ISLC-PAIS Society @islc-pais.bsky.social The International Society of Long COVID & Post-Acute Infection Syndromes — a global coalition of clinicians, researchers and advocates advancing evidence-based
https://islc-pais.com/
Long Covid The Answers @longcovidanswers.bsky.social The CREDIBLE destination for Long COVID | Dr. Funmi Okunola MD At: longcovidtheanswers.com
#longcovid Symptom Info & Evidence-Based Relief
Ask Our Experts – FREE Access to Top Global LC Experts
Accredited Educational Podcasts & CPD/CME Credits
Long Covid Journey @longcovidjourney.bsky.social Sharing insights, resources, and experiences on Long COVID recovery and research. Visit www.longcovidjourney.com for more. #cleanair, #covid #LongCovid #ChronicIllness #HealthResearch #PatientAdvocacy
rthm_health @rthm.bsky.social RTHM is a secure health platform that makes it easy to gather your records, connect the dots with AI, and affordably access treatments.
Chris Ponting @cgatist.bsky.social Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
Resia Pretorius @resiapretorius.bsky.social Distinguished professor, Stellenbosch University and Honorary professor, University of Liverpool.
UNISON @unison.org.uk UNISON - the UK's largest union, representing 1.3 million public service workers. Need support? Call 0800 0857 857 or
http://unsn.uk/Contact
The BMA @bma.org.uk We’re the trade union and professional body for UK doctors and medical students.
UK Covid-19 Inquiry @ukcovid-19inquiry.bsky.social The official Bluesky account of the UK Covid-19 Inquiry. An independent and public inquiry, examining the UK's response to the Covid-19 pandemic.
🌐 https://covid19.public-inquiry.uk/
📺 https://www.youtube.com/@UKCovid-19Inquiry
Anil van der Zee @anilvanderzee.bsky.social Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
Jack - amatica health @jackamatica.bsky.social ME/CFS patient and researcher
Co founder of amatica health
https://amaticahealth.com
Covid-19 Bereaved Families For Justice UK @cbffjuk.bsky.social Truth, justice, accountability, saving lives
7,000 bereaved families
Creators of the Covid Memorial Wall
Press: press@covidfamiliesforjustice.org
Flora Cornish @floracornish.bsky.social Doing Methodology at LSE. Posting own views. Pacing with Long COVID. Qual & participatory methods. Community leadership in health/disaster. Disempower the powerful. Respect community agency. Love Grenfell💚 Stop genocide
Supporting Healthcare Heroes UK (SHH-UK) @shh-uk.bsky.social 💙UK Registered Charity: 1205685
💙Long COVID doesn’t stop the care - neither do we.
💙Join our Campaign: #SafeAir4All
Royal College of Occupational Therapists @thercot.bsky.social We're RCOT. Championing #OccupationalTherapy and helping achieve life-changing breakthroughs for our members, the people they support and society as a whole.
Chartered Society of Physiotherapy @thecsp.bsky.social Chartered Society of Physiotherapy (CSP) - the professional, educational and union body for 67,000 UK-chartered physiotherapists, students and support workers.
The Skylark @theskylark.bsky.social Feed for Long Covid new arrivals on BlueSky. Reposts from trusted LC advocacy and supportive accounts who've migrated from other social media.
Will stop reposting November 2026.
Jon Ryan @jonryancsp.bsky.social Head of Press & PR at the Chartered Society of Physiotherapy
Shaun Lintern @shaunlintern.bsky.social Health Editor at The Sunday Times. Health Journalist of the Year 2023. Helped expose #MidStaffs. Public interest journalism matters #E17 #patientsafety
📰 https://www.thetimes.co.uk/profile/shaun-lintern
📝 DMs open
📨 shaun.lintern@sundaytimes.co.uk
Dan Charlton @dancharlton.bsky.social Chief Communications Officer in the NHS | Deputy Director, Centre for Health Communication Research | Doctor of Philosophy (PhD) |
Steve Tolan @tolanahp.bsky.social Deputy Chief Allied Health Professions Officer @NHSEngland. Physiotherapist. 
Abi Henderson @abihend.bsky.social Head of Workforce and Education at the Chartered Society of Physiotherapy.
Rob Yeldham @robyeldham.bsky.social He/Him. CSP Director and Board Member Unions 21. FCIPR. Proud Londoner. Centrist Dad. Suspected dyslexic. Interested in healthcare, work and the environment. Also on Twitter (aka X),Facebook, Threads, Instagram and LinkedIn.
Ash James @ashjames10.bsky.social Director at the Chartered Society of Physiotherapy & board trustee at Centre for Sign, Sight, Sound.
Passionate about evidence based care & the health of the nation. Driving hard to make sure physios are best placed to tackle problems now & in the future
Emerge Australia @emergeaustralia.bsky.social Not-for-Profit Organisation supporting Australians living with ME/CFS (mylagic encephalomyelitis / chronic fatigue syndrome) and long COVID.
Education | Research | Advocacy | Support Services
Website: www.emerge.org.au
Donate: www.emerge.org.au/donate/
Royal College of GPs @royalcollegeofgps.bsky.social We are the professional home for GPs, led by GPs, maintaining the highest standards in patient care.
Smart Air @smartairfilters.bsky.social Smart Air HQ. A social enterprise & B Corp. Clean air made simple and effective.
Smart Air UK @smartairuk.bsky.social Smart Air is a social enterprise and B-Corp committed to changing the way we breathe clean air! We create incredibly effective air purifiers and share life-hacks and tips on protecting your health from poisonous air
Disability Rebellion @disrebellion.bsky.social Welcome to the Disability Rebellion - a feisty fightback against ableism and cruel government cuts! • DM for Discord invite • DR links: linktr.ee/DRDRebellion
LET'S AIR @nousaerons.bsky.social News, scientific mediation and infographics on ventilation & indoor air quality.
letsair.org
ME Association @meassociation.org.uk A UK registered charity for people with #MECFS and Long Covid (and Post Covid ME/CFS). We inform, educate, raise awareness, fund medical research and campaign for positive change.
RPs do not necessarily mean endorsement.
https://linktr.ee/meassociation
James Munday @jdmunday.bsky.social Infectious disease epidemiology and surveillance based in Basel • jdmunday.github.io
Trish Greenhalgh @trishgreenhalgh.bsky.social DEI hire. Prof of Primary Care, Uni of Oxford. Researching digital health/ inequities, covid prevention (masks/ air quality). Wild swimmer. Mum to Rob (marine bio) & Al (doc). She/her. https://scholar.google.com.au/citations?user=QDCqsJwAAAAJ&hl=en&oi=ao
OT Lisa B @otlisab.bsky.social Occupational Therapist ✳️ Lecturer
💚Reading, Swimming, Caravanning💚
Helen The OT @helentheot.bsky.social Independent OT in private practice, coming soon | Supporting Long Covid, ME/CFS, POTS, neuro & cognitive challenges | Lived + clinical insight 💚
Long COVID Justice @longcovidjustice.org We are leading grassroots efforts to confront the Long COVID crisis, while centering racial, social, economic & disability justice. Our work is done by and for chronically ill & disabled people, our families and communities. linktr.ee/longcovidjustice
Dr Rachel Clarke @drrachelclarke.com Palliative care doctor 👩🏻⚕ Author 📚 Winner: 2025 Women's Prize for Non-Fiction 🫀 Founder: Hospice Ukraine 🇺🇦 Rep: Clare Alexander at Aitken Alexander 📝
www.drrachelclarke.com
Sammie McFarland @sammiemc.bsky.social Long Covid Kids Founder & CEO
Hoping to be on the right side of history.
♿️#LongCovid ✳️#CleanAir 🙋🏻♀️Campaigner
🧠🧡🫀#LongCovidKids
🌊#ColdWater 🧜🏻♀️#Swimming
🧘🏻#Pilates coach - #Pacing since 2020 🦠 😷
🫅🏼#CoronationChampion 💥#Volunteer
Rehabilitation Science Research Network for COVID @uoftcovidrehab.bsky.social Leading an international collaborative with the aim to enable innovation and excellence in COVID-19 rehabilitation research.
#COVIDRehab
https://rehabcovidnetwork.med.utoronto.ca/
DecodeME @decodemestudy.bsky.social 🧬 The world’s biggest study of genetic causes of #MECFS. Launched September 2022. 🧬 decodeme.ed.ac.uk
Dr. Harry Spoelstra @harryspoelstra.bsky.social Cardiovascular surgeon with daily CV science information on SarsCoV2/C19/LC, only active on X: @HarrySpoelstra
Cat in the Hat @catinthehat.bsky.social Mum • Lover of nature and clean, fresh air • Passionate about science • “Without data, you’re just another person with an opinion.”
Danielle Beckman @daniellebeckman.bsky.social I like brains and microscopes. Interested in Neurovirology
PharmD, MS in Biophysics, PhD in Biochemistry
🇧🇷 Rio 🇺🇸 Sacramento 🇩🇪 Munich
International Society of Long COVID & Post-Acute Infection Syndromes: https://islc-pais.com/
daniellebeckman.com
Rehabilitation Psychology @apadiv22.bsky.social Established 1958 | Div 22 #APA 𝚿 | Working to enhance the well-being of people living with disability and chronic health conditions #RehabPsych
2026 Meeting in Charlotte NC 2/19-22 ✨
Hannah Davis @ahandvanish.bsky.social Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
Janna Moen, PhD @jannamoen.bsky.social Postdoctoral scientist studying the neurobiology of #longCOVID in the Iwasaki lab @ Yale. Patient, scientist, advocate. | ♿🏳️🌈 | she/her
My long COVID research newsletter: lcbreakdown.substack.com
World Health Network @thewhn.bsky.social Bringing people, science, and compassion together to solve world problems and protect health. Let's #EndThisPandemic together.
Tedros Adhanom Ghebreyesus @drtedros.who.int Director-General of the World Health Organization. Reposts are not endorsements. 
PolyBio Research Foundation @polybiorf.bsky.social 501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
@jane-ryan.bsky.social @jane-ryan.bsky.social 
Long COVID Canada - Collaborative @longcovidcan-co.bsky.social We provide support, resources & reliable science-based information to patients, parents or caregivers of those suffering from Long Covid in Canada in our FB support group. Engaging w our community& building collaborations. Because we are STRONGER TOGETHER.
@breathewellphysio.bsky.social @breathewellphysio.bsky.social 
Sarah @sarahlizzylou.bsky.social She/her, Physio student on hold since Oct 2021 LongCovid/ME 🇬🇧
Learning to live with Cognitive Dysfunction 🧠 #FBLC #pwME
My Twitter handle was @SarahLizzyLou- J Jenny Ceolta-Smith #FBLC @jceoltasmith.bsky.social Background #RetiredOccupationalTherapist due to #LongCovid background in vocational rehabilitation & PhD research includes #DWP policy, provision & front line practice. Not fully active here yet.
Kelly Meiners PT, PhD @kellymeiners.bsky.social Former professor and physical therapist/ athletic trainer disabled by Long COVID since 2021. #LongCOVID #POTS #MECFS
Darren Parkinson @greendarrenshipley.bsky.social Green Party Campaigner | Living with Long Covid | Bradford | Shipley Town Councillor 2020-24 | Metalhead |
https://linktr.ee/darrenparkinson
Promoted by D Parkinson (Bradford Green Party) at 88 Hirst Wood Road, Shipley, BD18 4BU.
Patient Safety Learning @patientsafetylearning.org Patient Safety Learning is a charity and independent voice for improving patient safety.
🔗Our website: https://www.patientsafetylearning.org/
🔗the hub, our platform to share learning for patient safety: https://www.pslhub.org/
Douglas Kell @dbkell.bsky.social Research Scientist who prefers facts to lies. Focus on Long COVID. Free book: http://osf.io/pnxcs/. 
Prof. Joe McVeigh @joe-mcveigh.bsky.social Head of School of Clinical Therapies @UCC. Research: MSK, Pain, FMS, VR4Rehab. Section Editor ARRCT @archivesoa. Visiting Professor Ulster University. Occasional cyclist. Belfast & Cork. Opinions own
LongCovidPharmD @longcovidpharmd.bsky.social Pharmacist interested in Long COVID and ME/CFS research
Pro-mask, pro-clean air!
Substack: https://pharmd.substack.com/
International Long Covid Awareness @lcawarenessint.bsky.social *Raising awareness about Long Covid with the Long Covid community
International Long Covid Awareness Day=March 15th
International Long Covid Awareness Month=March
#LongCovid #LongCovidKids #LongCovidAwarenessDay
Long Covid Advocacy Ireland-LCAI @lcaireland.bsky.social The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ireland for all patients.
https://longcovidadvocacyireland.com
David Osborn @safedavid3.bsky.social Health and Safety Consultant
Formerly Executive Team Member Covid-19 Airborne Transmission Alliance (CATA) (Core Participant in UK Covid-19 Public Inquiry )
Long Covid support for endurance athletes @longcovidathletes.bsky.social Emergency account. Here in case Facebook does the thing.
Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social UK Covid-19 Inquiry Core Participant
Safe access to health, workplaces, education and beyond
Donate: http://bit.ly/CVFdonate
JOIN us on FB 📸cv_cev ❌️@cv_cev
www.clinicallyvulnerable.org
Bhatt Murphy Solicitors @bhattmurphy.bsky.social A team of lawyers who work together to make a contribution to the protection of civil liberties
https://bhattmurphy.co.uk
Darren Brown OBE @darrenabrown.bsky.social Physiotherapist | OBE 2024 | Fellow of Chartered Society of Physiotherapy | Elisse Zack Award for Excellence in #HIV #Rehabilitation | World Physiotherapy International Practice Award | Long COVID Physio past Chair
https://linktr.ee/darrenabrown
Clare Daly @clarejdaly.bsky.social ME/CFS (1993) | Long Covid (2020).
Occasionally @ Visible Health
Sarah Powell @sarkpowell.bsky.social Deaf Clinical psychologist working for SignHealth. Long Covid survivor. Loves nature as well as Gromit. Sign name - Power 💪🏻 All views are my own. 💙
Karen West @karenwestphysio.bsky.social Physiotherapist working and living with long covid. Lover of animals, music, justice and kindness. 
Helen/OT_Skiff @otskiff.bsky.social Occupational Therapist (neurorehab) on pause due to #LongCOVID, #POTS, #PwME, #ChronicMigraine, #VestibularMigraine #HSD, #MCAS & #TeamClots 🫁
Swiftie 🫶, F1 🏎, cricket 🏏 fan
London, UK
Lindsay Skipper @lindsayskipper.bsky.social Living but not thriving with Long Covid | Peer support committee member for Long Covid Physio | PPIE representative in #LongCOVID research
Irish ME/CFS Association @irishmecfsassoc.bsky.social Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association-for Information, Support & Research
NB: Posts ≠ advice.
Registered Charity RCN 20100254.
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
World Physiotherapy @worldphysio1951.bsky.social World Physiotherapy is the sole international voice for physiotherapy, representing more than 600,000 physiotherapists through 129 member organisations
https://world.physio/
@fisiocamera.bsky.social @fisiocamera.bsky.social 
Long Covid Scotland @longcovidscot.bsky.social Long Covid Scotland is a charity & action group led by & advocating for people living with Long Covid.
https://www.longcovid.scot
Cathy Thomson @cathythomsonpt.bsky.social APP & Clinical Specialist PFP
Committee member British PF Society
Advocacy Committee Member LongCovid Physio
Kelly O'Brien @kellyobrien25.bsky.social Physical Therapist and Researcher, Canada Research Chair (Tier 2) in Episodic Disability and Rehabilitation
University of Toronto
https://www.physicaltherapy.utoronto.ca/kelly-obrien
Hannah Buttle @han-written.bsky.social freelance journalist 
Jo Platt MP @joplatt.bsky.social Labour & Co-operative Member of Parliament for Leigh and Atherton. This includes Golborne, Lowton, Tyldesley and Astley. For constituency queries, email Jo.platt.mp@parliament.uk
David Tuller @davetuller1.bsky.social Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
Eric Topol @erictopol.bsky.social physician-scientist, author, editor
https://www.scripps.edu/faculty/topol/
Ground Truths https://erictopol.substack.com
SUPER AGERS https://www.simonandschuster.com/books/Super-Agers/Eric-Topol/9781668067666
Dr. Jill Cameron (she/her) @drjillcameron.bsky.social Professor Department of Occupational Science & Occupational Therapy, Rehabilitation Sciences Institute, Rehabilitation Sciences Research Network for COVID, Long COVID Web, University of Toronto; Research aims to optimize support for family caregivers.
Dr. Stacy de Gale, PT, DPT 🇹🇹🇹🇹🇹🇹 @sdegale.bsky.social Executive Board Member of World Physiotherapy | Global Physio Leader | Enviro PT | Manager of Back in Motion Physical Therapy Services, Trinidad | Scientific Committee Member of the Diabetes Association of Trinidad & Tobago |
Lover of life!
Julie Marcoux @majulli.bsky.social ME CFS, Long COVID, Comorbidities & disability advocate | Former social worker | She/Her/Elle | #MECFS #EMSFC #LongCovid #CovidLongue #DisabilityJustice
Tiohtià:ke | Montreal 🇨🇦
Phil Latouche @platouche.com Business Analyst | #longcovid #PASC #patientpartner | Long Covid advocate
Analyste d'affaires | #covidlongue #covidlong #PACL #patientpartenaire #quebec | Défenseur de la COVID longue
Carrie Anna McGinn @carriemcginn.bsky.social Infection-associated chronic illness advocate | Life sidelined by #LongCovid #MECFS #POTS | #PatientPartner | MSc | Mom | She/Her | 🇨🇦 #Canada #Quebec
#CovidConscious #StillMasking
#MyalgicEncephalomyelitis #pwME #EMSFC
#CovidLongue #CovidLong #pwLC
Sabrina Poirier @sabrinapoirier.bsky.social #CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis +
#MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability
(Unceded) #Canada
https://linktr.ee/sabrinapoiriercanada
Simon Spichak @spichaksimon.bsky.social Neuroscience MSc
🦔 dad
Founded Resolvve Inc to make therapy affordable for students
Science, health and tech journalist published in Being Patient, NYT, The Guardian's Scientific Observer, The Sick Times, and The Daily Beast
Mark Faghy @profmarkfaghy.bsky.social Professor of Clinical Exercise Science - Clinical Exercise Physiologist - Researcher in #LongCOVID - Nature Research Award Winner 2024 - Derby UK
Dr David Joffe MB BS(Hons), PhD, FRACP @davidjoffe64.bsky.social Respiratory and Sleep Medicine
Neurobiology and Long Cövid
Vice President of ISLC & PAIS
Dr Ian Cookson @ipcookson.bsky.social Sport and exercise psychologist in training. Psychology tutor at MMU. Opinions are my own. He/him.
Adriana P. LongCovid Canada Collab. @longcovid-adri.bsky.social Lead of LC3 FB grp. LOVE animals/nature. Former int. Competitive swimmer. Disabled by #LongCovid since Xmas 2020. #Covid #MECFS evidence-based advocate 🇨🇦🇲🇽. #FBLC We must #Unite2Fight stronger together in this chaos! #MaskUp 🖤🤘
DrMichelleBull💙 @michelleb4.bsky.social A mixture of stuff
#MECFS #LongCovid #frailty #mtb #cycling
#feelthefearanddoitanyway
co-founder @PhysiosForME
Views are all my own
K G Leslie @kglesliephysio.bsky.social Neurological physiotherapist. Co-founder Physios for ME. PhD student @ Liverpool university
María Richardson @diatoma.bsky.social Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS #LongCovid
Eliza Charley | Actress on Pause @elizacharley.bsky.social Actress on Pause with Myalgic Encephalomyelitis
🌍 Florence, Italy <-> Melbourne, Australia
🎙️ Writer, Producer, Actor
🦋Living that Stockdale Paradox life
Hensley Lab @scottehensley.bsky.social dad, viral immunologist, professor
Daria Oller, PT, DPT, ATC @ontapphysio.bsky.social Physical Therapist • Athletic Trainer • Tap Dancer • Long COVID since March 2020 • 🌈 💖💙💜
Alyssa Erin @alyssaaerinn.bsky.social chronically ill/disabled writer, poet, idea-haver, former Physio | LongCovid, ME et al 😷 ADHD
divest, dismantle, do better, land back
Treaty 7 | she/her
Pfp:white♀️blonde hair gaze down @ teacup. "Keep Masks in Healthcare" Cvr: snow-covered, Rocky mtn lake