IBBTEC @ibbtec.bsky.social Instituto de Biomedicina y Biotecnología de Cantabria. Investigación y transferencia en un instituto mixto de la Universidad de Cantabria y el CSIC.
@coloringbooks25.bsky.social @coloringbooks25.bsky.social 
@vix26.bsky.social @vix26.bsky.social Proud Dem! Life love died at 53 same as my dad. Joseph was with and worked for Planned Parenthood for twenty years. Proud of our two sons!!! Unconditional love heals!
Fraser Philp @physiofraser.bsky.social Physio & researcher in complex movement disorders and biomechanics https://linktr.ee/fraserphilp
Lisa Lampert-Weissig @llampertweissig.bsky.social Medievalist, vampirologist, writer, reader. 
Lorenzo @lorenzol05.bsky.social Retired and loving it!
@leenyann.bsky.social @leenyann.bsky.social 
Kate Fallon @katefallon.bsky.social • MD/PhD Candidate | Ervasti & Lowe Labs
• University of Minnesota MSTP
• Interested in muscle, physiology, & genetics
https://scholar.google.com/citations?user=M9ahMIAAAAAJ&hl=en&oi=sra
@acteitsma.bsky.social @acteitsma.bsky.social 
Léa Rolet @learolet.bsky.social 
Mathilde Sanson @mathildesanson.bsky.social Postdoc on muscular dystrophies 🧫 Part of MAGIC Horizon 🧬 Here for muscle news and research in general!
DWM @dw1985.bsky.social Husband. Father. Wannabe Runner. Fundraiser.
ALS Therapy Development Institute @alstdi.bsky.social The most comprehensive lab focused on ALS/Lou Gehrig's Disease. We are the Drug Discovery Engine discovering & inventing effective treatments for ALS. #EndALS www.als.net
@ogladr-kjarr.bsky.social @ogladr-kjarr.bsky.social 
TepidLatte ♿ @tepidlatte.bsky.social Lukewarm denizen of a ramshackle planet run by clowns and grifters. Certified curmudgeon and licensed misanthrope.
@paddymck.bsky.social @paddymck.bsky.social 
Institut de Myologie @institutdemyologie.bsky.social Centre d'expertise sur le #muscle et ses pathologies, créé en 1996, l'Institut de Myologie, avec ses 300 experts, a pour objectif de favoriser l’existence, la reconnaissance et l’essor de la myologie dans le monde.
http://www.institut-myologie.org
Chris Carrino @chriscarrino.bsky.social Radio voice of the Nets. NFL voice of Compass Media Networks. FSHD Advocate.
MAGIC @magic-horizon.bsky.social Accelerating the development of gene therapies for muscular dystrophies. Funded by @horizoneu.bsky.social, @ukri.org and Swiss State Secretariat for Education, Research and Innovation (SERI)
@hjh180.bsky.social @hjh180.bsky.social 
World Muscle Society @worldmusclesociety.org The World Muscle Society is a global, multidisciplinary community committed to advancing the science of neuromuscular disorders and the care for people living with them.
Jon @jonu235.bsky.social $SRPT #Duchenne #Elevidys #GeneTherapy data which STATnews, Fierce Biotech, BiopharmaDIVE, and BioCentury REFUSE to report! https://investorrelations.sarepta.com/news-releases/news-release-details/sarepta-therapeutics-announces-results-part-2-embark-study
@scooterjay.bsky.social @scooterjay.bsky.social 
Melissa Bowerman @bowermanlab.bsky.social Professor of Neuromuscular & Skeletal Disorders, Keele University. I research pathologies and new treatments in rare neuromuscular & skeletal disorders.
www.thebowermanlab.com
Ruifeng Hu @ruifenghu.bsky.social 
Neuromuscular Disease Network for Canada @nmd4c.ca Canadian network connecting clinicians, scientists, patients, and industry to improve neuromuscular disease outcomes.
Funded through CIHR-IMHA and Muscular Dystrophy Canada
Visit us at: https://neuromuscularnetwork.ca/
Francoise Helmbacher @fhelmbacher.bsky.social Developmental Biologist, #CNRS researcher, studying morphogenesis, muscle regeneration and pathologies, and curious for all life sciences.
Lab website: https://helmbacherlab.org/
John Walton Muscular Dystrophy Research Centre @jwmdrc.bsky.social Performing world-class translational research to bring diagnosis, care and therapy to people with neuromuscular disease
@kinesin.bsky.social @kinesin.bsky.social 
Activity Uplift @activityuplift.bsky.social Fun activities for Dementia & Alzheimer's Caregivers, Seniors, and Activity Professionals. https://activityuplift.com
CMcG Rheum @medicastra.medsky.social #Hospital, #MD, #Rheumatology, UK based.
A chemistry PhD & pharma bg, came to medicine late
Scrolling is a distraction from taking action. Pick some concrete way to help & get to it.
@twofishnocat.bsky.social for the likes/hobbies stuff
Bullet @la-rocha.bsky.social Raised by wolves
Punk rock dad
🇺🇸Veteran🇺🇸
100% 2A compliant
Fiercely independent
2x girl dad
@amyzoe01.bsky.social @amyzoe01.bsky.social 
Robert Muní Lofra @rmunil.bsky.social PT PhD, Consultant Physiotherapist, Honorary Clinical Senior Lecturer at @jwmdrc.bsky.social John Walton Muscular Dystrophy Research Centre-Newcastle Upon Tyne
@truiter.bsky.social @truiter.bsky.social 
Alicia Alonso @corchua.bsky.social Neurologist, world citizen, public health supporter, mum and dog-lover
@cindylowrey.bsky.social @cindylowrey.bsky.social 
@robinarbrown.bsky.social @robinarbrown.bsky.social 
🦋AmyV @alizzyv.bsky.social Got the invite, let’s reconnect
Springfield, Ohio (for now)
Proud progressive 💙☮️♿️
Tenuto Vita @tenutovita.bsky.social Hold on to life as long as you can.
{~KAH~} @kah235.bsky.social As a writer, I have created my own particular Word Imagery Style of expression. I was born with FSHD.
{~KAH~} = ~Keith Alan Hamilton~
keithalanhamilton.com
CTGCT (Centre for the Technologies of Gene and Cell Therapy) @ctgct.bsky.social Focused on cancer and rare diseases. Project: 101059842 - CTGCT - HORIZON-WIDERA-2022. Co-funded by the European Union, the UK Research and Innovation (UKRI) and European Regional Development Fund EU under Slovenia’s Cohesion Policy Programme 2021-2027.
David Basanta @cancerevo.org Mathematical Oncologist at the Integrated Mathematical Oncology department (@mathonco.bsky.social) at the Moffitt Cancer Center (@moffittnews.bsky.social).
Married to the lovely @parmvir.com.
On mastodon with @david@fediscience.org
Gwen Zeigler @gwenzeigler.bsky.social She/Her/Dr. Neurologist, Assistant Professor, humanist, Woman, Queer, Trans, Feminist, 1st Gen College Degree, fashion lover, views are my own.
Sharon Paige, MD, PhD ❤️🧬🇮🇱🇺🇦🇨🇦 @spaigemdphd.bsky.social Pediatric cardiologist and physician-scientist working in the biotech/pharmaceutical industry. Passionate about bringing new therapies to patients with rare genetic disorders. Pro-science. Pro-vaccine. Pro-choice. Opinions are my own.
@haidv.bsky.social @haidv.bsky.social 
@bluedog101.bsky.social @bluedog101.bsky.social 
T0AD @kaisert0ad.bsky.social 
JWMDRC Patient Registries @jwmdrc-registries.bsky.social Our neuromuscular research databases offer patients the chance to securely share their data and stories to support and access research.
https://linktr.ee/jwmdrcregistries
#UK #NMD #DM1 #DM2 #FSHD #SMA #Col6 #FKRP #MTM #CNM #Myotonic #MuscularDystrophy
Helen Walker @helenwalkerncl.bsky.social UK Myotonic Dystrophy & FSHD Patient Registries Manager at JWMDRC.
Pls follow: @jwmdrc-registries.bsky.social / @jwmdrc.bsky.social
(she/her) *Views my own*
#neuromuscular #nmd #PatientRegistries #dm1 #dm2 #fshd #RareDisease #research #genetic
American Brain Foundation @abfbrain.bsky.social We bring researchers and donors together to cure brain disease. #CureOneCureMany
🔬 Fund research. Cure brain disease ➡️ https://buff.ly/xFAbFbT 💓
🧠 Learn more about brain disease ➡️ hootbio.com/abf
@mcctx.bsky.social @mcctx.bsky.social 
Alejandro Rojas @arojass.bsky.social Biotech scientist, advisor, and founder | Focused on mechanistic biology, drug discovery, lab automation, neuromuscular & rare diseases | Español & English | Nostálgico de la familia, los amigos y los asados que quedaron en Chile | Views mine | He/him
Don Burke @theflyer.bsky.social Electric vehicles, renewable energy, electrification of everything, photography
@kurt-l-spiegel.bsky.social @kurt-l-spiegel.bsky.social 
Kent Drescher @fshd-kd.bsky.social Psychologist with FSHD - interests: health, computers, accessibility, research
Prof Gina Ravenscroft🇿🇦🇦🇺 @ginaravenscroft.bsky.social Rare & neuromuscular disease researcher at UWA & the Harry Perkins Institute, Perth 🇦🇺
Passionate about #sciencefunding, #womeninSTEM, #EMCRs
Mum of 👦👧🐶
Posting about genomics, rare disease, PI life & wine
https://www.ravenscroftlab.com
@ericf318.bsky.social @ericf318.bsky.social 
Kristen @awkward-rage.bsky.social I yap into the void + sometimes share photos.
@pktc.bsky.social @pktc.bsky.social 
FSHD News @fshd.bsky.social Ex: FSHD News on Twitter - @mpcfshd
FSHD NEWS over the world.
Research and patients networks
#FSHD #FacioScapuloHumeral #CureFSHD
#WorldFSHDDay = June 20th
Todd Higgins @sublime20.bsky.social