Red de Enfermedades Raras del CSIC @rarascsic.bsky.social La RER-CSIC es una red de grupos de investigación pertenecientes al CSIC dedicada a liderar y coordinar los esfuerzos de investigación en el campo de las enfermedades raras en España. Puedes leer más sobre nuestra red aquí: https://rer-biomed.csic.es
@david-parfitt.bsky.social @david-parfitt.bsky.social 
Zarn @corn4life.bsky.social 
@jackigire.bsky.social @jackigire.bsky.social 
Em Sontag @emsontagmu.bsky.social Assistant Prof at Marquette Biology researching proteostasis and neurodegeneration. 1st gen and grew up on a farm. Undergrad at Rose-Hulman, Grad at UC-Irvine with the amazing Leslie Thompson, and Postdoc at Stanford with the incredible Judith Frydman.
Toronto/LA Documentary Film Festival @docfestival.bsky.social 4 tiers to enhance your film.
- in person fest
- audience feedback video
- podcast interview
- virtual showcase
https://documentaryshortfilmfestival.com/toronto-festival/
https://filmfreeway.com/TorontoDocumentaryFilmFestival
@cami113.bsky.social @cami113.bsky.social 
Sonja Blumenstock @sblumenstock.bsky.social Neuroscientist, spying on circuits in health and disease 🐭🔬
Heather Jackson @hjacksonwrites.bsky.social Full-Time Game Writer / Part-Time Trampoline Coach / All-Weather Cyclist
Narrative Director @bloomdigital.bsky.social
@gush82titular.bsky.social @gush82titular.bsky.social 
@pagro47.bsky.social @pagro47.bsky.social 
Julie Patchouly @juliepatchouly.bsky.social Psychologist, Clinical Therapist, Writer, Avid Reader and Lover of Humanity. I am salt and light.
HD Reach Game Over HD @hdreachgameoverhd.bsky.social 501 (c3) Nonprofit streaming video games and spreading awareness for Huntington's disease.
Socials, Streams, Join the fun!
https://linktr.ee/HDReachGameoverHD
Steven Beatty @stevenbeatty.bsky.social 
@mandrosa.bsky.social @mandrosa.bsky.social 
annestalker96.bsky.social @annestalker96.bsky.social 
Suzanne Ackloo @sackloo.bsky.social Here to learn- G @giova.bsky.social @giova.bsky.social
- H hdauthor.bsky.social @hdauthor.bsky.social
- M meghandonaldson.bsky.social @meghandonaldson.bsky.social
Annie Osburn @annieosburn.bsky.social Nonprofit comms in DC & pre-dawn pictures on the Anacostia 🏳️🌈
@rgulia24.bsky.social @rgulia24.bsky.social 
@clareyhb.bsky.social @clareyhb.bsky.social 
@pranum.bsky.social @pranum.bsky.social 
Huntington’s Disease Youth Organization @hdyofeed.bsky.social HDYO is an international non profit supporting, educating and empowering young people (35 and under) impacted by HD.
@gregfin.bsky.social @gregfin.bsky.social 
Scott Kallar @scott-hk.bsky.social 
@tacief.bsky.social @tacief.bsky.social 
@slpolizois.bsky.social @slpolizois.bsky.social 
Natasha Sneddon @natasha-sneddon.bsky.social PhD student ✍️ | Sleep and Huntington’s disease 😴🧠
In my spare time, I’m probably training for a marathon 🏃🏻♀️
📍 Woolcock Institute of Medical Research at Macquarie University 🎓
Catherine Charlwood @drcharlwood.bsky.social Literature, memory, ballet.
Working in dementia & neurodegeneration (currently on mat leave).
Views own.
roisinmcmackin.bsky.social @roisinmcmackin.bsky.social Neuroscientist
Assistant Professor, Discipline of Physiology, Trinity College Dublin
Director of Equality, Diversity and Inclusion for School of Medicine, Trinity College Dublin
@michelan021.bsky.social @michelan021.bsky.social “you can rub words together to make a fire”
Jennifer Clement: The Poison that Fascinates
@kelt5.bsky.social @kelt5.bsky.social 
Pancho Pressman @panchobia.bsky.social Freelance Photojournalist, Documentary Filmmaker.
Anon account. Real reporting.
BigTow Band @scottybigtow.bsky.social Washington DC area band....Americana, Rock, 
@margersand.bsky.social @margersand.bsky.social 
HD Reach @hdreach.bsky.social We are a nonprofit organization founded in North Carolina that is dedicated to providing access to healthcare, education, and social assistance for those affected by Huntington’s disease.
https://linktr.ee/hdreach
Marty @martgil.bsky.social 
🏳️🌈❌👑 8647, Reo @thereoworld.bsky.social Putting my internal monologue out into the ether, hopefully once a day. 💜💛
40|he/him/his|👬|Albany, NY area|Trickster god
Dzimuma zvaigznīte @skysun.bsky.social He/him, pro Klimaschutz, #fckafd boycott #crazyelon
SocialHDLancos @socialhdlancos.bsky.social Page ran by the EHDN Lancos, working on the Enroll-HD study! Views are my own and RTs are not endorsements.
socialmedia_lac@ehdn.org
Michela Leocadi @drmichelaleocadi.bsky.social 
@bllab.bsky.social @bllab.bsky.social 
Paul Hendrickson @pmhendrickson.bsky.social Data analyst by day, cat dad, and movie lover 
@alicemerrall.bsky.social @alicemerrall.bsky.social 
Devine lab @devinelab.bsky.social Devine lab at @crick.ac.uk
We study how mitochondria regulate neuronal synapses and how that regulation goes wrong in diseases that affect the brain
Posts by lab members | Views are own
Krasnov’s Stigmata @monkeysolution.bsky.social Lawyer. Dabbler in criminal justice, landscaping, and whittling. Husband and father x4. Grandfather x1. Internet addict.
No one should be more liberal than I am. Or less liberal.
Lex (they/them) @rexelchex.bsky.social WNBA / Unrivaled / NCAAW
Audiobooks (StoryGraph: rexelchex)
LGBTQ
Free Palestine 🇵🇸
Giorgia Tosoni @giorgitos.bsky.social Postdoctoral researcher in the Molecular Neurogenetics Lab, Lund University.
🧗🏽♀️🏃🏽♀️🚴🏽♀️🏊🏽♀️
@eileend6.bsky.social @eileend6.bsky.social dogs, forests & streams, darkness, stars, quiet, books, music, theatre, comedy, haikus, fresh sheets, politics…
Open Research and Public Engagement Roadmap @engagedroadmap.bsky.social Co-Creating Ireland's Public Involvement in Open Research Roadmap
ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.
@ginnymc.bsky.social @ginnymc.bsky.social 
@bethbeme.bsky.social @bethbeme.bsky.social 
@darmyerbeck.bsky.social @darmyerbeck.bsky.social 
@mc144.bsky.social @mc144.bsky.social 
Hakan @hakanyuksel2616.bsky.social 
@toanro.bsky.social @toanro.bsky.social 
@naim77.bsky.social @naim77.bsky.social 
@psg37.bsky.social @psg37.bsky.social 
Inverna Therapeutics @invernatx.com Next-generation RNA splicing modulation platform dedicated to transforming patient outcomes in severe genetic diseases #RNAtherapeutics #RNAsplicingmodulation #Pseudoexon #Parkinsons #Huntingtons
Sean Murphy @murphyslaw1987.bsky.social Philosopher w/ focus on disease causation (esp. clusters). I completed Mark Purdey’s research project by identifying the true environmental causes (oil pollution, pesticides, mercury, & mycotoxins) of “Huntington’s Disease” at Lake Maracaibo.
@bermarnell.bsky.social @bermarnell.bsky.social 
@pituitology.bsky.social @pituitology.bsky.social 
Frankie Chambers @frankie34.bsky.social Registered nurse, stroke trainee ACP, mum to boys. Interested in health/neuroscience research and progressive politics 🧠 🌎
inflammatory @inflammatory.bsky.social Chronic inflammatory demyelinating polyradiculoneuropathy (CIDP) is a rare heterogeneous, but treatable autoimmune mediated peripheral neuropathy characterized by demyelination. #CIDP #immunosky #Neurology #NeuroSky #NeuroSkyence #ankylosingspondylitis #ms
Zanna Voysey @zannavoysey.bsky.social Translational sleep-neurodegeneration researcher
CI, DORA-HD Phase II Clinical Trial (LifeArc-Rosetrees grant)
Post-Doctoral Clinical Research Associate, Barker group, Cambridge
Neurology Clinician
PhD ABN-Brain Fellow Alumna
Mum
Outdoor enthusiast
Ivana Bukvin @ivanabukvin.bsky.social Incoming Group Leader at @mrclmb.bsky.social. Interested in how proteins fold. All opinions my own.
The Barker Lab @thebarkerlabgroup.bsky.social We are led by Professor Roger Barker, for the last 25 years we have run both clinical and laboratory-based research, focused on neurodegenerative diseases Parkinson’s disease and Huntington’s disease.
@olmedosaura.bsky.social @olmedosaura.bsky.social 
@cacwf.bsky.social @cacwf.bsky.social 
@jp-flynn.bsky.social @jp-flynn.bsky.social 
Huntington's Disease Foundation @hdfcures.bsky.social The mission of the Huntington's Disease Foundation is to fund transformative research to find treatments, and ultimately a cure, for Huntington's disease.
Learn more about us: HDFoundation.org
Dr. Shaun Sanders, she/her/hers @drssfs.bsky.social Assistant Professor @ UofGuelph MCB. Neuroscientist and foodie. She/her.
Poul Sørensen @thepou1.bsky.social Danish biotech venture builder living in Paris | Family barista | Kongeblå & Gooner
Molly Gracey, PhD @molly648.bsky.social HDBuzz - Staff Writer: https://tinyurl.com/hdbuzz-mollygracey
Journal of Huntington's Disease - Social Media Editor
ComSciConCAN @comsciconcan.bsky.social Annual #SciComm conference for Canadian STEM grad students. https://linktr.ee/comsciconCAN
@scott-hraha.bsky.social @scott-hraha.bsky.social 
House of Byrne Lab @hob-lab.bsky.social Research lab of @drl-bo.bsky.social based @ucl-hd.bsky.social @uclqsion.bsky.social working on adult and Juvenile-onset Huntington's Disease biomarkers.
Dr Lauren Byrne @drl-bo.bsky.social Principal investigator of @hob-lab.bsky.social at @ucl-hd.bsky.social. HD researcher and family advocate. Opinions are my own.
IXICO @ixico.bsky.social A global leader in neuroscience imaging and biomarker analytics, using its proprietary AI-driven platform to help advance the treatment of neurological disorders and reduce the uncertainties associated with drug discovery, development and monitoring.
Telharmonium @telharmonium.bsky.social 
Lizzie Furr @nonhdparentstudy.bsky.social Trainee Clinical Psychologist at Lancaster University
Looking for participants for my doctoral thesis on “The Journeys of Non-Affected Parents within Families with Huntington’s disease”
Contact me for more info: l.furr@lancaster.ac.uk
Valerie（バレリー）@ LVT @violathornhaven.bsky.social ✦35✦she/her✦
✦you can never truly graduate from weeb/fujoshi✦
✦CV: Jasper (💀💎)✦
✦I like what I like; barring major revelations, you can't judge me✦
Marisa (she/her) @marisarose.bsky.social All identities supported and respected
HDClarity @hdclaritystudy.bsky.social HDClarity.net- L Kat @lotuskat.bsky.social
Peter Forbes @heliconiuscydno.bsky.social 
Andy Gates @andygates.bsky.social Grizzled sysadmin, factory refurbished.
He/him.
@r4ytje.bsky.social @r4ytje.bsky.social 
@fiona-kinsella.bsky.social @fiona-kinsella.bsky.social 
Ettore @ettore22.bsky.social Neurologist, interested in movement disorders and ataxias. History and international politics. Mainly funk music, much else as well
Anne B Young MD/PhD @aby47.bsky.social I’m a retired neurologist and neuroscientist specializing in Movement Disorders especially Huntington’s Disease. I chaired the Neurology Department at Massachusetts General Hospital for 21 years. I have written a memoir of my journey and adventures.
@museumaf.bsky.social @museumaf.bsky.social 
@loumcc80.bsky.social @loumcc80.bsky.social 
Sam @somemanduh.bsky.social Don’t let the bastards grind you down
@clayton-a-engel.bsky.social @clayton-a-engel.bsky.social