Nick Benton @nickbenton.bsky.social Writer living with myalgic encephalomyelitis (ME) for five years.
Substack for all things ME: https://thepersonalme.substack.com/
I'm not on here much. For enquiries email nicholasbenton1997@gmail.com
@khairulanwarmrk90.bsky.social @khairulanwarmrk90.bsky.social
Health Citizens Institute @healthcitizens.org From Environment to Health
From Science to Policy-Making
@fiona289.bsky.social @fiona289.bsky.social
Chronic Living Therapy (a directory) @chronicliving123.bsky.social Soon launching - a directory of therapists who understand the biomedical nature of #MECFS, #LongCovid and many other chronic illnesses. https://chroniclivingtherapy.com/
@Cross_theIine @cross-theline.bsky.social The Human race has a serious Control Freak problem
@Cross_theline and YOU are going to resolve that
I support the Iranian people ๐ฎ๐ท
#EndWar #EndTyranny #Cross_theline
Colin-Roy Hunter aka criquaer @criquaer.bsky.social Queer, humanist, pantheistic Quaker.
Politically non-partisan.
Disabled & chronically ill
#pwME #MyalgicEncephalomyelitis #SevereME
๐ช๐บ๐ฃ๏ธ ๐ด๓ ง๓ ข๓ ฅ๓ ฎ๓ ง๓ ฟ๐ฆ๐น๐ฉ๐ช๐ช๐ธ๐ซ๐ท๐ต๐น
Gulag Gulagovich Gulagov @gregory.levonian.net See gregory.levonian.net for more information.
Sic transit gloria mundi.
Steve Chalmers @fstevenchalmers.bsky.social Retired person, was in tech industry for 37 years
Self and family got multiple chemical sensitivity from a sick house incident in the mid 1990s
Heretic, with a heretical research hypothesis on the nature of MCS and a dozen other complex chronic illnesses
Sandcastle Kat @sandcastlekat.bsky.social A cat trying to survive in a world without adequate public health protections.
you are sun ๐ท๐ฆฉ๐ธ rai @ssraii.bsky.social new start starts now but how to let go of the past? Anyways startin nov 25 I'm trying to be regular for #fungifriends so if you're here please have a look on these posts!
God we trust ๐ โ๏ธโ๏ธโ๏ธ @ismaila007.bsky.social Charity for food
Please donate food for us in this website www.terangas.com
Name:ismaila jallow
Address Gambia brikama twon
Phone contact number:+2203282477
Firetail @firetail.bsky.social We are a #strategy #consultancy working to achieve #socialprogress. We help impact-driven organisations realise their ambitions for society. #BCorpUK
Framework Training | Instructor-led technical training @frameworktraining.bsky.social Build high-performing technical teams with hands-on, expert-led, real-world training. Purpose-driven, vetted & approved for government contracts, L&D #traintoretain - find out more at https://www.frameworktraining.co.uk/
Colandme (Extremist Allegedly) ๐ด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ @coldon1983.bsky.social Aberdeen fan. Passionate about an independent Scotland. SNP member. Live by the sea and a Loch. ME for 13 years #pwME #rejoin #FBPE ๐ด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ
christina4hope @christina4hope.bsky.social ๐ME/CFS ,Fibromyalgia , lyme Boriliose,Longcovid,MCS ,Vax Injured (not corrona vax),Hearing loss ectโฆ Posts English and German.
Bavaria ,Germany
Laura de Vries @lauravictorine.bsky.social Former medical doctor | PhD | Living with moderate/severe Myalgic Encephalomyelitis (ME) | Dutch ๐ณ๐ฑ | Cat mom of two | #pwME #myalgicencephalomyelitis #myalgicE
@politicaldude.bsky.social @politicaldude.bsky.social Tory Hater, Reform Hater, Trump hater and Labour Supporter, Democrat supporter. #FBPE #Socialist #VoteBlue #BlewCrew #VoteLabour
Dr Nicola Clague-Baker @claguenjc36.bsky.social Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise physiology/ME/Longcovid/EDI/all views my own
she/her
Alisontomyradioooo @arisonsned.bsky.social Cat and Dog botherer. Young persons counsellor retired. Want my bike and my health back ๐ฉต
Hunain Ajmal @hunainajmal.bsky.social Believe in, Things are Good
Annie Mitchell ๐๐๐ @annieingarden.bsky.social Community psychologist; grandmother; educator; facilitator; mentor; ex-director DClinPsy Exeter & Plymouth; Playback actor; XRPsychologist; climate; poetry; childhood; politics,health, death. Roots in NE England; Devon.
SharonR_MECFS ๐จ๐ฆ @sharonrmecfs.bsky.social Nature Science politics. Elbows Up๐ชpost my own ๐ธ๐๐ฑ๐๐ธ
Jo @justjo.bsky.social Interested in goings on. Small life lived in a small house. Past best before date. Lefty. ME/POTS #Anti-RecoveryActivist
Valerie Eliot Smith @valerieeliotsmith.bsky.social Independent researcher living with myalgic encephalomyelitis (ME) since 1981. Barrister (ret'd) #TMTlaw Visiting scholar @QMUL Blog at http://valerieeliotsmith.com
Based in London, UK
Crimeajewel @crimeajewel.bsky.social Creative Artiste. London and Venice.
With small creative shop Crimeajewel on www.
No DMs please as 99.99% are spam or scammers. I send no DMs. Thank you.- M @mariasevereme4.bsky.social @mariasevereme4.bsky.social
Naylor007 @naylor007.bsky.social #pwME #MyalgicEncephalomyelitis One day at a time ... will do what I can to help others
Mike's Euro Maras for M.E. @mikeseumarathons.bsky.social I run marathons around Europe raising funds for Invest In ME's biomedical research projects to cure ME.
35 countries. ยฃ52k raised.
Next race: Euro Country 36: Reykjavik, Iceland ๐ฎ๐ธ (22.08.26)
www.mikeseumarathons.eu
www.justgiving.com/mikeseumarathons
Anna - Please boost pinned tweet.๐ @halcionandon.bsky.social Diary of #ChronicIllness & #abuse
๐Safe housing needed ๐ก
#Melbourne ๐ฆ๐บ
Human biology experiment w limited energy
#SevereME #LongCovid #POTS #ChronicPain +
Crowdfund me to safety: chuffed.org/project/161937-help-anna-escape
Joss Sheldon @josssheldon.bsky.social Radical author, a bit of an anarchist - preaching the stuff the mainstream dare not touch. Woke as an insomniac after ten cups of coffee. ๐ดโโ ๏ธ๐๐
Get my books here: https://bookshop.org/shop/JossSheldon
Stripy Lightbulb CIC @stripylightcic.bsky.social Award-winning #SocialEnterprise working to improve the lives of people living with #MEcfs by educating professionals who have a duty of care.
CPD accredited online training courses.
www.stripylightbulb.com
Clare @clrblwrs.bsky.social
Penny @theoldlostroad.bsky.social Severe #MECFS for a very long time. Loves nature poetry children hope.
Hates arrogance dishonesty injustice.
MonzaMayhem @monzamayhem.bsky.social Mother of child with ME/CFS; trying to create a life for him while waiting for answers from medical research. My oldest is a wildland firefighter. I post primarily about public health, ME/CFS, Long Covid, and wildland firefighting.
Katy B @katybrc.bsky.social Myalgic Encephalomyelitis - M.E + POTS for 38 years
Donor to the UK MEcfs Biobank for 10 years & @DecodeMEstudy
Please watch http://dialogues-mecfs.co.uk/videos/
London, UK
No DMs please
#pwME
ME Foggy Dog @mefoggydog.bsky.social Award-winning #socialenterprise in #UK.
Working for #socialchange for the #MECFS community.
Linktree - http://bit.ly/408o6LI
Arthur @unrealarthur.bsky.social ME Patient-ly Waiting for Biomedical Research | Volunteer @crunchme.bsky.social
#GreatestMEdicalScandal @unreal_arthur crunchme.org
Billy Hanlon @bhanlon15.bsky.social ME/CFS | Long COVID | IACC
Karen Coombes @kc14762.bsky.social Socialist, scientist, autistic, ME carer, still masking ๐ท. Born at 316ppm
HopeStarMasacre @hopestarmasacre.bsky.social your least favorite autists favorite autist // disabled as fuck with Extremely Severe ME, POTS & feral MCAS // pronouns are they/them โก๏ธ ๐ฒ๐ฝ๐ณ๏ธโ๐
Nick Else @nick2155.bsky.social ME/POTS/FIBRO/PVFS - Mod/Admin for Millions Missing Voice Global #InstitutionalisedDiscrimination #MECFS #LongCovid
Paula Knight ๐จโ๏ธโฟ @paulaknight.bsky.social Author, illustrator, comics creator
THE FACTS OF LIFE (Myriad) Kidlit Books x3
Words and pictures
https://linktr.ee/paulajknight
https://www.redbubble.com/people/PaulaJKnight
https://ko-fi.com/bedscapepaula
Bedridden #MEcfs โฟ TAC/ Migraine
Bazia Zebrowski @baziaz.bsky.social LifeStolenByME 23yrs, ME, POTS, MCAS.
Masking to avoid being a eugenics stat.
Here to learn & advocate to find a cure.
I want to run, walk, work, build community, have a 2 way conversation. Live!
Carole Bruce @cabruce.bsky.social Previously a psychotherapist.
Bedridden #ME 32years
Daughter severe ME, eldest son MS.
I like art, nature, books, people, music, poetry and podcasts!
super graphic ultra modern nly @nly.bsky.social no longer available on VHS
Lou @apeskygirl.bsky.social Tree hugger with ME/CFS since 1992. #MEAction volunteer. Patient Advocate. OMF & Stanford Study Participant. ME/CFS โข ND โข POTS โข EDS โข One of the Millions Missing. Former Copywriter and Art Director. Now I watch squirrels and make things.
Simone @phoenixme.bsky.social Bed-bound activist with severe ME/CFS.
ME/CFS, chronic illness, #AusPol, #USPol, climate justice, social justice, crochet, cats, sci fi. Views expressed are my own.
If I had any spoons, I'd be dangerous.โจ
Boonwurrung country, Australia
Pete Caruso @petecaruso.bsky.social Interested in research and awareness of invisible chronic illnesses: ME, Long COVID, Post Vaccine injury, POTS, Sjogrens, and Lyme.
Pfp: A man wearing a green face mask
Banner: Colorful MEmes from patient-led Long COVID and ME awareness
Kerstin @sannara.bsky.social #MECFS #MILLIONSMISSING #MEAwareness
#PEM #POTS #MCAS
#PostCovid #LongCovid
#TeamWissenschaft #GdB
https://www.mecfs.de/was-ist-me-cfs/
https://www.psychotherapie-mecfs.de/
Stephanie Grach M.D. M.S. @grachstephanie.bsky.social Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers | https://t.co/TkYm2MXvir
Robyn D - Difficult Woman @koparafallskid.bsky.social Movement As Medicine advocate. Follow my writing on Limberation.com
Rheumatoid arthritis patient. Previously diagnosed Psoriatic arthritis patient. Probably both! ๐ค Ex-pat Kiwi in Kangaroo land (Melbourne). Arrived (on Earth) at 313.7 COยฒ
Sarah @sarahlizzylou.bsky.social She/her, Physio student on hold since Oct 2021 LongCovid/ME ๐ฌ๐ง
Learning to live with Cognitive Dysfunction ๐ง #FBLC #pwME
My Twitter handle was @SarahLizzyLou
MillionsMissingFinland @missingfinland.bsky.social ME/CFS G93.3 hoito & diagnosointi:
2021 Duodecim
https://rb.gy/m9spr
2021 NICE
https://rb.gy/h7eok
2021 Mayo Clinic Proceedings
https://rb.gy/fd54d
Dan Wyke @danwyke.bsky.social Severe M.E., person-centred counsellor (not practicing), recovering poet (Rack & Waterloo Press)
Anna Wood @annakwood.bsky.social Physicist, education researcher, gardener, bird watcher/photographer, chronic illness/ME
Arlette @arlette.bsky.social I am one of the #MillionsMissing
32 years old
Netherlands
She/her
Tom Anderson @macanders.bsky.social #pwme |Mild-mannered author Henry Anderson| chronically hopeful | Sign up for my FREE course on writing https://linktr.ee/henry.anderson
britborg.bsky.social @britborg.bsky.social Dutch. Severe ME #Fraudevinkje #code98 @brit_borg on Twitter/X #JournalismIsNotACrime
Kajsa @catkajsa.bsky.social #pwme #MyalgicE #ME
Dream of being alive again, before I die. Brainโs consistently out of order.
My cats forever in my heart.
โฆ
Ukraine/#NafoCatsDivision = @catskajsa.bsky.social
allyann @allyann.bsky.social Living with & advocating for ME, POTS & FM, ex-IT. Homebound & at times bedridden. News and Recipe junkie.
Living in Millowl, home of the Bunurong people, Victoria, Australia
Royal Free 1955 @rfh1955.bsky.social ME/CFS archive. For education, not profit. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. Reposts not necessarily endorsements. No art, emoji etc.
https://rfh1955.blogspot.com/
Peter Neehus @peenee2.bsky.social #pwME #ME #MEcfs #MEcvs
Dutch Retired Granddad
Adam @abrokenbattery.bsky.social Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbattery
HDE_Sheraby @hdesheraby.bsky.social Life is to be lived and loved. #MyFamily #DownSyndrome #LearningDisability #Autism #MyalgicEncephalomyelitis #POTs #Trichotillomania #FamilyHistory #WeightLossJourney
Julie Houston @julesahouston.bsky.social Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights.
I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new.
#CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal- Z Elja @zorgvoorme.bsky.social Here for ME/CFS awareness
Mish ๐๐ @shelmish.bsky.social #PWME since 2020. Currently severe - FUNCAP score 1.3
Queer, any pronouns ๐ณ๏ธโ๐๐ณ๏ธโโง๏ธ
Mainly here for pics of dahlias, dogs with underbites and macro bugs ๐
MA in Forensic Linguistics๐งโ๐
Love my garden and my elderly pupper
OThingstodo @othingstodocom.bsky.social Checkout latest travel photos and Videos.