Open Research and Public Engagement Roadmap @engagedroadmap.bsky.social Co-Creating Ireland's Public Involvement in Open Research Roadmap
ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.
British Journal of Hospital Medicine @bjhmoffice.bsky.social BJHM: An open-access monthly journal dedicated to publishing original investigative and clinical research in hospital medicine. We invite your submission!
Impact Factor: 1.7 | Published by IMR Press
Link: https://www.imrpress.com/journal/BJHM
Parky Larry @parkylar7.bsky.social Dx of Parkinson's/Dystonia (age 45 in 2024) & MCI. CODA, Marine Corps Veteran, love photography.
Brain Repair Group @brainrepairgroup.bsky.social A neuroscience lab, co-directed by Prof Anne Rosser and Dr Mariah Lelos, based at Cardiff University, UK. We work on developing therapeutics for Huntington's and Parkinson's disease @riahlelos.bsky.social https://www.thebrainrepairgroup.com/
James Dickson @jamesdickson.bsky.social Lawyer turned boatbuilder and charity board member. Bristol 603 owner and occasional driver. DBS helps manage the YOPD….
James Martin, SJ @jamesmartinsj.bsky.social Jesuit priest, editor at large of America Media, founder of Outreach, consultor for the Dicastery for Communication, author of "Come Forth."
https://linktr.ee/jamesmartinsj
Kevin Duque @kevinduque.bsky.social Research Scientist, Dpt. of Neurology, University of Cincinnati | MD, Universidad Peruana Cayetano Heredia | Bringing Precision Medicine to Parkinson's and Neurodegenerative Diseases: Matching drugs to patients
https://foundation.uc.edu/ccbp
Anna Sadnicka @sadnicka.bsky.social Consultant Clinical Academic studying human movement disorders @ ucl.ac.uk/gatsby/ and Department of Clinical and Movement Neurosciences.
Computational Movement Disorders Lab
https://sadnickalab.org
Funded by @ wellcome.org/
@kmillsy.bsky.social @kmillsy.bsky.social 
The Dementia League @dementialeague.bsky.social The Dementia League – Empowering you with science-backed ways to protect your brain! We summarize the latest peer-reviewed research on lowering dementia & Alzheimer’s risk + healthy brain habits. Stay informed, take action. Follow for weekly breakthroughs!
CareBerry @careberry.bsky.social 💜 CareBerry (www.Ceider.org)
Supporting #dementia & Alzheimer’s, #caregivers, & researchers. 💡 Resources and tips| 🫂 Caregiving Tools | Research Participation🌟 Empowering lives, one CareBerry at a time. ❤️ See our games & supports.
Nico Dosenbach @ndosenbach.bsky.social David M. & Tracy S. Holtzman Professor, Neurology @ WashU School of Medicine; precision neuroimaging, network plasticity, BWAS ≠ fMRI, action mode; #neuroscience #neurology #openscience #science
dosenbachlab.wustl.edu
CA Holt @singlecatlady29.bsky.social Resident of the only nonprofit CCRC in the state of Maine. Photo is of a recent ceramic I made in our ceramics studio.
Dementia Community @dementiacommunity.bsky.social Dementia Community is a Charitable Community Benefit Society, a membership cooperative that provides learning and networking opportunities for the dementia care community. For more information please visit our website: journalofdementiacare.co.uk
Adam Aron @swaziadam.bsky.social Prof at UCSD. Teaching, organizing & researching to end fossil fuels & build wider social movement capacity for defense of speech, public ownership & community resilience. 🍉
Chronic Illness Humor @chronicillness.bsky.social Chronic Illnesses + Autoimmune Disorders R no laughing matter but my humorous posts will make U feel better for while. https://chronicillnesstees.etsy.com
https://mybodyistryingtokillme.com/
https://www.redbubble.com/people/ChronicillnessT
#chronicillness
AJ Lees @ajlees.bsky.social Professor of Neurology, National Hospital Queen Square, Institute of Neurology, UCL
Writer, Rare Soul,
Nature Neuroscience @natneuro.nature.com News, commentary and research coverage from the international monthly journal publishing the highest quality of work in all areas of neuroscience.
https://www.nature.com/neuro/
Kevin McFarthing @kevinmcfarthing.bsky.social Learning about Parkinson’s disease since 2012. Compiler of the Parkinson’s Hope List bit.ly/ParkinsonsHopeList . Scientist.
Steve Smith @fmrib-steve.bsky.social Brain imaging research, Oxford
Corey Keller @coreykeller.bsky.social Brain Stimulator | Associate Prof @StanfordMed | Co-founder @AltoNeuro | MD/PhD | My lab @StanfordPNTlab.bsky.social develops methods to modulate human brain circuits.
precisionneuro.stanford.edu
The Centre for Human Brain Health @thechbh.bsky.social We are a research facility at the University of Birmingham with the mission to understand what makes a brain healthy, how to maintain health & how to prevent and reverse damage.
www.birmingham.ac.uk/chbh
Randy Rainbow @randyrainbow.bsky.social 4X EMMY® and GRAMMY®-nominated comedian, actor, singer, producer, NYT Bestselling author. TeamRainbow@wmeagency.com
Simon Little @littleneuro.bsky.social Neurologist & Neuroscientist interested in Brain Stimulation, Movement, Mood, Motivation, Sleep, Self Regulation, Psychology and Parenting
Barbara Salsberg Mathews @salsbergmathews.bsky.social Artist, Educator, Mom, Parkinson’s Advocate
Kristi LaMonica, PhD @kristilamonica.bsky.social Cell and developmental biologist and department chair with young onset Parkinson’s (YOPD). DBS in May 2024.
Molly O’Neil, DO @mowwyjane.bsky.social MD➡️WV➡️PA➡️next stop VA for EMS Fellowship. Current EM PGY-3, chief resident.🚑 Adopted. Passions: dogs, plants, pop punk, mentoring, EMS, rural + wilderness med. views=own
Laura Xavier @lauraxaviermd.bsky.social Movement Disorders fellow @WashUNeurology | alumnus @UNCneurology | @SimonyanLab @harvardmed 👩💻| @pucrs MD 🩺| Brain Imaging | #NeuroEthics⚡️🧠🔬 Gaúcha 🇧🇷
@withwhatwehave.bsky.social @withwhatwehave.bsky.social Mama of many. Cargo bike pilot. SF transplant, rooted. Related to Parkinson's by marriage. Doing what we can, where we are, with what we have.
Andrew Lees @lees38.bsky.social Why can’t we all just get along?
Food, sports, politics and not necessarily in that order.
Bridget Ryan @bridgeto.bsky.social Retired. Now caretaker for my wonderful husband who has Parkinson’s.
ASAP Team Jakobsson @jakobssonasap.bsky.social ASAP Team Jakobsson is interested in studying the role of transposable elements in Parkinson's disease pathogenesis | Core leadership: Johan Jakobsson (LU), Agnete Kirkeby (UCPH), Molly Gale Hammell (NYU) & Roger Barker (Cambridge University)
Sally @platypuspants.bsky.social Failure, first and foremost. Neuroscience nerd. Avid reader. Rabid CanCon fanatic. Urban worm farmer. I bake a lot of bread.
Benjamin Vidal @benjaminvidal.bsky.social Functional / molecular neuroimaging. Maitre-assistant at UNIGE (Valerio Zerbi's team)
Flyaway (she/her) @flyaway.bsky.social Jewish atheist #UU in MD. Bookaholic, autodidact, 🏳️🌈🏳️⚧️ally. Love nature, science, language, weather, choir, many etc's.
Ex-pilot😢, ex-birder😢 and ex-catmom😿 due to #disability : #fibro, pseudogout #arthritis, #Parkinson's
#ADHD
Old 👵🏻
I support 🇺🇦 & 🇨🇦
(((Ron Mandel, PhD))) @ron-mandel-neuro.bsky.social Dogs and neuroscience, that's about it. BTW, professor at UF neuroscience. 🐕🦺🐕🦺🐕🦺🐾🦴
NoraBengoa @norabv.bsky.social Principal Investigator @ Achucarro (ABCN), neuroscientist, AD/PD researcher, she/her
Phil Sainter @philsainter.bsky.social Assistant Head of School for the School of Applied Management. The views posted here are my own and not my employers.
Dog dad, #techgeek, #360photos, #academicsky
Can Sarica @cansarica.bsky.social 🇹🇷 🇨🇦 Neurosurgeon, Current PhD candidate @KBI_UHN & former clinical fellow @UofT studying focused ultrasound w Andres M. Lozano and Robert Chen
Synapticure @synapticure.bsky.social Cutting-edge telemedicine for patients with Alzheimer's and related Dementia, Parkinson’s, ALS and more. 🌐 synapticure.com | 📞(855) 255-5917- N Ninet Lab @ninetlab.bsky.social Interventional Brain Medicine (IBM);
Neuroimaging;
Complexity Science
Tony wilkinson @tony-wilkinson.bsky.social Living with Parkinson's since 2015, Ambassador for World Parkinson's Congress. Advocating for PWPs on a global scale. Parkinson's chose me? It chose the wrong person!
Sean Stillman @seanstillman.bsky.social https://linktr.ee/seanstillman
Author (SPCK) | Minister |Broadcaster | Here to connect with fellow PWP #Parkinsons, share news about Zac’s Place in Swansea & reflect on faith, love, justice, mercy, grace … Still learning how to cuss without cussing.
Matthew Baker @matthewbaker.bsky.social Ph.D. ● Systems Neuroscientist, Neuromodulation 🧠 Postdoc in Cybernetics and Motor Physiology Lab at Mayo Clinic ● Tennis 🎾 Dogs🐕 Views are my own
Johannes Levin @johanneslevin.bsky.social Professor for Clinical Neurodegeneration at LMU Munich; Deputy lead of clinical research at German Center for Neurodegenerative Diseases (DZNE), site Munich; Chief Medical Officer at MODAG GmbH. --> Passionate about therapy development, Bayern & Betis
Coleman Lab @colemanlab.bsky.social Doing great science by putting people first Neuroscience group protecting axons sciencewithoutanguish.com
Fellow of Churchill College, Cambridge
Coach supporting scientists to get more clarity on their goals and move toward them
@richelleflanagan.bsky.social @richelleflanagan.bsky.social 
Maximilian Friedrich, vertigologist @vertigologist.bsky.social Neurologist and Neuroscientist studying movement and balance through the lens of computer vision, neuroimaging and neurostimulation. @University Hospital Ulm by way of @braincircuits.bsky.social
Michael Fox @foxmdphd.bsky.social Raymond D. Adams Endowed Chair and Professor of Neurology at Harvard Medical School / Mass General Brigham; Director of the Center for Brain Circuit Therapeutics @braincircuits.bsky.social
Barbara Hollunder @barbarahollunder.bsky.social Postdoc @ the Center for Brain Circuit Therapeutics, Brigham & Women’s Hospital, Harvard Medical School I Psychotherapist in training I Passionate about causal brain mapping & science illustration I Cyclophile fueled by cardamom tea.
Center for Brain Circuit Therapeutics @braincircuits.bsky.social Center For Brain Circuit Therapeutics at Mass General Brigham / Harvard Medical School
Abhimanyu Mahajan @amahajanmd.bsky.social Movement disorders neurologist and Associate Professor at the University of Cincinnati| Science. Clinical care. Education. Occasionally, Policy| Views are my own, not medical advice. 🧠
https://orcid.org/0000-0001-8807-6672
allparkedout @allparkedout.bsky.social 
David aka intenseCA @intenseca.bsky.social Clinical research on neg effects of #dopamine agonists on #Parkinson’s, #DBS patient, #polyglot x4, #TheoreticalPhysics #astrophysics, Save #Chandra 🇮🇱 🇦🇺🇨🇦🇺🇸 #FBPE #gay #Sondheim, Not a fan of #biologic meds, 💙 ✡️ Am Yisroel Chai
The Parkinson's Foundation @parkinsondotorg.bsky.social The Parkinson’s Foundation makes life better for people with Parkinson’s disease by improving care and advancing research toward a cure. In everything we do, we build on the energy, experience and passion of our global Parkinson’s community.
Parkinson.org
Emma Edwards @kernowpdnurse.bsky.social Parkinsons nurse / mental health nurse and advocate.
Deputy CEO at SpotlightYOPD.
Volunteer with Parkinson’s UK.
RCN Neuroscience Nurse Forum- Vice Chair
Myparkinsonsnurse.com
Likes the beach, gardening ,dogs and pasty eating!
Benjamin Stecher @benjaminstecher.bsky.social Associate Director of the Silverstein Foundation for Parkinson's with GBA as well as Chair of the Patient Advisory Board to Rune Labs.
Nicki Swann @nickiswann.bsky.social Neurophysiology of motor system at University of Oregon | Mom of littles | nature lover | kindness is strength | opinions are my own
she/her
Audrey Kist @akist.bsky.social 🧠 Cognitive Neuroscience PhD | NeuroPsychiatry, deep brain stimulation, Electrophysiology (EEG sEEG LFP) | Grenoble Alps University, ex UCSF Psychiatry Dpt | Piano, violin, guitar, drums and other things that make noise | She/her.
@eswain11.bsky.social @eswain11.bsky.social 
Tina Gee @sqrrlie1.bsky.social She/her Am-Aus living on Peramangk lands. Lover of birds, squirrels, world travel, food & democracy. PD Avenger & Parkinson’s advocate (HwP). All views are my own.
drfarles.bsky.social @drfarles.bsky.social Senior Lecturer, Department of Physiotherapy & Research Fellow Monash Centre for Scholarship in Health Education (MCSHE)at Monash University | PhD FHEA FANZAHPE APA Titled forResearch Physiotherapist MACP
#balanceexercise #HPER #qualitativeresearch #EBP 
@ckidder.bsky.social @ckidder.bsky.social Blue Ohio native. Love crochet. Parkinson’s warrior!!!
OpenNeuro.org @openneuro.bsky.social The OpenNeuro project is a BRAIN Initiative data archive that shares BIDS-formatted neuroscience data.
WilluhnLab @willuhnlab.bsky.social A bunch of passionate neuronerds studying the brain origins of reinforcement learning and compulsive behavior at the Netherlands Institute for Neuroscience. Dopamine, serotonin, basal ganglia, PFC, DBS. https://nin.nl/research/researchgroups/willuhn-group/
@fixelinstitute.bsky.social @fixelinstitute.bsky.social Where cutting-edge research transforms lives affected by Parkinson's, Multiple Sclerosis, Alzheimer's, Dystonia, and Traumatic Brain Injury.
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Appointments: 1-352-294-5400
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3009 Williston Road, Gainesville, Florida
Till Dembek @tilldembek.bsky.social Clinical Neuroscientist focussed on Deep Brain Stmulation | Based in Cologne
Alberto Espay @albertoespay.bsky.social Neurology professor at the University of Cincinnati, an advocate of precision and rescue medicines for Parkinson's & Alzheimer's. Author #BrainFables.
Veerle Visser-Vandewalle @vvvcologne.bsky.social Head of the Dep. of Stereotactic and Functional Neurosurgery of the University Hospital Cologne, Germany. Passionate about DBS for movement, psychiatric and cognitive disorders.
@martinhmfc.bsky.social @martinhmfc.bsky.social 
Sara Riggare, PhD @sarariggare.bsky.social Swedish patient researcher living with #ParkinsonsDisease. #Spetspatient #QuantifiedSelf #PersonalScience #CitizenScience Uppsala University
https://www.riggare.se
https://www.spetspatienterna.se
Matt Eagles @matteagles.bsky.social Parkinson’s for 50 years, positivity activist ⚒️lifelong Hammers fan
Lars Hartvigsen📎 @larshartvigsen.bsky.social Parkinson.
Sci-fi. Fantasy. Open world single player computer games. Antifa. Bicycle Lobby.
Green politics > current politics > populists.
He / him.
The Science of Parkinson's @scienceofpd.bsky.social Personal account of the Director of Research at Cure Parkinson's - All views my own - Kiwi - Kia kaha - 侘寂 - https://scienceofparkinsons.com/
Wolf-Julian Neumann @julianneumann.bsky.social Associate Professor für invasive neurotechnology, interested in dopamine, brain signal decoding and connectomics. Reach me electronically via @charite.de but add julian.neumann before that.
Charité - Universitätsmedizin Berlin
Opinions my own.
Dr. Indrit Bègue @indritbegue.bsky.social Psychiatry, Neuroimaging, Neurostimulation, Clinical Translation, Cerebellum
Assistant Professor, University of Geneva🇨🇭
Views mine not my employer’s.
Likes or Reposts are not endorsements.
EBRAINS @ebrains.bsky.social EBRAINS is an open research infrastructure that provides data, tools and services for brain-related research.
Cully 🇺🇸🦡 @cullybreturns.bsky.social Eastside Milwaukee-gardening-pets-nature-living with parkinsons-sheltering in place for the next 4 years.
@retiredwolf.bsky.social @retiredwolf.bsky.social Canadian, retired LE, care partner for husband who was dx with PD in 2017, DBS in 2023.
Allie Signorelli @alliesiggy.bsky.social Young Onset Parkinson’s Patient & Advocate | Writer | Storyteller | Mildly Funny | Always Feisty | Tragically Hopeful
Kristin @wecanthrivepd.bsky.social Dx’d #Parkinsons 2020. 🥊 Psychologist 🧠 Doing my best to thrive! 💯 💯 This account is focused on and follows Parkinson’s-related and medical/health content. Here to learn ✏️ and to give and receive support 🦋🦋🦋.
Esther @shakinginmyboots.bsky.social Wife, mom, Activist YOPD Ambassador Parkinson’s Foundation Board Member. Past life hospital Quality Director MSHA, CPHQ
El Paso, TX 🏠
https://linktr.ee/elabibkiyarash
John Crocker @guidcruncher7.bsky.social I am not a dog, we share a bed occasionally (2 humans 1 dog). #YOPD #Parkinsons #Disabled #BedWars #OpenToWork
https://linktr.ee/johncrocker
Becca Miller PhD @rebeccamil.bsky.social 🌈💙🐌 Team Snail founder, Clinical Psychologist, Living with #yopd Young Onset #Parkinsons Disease since age 27, dx 2013. #DBS in 2021 & 2024. MJFF Patient Council member, SMC, love lemons www.rebeccamillerphd.com
Mariah Lelos @riahlelos.bsky.social Reader (Assoc Professor) in Neuroscience. Working on Huntington's and Parkinson's disease 🧠🧪🧬🔬 Mum to 2 rascals. American settled in Wales. @brainrepairgroup.bsky.social https://www.thebrainrepairgroup.com/
Democracy Now! @democracynow.org Independent, daily global news hour.
Support our work: http://democracynow.org/donate
Daily News Digest: http://democracynow.org/subscribe
PessoaBrain @pessoabrain.bsky.social Luiz Pessoa, University of Maryland, College Park
Neuroscientist interested in cognitive-emotional brain
Author of The Entangled Brain, MIT Press, 2022
Author of The Cogitive-Emotional Brain, MIT Press, 2013
Neuroscience & Philosophy Salon (YouTube)
Stimulating Brains @stimulatingbrains.org A podcast & talk series about brain stimulation and stimulating brains. Home at the @netstim.org
Bahne Bahners @bahnebahners.bsky.social Research Fellow @ Brigham & Women‘s Hospital and Harvard Medical School interested in #DBS⚡️#MEG 🧲 #EEG 🧠 #Parkinson 🌷 @netstim.org
https://scholar.google.com/citations?hl=de&user=GmeYFEcAAAAJ
Prof. Vladimir Litvak @vlitvak.bsky.social Neuroscientist and (kind of) programmer studying the links between the depths of the brain and its surface. Former Kiev, Jerusalem, Wuerzburg, Haifa.
Alfonso Fasano @alfonsofasano.bsky.social Professor of Neurology, University of Toronto, Mov Disord Centre, Toronto Western Hospital, Krembil Brain Institute
Twitter exile
Nick Cole @nickc01.bsky.social Lover of Battenburg Cake, dopamine deficient, retired nurse
Iain Liddle @iainliddle.com Sports | Tech | Media | Green Bay Packers | Write about life with #YOPD / #Parkinsons 👇
Read and subscribe: https://newsletter.iainliddle.com/
Julie Hancock @juliehancock32.bsky.social US Immigration attorney, political activist, Dem leader in Northeast Wisconsin. Organizing to protect and fight for democracy.
Claudia Calhoon @claudiacalhoon.bsky.social Immigration/health advocate, health policy professor, CUNY York College, NYC/NC. 
Beth Lew-Williams @bethlewwilliams.bsky.social Historian at Princeton University. Preoccupied with immigration, past and present.
David Sangster @davidsangster.bsky.social film maker. songwriting. piano. shed life. #parkinsons since 2011. #DBS 2019. Work at Parkinson's UK. Views my own.
Phil Jerky @philjerky.bsky.social Tall, beardy, stand-up comedian with Young-onset Parkinson's based in Brum. All views expressed are my own.
Figen @thefigen.bsky.social
"We find the meaning of life in love, the value of existence in respect.”