Bernadette Sheehan Gilroy @sheehangilroy.bsky.social Lecturer Researcher Advocate
#PKU #LowProtein #BrainHealth #RareDisease
"Ní neart go cur le chéile"
The views and opinions expressed here are solely my own
Avishek ghosh @avishekcolours.bsky.social 
Duncan Noble-Nesbitt @duncann-n.bsky.social Specialist Nurse, tenor, travel loving, new experience, answer seeking type of guy. Lifelong PKU experience and on treatment #PKU #RareDisease Own views shared
E.S.PKU @espku.org E.S.PKU - European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria in the umbrella organization of about 41 national and regional associations from 31 countries established by parents and/or patients.
Jennifer J Brown @jjunebrown.bsky.social #Author, #publichealth advocate, #genetics PhD.
Creatively driven & scientifically inspired, Mom of 2 with #PKU.
Latest book: When the Baby Is Not OK: Hopes & Genes
https://jjbrownauthor.com/
Sharon Bee @sharonbuckley.bsky.social Brexit pushed Uk migrant navigating life in Spain. Mum to two phenomenal kids living with the genetic metabolic condition PKU.
https://www.researchgate.net/profile/Sharon-Buckley-2
Soheb @sohebm.com Wrangles code and dodges protein for a living (PKU).
Tricia Rutherford @squirrelt.bsky.social Professional interest in nutrition in rare disease. Very amateur interest in music and sport !
Kevin Alexander @kevinalexander-pku.bsky.social 🧬 Adult with Phenylketonuria (PKU)
🎥 Storyteller
📔Writer
🎸 Musician
Mark Maguire @markmaguireb.bsky.social Works #museum #education. Here for the #art, #comics, #SciFi, #news | Photos mine or otherwise credited. Followers with bio, activity, etc. more likely to become mutuals | ☘️ #SpeirGorm / #SpéirGhorm | 🐘 @MarkMaguire@mastodon.ie | 🧵 @markbmaguire
Małgorzata Henek @malhen.bsky.social Secretary of The European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria, social services specialist, patient advocate. ♥️: 📖🚗✈️🎶📺