@valebodi.bsky.social @valebodi.bsky.social Surviving MyalgicE aka ME/CFS & AAG to tell the story, pwME & advocate w/ a JD. Into MEdical, Social, Climate Justice & Arts. ME-dical apolide, Human Neutrino, Gnarled pacer
MEssland Worldwide https://www.tandfonline.com/doi/pdf/10.2217/fmb-2022-0031
Nick Else @nick2155.bsky.social ME/POTS/FIBRO/PVFS - Mod/Admin for Millions Missing Voice Global #InstitutionalisedDiscrimination #MECFS #LongCovid
Ricky Buchanan @jeshyr.bsky.social Geek-Creative-Writer-Disabled-Bedridden-Queer-Agender-Internet Citizen. They/them
Crystal @gemzme.bsky.social 
Simon Del Favero @simondelfavero.bsky.social https://simondelfavero.com
Ntisec @ntisec.bsky.social Father, creative, thinker, asks questions. Since 1997 mild MEcfs, since early March 2020 rather severe longcovid. Dutch & English
ME Advocacy Project @meadvocacyproject.bsky.social The ME Advocacy Project is a grassroots initiative founded by individuals living with post-infectious illnesses Myalgic Encephalomyelitis and/or Long COVID.
Unceded Canada
Pete Caruso @petecaruso.bsky.social Interested in research and awareness of invisible chronic illnesses: ME, Long COVID, Post Vaccine injury, POTS, Sjogrens, and Lyme.
Pfp: A man wearing a green face mask
Banner: Colorful MEmes from patient-led Long COVID and ME awareness
Kerstin @sannara.bsky.social #MECFS #MILLIONSMISSING #MEAwareness
#PEM #POTS #MCAS
#PostCovid #LongCovid
#TeamWissenschaft #GdB
https://www.mecfs.de/was-ist-me-cfs/
https://www.psychotherapie-mecfs.de/
Shelley @shellchat.bsky.social Reformed journo/editor, now working in health comms. Fighter of injustice in all its forms. Advocate for better research & support for ppl w uninvited friends POTS, ME/CFS, MCAS, LC, EDS, SjD, AnkSp plus other misunderstood AI conditions.
carolinepostcovid @wld.bsky.social Long COVID und MEcfs seit 2022, #WirLiegenDasLeben #MEawareness #DavosStandard #CleanAir #MillionsMissing- S Simon McGrath @simonmcg.bsky.social I occasionally try to explain and comment on ME research, or even contribute to it. And I advocate for more and better research.
Rosanna @rosannawregor.bsky.social Cosmopolitan, DVM, caregiver for soulmate with very severe ME, the barbell keeps me sane. 
Jenny Richardson @jennysrmve71.bsky.social Following covid aware folk to whichever platform keeps the information flowing and discussion going. Also climate change - I want to follow the scientists not the media!
Tjalco @tjalcovrv.bsky.social MD, was resident radiology, now 4+ years long covid
🇳🇱 🇬🇧 - K Kathryn @kathrynme.bsky.social
Dr. Markus Fraczek @mareksjf.bsky.social • Scientist ‖ PhD mathematical physics (not MD) ‖ Dr. rer. nat.
• Interests: Medicine ‖ History ‖ Global Politics
• #MECFS ➡️ http://mecfs.de/was-ist-me
• EN ‖ PL ‖ DE
Agnes Jones Trower @agnesjtrow.bsky.social Vaccines|Diagnostics|Virology. Gov|Industry|Academia. Former rabble rouser. Retired (maybe). Lover of dogs and sci-fi. "Grieving over who we were only gets in the way of who we need to become." ~Katarina Jones, 12 Monkeys
Marie Jobin @whywhy.bsky.social Doctor in psychology, proud participant of #RemissionBiome first cohort, #EDSh #MCAS #ME/CFS. The pandemic is not over. #CleanAir #MaskUp #StandWithUkraine #StopGenocideInGaza
Lisa Segal @lisas25.bsky.social human rts advocate, animal rescue/ rehabilitation, environmentalist, attorney (ret’d) #SFN #ME #Disability 💙🌊
The2Margarets @the2margarets.bsky.social Retired RN. ME/LC. 
Leixsa @leixsa.bsky.social #PAIS #MECFS #LC
sibylle dahrendorf @sibylledahrendorf.bsky.social Ex-filmmaker, home & bedbound due to #ComplexChronicIllnesses II https://sibylledahrendorf.jimdofree.com II https://linktr.ee/sibylledahrendorf II
Sara @cswink06.bsky.social 
Ben H @benhmecfs.bsky.social ME/CFS patient advocate, Open Medicine Foundation science correspondent. Bedbound. Former: exercise physiology, biochemist in training, athlete-Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
Illustrator Interrupted @franceyme.bsky.social https://amandafrancey.com/ Australian illustrator, graphic designer, photographer. Advocating for myalgic encephalomyelitis #MECFS #LongCovid #ClimateAction
Steve Chalmers @fstevenchalmers.bsky.social Retired person, was in tech industry for 37 years
Self and family got multiple chemical sensitivity from a sick house incident in the mid 1990s
Heretic, with a heretical research hypothesis on the nature of MCS and a dozen other complex chronic illnesses
Corine Witvliet @corwit74.eurosky.social Biomedicus, natuurliefhebber 🌳 en dierenvriend 🐈.
Ik houd van cijfers 🧮. Long Covid sinds 2020.
Sabrina Poirier @sabrinapoirier.bsky.social #CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis +
#MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability
(Unceded) #Canada
https://linktr.ee/sabrinapoiriercanada
Merve Tepe, PhD @mervetepephd.bsky.social PhD MICROBIOLOGIST
AMR, Biofilms, Phage Therapy, Drug Design and some other similar topics 🤫🔜
@remissionbiome.bsky.social team
@renegaderesearch.bsky.social volunteer
DEFEND SCIENCE, RESIST IGNORANCE 🚫
#SonKale06
Ankara
Naomi Harvey PhD @naomidharvey.bsky.social Zoologist & veterinary research. She/her.
22yrs with #MEcfs Pro-vax but vaccine injured. Life on pause due to moderate/severe ME/CFS ♿️
Patient Expert in ME/CFS, POTS and syndromic Long Covid.
Please excuse my typos.
Tess Falor, Ph.D. @tessfalor.bsky.social Founder - Renegade Research
#MECFS #LongCovid
Mike Y @longhaulerbear.bsky.social Mike Y, 50, San Diego USA. Interests: Long Covid, ME/CFS, #RemissionBiome
https://linktr.ee/longhaulerbear
Richelle Sepulveda @richellesepulveda.bsky.social Long Covid, MECFS, ADHD, etc.
Patient-led research is my jam.
A bit obsessed with GIP.
Isabel Ramirez-Burnett @isabelrb.bsky.social CEO | Renegade Research | Project Director of Remission Biome
NBC-HWC, AIP-C
@remissionbiome.bsky.social
RemissionBiome MECFS/LongCovid Patient-led Research Project @remissionbiome.bsky.social Project run by #RenegadeResearch @renegaderesearch.bsky.social a non-profit 501c3 decentralized org pioneering patient/caregiver led research focused on #MECFS & #LongCovid • Renegade-Research.org • RemissionBiome.org 💙 Donate now ▶️ tinyurl.com/44azdsxm
ME/CFS News @mecfsnews.bsky.social News, interesting information and commentary on ME/CFS.
Deutsche Aische @deutscheaische.bsky.social Former lover of life, science, cats and the sea, now sick with MyalgicE looking for a cure
H2oBio @h2obio.bsky.social Passionate swimmer housebound due to LongCovid.
Interested in biology, biochemistry, systems theory, exercise science and LongCovid/MECFS
Manuel Kreft @manuel-k.bsky.social Seit 2019 an #MECFS erkrankt | Master Student Wirtschaftsingenieur Elektrotechnik | Science Works
SharonR_MECFS 🇨🇦 @sharonrmecfs.bsky.social Nature Science politics. Elbows Up💪post my own 📸🍄🌱🐝🐸
Julie Houston @julesahouston.bsky.social Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights.
I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new.
#CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
steffi @mecfshawaii.bsky.social Patient Advocate / pwLC / Caregiver to pwME 🦓🦒 #ME #EDS #POTS #MCAS #LongCOVID #MEActionHawaii
darmidge @darmidge.bsky.social “In the dark times
Will there also be singing?
Yes, there will also be singing.
About the dark times.”
-Bertolt Brecht
Blossum @blossumplum.bsky.social Who 🤷🏻♀️?
Tingting @tingting1407.bsky.social Looking behind the obvious || Tingting is my nickname || Pro science || #MECFS #POTS #MCAS || Former management consultant & university guest lecturer || Posts in English & German || Jazz Funk lover
elisa @mildtin.bsky.social Usually a lurker, Chronically Online for #LongCovid and other #IACC | Australia
Alexis M. 🎃 @turnoftheshrew.bsky.social begrudgingly online for chronic illness research & disability justice community. living meaningfully & unapologetically as a hermit against my will.
Imagine87 @imagine87.bsky.social #fckafd #bildungabersicher #diemaskebleibtauf
TamaraDNomad @tamaradnomad.bsky.social Disabled advocate - #Interiordesigner - #Anthropology student - Multi local - #SWYer - #Fibro + #MECFS - 1 of the #MillionsMissing + #Disabledguerrera
https://linktr.ee/jailedtiger
Jason Murphy @jasemurphy.bsky.social Author of one(1) book. Journalist. Economist. #rstats #mecfs #ausecon. May be found walking his dog in Melbourne, Australia. 
Hannah Davis @ahandvanish.bsky.social Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.