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@euronmd.bsky.socialERN EuroBloodNet @erneurobloodnet.bsky.social ERN-EuroBloodNet aims to improve healthcare and quality of life of patients with Rare Hematological Diseases. Funded by the European Union.
ERN eUROGEN @erneurogen.bsky.social The European Reference Network for Rare Urogenital Diseases and Complex Conditions - https://eurogen-ern.eu/
EURORDIS-Rare Diseases Europe @eurordis.bsky.social An alliance of non-profit organisations working across borders and diseases to improve the lives of all people living with rare diseases.
VASCERN | European Reference Network @vascern.bsky.social Advancing the diagnosis, treatment, and care of patients with rare multisystemic vascular diseases across Europe. 🔬 Evidence-based guidelines | 🌍 Cross-border collaboration | 📚 Education 📌 Visit us: www.vascern.eu
ERDERA @erdera.bsky.social Advancing prevention, diagnosis and treatment research for the 30 million people living with a rare disease in Europe. 🔗 erdera.org Co-funded by European Union's #HorizonEU Research & Innovation programme. Views expressed are of authors only.
ERN-RND @ern-rnd.bsky.social European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients. Free webinars: https://www.ern-rnd.eu/education-training/online-medical-education-for-rare-neurological-diseases/
European Commission @ec.europa.eu News and information from the European Commission. Social media and data protection policy: http://europa.eu/!MnfFmT
European Reference Network - MetabERN @ernmetabern.bsky.social The European Reference Network for Rare Hereditary Metabolic Disorders (MetabERN). A better future for Rare Inherited Metabolic Disease patients. Visit us 🔗 https://metab.ern-net.eu/
JARDIN Joint Action @jardinjointaction.bsky.social To improve the accessibility of the ERNs for patients across Europe, the EU has funded a pioneering 3-year project involving all member states (MS) plus Norway and Ukraine, the Joint Action on Integration of ERNs into National Healthcare Systems (‘JARDIN’)
ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social ERKNet is devoted to improving the lives of patients with rare kidney diseases. https://www.erknet.org
Bluesky @bsky.app official Bluesky account (check username👆) Bugs, feature requests, feedback: support@bsky.app