- G GuerauF.bsky.social @guerauf.bsky.social Bioinformatician
EMJ GOLD @emg-gold.com The latest pharma news, views and analysis.
Sign up to our mailing list to receive insights direct to your inbox: https://emjreviews.com/mailing-list/
Snarlifax @snarlifax.bsky.social 114 520 € (Cent quatorze mille cinq cent vingt euros). 🫰💵 🎰💲👛💰😆 Tout ça pour un photomontage "Super Nanny" ! 😝🥴😜🤪🤣😅😂
publié une seule et unique fois le lundi 27 février 2017...
mdr #114Kvs5K #8ans #Supernanny #Dinguerie #Quérulence #Quérulent #Quéruleux
Snarlifax @snalifax.bsky.social 114 520 € (Cent quatorze mille cinq cent vingt euros) 🫰💵 🎰💲👛💰😆 Tout ça pour un photomontage "Super Nanny" ! 😝🥴😜🤪🤣😅😂 publié une seule et unique fois le lundi 27 février 2017
mdr #114Kvs5K #8ans #Supernanny #Dinguerie #Quérulence #Quérulent #Quéruleux
Julie Worrell @julieworrell.bsky.social Immunologist @UCD 🇮🇪 Stromal cell biology, lung injury/repair, trained immunity, infection and fibrosis #ILD #stromalimmunology #immunoSky 🫁
Clinical Validation from Biopharmaceutical Findings @cvbf.bsky.social CVBF mission is to perform innovative research initiatives in the European scenario to enhance paediatric research from drug discovery to clinical phases.
@ern-ithaca.bsky.social @ern-ithaca.bsky.social European Reference Network for Rare Malformation Syndromes, Intellectual and Other Neurodevelopmental Disorders
https://ern-ithaca.eu/
ale-dif.bsky.social @ale-dif.bsky.social 
@yolibelsanjuan.bsky.social @yolibelsanjuan.bsky.social 
Hannah Bettsworth @hbettsworth.bsky.social Immigrant, liberal, feminist, and a Scotswoman, pure greeting just want the good bird app back, all views personal
J. Hector Galvez @jhgalvez.bsky.social Bioinformatics @ McGill University
Montreal, Qc
@mspielmann.bsky.social @mspielmann.bsky.social 
@medbenabdelhak.bsky.social @medbenabdelhak.bsky.social 
lylas @connard2virus.bsky.social de gauche donc antispéciste et inversement
ausEE Inc. @ausee.bsky.social ausEE Inc. is Australia’s national support and patient advocacy organisation representing people living with an eosinophil-associated disease.
SYNTHEMA @synthemaeu.bsky.social A cross-border hub to develop & validate #AI techniques for anonymization & synthetic data generation in rare hematological diseases 🔬🩸🇪🇺 #HorizonEU project
👉 https://synthema.eu/
@org-ecnp-coa-cns.bsky.social @org-ecnp-coa-cns.bsky.social 
@slouisse.bsky.social @slouisse.bsky.social 
Rosa HP Sca @rosca26.bsky.social Postdoc'ing @WashU 👩🏻🔬 AHA fellow 🫀
Rare musculoskeletal diseases & ion channels🔬
Bookworm 📚 avocaddicted 🥑 4strings lover 🎻
📍🇺🇸 🇫🇷 🇨🇱 | 🇮🇹
American Medical Journal @americanmedicaljournal.com AMJ: #1 open access destination for HCPs. Peer-reviewed journals & diverse content hub. Interviews, podcasts, webinars, infographics.
🔗: https://www.emjreviews.com/en-us/amj/
DM1 Steinert @dm1steinert.bsky.social Información sobre la Distrofia Miotónica Tipo 1 (DM1) o Enfermedad de Steinert y difusión de los avances científicos que se producen.
Information on Myotonic Dystrophy Type 1 (DM1) or Steinert's Disease and dissemination of scientific advances.
EGA archive @egaarchive.bsky.social The European Genome-phenome Archive (EGA) is a service for permanent archiving and sharing of all types of personally identifiable genetic and phenotypic data resulting from research projects.
https://ega-archive.org/
Wayne Ferrebee @hieronymo.bsky.social Brooklyn-based artist, writer, and toymaker
Anticoagulation Forum @anticoagforum.bsky.social Join the leading organization of anticoagulation management specialists dedicated to improving the quality of patient care by educating healthcare professionals and advocating for clinical best practices. More details at https://linktr.ee/anticoagforum
Alison @rarezebramom.bsky.social 🦓HAE Caregiver🦓PI Mom🦓Mom of twins ♥️Lyme warrior💚 #🟦
DGMB @matrixbiologie.bsky.social The German Society for Matrix Biology provides a forum for scientists to promote the understanding of the extracellular matrix.
Save the date for our next meeting: 15.-17. April 2026 in Heidelberg!
https://www.matrixbiologie.de/
Eric Conway @conwayer1.bsky.social Group Leader Chromatin Architecture in Cancer Laboratory at UCD | Interested in Epigenetics, Chromatin, Transcription, Histone Modifications, Cancer | He/Him
Website: https://conwaychromatinlab.com/
@ern-cranio.bsky.social @ern-cranio.bsky.social 
Svetlana Gorokhova @sgorokhova.bsky.social Svetlana Gorokhova, M.D., Ph.D., is working in Marseille Medical Genetics (@univamu) and @aphm-chu-marseille in Marseille, France, remote member of NNDCS @NIH @NINDSnews
Tobias Rausch @trausch.bsky.social Genomics, Bioinformatics.
github.com/tobiasrausch
@nbraverm.bsky.social @nbraverm.bsky.social 
L'Institut de recherche du CUSM / Research Institute of the MUHC @rimuhc.bsky.social Nous faisons progresser la santé de précision par une recherche multidisciplinaire. | We advance precision health through multidisciplinary research.
Katie Owens @ktowens.bsky.social EUComms person and cancer thriver
Interested in public communication and literacy, especially linked to health (physical and mental) and nutrition/food safety
Views my own
Rare Disease Day Official @rarediseaseday.bsky.social The global awareness raising campaign for people living with rare diseases.
🌍 28 February 2027
Johanne Spreckels @spreckelsje.bsky.social Postdoctoral Researcher at the Dept. of Neonatology
University Medical Centre Groningen, Netherlands
Biomedical Sciences | Immunology | Nutrition | Microbiota | Maternal and infant health | Pregnancy | Prematurity | Lactation
EURORDIS-Rare Diseases Europe @eurordis.bsky.social An alliance of non-profit organisations working across borders and diseases to improve the lives of all people living with rare diseases.- A @alejandrop2325.bsky.social @alejandrop2325.bsky.social
Chris Greene @chrisgreene.bsky.social Lecturer in Physiology at RCSI. Researcher at FutureNeuro. Neuroscience, blood-brain barrier, long Covid, TBI... beer, coffee. #NewPI
Canals Lab @canalslabuzh.bsky.social Neurodegenerative Lysosomal Storage Disorder lab at Kinderspital Zürich and University of Zurich. Combining iPSCs and genome editing to generate 2D and 3D models of human childhood dementias.
@mha-67.bsky.social @mha-67.bsky.social 
British Paediatric Surveillance Unit @bpsu.bsky.social The BPSU facilitates research into rare childhood conditions and disorders with the thanks to our 3500+ UK based paediatricians who report cases to us every month.
Miquel Anglada-Girotto @m1quelag.bsky.social Love predicting genomic things. Postdoc @crgenomica.bsky.social at the Probabilistic Machine Learning and Genomics group.
Creator of @splicingnews.bsky.social
Anaïs Baudot @anaisbaudot.bsky.social scientist, comp & sys bio
Robert Muní Lofra @rmunil.bsky.social PT PhD, Consultant Physiotherapist, Honorary Clinical Senior Lecturer at @jwmdrc.bsky.social John Walton Muscular Dystrophy Research Centre-Newcastle Upon Tyne
Cesc Bertran-Cobo @cescualito.bsky.social Enthusiastic, non-conformist researcher
🦟 Health data scientist & project manager @isglobal.org
🎓 HIV course coordinator @lshtm.bsky.social
🧠 PhD in paediatric brain dev @uct-fhs-research.bsky.social
🏳️🌈 They/Them
Humangenom Austria @humangenomaustria.bsky.social Das österreichische Humangenomprojekt ist eine Initiative für die Integration genetischer und genomischer Daten in Medizin und Wissenschaft in ganz Österreich.
Pia Rautenstrauch @prauten.bsky.social Postdoctoral Researcher at @bihatcharite.bsky.social & Visiting Research Fellow at the Precision Healthcare University Research Institute at @qmul.bsky.social
CHANGE ECM MSCA Doctoral Network @change-ecm.bsky.social EU Horizon Europe MSCA Doctoral Network (grant number 101072766)
@estelle-labconnect.bsky.social @estelle-labconnect.bsky.social 
ResearchConnect @researchconnect.bsky.social ResearchConnect is a toolbox that unlocks your research funding potential.
Visit us: https://myresearchconnect.com/
@teddynetwork.bsky.social @teddynetwork.bsky.social 
ISI - ICMUB's department of chemistry for health @icmub-isi.bsky.social ICMUB (institut de chimie moléculaire de l'Université de Bourgogne)
Université Bourgogne Europe / CNRS / Dijon, France
https://icmub.ube.fr/
Science HR @sciencehr.bsky.social A career network featuring science jobs in academia and industry.
Visit our platform at www.science.hr
ERN EURO-NMD @euronmd.bsky.social European Reference Network for Rare Neuromuscular Diseases
Engineering HR @engineeringhr.bsky.social Engineering Human Resources. A job board and career portal for engineers, researchers and developers. Our website: https://www.engineering.hr
Harald H H W Schmidt @hhhwschmidt.bsky.social MD/PhD/PharmD in Network & Systems Medicine, Author, Podcaster, Speaker, Artist 🔗 https://haraldschmidt.online
STAND4Kids @stand4kids.bsky.social Portuguese Paediatric Research Network
🌐 https://www.stand4kids.pt/news-events/
🔗 https://www.linkedin.com/company/stand4kids/
Prof Gina Ravenscroft🇿🇦🇦🇺 @ginaravenscroft.bsky.social Rare & neuromuscular disease researcher at UWA & the Harry Perkins Institute, Perth 🇦🇺
Passionate about #sciencefunding, #womeninSTEM, #EMCRs
Mum of 👦👧🐶
Posting about genomics, rare disease, PI life & wine
https://www.ravenscroftlab.com
St. Anna Children's Cancer Research Institute (CCRI) @stanna-ccri.bsky.social St. Anna CCRI is developing and optimizing diagnostic, prognostic and therapeutic strategies for the treatment of children suffering from cancer.
ANR - Agence nationale de la recherche @agencerecherche.bsky.social L’ANR, l’agence française de la recherche sur projets. Opérateur de France 2030.
The French national research agency #ANR #AgenceRecherche #France2030
www.anr.fr
LifeArc @lifearc.bsky.social Self-funded medical research organisation with one clear purpose – transforming the lives of people living with rare diseases and drug-resistant infections.
Learn more at lifearc.org
Quentin Sabbagh @q-sa2b.bsky.social MD in Medical Genetics 🇫🇷 • PhD Candidate in Genomics of Rare Diseases at Radboudumc (Hoischen's lab) 🇳🇱 | Leveraging translational genomics to diagnose genetically unsolved rare diseases 🧬
Maria Lindqvist,PhD (Åbo,Stockholm,Uppsala,Roma) @amazingmariapian.bsky.social PhD and postdoc in medicin
https://balticseanews.se/ http://www.finlandiabiosciences.com
http://www.educateandhelplocally.eu
instagram: https://www.instagram.com/balticseanews/
youtube: https://www.youtube.com/@finlandiabiosciences
Support4Resilience @support4resilience.bsky.social Empowering care, strengthening Resilience: transforming elderly care through leadership and innovation. Horizon Europe Project funded by HaDEA
Fabien Maury @fabien-maury.fr https://matrix.to/#/@fabien_maury:tedomum.fr
REALM Bio @handle.invalid Opening global access to advanced therapies — for patients who need them and the companies working to reach them — through our pioneering 1REALM Unified Services Platform.
Emilie L. Cerezo @elcerezo.bsky.social Postdoctoral researcher working on the impact of blood stem cell size on disease in the Lengefeldlab.com, @helsinki.fi 🇫🇮
Areas of interest: stem cells, immunology, ribosomes, cell signaling and diseases.
PhD at CBI Toulouse 🇫🇷
@leonie-vb.bsky.social @leonie-vb.bsky.social 
PRECAS Project @precas-project.bsky.social Account for the ESRC project "Reproduction in the age of genomic medicine: The emergence, commercialisation and implications of preconception expanded carrier screening". Based at @crrdmu, led by Cathy Herbrand
RADeep Network @radeep.bsky.social RADeep (Rare Anaemia Disorders European Epidemiological Platform) is a GDPR-compliant patient registry launched in 2017.
Research Elements @reselements.bsky.social Web development, data management and visualizations. Consulting services for scientific and r&d communities. https://www.researchelements.org/
@wolflabs.bsky.social @wolflabs.bsky.social 
CSEM @csem.ch CSEM is a Swiss technology innovation center developing advanced technologies with a high societal impact, which it then transfers to industry to strengthen the economy. The non-profit orientated, public-private organization is internationally recognized.
Agent Zo @agentzo.bsky.social Fascism is evil and destructive. It appeals to our most vile, reptilian instincts. We must pit our better angels (e.g. Agent Zo (WWII Polish Nazi fighter)) against the dark forces of Gollum (Miller) and the Evil One (Trump).
Berta Estévez-Arias @bertaestevez.bsky.social Human Biologist, PhD 🧬 Researcher at the Neuromuscular Disorders Unit (Sant Joan de Déu Research Institute) | Understanding the genetics of #neuromusculardisorders | Genes, books and music
Jordi Pijuan @jordipijuan.bsky.social Biologist, PhD 🧬 Researcher at the Neuromuscular Disorders Unit (Sant Joan de Déu Research Institute) | Exploring rare diseases with a focus on the genetics of #neuromusculardisorders | Managing editor at Orphanet Journal of Rare Diseases 🦓
Friedreich-Ataxie Förderverein e.V. @friedreich-ataxie.de Auf der Suche nach Behandlungen & Heilung für Friedreich-Ataxie
Suheyl O. @shylonal.bsky.social 
Life Science Network @lifesciencenet.bsky.social A platform for life sciences. Publications, research protocols, news, events, jobs and more. Sign up at https://www.lifescience.net.
Hospital Sant Joan de Déu Barcelona @sjdhospitalbarcelona.org Som un centre d'alta especialització en el tractament d'infants i dones embarassades.
Somos un centro de alta especialización en el tratamiento de niños y mujeres embarazadas.
https://www.sjdhospitalbarcelona.org/- M Claire morgan @morganclaire.bsky.social Genomic data analyst who likes human health, rare diseases, and cancer research. Also enjoys a good read about technology, space and weird facts about animals.
Banque Nationale de Données Maladies Rares @bndmr.bsky.social Un projet du Plan national maladies rares, financé par la Direction Générale de l'Offre de Soins, visant à doter la France d’une collection homogène de données pour documenter la prise en charge et l’état de santé des patients atteints de maladies rares.
Open Research and Public Engagement Roadmap @engagedroadmap.bsky.social Co-Creating Ireland's Public Involvement in Open Research Roadmap
ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.
Science Events @scievents.bsky.social Science Events helps you organise a scientific conference or workshop. Use our platform to organise your next event! Visit our platform at https://www.sci.events
Petros Kountouris @pkountour.bsky.social There is a crack, a crack in everything. That’s how the light gets in.
Joris Veltman @jorisveltman.bsky.social Happy European human geneticist enjoying life in the United Kingdom. Love everything genomics, even married a genomicist..;)
BETECH LIMITED @betechlimited.bsky.social BETECH Limited is a commercial Refrigeration and Air conditioning company that is based in London and we were established in the year 2015.
ERN EuroBloodNet @erneurobloodnet.bsky.social ERN-EuroBloodNet aims to improve healthcare and quality of life of patients with Rare Hematological Diseases.
Funded by the European Union.
Jalal Khawaldeh @jalal-khawaldeh.bsky.social Theoretical Scientist | Researcher & Philosopher
Head of Research Department, RO Educational Institute
https://www.researchgate.net/profile/Jalal-Khawaldeh
https://orcid.org/0009-0003-7872-1967
Dr David Canty @drdavidcanty.bsky.social Academic Cardiac and Mobile Anaesthetist | University of Melbourne and Medical School | Medical Director of Sleep Dentistry Services | Day Care Anaesthesia Special Interest Committee
🌐 www.sleepdentistryservices.com.au
📞 0429 058 878
Karen Cheng @karencheng.bsky.social #Myositis patient and advocate; Medical Affairs and Drug Development executive; Retired Clinician; Private Pilot; Scuba Diver; All views are my own
Lauren Weineck @sciencewithlauren.bsky.social Digital Marketer at Pacbio | Social Media Enthusiast | Storytelling in Science | All views are my own. 🌺
@soniass16.bsky.social @soniass16.bsky.social 
@lydiasagath.bsky.social @lydiasagath.bsky.social 
Teodora Barbarii @teodorabarbarii.bsky.social Medical geneticist studying rare neurodevelopmental and neurogenetic disorders. PhD student at University of Manchester
Werner Siemens Imaging Center @wsic.bsky.social News from the Department of Preclinical Imaging and Radiopharmacy, University Hospital Tübingen and Eberhard Karls University of Tübingen
📍 Germany🇩🇪