@newtonianmade.bsky.social @newtonianmade.bsky.social Decent drug developer for over 10 years; decent father for over 12 years; decent husband for over 15 years; overall decent guy for over 50 years
PEMF-devices.com @pemf-devices.bsky.social PEMF, Molecular Hydrogen, Infrared/Red Light Therapy Research and Product Development since 2012.
Jordi Pijuan @jordipijuan.bsky.social Biologist, PhD 🧬 Researcher at the Neuromuscular Disorders Unit (Sant Joan de Déu Research Institute) | Exploring rare diseases with a focus on the genetics of #neuromusculardisorders | Managing editor at Orphanet Journal of Rare Diseases 🦓
Rosa HP Sca @rosca26.bsky.social Postdoc'ing @WashU 👩🏻🔬 AHA fellow 🫀
Rare musculoskeletal diseases & ion channels🔬
Bookworm 📚 avocaddicted 🥑 4strings lover 🎻
inflammatory @inflammatory.bsky.social Chronic inflammatory demyelinating polyradiculoneuropathy (CIDP) is a rare heterogeneous, but treatable autoimmune mediated peripheral neuropathy characterized by demyelination. #CIDP #immunosky #Neurology #NeuroSky #NeuroSkyence #ankylosingspondylitis #ms- A @anitacavaleiro.bsky.social @anitacavaleiro.bsky.social
Maria Lindqvist,PhD (Åbo,Stockholm,Uppsala,Roma) @amazingmariapian.bsky.social PhD and postdoc in medicin
https://balticseanews.se/ http://www.finlandiabiosciences.com
http://www.educateandhelplocally.eu
instagram: https://www.instagram.com/balticseanews/
youtube: https://www.youtube.com/@finlandiabiosciences
Jaakko Sarparanta @jaakkosarparanta.bsky.social Molecular biologist studying neuromuscular disease in the Myofin group (@myofinlab.bsky.social) at Folkhälsan Research Center (@folkhalsanresearch.bsky.social), Helsinki, Finland.
@brstvnsbo.bsky.social @brstvnsbo.bsky.social 
Manchester Neuromuscular Research Group @neuromuscularmanc.bsky.social 
Rita Horvath @ritahorvath.bsky.social Professor of Neurogenetics at the Department of Clinical Neurosciences, University of Cambridge, UK
Stephanie Mattina @stephmattina.bsky.social PhD Candidate at McMaster University
Muscle Physiology
@bettykupfersky.bsky.social @bettykupfersky.bsky.social More than 1 master's so a pretty "nonserious" person. Still angry at the it's not airborne ppl. Mostly delete draft posts. I watch bad teevee. Always cooking dinner.
@edcollins.bsky.social @edcollins.bsky.social 
@jslayter.bsky.social @jslayter.bsky.social 
Loubet Michel @loubetmichel.bsky.social 
Neuropatias Autoinmunes- GBS|CIDP España @neuropatias.bsky.social La asociacion de pacientes con neuropatias autoinmunes , familiares y amigos.
Síndrome de Guillain-Barré, CIDP (polineuropatia desmielinizante inflamatoria cronica) , NMM (neuropatia multifocal motora), etc. : somos tu casa. 
@madhurdoc.bsky.social @madhurdoc.bsky.social 
Berta Estévez-Arias @bertaestevez.bsky.social Human Biologist, PhD 🧬 Researcher at the Neuromuscular Disorders Unit (Sant Joan de Déu Research Institute) | Understanding the genetics of #neuromusculardisorders | Genes, books and music
Health papers tracker @healthpapers.bsky.social Curating and finding what's really good on health related research.
Use #HealthPapers #HealthResearch #HealthJournal
Jen L, PhD @drjkyl.bsky.social Executive Editor/Team Lead Open Access Science & Medicine Journals Sage Publishing
Opinions = mine
http://linkedin.com/in/jlovick-editor
#oncology #cancerresearch #medicine #biology #cardiology #neurology #microbiology #publichealth #healthcare
JARDIN Joint Action @jardinjointaction.bsky.social To improve the accessibility of the ERNs for patients across Europe, the EU has funded a pioneering 3-year project involving all member states (MS) plus Norway and Ukraine, the Joint Action on Integration of ERNs into National Healthcare Systems (‘JARDIN’)
Jen Gabriel @jenlgabriel.bsky.social 🧠 Neuroscientist at UoEdinburgh
SMA/MND/NMJs
⚧️ She/her
📢 Research communicator
👥 Advocate for research involvement and engagement
All views are my own
@irisad0704.bsky.social @irisad0704.bsky.social 
Birsen G. Ozamrak, MD @bgizemoz.bsky.social Pathologist (Interested in #GIpath #LiverPath #neuropath) #pathology Posts/reposts are for educational purposes, not medical advice. Geek. Crazycatlady. #pathsky
SMA Europe @sma-europe.bsky.social SMA Europe is a non-profit umbrella organisation of spinal muscular atrophy (SMA) patient organisations from across Europe. All together. One goal.
Visit our website: https://www.sma-europe.eu/
@neurologyemg.bsky.social @neurologyemg.bsky.social 
Stephanie Roses, MD @rosesmd.bsky.social Neuromuscular physician. Neurogeneticist. Cameron Crazie. Mount Holyoke '13, Duke Univ School of Medicine '19. Neuro training at Weill Cornell & Stanford University. Starting at UNC Health in 2025! Former pastry sous chef. Migraine and facial pain patient.
Robert Muní Lofra @rmunil.bsky.social PT PhD, Consultant Physiotherapist, Honorary Clinical Senior Lecturer at @jwmdrc.bsky.social John Walton Muscular Dystrophy Research Centre-Newcastle Upon Tyne
Unité de Recherche Clinique_Pitié-Salpêtrière @urc-psl.bsky.social Conception d'un projet clinique, mise en œuvre, suivi et coordination du projet jusqu’à l’analyse des données et la valorisation des résultats.
Ayça Şahin @aycasahin.bsky.social Koç University | Molecular Biology and Genetics BSc🎓 and now doing PhD in Neuroscience | SMA warrior 💪 and doing SMA research 🧬 | Future geneticist
@commsma.bsky.social @commsma.bsky.social 
Virginia Arechavala @varechavala.bsky.social Scientist and mum. Ikerbasque Professor @ Biobizkaia HRI
Interested in #RNAtherapy for #neuromuscular disorders. De Bilbao de toda la vida and adopted Londoner.
https://www.linkedin.com/in/virginia-arechavala-gomeza-a482509/
@gerardami.bsky.social @gerardami.bsky.social 
Dr Gita Ramdharry PhD @gitaramdharry.bsky.social Consultant Allied Health Professional; Physiotherapist; Honorary Associate Professor; Research; Neuromuscular Diseases; Diversity & belonging (she/her)
@ucl-qs-cnmd.bsky.social @ucl-qs-cnmd.bsky.social 
Myofin Research Group @myofinlab.bsky.social 🧬 We research the various aspects of hereditary myopathies and muscular dystrophies
📍 @folkhalsanresearch.bsky.social , Helsinki, Finland
https://linktr.ee/myofin
Ayşe @acandayan.bsky.social #FWO postdoctoral fellow at VIB Center for Molecular Neurology // #MSCA alumna // studying molecular neurogenomics 🧬 // Darüşşafaka 🟢⚫️ // Bogazici University 🎓
Laura Morant @lauramorant.bsky.social PostDoc @jordanovalab.bsky.social
Disease modelling - Aminoacyl-tRNA synthetases - CMT neuropathy
JWMDRC Patient Registries @jwmdrc-registries.bsky.social Our neuromuscular research databases offer patients the chance to securely share their data and stories to support and access research.
https://linktr.ee/jwmdrcregistries
#UK #NMD #DM1 #DM2 #FSHD #SMA #Col6 #FKRP #MTM #CNM #Myotonic #MuscularDystrophy
Helen Walker @helenwalkerncl.bsky.social UK Myotonic Dystrophy & FSHD Patient Registries Manager at JWMDRC.
Pls follow: @jwmdrc-registries.bsky.social / @jwmdrc.bsky.social
(she/her) *Views my own*
#neuromuscular #nmd #PatientRegistries #dm1 #dm2 #fshd #RareDisease #research #genetic
@raethompson.bsky.social @raethompson.bsky.social 
@cuphysmed.bsky.social @cuphysmed.bsky.social Official account of the University of Colorado Anschutz Department of Physical Medicine & Rehabilitation and the Physical Therapy Program.
Neuromuscular Disease Network for Canada @nmd4c.ca Canadian network connecting clinicians, scientists, patients, and industry to improve neuromuscular disease outcomes.
Funded through CIHR-IMHA and Muscular Dystrophy Canada
Visit us at: https://neuromuscularnetwork.ca/
European Reference Network - MetabERN @ernmetabern.bsky.social The European Reference Network for Rare Hereditary Metabolic Disorders (MetabERN). A better future for Rare Inherited Metabolic Disease patients.
Visit us 🔗 https://metab.ern-net.eu/
Saeed Anwar @saeedanuj.bsky.social Genetic therapeutics researcher | Rare disease advocate | Sci-activist | Bengali SciFi writer | Overcaffeinated | Foodie | First-gen | 🇧🇩
♡︎/⟳ ≠ endorsement
Kate Fallon @katefallon.bsky.social • MD/PhD Candidate | Ervasti & Lowe Labs
• University of Minnesota MSTP
• Interested in muscle, physiology, & genetics
https://scholar.google.com/citations?user=M9ahMIAAAAAJ&hl=en&oi=sra
Lyndsay Murray @lyndsaymurray.bsky.social Reseach and teaching academic at the University of Edinburgh. Interests in anatomy/spinal muscular atrophy/motor neuron development/plasticity/regeneration.
MRC MitoCluster @mrcmitocluster.bsky.social Research cluster working with @MRCHarwell.bsky.social as part of @MRCMouseNetwork.bsky.social studying mitochondria using #MouseModels
nmgn.mrc.ukri.org
Elizabeth Gibbs @gibbsem.bsky.social Neuroscientist in the cell/gene therapy world. Working on gene editing for neuromuscular disorders. Keen reader, tea drinker. Bluesky-curious.
London Mitochondrial Centre @londonmito.bsky.social Specialist centre for clinical care & research in mitochondrial diseases, The National Hospital for Neurology. Co-leads Profs @RobPitceathly.bsky.social & Mike Hanna
ucl.ac.uk/centre-for-neuromuscular-diseases/patient-services/london-mitochondrial-centre
Melissa Bowerman @bowermanlab.bsky.social Professor of Neuromuscular & Skeletal Disorders, Keele University. I research pathologies and new treatments in rare neuromuscular & skeletal disorders.
www.thebowermanlab.com
Francoise Helmbacher @fhelmbacher.bsky.social Developmental Biologist, #CNRS researcher, studying morphogenesis, muscle regeneration and pathologies, and curious for all life sciences.
Lab website: https://helmbacherlab.org/
Annemieke Aartsma-Rus @oligogirl.bsky.social Translating science from bench to bedside and from jargon to lay language
Institut de Myologie @institutdemyologie.bsky.social Centre d'expertise sur le #muscle et ses pathologies, créé en 1996, l'Institut de Myologie, avec ses 300 experts, a pour objectif de favoriser l’existence, la reconnaissance et l’essor de la myologie dans le monde.
http://www.institut-myologie.org
@kathleenvdb.bsky.social @kathleenvdb.bsky.social 
Silvia @s-amor.bsky.social Postdoc at Jordanova Lab working on axonal neuropathy | Yeast & iPSCs | Calcium enthusiast | Woman in STEM (she/her) | Raised by volcanoes 🌋
Tom Gillingwater @tomgillingwater.bsky.social Professor of Anatomy at the University of Edinburgh. FRSE, FRSB, HonFAS. Mood generally influenced by family, anatomy, science (MND/SMA/ALS/NMJ), music, whisky and NFFC. Owned by a Lakeland Terrier. My opinions etc!
📍Edinburgh/East Lothian 🏴