International Journal of Population Data Science (IJPDS)

@ijpds.bsky.social

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'The Science of Data About People' Open access - Peer Reviewed - Large Scale Population Data Publishing research, development and evaluation connected with data about people and populations. Access for Free Here: www.ijpds.org

Who receives adult social care in Walesβ€”and are some people missing out? A new study will link social care, health & education data to uncover inequalities and help improve care and support across Wales READ: https://ijpds.org/index.php/ijpds/news/30-07-26-adult-social-care #AdultSocialCare #DataLinkage Read the full article here https://ijpds.org/index.php/ijpds/article/view/3393
What happens when we link digital footprints with traditional data sources? How can we unlock commercial data for research and public good? And what safeguards do researchers need as the field evolves? Just some of the questions explored at #DigitalFootprints2026. READ https://ijpds.org/index.php/ijpds/issue/view/48
πŸ“£ The Digital Footprints Conference 2026 proceedings are now published! Bringing together ~150 researchers, data professionals, policymakers and others in York, this year’s conference explored data linkage, data donation, commercial data access, public engagement and the ethical challenges of working with digital footprint data. πŸ“– Read the proceedings: https://ijpds.org/index.php/ijpds/issue/view/48
Can your postcode shape your child's development before school begins? A new study of 5,000+ Australian children suggests neighbourhood designβ€”including parks, transport and local servicesβ€”may influence early childhood development. Read more πŸ‘‡ https://ijpds.org/news/23-07-16-postcode-child-development Read the full open access article here https://ijpds.org/article/view/3154/
It's "data about data"β€”and it could save researchers countless hours. Why search multiple organisations to find suitable datasets? This new metadata catalogue is a single searchable resource describing Canada's health and administrative data landscape. https://ijpds.org/news/09-07-26-canada-health-data-landscape Read the full article here https://ijpds.org/article/view/3372
Finding the right data can be one of the biggest barriers to health research This freely searchable metadata catalogue describes 83 Canadian health and administrative data sources, helping researchers identify and connect datasets more efficiently. READ https://ijpds.org/news/09-07-26-canada-health-data-landscape Read the full open access article here https://ijpds.org/article/view/3372
The IPDLN Conference abstracts have now been published! Explore the innovative research being presented, discover new ideas, and start planning your conference. And rememberβ€”today's conference abstract could become tomorrow's published paper READ ALL ABSTRACTS: https://ijpds.org/issue/view/47 #IPDLN2026
Most Canadian linked data studies focus on mothersβ€”but what about fathers? A new IJPDS review found paternal data were included in very few child health studies, highlighting an important gap in understanding children's health and wellbeing. https://ijpds.org/news/07-07-07-child-health #ChildHealth #PopulationData Read the full article here in IJPDS https://ijpds.org/article/view/3407/
IPDLN 2026 Conference Proceedings are now Published! Explore the innovative research being presented, discover new ideas, and start planning your conference. Happy reading! π—©π—œπ—˜π—ͺ π—§π—›π—˜ π—™π—¨π—Ÿπ—Ÿ π—–π—’π—‘π—™π—˜π—₯π—˜π—‘π—–π—˜ 𝗣π—₯π—’π—–π—˜π—˜π——π—œπ—‘π—šπ—¦ π—›π—˜π—₯π—˜: https://ijpds.org/issue/view/47 @drtomemery.bsky.social @kasiakarpinska.bsky.social
IPDLN 2026 Conference Proceedings are now Published! Explore the innovative research being presented, discover new ideas, and start planning your conference. Happy reading! π—©π—œπ—˜π—ͺ π—§π—›π—˜ π—™π—¨π—Ÿπ—Ÿ π—–π—’π—‘π—™π—˜π—₯π—˜π—‘π—–π—˜ 𝗣π—₯π—’π—–π—˜π—˜π——π—œπ—‘π—šπ—¦ π—›π—˜π—₯π—˜: https://ijpds.org/issue/view/47 @drtomemery.bsky.social @kasiakarpinska.bsky.social
Where people live can shape their healthβ€”but perhaps not in the way you might expect. A new IJPDS study found people with severe mental illness are far more likely to live in deprived areas of Wales, but not more likely to experience higher air pollution. READ: https://ijpds.org/news/02-07-26-servere-mental-illness-wales Read the full article here: https://ijpds.org/article/view/3360/
Behind every dataset is a person. Behind every record is a story. A new study published in IJPDS explores how people who use drugs view the use of their personal data for researchβ€”and why trust and transparency matter just as much as security. READ: https://ijpds.org/news/30-06-26-trust-truth-tough-questions Read the full article here: https://ijpds.org/article/view/3428
πŸ’Š Nearly 30 years of prescription data. 1.8 billion records. A population of 5.7 million people. A new IJPDS paper introduces PharmaNet, British Columbia's unique prescription drug dispensing database and a major resource for population health research. READ THE SUMMARY HERE: https://ijpds.org/news/18-10-26-pharmanet or Read the Full Open Access Article Here: https://ijpds.org/article/view/3375/
What happens when health, social care, mental health, ambulance and GP data are linked together? The Sussex Integrated Dataset connects records for 1.7 million people, creating one of England's most comprehensive linked health datasets. Find out more: https://ijpds.org/news/17-10-26-sussex-nhs-data Read the full open access article here https://ijpds.org/article/view/3382
Ten years after the launch of IJPDS, we’re bringing the community together to ask: What should the next decade of Population Data Science look like? Join in Workshop 10 at IPDLN 2026 πŸ“… Monday 13 July | 1 - 4:30pm ⏳ Workshop registration closes 19 June https://www.eur.nl/en/essb/payment/8d3bcc06-a372-45aa-9ce0-f6f5b3261a75
Why do so many abused and neglected children across Europe still struggle to get the help they need? The SERENA project brings together 22 partners across Europe to identify how health and social care systems can better support vulnerable children. πŸ”— https://ijpds.org/news/11-06-26-abused-children #ChildProtection Read the full Open Access Article here: https://ijpds.org/article/view/3147/
πŸš‘ Faster isn't always better? New research from New Zealand challenges assumptions about trauma transport, suggesting that direct transfer to specialist trauma centres may not always improve survival outcomes. πŸ”— https://ijpds.org/news/09-06-26-trauma-transport #TraumaCare #HealthData #IJPDS Read the full article here: https://ijpds.org/article/view/3388
10 years ago the IPDLN community helped define Population Data Science. Now it’s time to ask: Did we get it right? πŸ€” Join our workshop at International Population Data Linkage Network Conference 2026 and help shape the next decade REGISTER: https://www.eur.nl/en/essb/payment/8d3bcc06-a372-45aa-9ce0-f6f5b3261a75 Registration closes 19 June
Some of the most vulnerable mothers are often invisible in health data Researchers in Wales used linked GP and maternity records to identify refugee and asylum-seeking mothers, creating a unique cohort to help uncover inequalities in maternity care and birth outcomes https://ijpds.org/article/view/3318/
Well-child visits help monitor growth, development and wellbeing. Yet new research shows children exposed to opioids during pregnancy are significantly less likely to attend these important early-life appointments. https://ijpds.org/news/02-06-26-opiod-use-during-pregnancy #ChildHealth #MaternalHealth #PopulationHealth #IJPDS Red the full article here https://ijpds.org/news/02-06-26-opiod-use-during-pregnancy
The study suggests barriers such as stigma, poverty and reduced access to healthcare may contribute to lower uptake of preventive care among families affected by opioid use during pregnancy. Read the full story: https://ijpds.org/news/02-06-26-opiod-use-during-pregnancy #HealthInequalities #OpioidCrisis #DataForGood #IJPDS Read the full article here https://ijpds.org/article/view/3229
A child's first years are critical for health and development. New research shows children exposed to opioids before birth are missing routine health check-ups and relying more on emergency care throughout childhood. https://ijpds.org/news/02-06-26-opiod-use-during-pregnancy #ChildHealth #OpioidCrisis Read the full open access article here https://ijpds.org/article/view/3229
IJPDS Data Resource Profile introduces TORCH-VIC β€” a linked cancer dataset covering 222,000+ people and over a decade of cancer care in Victoria, Australia The resource supports research into treatment patterns, outcomes, costs, survivorship, and care inequalities READ: https://ijpds.org/article/view/3141/
New Data Resource Profile introduces TORCH-VIC β€” a linked cancer dataset of 222,000+ people and over 10yrs of cancer care in Victoria, Australia It supports research into treatment patterns, outcomes, costs, survivorship, & care inequalities https://ijpds.org/article/view/3141/ #CancerResearch #HealthData Read the full open access article here https://ijpds.org/article/view/3141/
What should the next decade of Population Data Science look like? Join our interactive workshop at the IIPDLN Conference 2026 in Rotterdam πŸ—“ 13 July ⏰ 13:00–16:30 πŸ‘₯ 11 participants already confirmed Registration closes 19 June Come join us... https://www.eur.nl/en/essb/payment/8d3bcc06-a372-45aa-9ce0-f6f5b3261a75
What if researchers could analyse sensitive health data without it ever leaving a secure environment? ERICA offers a new cloud-based blueprint for trusted research environments. https://ijpds.org/news/20-15-26-health-data-research-cloud Read the full open access article here https://ijpds.org/article/view/3373
Why do some babies come into contact with social services before their second birthday? A new linked data study in Northern Ireland will connect maternity and social care records to understand when involvement begins and how families can be supported earlier. READ: https://ijpds.org/news/19-05-26-early-contect-social-services or Read the full Open Access article here https://ijpds.org/article/view/3401/
How do you collaborate with a sector that hasn’t been mapped? Researchers compiled information from multiple sources to create VCSE-Finder NIβ€”a directory of 7,706 voluntary and charity organisations across Northern Ireland, now available in beta. Read: https://ijpds.org/news/14-05-26-ni-vcs Or read the full open access article here - https://ijpds.org/article/view/3361/
Italy’s fertility has fallen to a record low (1.14 children per woman in 2025), despite many people wanting more children than they ultimately have. A new survey explores why β€” including fertility treatment use and changing partnership patterns. https://ijpds.org/news/13-05-26-family-life-italy Read the full open access article here https://ijpds.org/article/view/3411/
β€œEvery prescription tells a small part of someone’s health story.” Northern Ireland’s Enhanced Prescribing Database (EPD) helps researchers bring those stories together to understand population health, from dementia care to inequalities in screening. Find out more: https://ijpds.org/news/12-05-26-ni-data-offers Or read the full open access article here https://ijpds.org/article/view/3354/
Help support rigorous research in AI for population data science. We are currently recruiting academic reviewers only for a new @IJPDS Special Issue. Eligibility: academic researchers working in AI / ML methods applied to population data. https://ijpds.org/calls/ai
Health data collected through the NHS has huge potential to improve care. But accessing and linking that data can take years. One study required 39 forms and 2.5 years before researchers received the data! New research explores why – and how the system could improve. https://ijpds.org/news/30-04-26-hard-to-use Read the full article here https://ijpds.org/article/view/3000/
How are U.S. Integrated Data Systems (IDS) funded and staffed? A new study published in IJPDS examines how governments, universities and community partners link administrative data to improve services while protecting privacy. https://ijpds.org/news/29-04-26-us-idi Read the full article here https://ijpds.org/article/view/3414
data can’t leave its home jurisdiction? A study in IJPDS evaluates a federated likelihood method that enables analysis across regions without sharing patient-level data. Find our more here https://ijpds.org/news/27-04-26-science-travels Read the full article here: https://ijpds.org/article/view/3160
Linking education and health data opens new opportunities to study how early-life experiences shape long-term wellbeing. This IJPDS article outlines the education and health datasets available within New Zealand’s Integrated Data Infrastructure (IDI). https://ijpds.org/article/view/3364/
How well do national datasets capture dementia among care home residents? A study in IJPDS links care home, healthcare and administrative data for over 63,000 residents in Scotland to explore how dementia is recorded across data sources. Read more: https://ijpds.org/article/view/3359/
How closely are mental health service use and welfare benefits linked? A new study published in IJPDS uses linked electronic mental health and benefits data to examine the characteristics of working-age adults accessing secondary mental health services. Read more: https://ijpds.org/article/view/3113
Your supermarket loyalty card could help improve public health. Researchers are using purchase data to study real-world food habits and test whether supermarket interventions can encourage healthier diets. Read more: https://ijpds.org/news/09-04-26-loyalty-cards-diet Read the full open access article here: https://ijpds.org/article/view/3371/
How can data research networks move from equity commitments to real implementation? A study published in IJPDS examines how Inclusion, Diversity, Equity and Accessibility (IDEA) is embedded across HDRN Canada β€” revealing both progress and key gaps. Read more: https://ijpds.org/news/08-04-26-equity-hdrn-canada Read the full article here: https://ijpds.org/article/view/2964
Children who move home in early life are significantly less likely to receive their first MMR vaccination on time. New research using linked health records highlights an important gap in immunisation coverage. Find out more here: https://ijpds.org/article/view/2963
What does the public expect from health data governance? New research from Singapore finds strong support (80–89%) for additional oversight β€” even when it slows research β€” highlighting the importance of trust and accountability. Read more: https://ijpds.org/news/23-03-26-what-public-expects Read the full open access article here: https://ijpds.org/article/view/3200/