Kate Boor Ellis @kateellis-ae.bsky.social Communications Officer at Alzheimer Europe (@alzheimereurope.bsky.social)
@laoch-phrionsa.bsky.social @laoch-phrionsa.bsky.social
Alzheimer Europe @alzheimereurope.bsky.social Non-profit NGO, making #dementia a European priority.
Newsletter: https://bit.ly/AE_News_signup
Conference #36AEC
Icons of Change™ News Network @iconsofchange.bsky.social Global Changemakers news and inspiring stories on SDGs & sustainable impact powered by the Icons of Change International
https://www.facebook.com/TheIconsOfChange
Ailsa Jane @ailsajanepodmed.bsky.social Podiatrist | PhD Researcher | Mother | MSer🧡 | Beagle | Cats | Books | 📚| More 📚| 🏴
#SwanseaUni #MultipleSclerosis #LowerLimbHealth #Podiatry #FootHealth #PROMs #HealthResearch #PPI #NeuroRehabilitation
Mahmoud Ashraf Dabis @mahmoud-dabis.bsky.social Psychiatrist- G @genetxfien.bsky.social @genetxfien.bsky.social
Ona Albizu - PhD MSc BD @onaalbizu.bsky.social Empowering persons w Myalgic Encephalomyelitis. 35y w/ME
Colab at ONG PEM Spain, ME-International.org, EMEA
ICPrimer our best tool.
#UniteToFight2024
Empoderando a #pcME. El Manual-CI nuestra mejor herramienta.
Informando ME, MCAS, ANPE, LC
EU's HowToEnjoy @howtoenjoydoteu.bsky.social Discover joy in EU events, music, press, tech, tourism, travel, wine, etc., on linktr.ee/HowToEnjoyDotEU. Unleash fun, from villages in Europe to European cities & tourist hotspots. Embrace essence of union via lens of 27 countries | NGO | HowToEnjoy.eu
The Societal Impact of Pain (SIP) Platform @sip-painpolicy.bsky.social The Societal Impact of Pain (SIP) is a multi-stakeholder platform led by the European Pain Federation (EFIC) and Pain Alliance Europe (PAE), with the aim of raising awareness about pain and changing pain policies.
europeanpainfederation.eu/sip/
Christine Sabean @christinesabean.bsky.social
A Moveable Feed @talentx.bsky.social Moveable Feed: sharp, biased dispatches from Trump’s America and the AI future. Ex‑DC comms hack, still talking. Read + subscribe here → https://buttondown.com/amoveablefeed
Thibaut Le Forsonney 🇪🇺🇺🇦 @thibautcaspari.bsky.social 🧠 Scientific & Policy Officer @ European Psychiatric Association 🎗️ Maraude Coordinator @ Red Cross Etterbeek ☀️ Supporter @ Society for Threatened Peoples
inflammatory @inflammatory.bsky.social Chronic inflammatory demyelinating polyradiculoneuropathy (CIDP) is a rare heterogeneous, but treatable autoimmune mediated peripheral neuropathy characterized by demyelination. #CIDP #immunosky #Neurology #NeuroSky #NeuroSkyence #ankylosingspondylitis #ms
Maria Lindqvist,PhD (Åbo,Stockholm,Uppsala,Roma) @amazingmariapian.bsky.social PhD and postdoc in medicin
https://balticseanews.se/ http://www.finlandiabiosciences.com
http://www.educateandhelplocally.eu
instagram: https://www.instagram.com/balticseanews/
youtube: https://www.youtube.com/@finlandiabiosciences
Felix L Nägele @felenae.bsky.social MD • neurologist • researcher @ Clinical Stroke & Imaging Research, University Medical Center Hamburg-Eppendorf
@sianon1.bsky.social @sianon1.bsky.social
@mha-67.bsky.social @mha-67.bsky.social
Emilie Dufour, ælle 🌸 🏳️⚧️ MD @emiliedufour.bsky.social Psychiatrist, trans woman. Researcher in epigenetics, neuroendocrinology & cognitive in psychiatry. Cofounder CUMP de Paris. Cyclist & keen sportswoman 🚴🏻♀️ 🩷 Bi & Pan 🏳️🌈 🇫🇷 🇪🇺 🌹
Naomi Mittet @naolimit.bsky.social Circadian sleep disorders advocate. Raising awareness for Non-24 in sighted people. #DSPD mom of a #Non24 young adult. Former board member at https://csd-n.org. Full time caregiver. She/Her.
Cover photo by Daniel Kordan.
Public Health Committee @sant.europarl.europa.eu European Parliament Committee on Public Health. Managed by EP press service. Reposts ≠ endorsements.
Katie Owens @ktowens.bsky.social EUComms person and cancer thriver
Interested in public communication and literacy, especially linked to health (physical and mental) and nutrition/food safety
Views my own
LORRAINE LALLY @lorrainelally.bsky.social Galway native, Lover of Lyons Tea,Happy Out
FND Portal @fndportal.bsky.social A person with Functional Neurological Disorder. News and musings on FND, disability, and brain science. Contributing to projects at AAN, FNDS, NHNN. When we work together we can change it for the better. He/him.
@eraneuron.bsky.social @eraneuron.bsky.social
Jacob Matson @ptrpanarchist.bsky.social I have a wonderful family that I wish I could spend every minute with. Except when I'm at the gym. That's it, I'm two dimensional.
Science Events @scievents.bsky.social Science Events helps you organise a scientific conference or workshop. Use our platform to organise your next event! Visit our platform at https://www.sci.events
@patientmakt.bsky.social @patientmakt.bsky.social Environmental surveillance. Things of importance for patients through time & space & for the future. https://patientmaktpatientcv.substack.com
Life Science Network @lifesciencenet.bsky.social A platform for life sciences. Publications, research protocols, news, events, jobs and more. Sign up at https://www.lifescience.net.
European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social Education, Promotion, Networking, Science
The EPNS is a non profit making independent Society for physicians, trainees/residents, PhD students, health professionals, scientists and students with a research or clinical interest in Child Neurology.
European ME Alliance @europeanmealliance.bsky.social The European ME Alliance (EMEA) is a grouping of European organisations founded in 2008 by national patient organisations and charities across Europe, and dedicated to supporting patients suffering from Myalgic Encephalomyelitis (ME), also known as ME/CFS
Stroke Alliance for Europe (SAFE) @strokeeurope.bsky.social Stroke Alliance for Europe is a coalition of patient organisations from over 30 European countries, fighting together against stroke in Europe.
ASBL 0661.651.4
https://www.safestroke.eu
https://www.elasf.org
https://strokeprevention.info
Research Elements @reselements.bsky.social Web development, data management and visualizations. Consulting services for scientific and r&d communities. https://www.researchelements.org/
JARDIN Joint Action @jardinjointaction.bsky.social To improve the accessibility of the ERNs for patients across Europe, the EU has funded a pioneering 3-year project involving all member states (MS) plus Norway and Ukraine, the Joint Action on Integration of ERNs into National Healthcare Systems (‘JARDIN’)
HIPPOCRATES-IMI @hippocrates-imi.bsky.social HIPPOCRATES aims at improving diagnostic and therapeutic options for people living with #PsoriaticArthritis. HIPPOCRATES has received funding from the Innovative Medicines Initiative 2 Joint Undertaking (JU) under grant agreement No. 101007757.
EUPHA @eupha.bsky.social The European Public Health Association, or EUPHA, is an umbrella organisation for public health associations and institutes in Europe.
FutureNeuro Centre @futureneuro.bsky.social FutureNeuro is the Research Ireland Centre for Translational Brain Science, based in RCSI University of Medicine and Health Sciences. Our vision is to change the patient journey for people affected by brain conditions.
Salewa Akintilo @sakintilo7.bsky.social Asst. Director, Science Communications and Initiatives @arvoinfo.bsky.social | MSGH @NorthwesternU '17 | @penn_state'14. Health is a human right!
Open Research and Public Engagement Roadmap @engagedroadmap.bsky.social Co-Creating Ireland's Public Involvement in Open Research Roadmap
ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.
Christian Lindknud @lindknud.bsky.social Dane 🇩🇰 based in Lyon, France 🇫🇷 and mostly working out of Ghent, Belgium 🇧🇪 to cover the World 🌍; professional growth hacker and strategic comms head
Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social Supporting children and young adults with Congenital Hyperinsulinism.
Family Support Group
Patient Led Research
Advocacy
Family Days and Conferences
https://linktr.ee/chcharityuk
Jalal Khawaldeh @jalal-khawaldeh.bsky.social Theoretical Scientist | Researcher & Philosopher
Head of Research Department, RO Educational Institute
https://www.researchgate.net/profile/Jalal-Khawaldeh
https://orcid.org/0009-0003-7872-1967
Tasia Asakawa @tasiaasakawa.bsky.social FENS Executive Director
#FENS2026 | 6-10 July | Barcelona, Spain
fens.org
Berkehan OK, MD @berkehan.bsky.social
Institute for Stroke and Dementia Research (ISD) @isd-research.bsky.social Welcome to the Institute for Stroke and Dementia Research (ISD) in Munich – Director: Prof. Martin Dichgans
https://www.isd-research.de/
@spiec.bsky.social @spiec.bsky.social
European Brain Council (EBC) @braincouncil.eu
ME félag Íslands @mefelag.bsky.social The Icelandic ME association #MEawareness #mefelag #longcovid #vitundarvakning
Iván Darío Bravo Tobar. M.D. | M.Sc. | Ph.D. @idbravotobar.bsky.social "Science isn't just a job, it's the passion for transforming knowledge into impact."
Physician 🏷️ Academic 🏷️ Clinical Biomedical & Translational Research 🏷️Medical & Scientific Writing 🏷️ Consultant 🏷️ Amateur astronomer.
#MedSky #SciSky #BioChemSky
Torie Robinson @torierobinson.bsky.social 🎬 Epilepsy Sparks Insights Podcast Host & YouTuber 🧠🧬 | International Speaker | PPI Lead | #Epilepsy & #MentalHealth Research fiend | All views my own
@javitorrillas.bsky.social @javitorrillas.bsky.social
Neuropatias Autoinmunes- GBS|CIDP España @neuropatias.bsky.social La asociacion de pacientes con neuropatias autoinmunes , familiares y amigos.
Síndrome de Guillain-Barré, CIDP (polineuropatia desmielinizante inflamatoria cronica) , NMM (neuropatia multifocal motora), etc. : somos tu casa.
Viviane Poupon @vivianepoupon.bsky.social President and CEO at Brain Canada Foundation- S @samri.bsky.social @samri.bsky.social
Stroke Ed Collaboration @stroke-ed.bsky.social The StrokeEd collaboration is an Australian education provider. We offer evidence-based workshops and lectures to improve the skills, knowledge and practice of rehabilitation therapists, and influence the delivery of rehab to stroke survivors.
strokeed.com
Organisation for Psychological Research Into Stroke @opsyris.bsky.social WFNRehab SIG Organisation for Psychological Research into Stroke (OPSYRIS). Facilitating research into psychological aspects of stroke worldwide.
https://opsyris.org/
Finapres Medical Systems @finapres.bsky.social Finapres Medical Systems BV, based in the Netherlands, develops and distributes medical devices and software for totally non-invasive hemodynamic monitoring.
Dr. M. Haegele @medinfode.bsky.social #eHealth #ePatient #eGA #gesundheitsinformation #mhealth #medizinbubble #medizininformatik #künstlicheIntelligenz #patientEmpowerment #gesundheitsakte #gesundheitskompetenz #healthLiteracy #medienkompetenz
www.vitaquiz.de
www.medizininformatik.de
Rare Disease Clinical Trial Network @rarediseasectn.bsky.social HRB-funded clinical trial network aiming to increase the quantity and quality of rare disease clinical trials in Ireland, keeping the patient voice at our core.
NIDUS Delirium Network @nidus-delirium.bsky.social Network for Investigation of Delirium: Unifying Scientists (R33AG071744). Collaborative network developing resources to enhance #delirium research worldwide. deliriumnetwork.org
Becci @becci-smart.bsky.social Wales based disabled activist.
Plaid Cymru Director of Equalities.
Health, Wellbeing & Social Care Management Student.
Lydia, 34 @lydiafd.bsky.social Living with post-Covid ME/CFS, dysautonomia and Functional Neurological Disorder since a 2nd Covid reinfection in May 2022
American Epilepsy Society @amepilepsysoc.bsky.social Official account for American Epilepsy Society. We support research + education for professionals working towards a world without epilepsy. RPs ≠ endorsements.
Loretta Piccenna @lpiccenna.bsky.social Research facilitation, support and communication, passion for the study of the brain, former neuroscientist and currently at Monash University dept neuroscience. Art, design, food, nature and animal lover, patient involvement and public outreach
Jessamyn Conell-Price @jessamyn.bsky.social Neurologist. Reader.
Working towards a just health system and a just society. Pro-abundant housing, pro-public bathrooms, pro-benches, pro-plaza, pro-loitering. Anti-war.
Views my own.
Nordic Health 2030 Movement @nordichealth2030.bsky.social A cross-border movement of dedicated stakeholders working towards a sustainable future for health and wellbeing based on Nordic values and experiences.
Martin Grimshaw Has Long Covid @thrivingplanet.bsky.social Was: Facilitation & organisational culture nerd for do-gooders; climate & sustainability. Healthy, athletic; MTB, ski, mountaineering, outdoors. Everything on pause: Long Covid is brutal.
A lot funnier IRL
Lancaster, North West England (Plague Island) ⓥ🇨🇭
BNPA.bsky.social @bnpa.bsky.social The British Neuropsychiatry Association is a professional organisation dedicated to exploring the interface between neurology, psychiatry, and neuropsychology. Join us https://bnpa.org.uk/
Migraine Ireland @migraineireland.bsky.social Providing information, support and reassurance to the 800,000+ individuals living with #migraine in #Ireland. Promoting awareness of Migraine nationally.
European MS Platform @emspofficial.bsky.social Advocacy and expertise for over 1 million people living with #MultipleSclerosis and related disorders in Europe.
AI-PROGNOSIS @aiprognosis.bsky.social AI-PROGNOSIS - a Horizon Europe-funded project developing Artificial intelligence-based solution for Parkinson’s disease risk assessment and prognosis.
AI-PROGNOSIS receives funding from the European Union under Grant Agreement No. 101080581.
FND Ireland @fndireland.bsky.social FND Ireland is the first Irish registered charity dedicated to advocating for and supporting those living with Functional Neurological Disorder (FND) in Ireland. 💚🧡 www.fnd.ie
Yeast Posting @yeastpapers.bsky.social Bluesky shadowbanned me
Follow my alt account
Current yeast articles everyday :)
Follow our Feed #yeast #saccharomyces
:)
From Molecular Genetics Lab, USACh
Junior Einsteins Science Club® @junioreinsteins.bsky.social Award-winning Science events for kids. Founded Ireland☘️ Scientist, Mum, speaker United Nations 🇺🇳 Fun, messy, screen-free hands-on, STEM fun Ireland 🇮🇪 UK 🇬🇧 Canada 🇨🇦 Saudi Arabia 🇸🇦 Luxembourg 🇱🇺 Ukraine 🇺🇦 International Schools partnerships. Franchise.
Libby @libbyluna.bsky.social Yoga therapy, autism/neurodiversity, psychology, philosophy/consciousness, history, language, teaching, editing, theatre, books, cats, scotch, karaoke
Dr. Aaron Nelson @pedsneuromd.nyc Posts ≠ advice ≠ endorsement.
Professor, husband, father, he/him/his.
NYC CNPD, MD, MBS, FAAP, FAAN, FCNS.
H+H Bellevue Hospital & NYU Langone Health.
@ https://pedsneuromd.nyc
Terhi Rauhala @teuhala.bsky.social Tiede- ja terveystoimittaja, toimituspäällikkö. Viestinnän ammattilainen. Äiti, vaimo ja rintamamiestalon omistaja.
Huntington's Disease Association of Ireland @hdai-ie.bsky.social HDAI RCN 20025656. Sharing news on Huntingtons Disease /connecting to the international HD community. http://huntingtons.ie
CMcG Rheum @medicastra.medsky.social #Hospital, #MD, #Rheumatology, UK based.
A chemistry PhD & pharma bg, came to medicine late
Scrolling is a distraction from taking action. Pick some concrete way to help & get to it.
@twofishnocat.bsky.social for the likes/hobbies stuff
Diana Wong Ramos @dianawr.bsky.social Cerebral Venous Thrombosis at the age 34. After stroke, i had a third child and, almost at the same time, began my journey as Patient Advocate. #StrokeActionPlan
IPOPI @ipopi.bsky.social IPOPI, International Patient Organisation for Primary Immunodeficiencies, is a non-profit international organisation and the leading advocate for primary immunodeficiency (PID) patients worldwide
AMYPAD @imi-amypad.bsky.social Research initiative aiming to improve the understanding, diagnosis & management of Alzheimer's disease. Our project was funded by @ihieurope.bsky.social
https://amypad.eu/
Jane Green MBE FCCT @jgjanegreenmbe.bsky.social Founder @SEDSConnective Volunteer / Fellow exAHT MA Ed AHT neurodivergence Hypermobility
Disabled/ Parent / Carer
MBE for services to neurodivergent hypermobility folk 2023
SEDSConnective @sedsconnective.org The first hypermobility neurodivergence charity BrainBody AUTISM ADHD Dyspraxia Dyslexia EDS HSD Dysautonomia
Chair @JGjanegreenmbe.bsky.social
Patrons:
Dr Eccles Dr Spititos
Web: www.sedsconnective.org
Link: https://linktr.ee/SEDSConnective
Chantal Verdonschot (she/her) @cverdo.bsky.social Comms @EuroHealthNet. Passionate about health and social equity. Frustrated with the status quo. Dutchie in Madrid 🇪🇸 Crochet enthusiast/newby 🧶
Nordic Wellbeing Academy @wellbeingacademy.bsky.social Nordic explorers - an NGO connecting people, organisations, and ideas globally to promote wellbeing based on Nordic experiences, ideas, and innovations.
Ismália De Sousa, MSc RN @ismalias.bsky.social (Ela/She) 🇸🇹 🇲🇴 🇪🇦 🇵🇹 🇬🇧
•PhD(c) @ubc-vnursing.bsky.social
•Advanced nursing practice in stroke 🧠
•Nursing, #stroke 🧠, health inequities, #CBPR, #IKT, critical philosophies & theories. Views my own.
🔗 https://blinq.me/MoK09zHNSTLphb9ES0X8
📍Vancouver, Canada
Inflammatory Neuropathies UK @inflamneurouk.bsky.social The only charity dedicated to supporting people impacted by Guillain-Barré Syndrome, CIDP, MMN, and other Inflammatory Neuropathies in the UK and Ireland
Lars Münter @larsmuenter.bsky.social Co-founder Nordic Wellbeing Academy @wellbeingacademy.bsky.social Development Director European Health Futures Forum.
Sustainable cities, people, education & health. Radical Optimist. Comms, policies & progress, cross-border projects and research
40:40 Recruitment - celia@4040recruitment.co.uk @4040rec.bsky.social We are a Specialist Recruitment Partner within the Pharma, Healthcare, Medical Devices & MedTech arenas throughout UK & Ireland. We cover all levels of roles in Commercial, Sales, Market Access, Market Research, Marketing, People Management & Medical
Mia Vee @mjvee.bsky.social 🇬🇷🇺🇲
10/28/1940
Daughter of an immigrant
Mother of a Multiracial Goddess
@jorges77.bsky.social @jorges77.bsky.social
JWMDRC Patient Registries @jwmdrc-registries.bsky.social Our neuromuscular research databases offer patients the chance to securely share their data and stories to support and access research.
https://linktr.ee/jwmdrcregistries
#UK #NMD #DM1 #DM2 #FSHD #SMA #Col6 #FKRP #MTM #CNM #Myotonic #MuscularDystrophy
Omar Havana @omarhavana.bsky.social Award-winning #Photographer based in #Brussels, #Belgium - Stringer for @APnews, @Reuters and @Getty Images. Ex #London, #SiemReap, #PhnomPenh, #Kathmandu and #Paris. #Author 📖 Endurance.- J Jana @jana-g.bsky.social EU Public Affairs & Regulation, Tech, Health, Automotive, Telecoms & Literature, Vegetarian