Patricia Donnellan, MPH ๐บ๐ฆ๐ @stpaulsbay.bsky.social Patricia Donnellan, MPH | Found the unifying cause of chronic disease: rs5522-driven inflammation. Cured my own 29-yr CFS. Proving itโs fluid, not fatโfrom Long COVID to Maternal Mortality. ๐งฌ
www.beyondbloodtests.org
Jammy @jamie7209.bsky.social Empathy, integrity, compassion. Least thatโs what I think. Lol
Print Play Protect @printplayprotect.bsky.social We make cool tabletop items :D
Patients with Power @ptswithpower.com Patient-scientist fighting for medicine based in SCIENCE; NOT BIASโกCalling out harmful healthcare cultureโกBreaking down difficult doctor behaviourโ๏ธ๐ง
Leslie ๐ข @lesliepear.bsky.social #GenJones
She/her. Wife, mother, volunteer usher, former school board member
AML and BMT survivor. Cat lover with no cats. #Mets, #NYGiants and #Celtics fan
๐ซDMs ๐ซPorn ๐จ๐ฆ๐บ๐ฆ๐ณ๏ธโ๐๐ณ๏ธโโง๏ธ
Patrick BERNARD @29pat.bsky.social @Renaissance
@Renaissance29 @RenaissanceQBO
adore #MacronardsFM !...
Comptes #X (ex-Twitter) : @29Pat2 et @29Pat
Compte #threads : patrickbernardmahe
Compte #instagram: patrickbernardmahe
Compte #Facebook : Patrick Bernard-mahe,
Compte #Pinterest : 29pat๐จ๐ต
S.Jones @seastarsal.bsky.social Chronically enraged that I've had ME/CFS since 1992.
cfsgraphics.com- M @mum2twins.bsky.social @mum2twins.bsky.social
Writer/Artist#StopFemicide ๐จ๐ฆ๐๐ง๐ปโ๐จ๐ต๐ธ @writerartisteh.bsky.social Visual art, writing
๐๐ณ๏ธโ๐๐ณ๏ธโโง๏ธ โฟ๏ธ ๐ท๐จ๐ฆ AuDHD #ActuallyAutistic, MG, mason bees etc. General musings, rants, politics site for a Cdn artist and writer with 10 books. Happy to see resisters, but block if you block fundraisers. writing: @eatonhamilton.bsky.social
Jenn๐ฆAnne๐Miller๐ท @jennannemiller.bsky.social #MECFS #MEPOTS #MEPEM #MillionsMissing #MEWarrior #Disability - live it daily #IACC #PAISs #MillionsMoreMissing #LongCovid
FDR Socially Progressive Democrat #StopProject2025 ๐๐๐๐ ๐๐ฉต๐ฉต๐ค๐ฉท๐ฉท #Equality #AmericaIsAntifa #Resist
๐๐๐๐๐๐๐๐me/it๐๐๐๐๐๐๐๐
Renegade Research @renegaderesearch.bsky.social Patient-led 501c3 nonprofit focused on #MECFS & #LongCovid ๐ https://linktr.ee/renegaderesearch โข Runs @remissionbiome.bsky.social
Kerstin @sannara.bsky.social #MECFS #MILLIONSMISSING #MEAwareness
#PEM #POTS #MCAS
#PostCovid #LongCovid
#TeamWissenschaft #GdB
https://www.mecfs.de/was-ist-me-cfs/
https://www.psychotherapie-mecfs.de/
Keto diet @saghan.bsky.social Sharing keto diet recipes
@musa.saidy1.bsky.social @msaidy.bsky.social Nothing lasts forever!โ๐ป๐๐ฏ๐ฌ๐ฒ๐ฌ๐ฒโค๏ธ๐ฌ๐ฒโฝ๏ธโฝ๏ธ
Michiel @murtoz.bsky.social Horizontal advocate for #pwME. ๐ณ๐ฑ in ๐ด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ.
Ally. Cis. PwME/LC. Volunteer with @meactionscotland.bsky.social. He/Him. #SaveSavannah #BIPOCLivesMatter #TransLivesMatter #EndGenocide #CovidIsAirborne #YallMaskin #CleanTheAir
TinfoilHatGirl @tinfoilhatgirl.bsky.social 
FionaMECFS @fioname.bsky.social Victoria, Australia. Former professional wordsmith. 16 years living with the hell of myalgic encephalomyelitis (ME/CFS). Prone to so-called left-wing views & bingeing good TV ๐ค
slug @helicoidea.bsky.social 
Hannah McManus @rookdigoo.bsky.social Hey, it's me.
Writer, reader, crafter, nerd, and amateur folklorist. Chronically ill (long covid) and won't be silent about it. We are still in a pandemic.
Wish I was a tiny mouse living in a tiny mushroom. ๐ญ๐ | She/her
Survival mode๐ @equestrian34.bsky.social My animals own me ๐โ๐ฆบ๐
Domestic Violence Survivor
Multiple Sclerosis Warrior
Itโs not about the cards you were dealt in life itโs how well you play your hand.
#Resist #pro-choice #dogs #cats #BlueCrew #Democrat
Slasher Film | Horror Movie @slasherfilm2024.bsky.social WATCH THE TEASER TRAILER NOW on YouTube: https://tinyurl.com/ebbrwb6f (Warning: 18+)
Movie coming soon. Calling all #HORROR fans.
#horrorcommunity
Ottawa, ON, Canada ๐จ๐ฆ
Instagram: https://tinyurl.com/yf2e6vr8
FB page: https://tinyurl.com/mwwrf68e
Seren8y @seren8y.bsky.social Retired Social Worker living with chronic illness, doing my best to live a life of kindness. Interests include progressive politics, protecting our planet, greenhouse gardening, meditation & compassionate approaches to health & mental health care.
@katrinakrog.bsky.social @katrinakrog.bsky.social 
@swimmingducks.bsky.social @swimmingducks.bsky.social 
Miriam Perkins @itsmiriam.bsky.social Political Commentator, Academic, Disability Advocate, Accountant, Autistic, Business Owner, Gamer ๐ฆ๐บ ๐ฆ ๐ณ๏ธโ๐ ๐ต๐ธ ๐ฒ๐ฝ
Bsc. Acc, Fin, Bus Law
Sue Poncin @sueponcin.com After Jan 2021: #Disabled by Long COVID & #BookSky author #LongCOVID memoir
Before Jan 2021: overachiever, #MathSky Calculus teacher, Mom Uber driver
www.sueponcin.com
In The Space Between: https://a.co/d/0fkSZMd
Sarah R W @sreithwatso.bsky.social 
jewelwing audio @jewelwingaudio.bsky.social Long Covid since 2020 & vax injured since 2021; use a Flo-Mask n99, HEPA and far-UV-C to make the basics safe, and otherwise feel lucky to be an introvert at a time when it's the safest way for me to live :) Breast cancer survivor since 2019. ๐ค๐ค๐ ๐ณ๏ธโโง๏ธ
Transmasc George Costanza @zeppelliot.bsky.social Heyyyy iโm Elliot :) 29 y/o menace to society
He/they/it transmasc enby type ๐ณ๏ธโโง๏ธ โฟ๏ธ
Ask me about my special interests!
Kelly Blew๐ณ๏ธโ๐๐จ๐งถ๐๐ดโโ ๏ธ๐ผ๐ฉโโค๏ธโ๐ฉ๐ชท๐ฃ๐ฝ๐๐ @kblewcrew.bsky.social #Artist
Married Lefty #Liberal #LGBTQIA #DSA
Childless #cat Lady๐ธ KittenFoster #Disabled #pwME #CFS
#POTS #MCAS #SFN
Former Healthcare worker
#Durham Urb/suburb homesteading co-op
#DurhamNC #RESIST #BullCity #Feminist #Bluecrew #SocialDemocrat
Andrea Fighting for #MECFS Diagnostic Biomarkers @mecfsnanoneedle.bsky.social Severe #MECFS Patient
Bedridden. No energy to speak.
#MECFSDiagnosticBiomarkers
Drug companies need a #MECFS and #LongCovid diagnostic blood test for successful clinical trials.
https://mecfsdiagnosticbiomarkers.substack.com/
Clairemont @americanabroad.bsky.social Dual ๐บ๐ธ๐ฌ๐งcitizen
Politics poster ... ๐๐ณ๏ธโ๐AuDHD ME/CFS ๐ณ๏ธโโง๏ธ๐บ๐ฆ๐ต๐ธ
DMs only if we've an established relationship.
Tom Jackman @frozen.bsky.social Dad, ally, and keeper of digital receipts | #MECFS since 2004 | #LongCovid since 2020 | Archivist by training | ๐จ๐ฆ by choice | @frozen in the old ๐ฆ country | he/him
tamsin yeld into the void @68thmonkey.bsky.social Previously an alien, but really a monkey. MECFS since 2017. โฟ๏ธ๐ Science, nature, climate, dogs, politics makes me mad but I just cant help myself. Peace & Love ๐โ๏ธ (definitely not fear). Lucky to live in Bundjalung Country ๐ฆ๐บ (Advocate for Bleats not Skeets)
Karen R @kricketts.bsky.social ๐ Canadian. Innkeeper in beautiful Newfoundland. Love beaches, seaglass, covid-conscious people, โฟ๏ธ accessibility, helping refugees.
Looking for a fun place to stay in Newfoundland? We have 16 cool theme rooms - see our website for Round Da Bay Inn.
Open Medicine Foundation (OMF) @openmedf.bsky.social OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
burgermind @burgermind.bsky.social ME since 2021
#PwME #mecfs #longcovid #fibro #pots #severeME
I live on a lovely little island ( #OrcasIsland #PNW )
pfp: my black cat sleeping with forelegs stretched out
Bill Fenton @billfenton.bsky.social Born to Raise ... Wheat.
CFS/ME from 1996.
Digital and analogue Collagist.
AUKUS will FUKKUS
Linda Lou (say it ain't true) @lindalouwhoblue.bsky.social Don't DM if we just met - that's a block ๐#Resister #EndWhiteSupremacy
๐ซTrumpers/MAGA, #BLM,
#MotherOfCats, #LGBTQ+
Michael Askren @yungfetus.bsky.social Former video game industry person disabled by Long COVID. Leftist. I like vinyl, animation, and reading.
The Midnight Hour @the-midnight-hour.bsky.social 25. FtM. Seattle area. 1/2 Mรฉtis. Kinnie. Lokean Seer. ๐ Mostly porn and my medical shit (Myalgic Encephalomyelitis, Fibromyalgia, Functional Neurological Disorder)
DMs open!
Minors & antis DNI (AGE IN BIO)
Fucked up kinks
Lactation enthusiast
๐+Poly
Brenda MacIntyre, แชแขแญแญแแฒแงแฃ แแขแซแงแค ๐ท @mswcreations.bsky.social Medicine Song Woman. ๐ค๐ทIndigenous Keynote Speaker/Singer, Hand Drummer. Long COVID, CFS/ME & CPTSD. GenX. Trauma-informed virtual circles and mentoring for COVID-conscious women. NO DMs without permission. https://medicinesongwoman.com ๐ทshe/her
Carey @29carey29.bsky.social Adjusting to chronic illness caused by a virus being ignored by society. Wanting to connect with others to learn and find community.
#LC #POTS #Keepmasksinhealthcare #AirborneAware #Covidisnโtover
AngelikaSu @angelikasu.bsky.social Caretaker of a serverly ME/CFS sick 28 year old daughter post Covid.
A Darkened Room @adarkenedroom.bsky.social One of the #millionsmissing || Raising awareness of the most severe form of #MyalgicEncephalomyelitis
Don aka Damnit Don @donm1955.bsky.social Widower of 12 years, I'm homeless with class; a class A motorhome. 2 fur boys. Helping the less fortunate. Cancer warrior 15 years strong! A USAF veteran, love my fellow brothers & sisters
Andrew Gifford @andrewgiffordphoto.bsky.social Depleted human. Slowly making photographs about a life with ME/CFS, like Long Covid.
https://linktr.ee/andrewgifford.photography
Bristol, UK. 335.42 ppm. He/him/oi.
Rachel Leigh @3feralcats.bsky.social They/Them ๐จ๐ฆUrban farmer, 2x MSc Human & Medical Genetics, felted wool artist, musician. Disabled, AuDHD, Queer. BLM, Indigenous Lives Matter, Trans Lives Matter,ACAB,๐
https://www.amazon.ca/hz/wishlist/ls/UYYEH2OOBIZP?ref_=wl_share
Karlpybara๐ฆฅ @karlpybara.bsky.social 35, French-Canadian (he/him? any is fine tbh)
Chronically Ill (MECFS) Mostly Bed-bound.
Trans Rights, Land Back, BLM, Anti-AI, MDNI
๐ฌ https://letterboxd.com/karlpybara
โ https://ko-fi.com/karlpybara
Billy Hanlon @bhanlon15.bsky.social ME/CFS | Long COVID | IACC
Salty Beach (she/her) @zierrazunset.bsky.social Living life with POTS, dysautonomia, Long Covid, MCAS, and CFS/ME symptoms as best I can, guided by research, medication and exercise techniques adapted for chronic illness warriors whose biggest battle is against gravity.
LoveWarriorHugs @lovewarriorhugs.bsky.social Smiles for miles-not letting #ChronicIllness stop me
My opponents-
#Epilepsy, #MultipleSclerosis, #chronicpain #TrigeminalNeuralgia #OccipitalNeuralgia, #Asthma, #IBS
Allies
#spoonie #spoonies
Https//:linktr.ee/lovewarriorhugs
Robbie @robbielane87.bsky.social Just a dude with ADHD and severe ME/CFS with a sprinkle of fibromyalgia and a tic disorder.. and and pinch of DiD..
Trying to get by one day at a time ๐ค
@jiripiri.bsky.social @jiripiri.bsky.social 
Malwsmefys @malwsmefys.bsky.social Welsh, arty, crafty, cat lover ๐ป Humanist and Terry Pratchett disciple. Disabled with ME/CFS #pwME
Colin-Roy Hunter aka criquaer @criquaer.bsky.social Queer, humanist, pantheistic Quaker.
Politically non-partisan.
Disabled & chronically ill
#pwME #MyalgicEncephalomyelitis #SevereME
๐ช๐บ๐ฃ๏ธ ๐ด๓ ง๓ ข๓ ฅ๓ ฎ๓ ง๓ ฟ๐ฆ๐น๐ฉ๐ช๐ช๐ธ๐ซ๐ท๐ต๐น
NoniMarie @nonimarie.bsky.social Educated as a teacher
ME/CFS resident of troubling times
๐โค๏ธ๐ณ๐ด๐๐บ๐ธ๐๐บ๐ฆโค๏ธ๐
Photography & history
Books & music
Birds & beasts
Psychology/therapy/(Marion)Rosen method
-Trying to make sense of things
Which I admit is not too easy
Ash Wolf @ashwolfinva.bsky.social Infuriated Neurospicy Feral Tree-hugging Dirt-Worshipper
๐ ๐ฟ ๐ณ ๐ ๐ฆโโฌ ๐พ
#MECFS #MillionsMissing #POTS
#ClimateEmergency ๐ฅ
๐๐๐
Eleanor Fielding @meownersclub.bsky.social โWeโre driving in the dark with our sunglasses on!โ
#RLS #ME #PEM
Retired lecturer/therapist
Open University, CCCS Bโham, feminism, politics, culture, disability, science, music, languages.
meownersclub@bsky.social
Maker of #FanningTheFlames
Hanna Jo @hannajow.bsky.social Medically retired PT bc decades-long #ME/CFS, #MCAS, #hEDS, #POTS, #IIH, #CPP. Worked w/ ppl like me in a system that refuses to meet our medical needs. ๐ฉบ๐History/GINT B.A. b/f PT. #Alaskan born in #SC. ๐
Happiness is #GamecockWBB๐๐ #WNBA #Unrivaled
โฟ๏ธ๐ฉ๐ผโ๐ฆผโโก
Taylor R.W. Brown @taylorrwbrown.bsky.social โ๏ธ๐ผ Screenwriter (THE TIME JERK, 4th draft completed! AT THE END OF THE BLOCK, 1st draft in progress.) ๐จ๐ฆ
๐ฌ Film, TV, & music lover. Gamer. ๐ฎ
๐ Gay/Non-binary (They/He) ๐๐ค๐๐ค / Taken
๐ซ Disabled with ME/CFS, Long-Covid, MPS, cPTSD. Neurodivergent. ๐ง 
Dr. Sabine Hermisson ๐ฆ @sabinehermisson.bsky.social PD Dr. (religion, empirical education research)
mother of Mila who suffers from very severe ME/CFS (Bell 0)
https://milaandmecfs.files.wordpress.com/2022/05/mila-spiegel.pdf
Vienna, Austria
#CleanAir
Sam @meander28.bsky.social Queer Femme living in a rural mountain village with chronic illness and cats
Meg Samuelson @coastalthinking.bsky.social Sea-creature, shore-dweller, gardener. #LongCovid #MECFS #POTS. Engaged Buddhism.
i used to think read write teach (literatures of the South/Africa/Australasia/Indian Ocean & climate, colonialism, environment, littorals, the sea, water, womenโs stories)
ashe ๐ฅ โฟ ๐ณ๏ธโ๐ @themeeplife.bsky.social #pwME since 2004, when I was 22. Homebound, mostly bed bound. Currently battling breast cancer. #postviral #MECFS / #POTS / probably #MCAS #actuallyautistic
I make websites.
G+ person.
melinda_is_done @melindaiscomplex.bsky.social My body has given up but I haven't...
Bed-tethered disabled Advocate on hiatus (but RESISTing) due to severe ME & LC & comorbids. Co-founder #MEAction Maryland.
Orioles/Ravens/Caps fan. She/her
๐ฉท๐๐
Skibbity Flee @skibbityflee.bsky.social Health and mental health advocate
Schizoaffective BP1, BPD, CPTSD
Leukemia, Fibromyalgia, CFS
AutumnSun9 @autumnsun9.bsky.social Joined Bluesky Nov 7, 2024. Ocean girl forever ๐ฌ
I โค๏ธโ๐ฅ science, nursing, film noir, art, guitars, protecting animals, people, ocean & earth, 60s70s rock, lite jazz, giive me humor.
Cathryn Worrell @cathrynworrell.bsky.social ๐จ Artist, illustrator, lover of Moomins (she/her)
๐ Navigating a creative life with chronic illness (ME/CFS)
https://cathrynworrell.com/links
https://patreon.com/cathrynworrell.com
Jeannemaire @jeannemcardle.bsky.social 
Riemerville @riemerville.bsky.social Salty | #LongCovid,#POTS & #ME | Books, Music, Food, Art #ATXRE | Excuse my typos
We are living in a choose-your-own dystopian novel
Jacy Sonne โฟ๏ธ @jacysonne.bsky.social Disability Advocacy #FMMECFS #Migraineur #POTS #Dystonia #Spoonie
Rare brain tumor survivor
Too many med dx to list here
DV and the Disabled.
Pro: Science
LGBTQ
BIPOC
AAPI
Angel @acap42.bsky.social Surviving on spite & Eurovision hype*
Reading The Wheel of Time. Again. ๐
She/her ๐๐๐โโ
Masked Queen in her revenge era ๐ท๐ฅ๐ฆ
*Side-eyes EBUโฆ 99% fuelled by spite.
Victorious Bleue @victoriousbleue.bsky.social I make good soup.
Trans rights are human rights
Black Lives Matter
Women are equal
Children have agency
Artist/Burner/Disabled
AuDHD/PASC/POTS/MCAS
I make EDM for CNS healing: soundcloud.com/bleuefish/tracks
Wear your fucking mask
Sarah Hodges @slh82.bsky.social Lover of animals and wildlife/nature ๐ถ๐ท TV dramas, films, photography, art, news/current affairs
Living with severe M.E #pwme #mecfs #fibromyalgia
Medically Induced Hermit @fallsthroughcracks.bsky.social โข Spoonie๐ฅ โข I โค๏ธ Nature & Wildlife photos ๐ท โข #ME/CFS โข Healthcare worker (COTA) until disabled with multiple chronic illnesses & chronic pain โข HERmit โข Armchair Traveler โข Slipping through the cracks = Medically Induced Hermit ๐โข
Brent Forman ๐จ๐ฆ @joeblow604.bsky.social Living with Myalgic Encephalomyelitis since 2011. Artist, Advocate, Creative
Former Electro-Mechanical Prototyper
Inclusive
#pwME #MECFS #MCAS #POTS #Fibro #LongCovid #Disability #chronicillness
#art #artist #painting #oilpainting #digitalart #photography
Adrienne Asher @asheradrienne.bsky.social poet, artist, #longcovid since 2020
swears a lot since the election
einmatthes @matthesgrau.bsky.social &d. ist nur d. lesbarste teil v. mir
&d. ist nur d. sichtbarste teil v. mir:
https://bsky.app/profile/k-a-kunst.bsky.social
https://www.instagram.com/matthesgrau/#
&noch mehr lesbares:
https://inermangelungen.leaflet.pub
https://adrowning.leaflet.pub