life sciences.
Lab website: https://helmbacherlab.org/
@bentzingerlab.bsky.social @bentzingerlab.bsky.social The skeletal muscle stem cell niche in health and disease
Université de Sherbrooke
https://www.bentzingerlab.com/
Rare Ireland @rareireland.bsky.social
Duchenne Somriures Valents @somriuresvalents.bsky.social Som una associació sense ànim de lucre formada per pacients, familiars i amistats de persones afectades per la distròfia muscular de Duchenne. T'hi uneixes?
Liam ⚽️🏒⚾️ @liamstl.bsky.social 7th generation St. Louisan and local sports nut. LHS '28, DASA Power Soccer, video games. #stlcards, #AllForCITY, #stlblues, #Birdland, #GoSensGo, #SLUBillikens, #GrindCity, #KaKaw, #ChiefsKingdom, and #MIZ🐯
Jeff Kopp @kopper.bsky.social Old punk playing new punk on the Graveyard Shift, Saturday nights 1-3am on @CRSTLFM.bsky.social. I also run @tircrecords.bsky.social.
Gina Kopp @ginagogo.bsky.social St. Louis mom, COTA, lover of the outdoors and travel, Cardinals, City SC & Blues fan.
ISU Worm Lab @vidalgadealab.bsky.social We use cutting-edge tools to study how genes, neurons, and muscles interact to produce behaviors that help animals adapt to their environments. We focus on Duchenne Muscular Dystrophy, magnetic orientation in C. elegans, and crustacean neuroscience.
@leearchd.bsky.social @leearchd.bsky.social
Action4Alfie @action4alfie.bsky.social In 2018, Alfie was diagnosed with Duchenne Muscular Dystrophy, a progressive muscle wasting disease. This account is raising awareness of his condition and connecting with people that may help to do so 🫶🏻
Naomi @goldennoomi835.bsky.social 20, fresh to bluesky💙
coffee enthusiast, book lover, eternal optimist.
😅➡️ https://bit.ly/justnaaomi
Sandra Hawken @sandrahawken.bsky.social CEO at Holland Bloorview Foundation. Storyteller. Proud Mom. Dog Friend.
@edcollins.bsky.social @edcollins.bsky.social
@katyham.bsky.social @katyham.bsky.social
Critical Path Institute (C-Path) @cpathinstitute.bsky.social Advancing Drug Development. Improving Lives. Together.
Barbara Rachelson @barbararvt.bsky.social Mother, Grandmother,Social Worker, State Legislator, Nonprofit Exec, Adjunct Instructor, Advocate, cat lady, NJ girl living in Vermont via Ann Arbor, MI
@crislai.bsky.social @crislai.bsky.social
Danesaremorefun @danesbringjoy.bsky.social Nurse, mom, caregiver. Pro-Democracy
Dogs are my people🐾
#votethemallout
#bluewave
Rare Disease and Neurodevelopmental Disorders Lab @rdndlab.bsky.social RDND Lab at King’s College London led by Cristina Dias. Clinical Geneticist and Rare Disease researcher. Rare Conditions, neurodevelopmental disorders of chromatin regulation and chromatin remodeller-TF interactions.
https://tinyurl.com/rdndkcl
🏳️🌈Aunty Jessy🏳️🌈 @teddybambino.bsky.social 38|🏳️🌈lesbian🏳️🌈|gamer|geocaching|World of Warcraft|FOR THE ALLIANCE|animal lover
GREGoR Consortium @gregor-research.bsky.social The GREGoR Consortium (Genomics Research to Elucidate the Genetics of Rare diseases) seeks to develop and apply approaches to discover the cause of currently unexplained rare genetic disorders.
https://gregorconsortium.org/
Daniel J. Kühn @oloufo.bsky.social Kopf. Haus. Musik. Fussball. München.
Autor: Der Bergrauendoktor - ein Leben voller Abstriche, Jakobs Reisen, Das Unnütze Superhelden Quartett
Melissa Kinch @melissa-kinch.bsky.social PhD candidate UCD | Child, Adolescent & Family Research | Patient Voice & Engaged Research | Rare Disease Research | Methods Enthusiast | All views are my own
Fabio Barteri @linudz.bsky.social Keep Comparative Genomics Weird. Post-doc researcher in #computationalbiology, #UPF #IBE #PRBB. From #Rome to #Barcelona via #NYC. Interested in gen-phen mapping, microbiome evolution and museomics. Snowboard noob, #ASRoma, NOFX fanboy.
Rare Disease Clinical Trial Network @rarediseasectn.bsky.social HRB-funded clinical trial network aiming to increase the quantity and quality of rare disease clinical trials in Ireland, keeping the patient voice at our core.
Oliver @olliescrowdfund.bsky.social My name is Oliver, I'm 34 years old and I have Duchenne Muscular Dystrophy. My mum and I are trying to raise the funds to replace my 15 year old Wheelchair.
https://www.crowdfunder.co.uk/p/helping-oliver-to-replace-incompatible-wheechair
Rob Shaffer @shafferbiotech.bsky.social Biotech entrepreneur and consultant. Biochem PhD. Opinions strictly my own.
Kadey BJ Schultz @schultzielawyer.bsky.social Award winning Canadian litigator @ Schultz Law Group LLP. Advocate and fundraiser for kids with disabilities and medical complexities. End Duchenne. Believer that hugs and laughter are medicine. Hopeful.
Shira Agha Irshad🇦🇫شیرآغا ارشاد @shiraaghaershad.bsky.social 🇦🇫I ama resident of Afghanistan. Our country is facing severe challenges. Girls' schools are closed, the media is under censorship, and civil activities have come to a halt. We appeal to the international community to pay special attention to Afghanistan🇦🇫🙏🙏
D.L. Watson @editordlwatson.bsky.social Fmr. EP/Director Graveyard Carz (MotorTrend/Discovery) turned brand video strategist. 20+ years ensuring every cut serves the story.