Lillian Isabella @lillianisabella.com 
Patient Experience Library @patientlibrary.bsky.social Open access evidence base for patient experience, lived experience, patient/public involvement. www.patientlibrary.net 
Piotr Stankiewicz @stankiewicz.bsky.social Za rok nie tylko starsi, ale i mądrzejsi! Zapraszam do programu, szczegóły tutaj: https://piotrstankiewicz.pl/program2026/
Jennifer J Brown @jjunebrown.bsky.social #Author, #publichealth advocate, #genetics PhD.
Creatively driven & scientifically inspired, Mom of 2 with #PKU.
Latest book: When the Baby Is Not OK: Hopes & Genes
https://jjbrownauthor.com/
@thomasapb.bsky.social @thomasapb.bsky.social 
Duncan Noble-Nesbitt @duncann-n.bsky.social Specialist Nurse, tenor, travel loving, new experience, answer seeking type of guy. Lifelong PKU experience and on treatment #PKU #RareDisease Own views shared
Kevin Alexander @kevinalexander-pku.bsky.social 🧬 Adult with Phenylketonuria (PKU)
🎥 Storyteller
📔Writer
🎸 Musician
Association Les Feux Follets - Phénylcétonurie @phenylcetonurie.bsky.social 
International PKU Day @pkuday.org International PKU Day was established and is led by the E.S.PKU to celebrate the legacy of Horst Bickel and Robert Guthrie as well as to raise awareness of Phenylketonuria.
E.S.PKU @espku.org E.S.PKU - European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria in the umbrella organization of about 41 national and regional associations from 31 countries established by parents and/or patients.
Gregor Hammerschmidt @hammerschmidt.io 
Jarosław Garnek @jarekgarnek.bsky.social Działacz społeczny. Członek Stowarzyszenia Polska 2050
#Hołownia2025 
Jared Kostrzewa 🇵🇱🎧🎤🚀 @jaredkostrzewa.bsky.social 🚀 Co-owner Before Festival Sun Festival
💪 Manager: Natalia Sisik Ola Szkolda Julia Kostera
🤝 Wrzucam tutaj ciekawostki I fakty ze świata 😇
Na naszych festiwalach zagrali m in Oki, Quebonafide, Kuban, Bedoes
#SocialMedia | #Events #Music
Wojciech Mincewicz @mincewicz.bsky.social Dr nauk społ., politolog i socjolog. Polak i Europejczyk. #polityka #nauka #sport #kryptowaluty #blockchain #OSINT #informacje #bezpieczenstwo
Anna d’Arc @steelwomana.bsky.social Matka Polka, Europejka…
Tricia Rutherford @squirrelt.bsky.social Professional interest in nutrition in rare disease. Very amateur interest in music and sport !
Brian Rifkin @brianrifkin.bsky.social General and Interventional Nephrologist #MedSky #NephSky, pragmatist, lover of memes/GIFs/bad dad jokes, artist, singer, NephJC editor, NephSIM mentor, GlomCon grad. Air Force veteran and type 1 diabetic (insulin pimp).
Journal of Inherited Metabolic Disease @jimd-editors.bsky.social The Journal of Inherited Metabolic Disease (JIMD) is the official journal of the Society for the Study of Inborn Errors of Metabolism (SSIEM).
Social Media maintained by James Nurse
James Barham @nowthenthee.bsky.social Dadding, nursing, PKUing. House servant to the child and @emmavardy2.bsky.social
Sharon Bee @sharonbuckley.bsky.social Brexit pushed Uk migrant navigating life in Spain. Mum to two phenomenal kids living with the genetic metabolic condition PKU.
https://www.researchgate.net/profile/Sharon-Buckley-2
Mark Maguire @markmaguireb.bsky.social Works #museum #education. Here for the #art, #comics, #SciFi, #news | Photos mine or otherwise credited. Followers with bio, activity, etc. more likely to become mutuals | ☘️ #SpeirGorm / #SpéirGhorm | 🐘 @MarkMaguire@mastodon.ie | 🧵 @markbmaguire
Paul D McKellar @pdmckellar.bsky.social 
Clair W @clairbear42.bsky.social PKU ADHD Mother to my bb g & lil black cat, xbox player, crotchet hooker, ginger and expert on ice cream.
Emma Vardy @emmavardy2.bsky.social Physician. Honorary Professor of Geriatric Medicine. Delirium. Dementia. Quality improvement. Book lover. Northerner. Mum to daughter with PKU.
Zofia 🧡 @eksperimentgaj.bsky.social nb she/her | 31 | Poland | mostly motorsports (F1, WRC) and winter sports (ski jumping, noco) | currently obsessed with KCD
Soheb @sohebm.com Has PKU. Works in IT. Reads books and watches movies.
Bernadette Sheehan Gilroy @sheehangilroy.bsky.social Lecturer Researcher Advocate
#PKU #LowProtein #BrainHealth #RareDisease
"Ní neart go cur le chéile"
The views and opinions expressed here are solely my own
Ian Findlay @ianfindlaytv.bsky.social Sports Commentator for Eurosport and others | Ski Jumping | Snowboarding |Ski Cross | Snowboard Cross | Park & Pipe | Cycling | BMX | Basketball | Skateboarding + anything on water with an engine |
www.ianfindlaytv.com
@anuahs.bsky.social @anuahs.bsky.social 
Bart Staszewski 🇵🇱🏳️🌈 @bartstaszewski.pl Polish LGBTI+ activist. @ObamaFoundation Leader 2020. @TIME 100 Next list. CEO of @bastafundacja. Przedsiębiorca, społecznik | czarny humor, satyra i ironia 😎
Rafał Trzaskowski @rafal-trzaskowski.bsky.social Prezydent Warszawy. Mayor of Warsaw.
Marek Uss - PL2050 @marekuss.bsky.social Mam swoje zdanie i
konsekwencje ponoszę za nie.
Polska 2050 - Biała Podlaska.
Informatyk, manager, ojciec.
#PL2050
@pl2050.bsky.social
Marek Szczepaniak @szczepaniakmarek.bsky.social Unia to My.
***** ***
Asia D🌹M @alikeasia.bsky.social Always late…
D🌹M
🦋#NoToWar ✌️☮️🕊️
🤍♥️🇪🇺🏳️🌈 Humanity is the best religion
🦮🐈🐴🐏🐮🐥🐐🐷 #StopAnimalCruelty 💃🕺 Live & Let Live
Pet peeve: square teabags
⛔️DM⛔️
Zjadam PL litery🧚♀️🪄💞🫶
Donald Tusk @donald-tusk.bsky.social Premier Rzeczypospolitej Polskiej 🇵🇱
Prime Minister of Poland 🇵🇱
KP Koalicja Obywatelska ✌️🇵🇱 @kpkobywatelska.bsky.social Oficjalne konto Klubu Parlamentarnego Koalicji Obywatelskiej - Platformy Obywatelskiej, Nowoczesnej, Inicjatywy Polskiej, Zielonych.
Bluesky @bsky.app official Bluesky account (check username👆)
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