Angela @j-beanz.bsky.social Democratic supporter. Dog mom. Fed up with the impact of Trump's policies on our people. I love my blue state.
Health Citizens Institute @healthcitizens.org From Environment to Health
From Science to Policy-Making
Patrick BERNARD @29pat.bsky.social @Renaissance
@Renaissance29 @RenaissanceQBO
adore #MacronardsFM !...
Comptes #X (ex-Twitter) : @29Pat2 et @29Pat
Compte #threads : patrickbernardmahe
Compte #instagram: patrickbernardmahe
Compte #Facebook : Patrick Bernard-mahe,
Compte #Pinterest : 29pat🇨🇵
WPCampus @wpcampus.org WPCampus is a non-profit advancing higher ed through WordPress and accessibility, offering resources and networking for faculty, staff, and students. Learn more at WPCampus.org.
TheLifeLabCom @thelifelabcom.bsky.social Create a filled life 🌬️
www.youtube.com/@thelifelabcom
https://www.instagram.com/life.labcom/
Germaine Hypher - Crafting A Path Through Illness @germainehypher.bsky.social 🧵🧶✍🏻🎨📷🌱🐈⬛📚
Author of Crafting A Path Through Illness - exploring creativity while chronically ill. Available worldwide (the book, not me 😆).
Disabled by M.E & fibromyalgia since childhood. Enabled by humour & creativity.
www.germainehypher.weebly.com
ConsumedByCovid @consumedcovid.bsky.social Long Covid since March 2020.
Previously fit and healthy healthcare worker and mum.
Lumia @wearlumia.bsky.social What you feel is real. Lumia tracks blood flow to the head. Designed for #pots #orthostatichypotension #syncope #longcovid #myalgicencephalomyelitis #fainting #dysautonomia #chronicillness Currently for USA, iPhone, and adults 18+ only. www.lumiahealth.com
@lcmebillboards.bsky.social @lcmebillboards.bsky.social Raising awareness for Long Covid and ME/CFS.
Website - www.notrecovereduk.org
Twitter - https://x.com/lcmebillboards?s=21
Wendy Kloiber @wendykloiber.bsky.social So did the divine right of kings. Long covid class of March 2020, the kind with ME. Would like one more tattoo, minimum. She/her. Ashland, WI —> MSP.
TandemResisters @tandemresisters.bsky.social We were living a nice life until 2016 when the world turned upside down. Since that election, been marching and protesting. Ready to do the same after the 2024 elections. Views are our own. #Resist #GLBTQ+
KimK @kimk-research.bsky.social Retired 🪷 Grandmother ♿️ amputee 🤍 domestic violence advocacy 🥄 longCOVID advocacy @renegaderesearch.bsky.social 🥩 animal-based keto
@chi23nyc.bsky.social @chi23nyc.bsky.social
Slasher Film | Horror Movie @slasherfilm2024.bsky.social WATCH THE TEASER TRAILER NOW on YouTube: https://tinyurl.com/ebbrwb6f (Warning: 18+)
Movie coming soon. Calling all #HORROR fans.
#horrorcommunity
Ottawa, ON, Canada 🇨🇦
Instagram: https://tinyurl.com/yf2e6vr8
FB page: https://tinyurl.com/mwwrf68e
Sarah O'Connell @sarahoc1.bsky.social #pwME patient 12 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
Long Covid Advocacy Ireland-LCAI @lcaireland.bsky.social The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ireland for all patients.
https://longcovidadvocacyireland.com
@lifeatthewindow.bsky.social @lifeatthewindow.bsky.social Disabled. Living with severe M.E. Watching the world from the window while bedbound. Excuse typos etc, sometimes the cognitive bits don’t work. Also posting on endometriosis and a little on mental illness too 🏴
Billy Hanlon @bhanlon15.bsky.social ME/CFS | Long COVID | IACC
Bax @baxkawsuba.bsky.social
@jennawhatjennawho.bsky.social @jennawhatjennawho.bsky.social - J JShuey @judithshuey.bsky.social
Mick🏳️🌈 @jeremyew.bsky.social Rainbow boy (He/Him)
WOKE
Married to Deon for 10 years. Together for 22
Chiefs Kingdom
Sooo done with Twitter and Apartheid Elmo
Into All things Gay, Gardening, IDD, Sci-Fi
Caregiver for 24 years
Vote Blue!!!
Alison Twycross RN PhD @alitwy.bsky.social Living with Long Covid.
Doing my bit to support UK healthcare workers with Long Covid.
Chair of Supporting Healthcare Heroes UK.
Associate Member Long Covid Support.
Former Professor of Children’s Nursing. #FBLC
@makodeh.bsky.social @makodeh.bsky.social Humanity first we are all one people from God.. I’m from west Africa The Gambia 🇬🇲
Kenny Boy @kenkers10.bsky.social Let’s cook!! I’ll show you…If at all possible, please subscribe to my cooking YouTube channel https://youtube.com/@kenkers10?si=_OwLZ0YRFxuC-zMZ Ken…married 2 children, and I love gardening, dogs, strong IPA beer, and bourbon. Go NY Giants, NJ Devils!!!
Karen Denmark @kmdenmark.bsky.social Mostly just crocheting these days. Former USAF and maternity RN. #ME/CFS
Juicy Burgers @juicyburgerssd.bsky.social Juicy Burgers in San Diego’s Midway District serves up gourmet burgers, crispy wings, and rich cheesecake. Enjoy dine-in, takeout, or delivery near Liberty Station! Permanently closed.
Swifts and Swallows @swiftsandswallows.bsky.social My daughter had Severe ME, POTS & MCAS and died in 2024 after years of medical neglect.
I am also the parent carer of a younger daughter with ME & POTS.
Loves to see cute photos of cats, birds & animals so I can share with my daughter to brighten her day
Tend and Befriend @txjuju.bsky.social Idler who enjoys a good lollygag
Jacy Sonne ♿️ @jacysonne.bsky.social Disability Advocacy #FMMECFS #Migraineur #POTS #Dystonia #Spoonie
Rare brain tumor survivor
Too many med dx to list here
DV and the Disabled.
Pro: Science
LGBTQ
BIPOC
AAPI
Janna Moen, PhD @jannamoen.bsky.social Postdoctoral scientist studying the neurobiology of #longCOVID in the Iwasaki lab @ Yale. Patient, scientist, advocate. | ♿🏳️🌈 | she/her
My long COVID research newsletter: lcbreakdown.substack.com
Stuart 🏳️🌈🏳️⚧️ @stuart97.bsky.social Human rights activists kakuma refugee camp, LGBT folks in the camp are facing homophobia, transphobia, segregation, torture, constant death mostly the kids due to starvation, am here to plead for all your support, help for us to survive 🙏
Ella Inez @ellainez.bsky.social Waiting to see the end of the greatest MEdical scandal of the century
Regina M @rejayjay.bsky.social Silly Chicago girl, marketing professional, long covid patient. No DMs unless you donate to the mutual aid I repost. 💜
Riemerville @riemerville.bsky.social Salty | #LongCovid,#POTS & #ME | Books, Music, Food, Art #ATXRE | Excuse my typos
We are living in a choose-your-own dystopian novel
Deb @debwald.bsky.social
Wilhelmina Jenkins @wilhelminaj.bsky.social Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
Greens Against Covid @greensagainstcovid.bsky.social #GreenParty of England and Wales #covid and #longcovid campaign working group. Join us? https://linktr.ee/greensagainstcovid
Crimeajewel @crimeajewel.bsky.social Creative Artiste. London and Venice.
With small creative shop Crimeajewel on www.
No DMs please as 99.99% are spam or scammers. I send no DMs. Thank you.
Colandme (Extremist Allegedly) 🏴 @coldon1983.bsky.social Aberdeen fan. Passionate about an independent Scotland. SNP member. Live by the sea and a Loch. ME for 13 years #pwME #rejoin #FBPE 🏴- M @mariasevereme4.bsky.social @mariasevereme4.bsky.social
Carrie Anna McGinn @carriemcginn.bsky.social Infection-associated chronic illness advocate | Life sidelined by #LongCovid #MECFS #POTS | #PatientPartner | MSc | Mom | She/Her | 🇨🇦 #Canada #Quebec
#CovidConscious #StillMasking
#MyalgicEncephalomyelitis #pwME #EMSFC
#CovidLongue #CovidLong #pwLC
faithie @faithie.bsky.social SevereME/vax injured. Can't read, write, watch, walk or talk much. Just me, my bed & my swollen brain. Trying to stay sane. Roy Kent is my spirit animal.
Paul Gilzow @gilzow.com Technical Success Manager at Upsun.com. Web app security evangelist. Runs on passion and coffee. Opinions are my own and not the views of my employer.
Maya Lindemann @mayalongcovid.bsky.social RWJF ClinicalScholars Alum, School Nurse, Scientific Diver/ocean lover bedridden by severe #LongCovid 3/2020 & #MECFS, #POTS, #MCAS #hEDS #Chiari. #healthequity
Horizontal Views @horizontalviews.bsky.social Visual Artist and Writer | Posts from the sick bed #ME #pwME #LongCOVID #ZeroCOVID #Crip #ChronicIllness #DisabilityJustice #ContemporaryArt #ConcretePoetry #PostdigitalPoetry #PoeticWeb
n=50 @remissionbiome.bsky.social
Poetry @diktgymnasiet.bsky.social
Dr Chris Whitaker @christheowl.bsky.social Works in disability with my own company Purple Advantage www.purpleadvantage.com. Particularly interested in making the world a more inclusive place for everyone. Loves studying (now: Exec MBA:writing publications on disability employment) sport and music.
Alisontomyradioooo @arisonsned.bsky.social Cat and Dog botherer. Young persons counsellor retired. Want my bike and my health back 🩵
Erin Raeburn @erinraeburn.bsky.social Scribbler of stories, bookworm, nocturnal hermit, nature & whimsy lover, ME/CFS & fibromyalgia+, vaxxed/masked, socially-minded lefty on Wolastoqiyik territory. (New Brunswick, Canada) She/her.
David Troeh @dst1980.bsky.social
Marloes Letteboer @marlette75.bsky.social
Heather @celticghirl1888.bsky.social Family & Friends .. Celtic FC .. Scottish Independence Supporter .. Walking .. Music .. Cats .. Darts .. Festivals .. Theme Parks .. Laughter .. Mental Health Awareness .. Chronic Pain Warrior 💚
Sarah @birbsarereal.bsky.social Forty-something retired biologist and ME advocate. Lover of birds and yarn. Former athlete. Wife. For kindness, empathy, inclusion, and accessibility. She/her.
Crochet artist; https://www.ravelry.com/stores/stitches-by-sarah
Carole Bruce @cabruce.bsky.social Previously a psychotherapist.
Bedridden #ME 32years
Daughter severe ME, eldest son MS.
I like art, nature, books, people, music, poetry and podcasts!
Nathalie Pearson @natpearson.bsky.social #Hampshire
#SafeAirSchools
#Climate #Nature #LongCovid
Devoted mother | Founder SafeAirSchools.org | Proud King’s College London alumna | Founding Member Long Covid Kids | Passionate about healthcare | Leave nobody behind | Neurodivergent
Long Covid Resource @longcovidresource.bsky.social The Long COVID Resource is dedicated to providing information and resources on Long COVID and summaries of studies.
Long COVID Resource: https://longcovidresource.com
Steve Chalmers @fstevenchalmers.bsky.social Retired person, was in tech industry for 37 years
Self and family got multiple chemical sensitivity from a sick house incident in the mid 1990s
Heretic, with a heretical research hypothesis on the nature of MCS and a dozen other complex chronic illnesses
Wayne Beamer @waynebeamer.bsky.social Comics, art, books, movies, Mac tech, Americana, singer-songwriter, music, end-of-life doula and a writer in the digital realm of short attention-span theater
Royal Free 1955 @rfh1955.bsky.social ME/CFS archive. For education, not profit. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. Reposts not necessarily endorsements. No art, emoji etc.
https://rfh1955.blogspot.com/
S.Jones @seastarsal.bsky.social Chronically enraged that I've had ME/CFS since 1992.
cfsgraphics.com
Brent Forman 🇨🇦 @joeblow604.bsky.social Living with Myalgic Encephalomyelitis since 2011. Artist, Advocate, Creative
Former Electro-Mechanical Prototyper
Inclusive
#pwME #MECFS #MCAS #POTS #Fibro #LongCovid #Disability #chronicillness
#art #artist #painting #oilpainting #digitalart #photography- A Andrew Green @andrewg76201347.bsky.social ME/CFS, POTS, MCAS, lupus, Hashimoto’s. Patient & carer. Disabled scientist. Female - using fake name bc I post about son's illness. Location: Australia
MEActMaryland @meactmaryland.bsky.social #MEActionMaryland
Maryland chapter of the #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in MD/DMV
https://youtube.com/@meactmaryland
https://linktr.ee/meactmd
Denis - The COVID Info Guy @thecovidinfoguy.bsky.social Sharing info on COVID since the start of the pandemic.
#COVIDisNotOver #COVIDisAirborne #MaskUp😷
@nick-pwme.bsky.social @nick-pwme.bsky.social 🙋♂️ 20+ years severe #MEcfs.
Mostly horizontal. Dorset uk.
⛵🏎
Kristin 🌻 @kjkrathwohl.bsky.social Surviving 30+ yrs #MECFS, #FM, #Lyme & Co #LongCovid #MillionsMissing 🌻 #RepoRights 🌻Art 🌻 Former comms USPS & The Phillips Collection 🌻 🌊🌊🌊
Banner: Lake Michigan, Mears State Park, Pentwater, MI
k8lettuce @k8lettuce.bsky.social Tar Heels
Psychoanalytic Social Worker
Living with Long Covid
Jen Dupuis @jendupuis.bsky.social Disabled librarian turned writer • 📚 • Mom to rescue dog Clara & cat lover • #amquerying GenX nostalgia book club fiction • 🚫GenAI
📚 🐕 🐈 💙
jendupuis.com | Detroit, MI | she/her- J Jenny Ceolta-Smith #FBLC @jceoltasmith.bsky.social Background #RetiredOccupationalTherapist due to #LongCovid background in vocational rehabilitation & PhD research includes #DWP policy, provision & front line practice. Not fully active here yet.
Jessamy Barker (they/she/he) @jessamybarker.bsky.social Serving genderqueer drag and goth looks
Brit living in California
Genderqueer Drag as https://www.instagram.com/lordofmxrule
Painted rocks https://www.instagram.com/stained_stones
@BendyHEDS&Co @bendyhedsandco.bsky.social For Awareness & Support of
#Hypermobility #hEDS/HSD #POTS #ME/CFS #MESpine #Stenosis #MCAS & co.
#PANS/PANDAS & #LongCovid ally
#NEISVoid
#MedEd for EDS/HSD & co 🔗 conditions go to:
👉 https://gptoolkit.ehlers-danlos.org/ 👈
John Peters @johnthejack.bsky.social Unbeliever (political & religious), Wales rugby, #c4news, porridge, tea, #MEcfs
'Obvious but wrong'
Also JTJ on the other place
https://johnthejack.com
Malka_G @malkag.bsky.social Writer/editor. Chronically ill. Slowly working on setting up this account.
Hoping to reconnect with #NEISvoid, #DisabilityTwitter, #CovidIsntOver, #StillMasking, etc.
Tapanui 'Flu @tapanuiflu.bsky.social Myalgic Encephalomyelitis since 1983 Tapanui Flu epidemic | #ME | #PwME | #LongCovid ally | Covid cautious
Grandmother | Ex social scientist | Mostly housebound | On welfare
Website: tapanuiflu.blog
Aotearoa | New Zealand
Jess Badger @jesshoneybadger.bsky.social Chaotic good writer and scientist with severe, bed bound MECFS. Writing wholesome stories, science stuff, and funny anecdotes from bed. Lover of memes.
jesshoneybadger.substack.com
ME Foggy Dog @mefoggydog.bsky.social Award-winning #socialenterprise in #UK.
Working for #socialchange for the #MECFS community.
Linktree - http://bit.ly/408o6LI
Tatiana Trifan #FBLC @tatianatrifan.bsky.social Life is full of surprises, but never when you need one.
Completely allergic to any form of racism, sexism, genderism.
#StandWithUkraine
Views are my own
@snlhavefun.bsky.social @snlhavefun.bsky.social 💙 @snlhavefun💞Proud Democrat/Love Reading, Architecture,Interior Design, History,Travel💞Beautiful Cabins💞#LGBTQ+🏳️🌈💞Loyalty💞Truth💞Queen@Research💞Love my Dogs,Frogs,Koi and Insects💞Nature💞Mountains💞Be kind💞🚫maggots🚫crypto🚫porn🚫DM’s💞
snewton11.paypal
dSavannah @dsavannah.bsky.social ~ Life stolen by MEcfs-hEDS-fibro-POTS-&c; FT sick since 12/2014
~ #LiveInBedButIAintDead
~ When brain & body behave: Chronic Illness Advocate
~ Discworldian, Browncoat
~🐱(x3)🐢💐🌻🌷📸📚🖼️
~ she / her ~ Love Is Love ❤️💚🧡💛🩵💙💜🤎🖤🩶🤍🩷
https://linktr.ee/thedsavannah
Mishka @seasidescribblings.bsky.social Learning as I go, but aren't we all. San Diego, CA. Living with illness and doodling for fun. #LongCovid, Severe #MECFS, hyper #POTS, #FM, hEhlers Danlos, Idiopathic Subglottic Stenosis ( #ISGS ), …