@epigeneticcongress.bsky.social @epigeneticcongress.bsky.social 
American Medical Journal @americanmedicaljournal.com AMJ: #1 open access destination for HCPs. Peer-reviewed journals & diverse content hub. Interviews, podcasts, webinars, infographics.
🔗: https://www.emjreviews.com/en-us/amj/
Jake Watson @jakefwatson.bsky.social Neurophysiologist @ ISTAustria
Soon: @researchmar.bsky.social
Synapses, hippocampus, human circuits.
Google Scholar: https://bit.ly/jakefwatson
Research summary: www.synapticarrangements.org
The Mark Shaparin Foundation @markshaparinfdn.bsky.social The Mark Shaparin Foundation honors the life and legacy of Mark Shaparin through awareness, education, and action to prevent Sudden Unexpected Death in Epilepsy (SUDEP) with the goal of saving lives.
Raymond Mumme @rpmumme.bsky.social Grad Student in Comp Sci @ UIUC @uofigrainger.bsky.social | Former Sr. Research Asst. in Radiation Physics @ Univ. of Texas MD Anderson Cancer Center @mdanderson.bsky.social, developed AI for RPA https://rpa.mdanderson.org | 🏳️🌈 he/him | Views are my own
The North American AED Pregnancy Registry @aedregistry.bsky.social Empowering Pregnant Women with Information About Anticonvulsants through Research
@nkeetley.bsky.social @nkeetley.bsky.social 
Cathy Abbott @cathyabbott.bsky.social Professor, eEF1A2/neurological disorders. Mostly talks about research, EDI (tries hard to be a good ally) but sometimes veers off into crafts and photos of Scotland. She/her, views own.
Chris Brasfield @ceebras1.bsky.social 
Research Elements @reselements.bsky.social Web development, data management and visualizations. Consulting services for scientific and r&d communities. https://www.researchelements.org/
Zack @zachario.bsky.social 
All things in moderation including moderation itself @mysticunicorn9.bsky.social 
ThePlaguesRUS @theplaguesrus.bsky.social Covering all news on wars, politics, climate change, science, travelling, photography and more.
🌌 🌋 🌊 🦠 📚 🔫📸🧳
@flomics.bsky.social @flomics.bsky.social Liquid biopsy & transcriptomics for biomarker discovery in cancer and beyond. Robust science, reproducibility & RNA-based diagnostics. 🌐 https://flomics.com
Socializing with Scientists @socwithsci.bsky.social The podcast that explores the surprising secrets of curious people. Hosted by Rachael Moeller Gorman.
https://www.buzzsprout.com/2464891
https://socializingwithscientists.com/
Sarah Vergult @svergult.bsky.social PI of the Functional Genomics lab (https://fungenlab-ugent.be/) at Ghent University.
Elucidating the genetics of neurodevelopmental disorders.
Special interest in the role of the non-coding genome during neurodevelopment.
GENEWIZ from Azenta Life Sciences @genewiz.bsky.social GENEWIZ from Azenta Life Sciences is a leading global multiomics service provider serving researchers worldwide through a suite of solutions including synthesis, Sanger sequencing, whole plasmid sequencing, and next generation sequencing.
Matthew Wheeler 🦋 @mwheelermd.bsky.social Physician-scientist @stanford medicine, AHFTC, genomics of rare disease, cardiovascular genetics, exercise multiomics, cardiomyopathy, novel therapeutics and data. #motrpac #UDN #Gregor #CFDE . Husband, kids and cats, mountains and snow. Resist hate.
Jen L, PhD @drjkyl.bsky.social Executive Editor/Team Lead Open Access Science & Medicine Journals Sage Publishing
Opinions = mine
http://linkedin.com/in/jlovick-editor
#oncology #cancerresearch #medicine #biology #cardiology #neurology #microbiology #publichealth #healthcare
Jalal Khawaldeh @jalal-khawaldeh.bsky.social Theoretical Scientist | Researcher & Philosopher
Head of Research Department, RO Educational Institute
https://www.researchgate.net/profile/Jalal-Khawaldeh
https://orcid.org/0009-0003-7872-1967
Marcus Ng @spikewhisperer.bsky.social Epileptologist, Dreamspike research lab director, Assoc Prof of Neurology, Associate Editor @JClinNeurophys. RT≠endorsements. Views are my own.
American Epilepsy Society @amepilepsysoc.bsky.social Official account for American Epilepsy Society. We support research + education for professionals working towards a world without epilepsy. RPs ≠ endorsements.
John Flanagan @watfordjohn.bsky.social Grandpa, Carer, Watford fanatic, ex-teacher and gardener.
Alexander Symon-Allen @asallele.bsky.social NHS Clinical Scientist in Genomics 🧬
Epilepsy 🟣 Neuro Tumours 🧠 Inherited Cancers 🦀
Hertie Network (Hamburg site) @hertieneurosci.bsky.social Hertie Network of Excellence in Clinical Neuroscience and Hertie Academy of Clinical Neuroscience
Cassandra Deichsel @cassdeichsel.bsky.social Neuroscientist turned sales executive at Campden Instruments striving to provide scientists the best possible tools for their research 🧠 American living in Germany ✈️ Dog mom 🐕
She/Her, Views are my own
https://campdeninstruments.com/
@carolinenava.bsky.social @carolinenava.bsky.social 
The Kartoffel @ourlittlekartoffel.bsky.social kartoffel.substack.com
Just writing what comes to mind.
Mostly about life as a parent to a child with a rare medical condition.
German Neuroscience Society e.V. - NWG @neurowissg.bsky.social nwg-info.de
Maik Bischoff @maikbischoff.bsky.social 🔬 Junior Group Leader in Münster, Germany.
🌐 Lab Website: https://www.bischofflab.com/
🌀 Morphogenesis, collective cell migration, and chiral organ development in #Drosophila.
🐍 Animal photos: 📷 instagram.com/maikscritters
Milo B. Fasken, Ph.D. @milofasken.bsky.social Senior Scientist, Department of Biology, Emory University, Atlanta, GA.
Molecular Biologist. RNA Scientist. Yeast Geneticist 🧬. British🇬🇧. Runner 🏃🏻…. Opinions are my own.
Interests: RNA Decay, RNA Processing, RNA & Disease.
v-ATPase Alliance @vatpasealliance.org Empower and unite families affected by v-ATPase genetic disorders
Advance Scientific Research on v-ATPase. Ultimately get a Cure!
🧬 Several ATP6V- genes
Dr. Ashley Nguyen-Martinez @drashleynm.bsky.social Pediatric Neuropsychologist @ Children’s Colorado. Assistant Professor @ Univ of Colorado. Epilepsy & (Neuro)genetics. Advocate. Rescue dog mama x 3.
The Voltage-Gated Calcium Channel Collective @thevgccc.bsky.social Raising awareness & promoting collaboration across the #calcium #channelopathies. Composed of caregivers & individuals impacted by the channelopathies, alongside researchers and clinicians focused on the 10 calcium genes. https://www.thevgccc.org 
Christel Depienne @christeldepienne.bsky.social Molecular geneticist | Neurogenetics | repeat expansions | chromosome X | snRNAs | and more
PacBio @pacbio.bsky.social Our mission is to enable the promise of genomics to better human health by creating the world’s most advanced sequencing technologies. 
Dravet Syndrome Foundation @curedravet.bsky.social The mission of DSF is to raise funds for research into Dravet syndrome and related epilepsies, while offering support to patients and families. https://dravetfoundation.org
PURA Foundation Australia @purafoundation.bsky.social www.purafoundation.au
We are a non-profit charitable organisation that assists in advancement of research and treatments for PURA syndrome. We support for families of, and individuals with, PURA syndrome in Australia and NZ.
Yeast Posting @yeastpapers.bsky.social Bluesky shadowbanned me
Follow my alt account
Current yeast articles everyday :)
Follow our Feed #yeast #saccharomyces
:)
From Molecular Genetics Lab, USACh
Michele Collins @micheledcollins.bsky.social Founder of Hope for ULD, wife, mom, grandmother, teacher, animal lover, follower of Jesus, finding great value in truth, integrity and compassion, fighting #RareEpilepsy
korbinian @korbinianf.bsky.social Philosophy PhD student at LSE
Jackie Steinberg @jackieaj1.bsky.social Rare Disease Mom
STXBP1
MPH CIC
Infection Control
Ali @alisonkatz.bsky.social 
Sophie Adler @sophieadlerwagstyl.bsky.social paediatric trainee | academic clinical fellow |mum x3 | neuroimaging | epilepsy | children | UCL
Oriana H @osc2101.bsky.social 
@rareepilepsy.bsky.social @rareepilepsy.bsky.social 
Hertie-Institut für klinische Hirnforschung (HIH) @hih-tuebingen.bsky.social Welcome to the Hertie Institute for Clinical Brain Research (HIH), dedicated to research, treatment, and teaching focused on the diseases of the human brain 🧠
📍Tübingen, Germany
Website: https://www.hih-tuebingen.de/
Supercooljoshman @supercooljoshman.bsky.social 
help Magdy's family in Gaza 🇵🇸🍉 @helpmagdy.bsky.social please help my friend Magdy and his beautiful family survive in Gaza; I've created this account to help promote their fundraising campaign, any donations or shares really help. thank you ❤️
https://gofund.me/a9eacbe9
account run by @ceargaest.bsky.social
@longtriptothestars.bsky.social @longtriptothestars.bsky.social 
Kutand Alkım Bayer @kutandalkim.bsky.social IZTECH-Chemistry, I like to be Polymath(learning different subjects), Polygot(interested in the learning different languages) comments and opinions are my own RT≠ is not endorsement (he/him)
Erin Heinzen @eheinzen.bsky.social 
@ous574.bsky.social @ous574.bsky.social 
Quantum Gearhead @quantumgearhead.bsky.social 
Eleanna Kara @eleannak.bsky.social Assistant professor, Rutgers university.
Biomolecular condensates, lipid droplets, alpha-synuclein
@ngsstudent.bsky.social @ngsstudent.bsky.social 
CDKL5 in Color @cdkl5incolor.bsky.social On the CDKL5 in Color podcast you'll hear lessons learned direct from parent caregivers of children living with #CDKL5 Deficiency Disorder, a rare developmental and epileptic encephalopathy. www.CDKL5inColor.com
Epilepsy Education and Support @epilepsyedsupport.bsky.social This page was created to give educational support by providing information about epilepsy. We are not a substitute for seeing a qualified medical professional
Laveena Singla @lsingla.bsky.social Epileptologist and clinical neurophysiologist. Here to talk about everything epilepsy and neurology.
HNRNP Family Foundation @hnrnpfamily.bsky.social Nonprofit dedicated to improving the lives of those affected by HNRNP-Related Neurodevelopmental Disorders through community and research.
Gerry Nesbitt @ CLIRINX Clinical Research IT @clirinx.bsky.social Clinical Research IT for Epilepsy & Rare Diseases
Natural Hx Studies, Patient Registries, Electronic Data Collection
Creator of The CRID and The RDDR
Web: https://clirinx.com
Caroline Beck @frogsquisher.bsky.social Mostly harmless. Developmental biologist studying regeneration and epilepsy in Xenopus tadpoles 🐸🐸🐸. A/Prof at University of Otago, New Zealand.
Lignani Lab @lignanilab.bsky.social UCL/ Neuroscience/ Epilepsy/ Gene therapy/ Brain Dynamics/ Dravet Syndrome/ CRISPR/ Homeostatic plasticity
Living Well With Epilepsy @livingwellwithepilepsy.com Your place for all things #epilepsy. Built by and for people living with and affected by #epilepsy. Around since 2009. Founder & CEO - Jessica K. Smith 
Hope for ULD @hopeforuld.bsky.social Hope for ULD is uniting patients, families, doctors, and researchers to fund research, treatment, and education for Unverricht-Lundborg Disease ( #ULD ), also known as #EPM1. Learn more here: https://www.hopeforuld.org/ #RareEpilepsy #genetherapy
@fredisagirl.bsky.social @fredisagirl.bsky.social 
@the-other-dog.bsky.social @the-other-dog.bsky.social 
Dan Lavery @djlavery.bsky.social Loulou Foundation, tackling CDKL5 Deficiency Disorder in collaboration with our amazing patient families.
Ana Mingorance @cnsdrughunter.bsky.social 🧠 🧬 Neuroscientist. Looking for new medicines for #CDKL5, #SCN1A, #SHANK3, #DHPS and other neurological #RareDiseases with #epilepsy
Audrey Vernick @audreyvernick.bsky.social Epilepsy surgery mom, patient & family advocate, dog person. Former teacher and journalist. I support access to healthcare, equal rights, and a safe, clean environment. I love my family most of all. 🐶🏂🚴♂️🎭 (posts are my opinion only)
Reza Maroofian @reza-maroofian.bsky.social Geneticist at UCL Queen Square Institute of Neurology @UCLIoN. Interested in Rare Diseases, Medical Genetics, Neurogenetics & Genomic Medicine.
Jillian Hastings Ward @jillianhw.bsky.social 'that mother' - #R4Today🎙 Patient advocate, mum and wife. Genomics fan. GRI genes. Rare disease life. Poet and photographer. MBE!
Jenni Jonasson @tinnej.bsky.social Clinical Scientist, geneticist, PhD.
Twin mom and Mad Cat Lady.
Marissa @anothermarissa.bsky.social #CDKL5 🧬 | Former school social worker turned stay-at-home medical mama | 🎙️Producer, content creator, & co-host of the CDKL5 in Color Podcast @cdkl5incolor.bsky.social
www.CDKL5inColor.com
Coalition to Cure CHD2 @curechd2.bsky.social Patient advocacy group serving those affected by CHD2, a rare developmental & epileptic encephalopathy (DEE) associated w/Jeavons/EEM, photosensitive seizures, autism + intellectual disability. Accelerating research & supporting community www.curechd2.org
Melissa Bowerman @bowermanlab.bsky.social Professor of Neuromuscular & Skeletal Disorders, Keele University. I research pathologies and new treatments in rare neuromuscular & skeletal disorders.
www.thebowermanlab.com
Dan Gaffney @dangaffney.bsky.social VP Genomics, BioMarin.
Karen S Wilcox, PhD (she/her) @karenswilcoxphd.bsky.social Neuroscientist studying epilepsy and looking for cures. LGBTQ ally. 🏳️🌈🏳️⚧️
Warning from George Orwell “The Party told you to reject the evidence of your eyes and ears. It was their final, most essential command.” No DMs. Also, I am proud to be woke.
Epilepsy Sparks @epilepsysparks.bsky.social Educating re #epilepsy 🧠⚡🔬🧬! Check out our podcast & website! We bridge the comms gaps between clinicians, researchers, & people with epilepsy!
Torie Robinson @torierobinson.bsky.social 🎬 Epilepsy Sparks Insights Podcast Host & YouTuber 🧠🧬 | International Speaker | PPI Lead | #Epilepsy & #MentalHealth Research fiend | All views my own
César Alvarez-González @neurowanderer.com Navigating the Brain’s Complexities
Physician-Neuroscientist 🧠
Μεξικανοκύπριος
Views my own.
Follow/Like/Repost≠Endorsement.
📍🇨🇾🇬🇷🇪🇺🇲🇽
Solvitur Ambulando
neurowanderer.com
neurocreare.net
Serdar Akkol, MD PhD @sakkol.bsky.social PGY5 Epilepsy fellow @duke, Neurology residency'26 @uabneurores, PhD'22 @NorthwellHealth, postdoc'19 @StanfordMed, MD'18 Cerrahpaşa, @lindaunobel'18, neurology-neuroscience, epilepsy, iEEG
Jean Christophe Poncer @poncerlab.bsky.social Neurobiologist, voluntarily exfiltrated from X.
Research Director, Inserm
Team leader, Paris Brain Institute
Co-Director, DIM C-BRAINS
Synapses, neurons and epilepsy.
Views are my own.
KearneyLab @kearneylab.bsky.social Neuroscience | Genetics | Pharmacology | Epilepsy | Neurodevelopmental Disorders | Targeted therapeutics | Northwestern University, Chicago | Opinions are my own 🧪👩🔬🧠🧬💊
Jeff Calhoun @calhoujd.bsky.social Research Assistant Professor with Gemma Carvill (@CarvillLab on Twitter). Focus: epilepsy genetics. Twin. Ace cat dad. Occasional writer. I am only an egg. He/him.
Kevin Bender @neurobender.bsky.social Neuroscientist at UCSF.
Studies everything related to neuronal ion channels—their modulation, their role in neuronal integration, and the intersection between these functions and neurodevelopmental and neuropsychiatric disorders.
The Notorious EEG (M. Scott Perry MD) @thenotoriouseeg.bsky.social Epileptologist/Head of Neurosciences @cookchildrens, I 💜 #HailState, buffalo wings, art, music & foremost Becky & my daughters. Views are mine, not my employer
Rikke S. Møller @rikkesmoller.bsky.social Geneticist/Professor at the Danish Epilepsy Centre, Filadelfia & University of Southern Denmark 🇩🇰
I Epilepsy 💜 | Precision Medicine 💊 I Genetics 🧬 | Rare Disease 🦓 |
Heather Mefford, MD, PhD @hcmefford.bsky.social Physician scientist @ St. Jude
(neuro)genetics | genomics
epilepsy | rare disease | precision medicine
Colin Dunkley @drcolindunkley.bsky.social #apaediatriclife reflections! | Children seen & heard...better outcomes | More baking | Consultant Paediatrician Sherwood Forest | Epilepsy12 Lead | BPNA course content Mx | Views own
Stephane Legriel @stlegriel.bsky.social Intensivist | Prof. Critical Care Medecine @ Versailles Saint Quentin en Yvelines University | Versailles Hospital | cesp_inserm | IctalGroup Research Network | #EEG #StatusEpilepticus #CardiacArrest #Neurocritical Care #CriticalCareEEG
Navneet Vasistha @nvasistha.bsky.social Asst. Prof at UCPH, Denmark. I research how things go wrong in neurodev disorders. Still trying to figure out how the world works. Indian at heart (whatever that means)
Rebekka S. Dahl @rebekkadahl.bsky.social PhD student & Bioinformatician @The Danish Epilepsy Centre/University of Southern Denmark🇩🇰
Computational Biology 👩💻 Clinical Genetics 🧬 Rare Diseases🦓