Hyp+Access

@hypaccess.bsky.social

19 Followers 2 Following

Care access 501(c)(3) for people with connective tissue disorders & overlapping conditions - including but not limited to "hypermobility" syndromes, dysautonomia, MCAS, fibromyalgia, ME/CFS, and Long Covid. Hyp+Care clinic opening in NYC in 2026.

Re: the upcoming reclassification of hEDS/HSD - Advocacy Points
Graphic featuring navy background with two overlapping bright pink and turquoise irregular hexagons. A bright pink asymmetrical rounded H-shape resembling the goopy structure of connective tissue appears in the bottom left corner. White text reads: “New study of 97 million people finds 49% increased risk of new autoimmune conditions, especially vascular & connective tissue conditions, after COVID infection. “Association between COVID-19 and New-Onset Autoimmune Diseases: Updated Systematic Review and Meta-Analysis of 97 Million Individuals” Tzang, Sheng, Kuo, Luo, Lin, Lee, Huang, Wu, Tzang, & Hsu.
“breaking it down with Hyp+Access Norris Lab Survey: what the paper gets right and wrong “Defining the Chronic Complexities of hEDS and HSD: A Global Survey of Diagnostic Challenges, Life-Long Comorbidities, and Unmet Needs” Daylor, V., Griggs, M., Weintraub, A., Byrd, R., Petrucci, T., Huff, M., Byerly, K., Fenner, R., Severance, S., Griggs, C., Sharma, A., Atwal, P., Kautz, S.A., Shapiro, S., Youkhana, K., Lavallee, M., Wilkerson, A., Nichols, M., Snyder, A., Eichinger, J.K., Patel, S., Maitland, A., Gensemer, C., & Norris, R.A. (2025)”
Graphic with a light grey background and plum, bright pink, lilac accents. Title text reads: “What impacts Connective Tissue?” Many irregular hexagons nestle into one another to resemble a cell with a nucleus and an outer ring. The center text reads: “Connective Tissue.” The outer text reads: “ligaments, blood, cartilage, fat, lymph, tendons, bones, faschia, types, epithelial tissue*”. Circles holding text with arrows pointing toward the cell read: “sports/athletics/stretching, viral, infection, bacterial infection, mold, puberty, physical & mental trauma, genetics & many more!” Small text at the bottom reads, “*Hyp+Access considers epithelial tissue to be a specialized form of Connective Tissue.” A bright pink asymmetrical rounded H-shape resembling the goopy structure of connective tissue, followed by rounded letters reading “hyp+access” appears in the bottom right corner.
A set of two identical memes with differing labels. The meme features two sequential images. The first shows an infomercial presenter excitedly looking at a large tank of water exploding out of a hole. The second image shows the presenter slapping a piece of tape over the hole, as if it could permanently prevent the leak. The leaking water tank is labeled, “the expanse of gender expression.” The piece of tape is labeled, “the gender binary.”
Photo of x, an Afro-Asian agender person with blonde Bantu knots, blushed cheeks and nose, and glitter brows donning a golden pleated sleeveless turtleneck with black trousers. On a light purple background, a squiggly border made up of pink, red, and green centers the following text that reads: Black, disabled trans community member, x is seeking support for June rent! GOAL: $525 Venmo: @ justx CashApp: $Avignon999 Zelle: DM @unicorntampon. There are cartoon stars accenting the graphic.
Video Description: Community member, x, a light brown skinned Black and Asian agender person, shares faer experiences with self advocacy while navigating multiple care providers.
Community member, x, shares faer experiences with self-advocacy.