Gigi @gigi-2005.bsky.social Pan-Europeanism is not larp I swear. Student at the University of Maribor
https://amzn.eu/d/0b16e9Bj
https://substack.com/@gigi2005eu
https://x.com/Gigi_2005_
🇳🇬parker square, personified🇬🇧 @suchbello.bsky.social adult medicine is bad vibes. refrained myself from writing a self-deprecating bio :)
SYNTHEMA @synthemaeu.bsky.social A cross-border hub to develop & validate #AI techniques for anonymization & synthetic data generation in rare hematological diseases 🔬🩸🇪🇺 #HorizonEU project
👉 https://synthema.eu/
VASCERN | European Reference Network @vascern.bsky.social Advancing the diagnosis, treatment, and care of patients with rare multisystemic vascular diseases across Europe.
🔬 Evidence-based guidelines | 🌍 Cross-border collaboration | 📚 Education
📌 Visit us: www.vascern.eu
@ern-cranio.bsky.social @ern-cranio.bsky.social 
Katie Owens @ktowens.bsky.social EUComms person and cancer thriver
Interested in public communication and literacy, especially linked to health (physical and mental) and nutrition/food safety
Views my own
ERN EuroBloodNet @erneurobloodnet.bsky.social ERN-EuroBloodNet aims to improve healthcare and quality of life of patients with Rare Hematological Diseases.
Funded by the European Union.
ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social ERKNet is devoted to improving the lives of patients with rare kidney diseases.
https://www.erknet.org
Neuromuscular Disease Network for Canada @nmd4c.ca Canadian network connecting clinicians, scientists, patients, and industry to improve neuromuscular disease outcomes.
Funded through CIHR-IMHA and Muscular Dystrophy Canada
Visit us at: https://neuromuscularnetwork.ca/
Exarmaueris Mortem @neptocath.bsky.social Neuroscientist and doctor in hiding
XLH Danmark @xlhdanmark.bsky.social XLH Denmark unites and supports people living with XLH & HPP – patients, families, and caregivers. We raise awareness, promote research, and work to ensure equal access to care, treatment, and early diagnosis, both at the national and european level.
Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social Supporting children and young adults with Congenital Hyperinsulinism.
Family Support Group
Patient Led Research
Advocacy
Family Days and Conferences
https://linktr.ee/chcharityuk
ERN eUROGEN @erneurogen.bsky.social The European Reference Network for Rare Urogenital Diseases and Complex Conditions - https://eurogen-ern.eu/
European Reference Network - MetabERN @ernmetabern.bsky.social The European Reference Network for Rare Hereditary Metabolic Disorders (MetabERN). A better future for Rare Inherited Metabolic Disease patients.
Visit us 🔗 https://metab.ern-net.eu/
ERN-RND @ern-rnd.bsky.social European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients.
Free webinars: https://www.ern-rnd.eu/education-training/online-medical-education-for-rare-neurological-diseases/
JARDIN Joint Action @jardinjointaction.bsky.social To improve the accessibility of the ERNs for patients across Europe, the EU has funded a pioneering 3-year project involving all member states (MS) plus Norway and Ukraine, the Joint Action on Integration of ERNs into National Healthcare Systems (‘JARDIN’)