Institute for Health and Disability Policy Studies

@ihdps.bsky.social

145 Followers 177 Following

To conduct timely and meaningful research and evaluation to inform health and disability policy, with the goal of improving access and quality of care for all people, particularly for those with disabilities and chronic illnesses.

An empty wheelchair on a trail in a national park Text: Policymakers say people whose experiences aren’t in data are invisible... People with disabilities are not invisible! Show yourself - share your story! Visit ihdps.ku.edu/video to learn more
Man using a wheelchair records himself and people behind him with a smartphone on a short stick. Text: We need people with disabilities to submit videos to help promote the upcoming 2026 National Survey on Health and Disability (NSHD)! Visit ihdps.ku.edu/video to learn more
Text: Mental health service utilization among people with intellectual and developmental disabilities and serious mental illness before and during the emergence of telehealth services Published in Frontiers in Health Services DOI: 10.3389/frhs.2026.1832994 Image: A hand holding a phone that reads - Tele Health
Headshot photo of Jean Hall - a white woman with glasses and shoulder length brown hair
Text: Does who responds matter?: exploring potential proxy response bias in the Washington Group Short Set disability estimates Aaron Beuoy & Kelsey Goddard Published in Frontiers in Research Metrics and Analytics DOI: 10.3389/frma.2025.1654769 Images: A black man using a wheelchair talks to a woman in a suit who holds a clipboard with information between them, KU The University of Kansas Institute for Health and Disability Policy Studies logo
text: A nonprofit disability organization launches a small business accelerator when they learn from the Current Population Survey's disability labor force characteristics data that workers with disabilities are twice as likely to be self-employed than work for someone image: a woman sitting and drawing on an easel
text: federal datasets for national disability employment awareness month that keep disabled Americans going images: man with wheelchair entering bus, man with wheelchair feeding pig, Disability Health Equity Research Network logo, FAS federation of American scientists logo, America's Essential Data logo
Website screenshot. Familia Supporting Maternal & Child Health Empowering women of reproductive age with digital health solutions for better maternal and child health outcomes
The moderating effects of perceived transportation access on health and social connectedness for people with disabilities Published in Journals of Transport & Health DOI: 10.1016/j.jth.2025.102165 Man using a wheelchair uses a lift to enter a van with assistance from another man KU The University of Kansas Institute for Health and Disability Policy Studies logo
A man in a wheelchair reads a newspaper. Text: Interested in disability research? Sign up for the IHDPS newsletter to learn more about the Data Analysis Team, ongoing research, and more! KU The University of Kansas Institute for Health and Disability Policy Studies logo
Text: Sign up for the IHDPS newsletter to keep up on disability research news, resources, and other opportunities! Image: A woman with a prosthetic leg reads a newspaper KU The University of Kansas Institute for Health and Disability Policy Studies logo
Text: NIDILRR funds #DisabilityResearch ! This includes IHDPS projects, like the National Survey on Health and Disability (NSHD)! Images: A group of people chatting around at table, including a young woman using a wheelchair. KU The University of Kansas Institute for Health and Disability Policy Studies
A person sits alone at the edge of a bench in a park Text: Disproportionate Loneliness Burden Demonstrated in Two National Samples of Working-Age Adults With Varied Disability Types Published in Annals of Internal Medicine DOI: 10.7326/ANNALS-25-00928
Blue see-through brain with a red "injured" region Text: Traumatic brain injury in those with pre-existing disability: Prevalence, characteristics, and psychosocial function Published in Journal of Head Trauma Rehabilitation DOI: 10.1097/HTR.0000000000001080
A woman in a wheelchair using a laptop with data on the screen Text: Interested in disability research? Sign up for our newsletter!
Text: Thank you to everyone who participated in the National Survey on Health and Disability (NSHD) by contributing your voice, sharing the survey with the disability community, or conducting research that guides disability policy. Without your efforts, our work would not succeed! Image: A large diverse group of people, including people with disabilities
A man in a wheelchair holding a megaphone points at the closing message Text: The NSHD closes today - July 31. Share your voice now! 2025 National Survey on Health and Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
A man using a power wheelchair watches as his service dog pulls a door closed Text: The NSHD closes July 31. Share your voice now! 2025 National Survey on Health and Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
A woman with a developmental disability flexes her arms Text: It’s Disability Pride Month - share your disability story! 2025 National Survey on Health and Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
A woman using a wheelchair lifts a weight - her socks are brightly colored. Text: It’s Disability Pride Month - share your disability story! 2025 National Survey on Health and Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
A man with a disability rides a recumbent tri-wheel handcycle on a brick path Text: There is still time to take the NSHD! Share your voice today! 2025 National Survey on Health and Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
A man with a beard using a wheelchair talks on a cellphone while looking at his wristwatch Text: There is still time to take the NSHD! Share your voice today! 2025 National Survey on Health and Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
A white woman with one arm holds up one finger Text: The disability mismatch: The case for a comprehensive disability status measure & In measuring disability, do not abandon US standards Published by HealthAffairs
A black man wearing headphones and sitting on a couch uses his tablet Text: There is still time to take the NSHD! Share your voice today! 2025 National Survey on Health and Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
A woman with a prosthetic leg sitting down while looking at her wristwatch Text: There is still time to take the NSHD! Share your voice today! 2025 National Survey on Health and Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
Woman with developmental disability wearing a medical mask waits on the phone Text: Differences in Demographics and Access to Care by Source of Health Coverage for Adults with Intellectual and Developmental Disabilities Published by MACPAC
An older black man with glasses stands using a walker Text: We need more men to share their voice in the NSHD kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
Graphic - Pie chart made out of cartoon people standing, with a slice separated from the rest Undercounts of people with serious mental illness using the Washington Group Short Set questions Published in Frontiers in Psychiatry www.frontiersin.org/journals/psychiatry/articles/10.3389/fpsyt.2025.1606154/full
A young woman with a prosthetic leg wearing glasses sits on a couch Text: We need more people under 35 to share their voice in the NSHD kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
Waterfront Mississippi city - tall buildings and a bridge on a river Text: We need more people in Mississippi to share their voice in the NSHD kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
A stairlift with the disability access symbol on a stair railing Text: The NSHD asks what accommodations and assistive technology people use outside of their home 2025 National Survey on Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
Young blind white woman holding a white cane Text: The NSHD asks about disabilities and health conditions, and when they began 2025 National Survey on Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
Man with a prosthetic leg loads lumber boards onto a stack Text: The NSHD asks people if they work for pay, including self-employment 2025 National Survey on Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
A black man using a wheelchair sits at a table reviewing text books Text: 2025 National Survey on Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
A Latina women in a wheelchair wearing bright rainbow socks lifts a dumbbell with her arm Text: The NSHD ask people about their physical, mental, and overall health 2025 National Survey on Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
Older woman holding the side of her head and grimacing while sitting near a window
A female health professional speaks to a female patient in an office Text: The NSHD asks if Medicaid or other insurance meets people's healthcare needs 2025 National Survey on Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
A man's legs - one is prosthetic at the knee Text: The NSHD asks about healthcare needs - such as prosthetics, medical equipment & prescriptions 2025 National Survey on Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
A woman pushes a man in a wheelchair across a parking lot Text: The NSHD asks people about their use of personal assistance services 2025 National Survey on Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
A white man with a developmental disability presses his hand against his head while wrapped in a blanket Text: Ten percent of people with disabilities develop Long-COVID after being infected with COVID-19 *Source: doi.org/10.2105/AJPH.2024.307794 2025 National Survey on Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
A woman using a wheelchair rides a subway train Text: The NSHD gathers information on the availability and accessibility of transportation 2025 National Survey on Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
A woman with a developmental disability holds up two dresses Text: People with cognitive disabilities report being less likely to get mental health services they need - Source: doi.org/10.1016/j.dhjo.2024.101761 2025 National Survey on Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
A map of the United States with sparkling lights and stars across the country Text: The researchers and testers who develop the NSHD are all people with disabilities from many different states and communities 2025 National Survey on Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
A white man with a prosthetic leg jumps between rocks in nature Text: Half of people with disabilities say that they are in good or excellent health. Source: 2024 NSHD survey data 2025 National Survey on Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
A white man with a developmental disability stands in the doorway of a brick home Text: The NSHD asks about housing - including accessibility and safety of homes 2025 National Survey on Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
A man looks at a clipboard his doctor is holding Text: Half of people with disabilities who had a check-up in the last year reported experiencing discrimination - source 2024 NSHD Survey Data 2025 National Survey on Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
NARRTC Best Research Paper Award Winner Presented to: Jean P. Hall, Noelle K. Kurth, Lisa McCorkell, and Kelsey S. Goddard In recognition of the contribution that their paper: Long COVID Among People With Preexisting Disabilities, American Journal of Public Health (2024) has made toward developing rehabilitation research and practice for the benefit of the disability community. Awarded April 2025
A man using a wheelchair holds a pickleball paddle on a court Text: The NSHD asks people about community participation and other activities 2025 National Survey on Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
Man using a manual wheelchair uses a lift to enter a bus Text: Six in ten people with mobility-related disabilities report issues with transportation - *Source: 2024 NSHD Survey Data 2025 National Survey on Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
A black woman and black man with a hearing aid speak with American Sign Language Text: There are many ways to advocate - sharing your story is one! 2025 National Survey on Health and Disability (NSHD) kuhealthsurvey.org Phone: 1 (855) 556-6328 Email: healthsurvey@ku.edu
Group of people including a man with a developmental disability play cards at a table Text: Your shared knowledge and experiences will be used to address the issues that affect the health, employment, and lives of Americans with disabilities! 2025 National Survey on Health and Disability (NSHD) kuhealthsurvey.org Phone: 1 (855) 556-6328 Email: healthsurvey@ku.edu
Black man with glasses using a wheelchair speaking into a microphone Text: Your shared knowledge and experiences will be used to address the issues that affect the health, employment, and lives of Americans with disabilities! 2025 National Survey on Health and Disability (NSHD) kuhealthsurvey.org Phone: 1 (855) 556-6328 Email: healthsurvey@ku.edu KU THE UNIVERSITY OF KANSAS Institute for Health and Disability Policy Studies
Latino man with prosthetic arm in truck cab Text: The world is changing, and now, more than ever, your experiences need to be heard! 2025 National Survey on Health and Disability (NSHD) kuhealthsurvey.org Phone: 1 (855) 556-6328 Email: healthsurvey@ku.edu KU THE UNIVERSITY OF KANSAS Institute for Health and Disability Policy Studies
Woman in wheelchair with megaphone Text: The world is changing, and now, more than ever, your experiences need to be heard! 2025 National Survey on Health and Disability (NSHD) kuhealthsurvey.org Phone: 1 (855) 556-6328 Email: healthsurvey@ku.edu KU THE UNIVERSITY OF KANSAS Institute for Health and Disability Policy Studies
Survey flier featuring diverse group of people with disabilities The 2025 National Survey on Health and Disability (NSHD) has opened! We are looking for adults with disabilities who are 18 years or over to take our survey! Take the survey at: kuhealthsurvey.org The world is changing, and now, more than ever, your experiences need to be heard! Questions? Contact us! Phone: 1 (855) 556-6328 Email: healthsurvey@ku.edu
Urgently Needed - We're Hiring Associate Researcher Senior The University of Kansas Institute for Health and Disability Policy Studies (IHDPS) is seeking a half-time Senior Research Associate to lead and support disability-focused research projects in health, employment, and community participation. Ideal candidates bring strong methodological expertise and a track record of securing and managing external grant funding. Apply by April 7! Description & Application Instructions: https://employment.ku.edu/jobs/staff/associate-researcher-senior/30065br
Understanding of medical ableism ... will ultimately allow us to develop targeted interventions to reduce the effects of ableism on the care and health of people with disabilities." Jean Hall, IHDPS Director