The Hepatitis C Trust

@hepctrust.bsky.social

380 Followers 41 Following

On a mission to eliminate hepatitis C in the UK by 2030. Helpline: 020 7089 6221 (weekdays 10.30am to 4.30pm) https://www.hepctrust.org.uk/

Graphic with a picture of a map of the UK with text: WORLD HEPATITIS DAY 2026 FOUR NATIONS ON THE ROAD TO ELIMINATION
Graphic reading: 28 July 2026 World Hepatitis Day The Hepatitis C Trust
A group of people stood in front of two bouquets of flowers
A photo of two men holding umbrellas with a graphic stating: 'Volunteers’ Week'
A photo of Gill Furniss MP with a member of staff from the Hepatitis C Trust
A photo of Gill Furniss MP with a member of staff from the Hepatitis C Trust
Quote from: "My mother was infected 48 years ago and lost her fight in 2015 without ever seeing justice. They need to stop torturing people who have already been tortured for up to five decades. When I think back to the day the Final Report was published, there was an overwhelming feeling that justice had finally been won for our loved ones. I do not think anyone expected this scandal to continue to be treated with such contempt, or for the avoidable trauma to continue long after those promises were made. We always understood that delivering justice properly would be complex, but we still had hope that the authorities would eventually listen and do the right thing and get this right for all victims. Having stepped forward to meet with representatives from the IBCA and the Cabinet Office, it became clear that while they claim to be listening and engaging with us, much of what they said and did felt like a smokescreen. The priority appeared to be minimising the overall cost of compensation and exploiting every possible legal loophole to shape legislation that creates discrimination and unfairness throughout the scheme." Ronan Fitzgerald
"I was given infected blood during cancer treatment in the 90s. I will be 70 this year - I have been fighting to be recognised for 30 years now, and time is running out for me. I don't have that many years left to finally relax and enjoy life. We thought we'd been vindicated finally and we'd been heard, but the waiting for all of us unregistered claimants has been awful. Bereaved parents and children are still waiting, as if their loved ones, who paid the ultimate price, don't matter. The exhausting, re-traumatising and lengthy battle with the Infected Blood Compensation Authority means we have to delve deep into our medical past to prove stuff that is blatantly obvious, just because they are so risk averse. We’re all treated like potential fraudsters." Caz Challis
Photo of a group of people attending a training session with a graphic captioned: #LeaveNoOneBehind in... London
Photo of Clive Lewis MP and a Hepatitis C Trust member of staff with a graphic reading: Infected Blood Drop-in Parliament
Quote from Rachel Halford, CEO, The Hepatitis C Trust “Whilst we recognise that important improvements have been announced by the Government, we are very disappointed that yet again there is little evidence that the concerns of the infected blood community have been listened to. This is the last major opportunity to change the Compensation Scheme and deliver real justice on infected blood. We know the Minister for the Cabinet Office is committed to finally righting this historic wrong but unless these concerns are listened to, he won’t."
Poster reading: SAVE THE DATE To mark 40 years of Bristol Drugs Project we warmly invite you to... The National Harm Reduction Summit: Learning from the past, looking to the future. A collaborative event by Bristol Drugs Project and The Hep C Trust. Join us in Bristol for two days of harm reduction, celebrating innovation and reflecting on how we move into the future. More details and tickets coming soon... 17th September & 18th September 2026. Supported by DDN.
Graphic reading: We're calling on the Government to Recognise the full, devastating impact of hepatitis C and early treatments by... removing the 2017 reduction in financial loss rates for those who infected with hepatitis C. ensuring people are fairly compensated for health harms caused by interferon treatment from the date these harms occurred.
A group of people stood in front of a Hepatitis C Trust banner
A photo of two men with a graphic reading: #LeaveNoOneBehind in... Newcastle
INFORMATION AND SUPPORT GROUP FOR THE AFFECTED COMMUNITY (partners, parents, children, siblings and carers of those infected with hepatitis B, C or HIV through blood and blood products) Monday 26 January 5.00pm - 6.30pm Online This group will be a safe, friendly and confidential space for all those in the affected community to come together, feel connected and share their experiences, perspectives and get support and information. Register your interest by emailing helpline@hepctrust.org.uk or calling 020 7089 6221
Graphic reading: #LeaveNoOneBehind in... North Yorkshire, with a photo of a group of people stood in a line.
Graphic reading: Health and Justice Summit - Nottingham, with a photo of members of staff stood behind a stall of Hepatitis C Trust material.
Photo of a panel discussion
Crowd in a conference room
Photo of a presentatuon on NSP mapping
A graphic reading #LeaveNoOneBehind in ... Enfield with a group of people stood in front of two banners
A group of people stood on the beach holding Big Splash flags
Crowd of people on the edge of Skegness Beach holding Big Splash flags.
Poster with The Big Splash Logo with text underneath saying: 28 July 2025 WORLD HEPATITIS DAY Skegness Beach
Graphic reading: 28 July 2025 WORLD HEPATITIS DAY THE HEPATITIS C TRUST
Mark Gillyon-Powell, Deputy Director - HCV Elimination and Health Inequalities for NHS England speaking to a crowd
Graphic with the caption #LeaveNoOneBehind in... Sussex and a photo of a woman sat at a table
Photo of large screen in Church House with the Infected Blood Inquiry logo
Graphic with the caption #LeaveNoOneBehind in... Sussex and a photo of a man speaking
Photo of two people stood in front of a screen with an infographic titled 'Don't call it contract tracing'
WE SURVEYED 431 MEMBERS OF THE INFECTED BLOOD COMMUNITY ONLY 8.5% THINK THEY WILL RECEIVE FAIR COMPENSATION
Word cloud answering the question: In your experience, what are the biggest barriers to patients accessing liver healthcare services? Some of the largest response included: stigma, access, fear, homelessness, other priorities, support to attend, waiting times, lack of information, trust, travel distance