Disability Policy Foundry @disabilitypolicy.bsky.social Produce Policy. Build Power.
The Disability Policy Foundry aims to democratize policy research, writing, and publication. Disabled people are already making policy change. We give them a platform to amplify their ideas.
www.disabilitypolicyfoundry.org
victoria @vashetc.blacksky.app † doktora | research+policy | perpetually horizontal
ID’s: Brown skin grl w/ curly hair wearing shirt that says hot girls arent ableist. Banner: Sepia picture of a couple married w/ family around.
vashetc.com | restandmecfs.com | survivorsandallies.com
Queer Communist Game Jam ☭ @queercomgames.bsky.social International Game Jam organized from Cuba 🇨🇺
“Let’s start a queer, communist, game industry revolution.”
🎮 itch.io/jam/queercomgames2026
📝 instagram.com/queercomgames
👾 https://discord.gg/sZkfS9NtG
Lee Cicuta @butchanarchy.bsky.social trans butch lesbian anarchist. disabled feminist theorist. she/her.
@virus.sucks @virus.sucks Mostly Pluslife stuff: https://virus.sucks/pluslife (but independent of Pluslife/Altruan)
Please send emails instead of DMs (see website).
Johan Van Weyenbergh @johanvawe.bsky.social Immunologist curious about viruses, cancer, evolution and all things human
Likes all #systems thinking and still working out all the #omics 🤓
#immunosky #medsky #idsky
Lara Witt @femmfeministe.bsky.social Editor-in-Chief of @prismreports.org | Co-founder of the Movement Media Alliance and Media Against Apartheid and Displacement | lara@prismreports.org
Casey Doherty @caseydoherty.bsky.social she/her
Disability policy by day, PhD student by night, building @disabilitypolicy.bsky.social by later night
ME/Long Covid/Lyme/MCAS, PMOS, OCD+
Need masks in the DMV area? Msg me!
Opinions my own. Reposts/likes not endorsements.
emily fraser 🌿🐌✨ @emilyesfraser.bsky.social Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
Long Covid Advocacy @longcovidadvoc.com A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time...
💙📚Home to the #cripademia book club.
https://www.longcovidadvoc.com/
🛍️ https://longcovidadvoc.shop/
Myra Batchelder @myrabatchelder.bsky.social Advocate. Consultant. Health Equity. Social Impact.
New Yorker. Midwesterner.
She/her.
Sarah Brodsky @sarahbrodsky.bsky.social Freelancer writing about personal finance and business. Interested in science, math, books, cooking, languages. St. Louis, MO #pwME
Emily Johnson @emilyrj.bsky.social News/book edits, marketing, linguistics, research. #EDS Iowa admin. #Dysautonomia Iowa, #MastCell & http://Disabled.Social mod. @RenegadeResearch.bsky.social volunteer. Patient Advocate. #SevereME Same pic, a bit different handles on X, Substack. #Iowa ♿️🏳️🌈📚
Hey Janae🧡 @heyjanae.bsky.social she/her | ♒️ | copywriter & 🩵 @ctpublic.bsky.social social media editor 🩵 Anime & Cartoons | 日本語OK | Long Covid Mar 2022 | I complain often ✨🌺🧡 #CovidCompetent
Simon Spichak @spichaksimon.bsky.social Neuroscience MSc
🦔 dad
Founded Resolvve Inc to make therapy affordable for students
Science, health and tech journalist published in Being Patient, NYT, The Guardian's Scientific Observer, The Sick Times, and The Daily Beast
Britta Shoot @brittashoot.com san francisco writer, reader, birder, beachcomber, umarell
here to meet FT-reading marxists & powecomrades (folks who care about clean air & masks) 😷
writing a book about pandemic & protest
http://brittashoot.com
C.H. Romatowski @chromatowski.bsky.social This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing.
ME ‘05, LC ‘23, many of their friends along the way. Very severely ill (FUNCAP 0.9). No unsolicited advice please!
Rachel Graves @rachelgraves.bsky.social Haver of all the diseases. Mask wearer. Political obsessive, JD, (former-ish) newspaper reporter. Lover of Tacoma & the PNW. In a relationship. She/her.
Nadia @nadiabey.bsky.social writer, public health enthusiast, Duke + GWSPH alum. opinions do not reflect the views of any organization I am affiliated with. about me: nadiabey.com
Miles W. Griffis @mileswgriffis.bsky.social Co-founder/editor @TheSickTimes.org
Columnist @HighCountryNews.org
miles@thesicktimes.org #LongCOVID
betsy ladyzhets 😷 @betsyladyzhets.bsky.social editor/co-founder @thesicktimes.org | journalist covering Long COVID & related crises | she/her/🏳️🌈
email: betsy@thesicktimes.org | signal: betsyladyzhets.25 | https://thesicktimes.org/
Miranda @crookedneighbor.bsky.social Long Covid patient and caregiver writing about homelessness, poverty, and administrative burden in ME/CFS. (she/her)
LongCovidSafety.net
miss_malingerer @missmalingerer.bsky.social absolutely zonked on the ‘oids 🥳
95% Bedbound ME/CFS/Long Covid
Kristen Batko @kristenbatko.bsky.social Writer & Narrative Designer | Previously: Castle Rock, Channel Zero, Billions, Animal Logic | Aspiring Necromancer | https://kristenbatko.com/ | 
Puff the Magic Hater @mskellymhayes.bsky.social Menominee | Organizer | Co-author of Let This Radicalize You | Hosts Movement Memos podcast | Newsletter: organizingmythoughts.org | More: http://linktr.ee/KellyHayes
toddwords @toddwords.bsky.social Co-Director @sfpc.study // Developer of Bub // Host of wordhack // nyc internet poet
Haymarket Books @haymarketbooks.org radical publisher of politics, culture, current events
haymarketbooks.org
go @persimmonit.bsky.social moasic'd disregard
poet // etc.
https://gogogogo.info/
neta @netabomani.com here with my dog tuesday
elsewhere netabomani.com
School for Poetic Computation @sfpc.study Experimental school supporting study in art, code, hardware + critical theory. A place for unlearning and learning.
◌ https://sfpc.study/links
Sam Bodrojan @helmetgirl.bsky.social words in Filmmaker Mag, LARB, Reverse Shot, Peach Mag, Little White Lies, etc.
https://cchelmetgirl.substack.com
David Carroll @davidcarroll.org admin of federate.social (circa 2022)
faculty of parsons.edu (circa 2000)
subject of The Great Hack (Netflix 2019)
headshot by Bryan Derballa (Wired 2019)
header from Cadillacs & Dinosaurs (Capcom 1993)
Matthew Kollmer @matthewkollmer.com PhD student, info sci at UIUC. DH research–NLP, AI, cultural analytics
Lecturer @ Berkeley (Python for DH)
Interests: place studies, activist histories, US lit, creative writing, rhet/comp: https://matthewkollmer.com
Owner @ https://eveninglandbooks.com
Causal Islands Conference @causalislands.com The future of computing
- Berlin, October 2024 https://berlin.causalislands.com/
- San Francisco, Tiny Talks, Aug 2024
- LA Community Edition, March 2024
- Toronto, April 2023
“Advocating widespread dissatisfaction with computing”
Shannon Mattern @shannonmattern.bsky.social i work across nyc’s libraries and archives; i was a full professor of media studies, art history + anthropology
architecture, archives, 🎨, cities, 🐕, infrastructure, libraries, 🗺️, sound++
nyc + upstate
wordsinspace.net
jonathan w. y. gray @jwyg.bsky.social 📗 public data cultures https://jonathangray.org/publicdatacultures
🌱 codirector @digitalculturekcl.bsky.social reader @kingsdh.bsky.social king's college london cofounder @publicdatalab.bsky.social
🫧 feminist STS, internet studies, poetic computation
Anne Lee Steele @aleesteele.bsky.social www.aleesteele.com
Ezra @ezzybb.bsky.social 💫 covid conscious and living w long covid 💫
student, leftist, lover of soup and smiskis 🤠
🍉🌈they/them🌈🍉
assemblyman of the people's republic of anhedonia @jaybeekeeper.blacksky.app creative technologist & software engineer | world’s foremost mission impossible scholar | ‘dramatic’ olympic weightlifter | refusing to be smothered by the allostatic load
ProPublica @propublica.org Investigative journalism in the public interest. Headlines and (sometimes literal) receipts.
propublica.org
Electronic Frontier Foundation @eff.org We're the Electronic Frontier Foundation. We're a nonprofit that fights for your privacy and free speech online. Find all of EFF's social media accounts at eff.org/social.
Prisonculture @prisonculture.bsky.social co-founder of various organizations: Interrupting Criminalization; Survived & Punished; Sojourners for Justice Press; For the People Leftist Library Project, NYC PLAN, etc...
Judd Legum @juddlegum.bsky.social I write Popular Information, an independent newsletter dedicated to accountability journalism. | judd@popular.info | Signal: juddlegum.47
Popular.info
The Appeal @theappeal.org We are a worker-run newsroom reporting on the harms of the criminal legal system.
You can support our work here: https://theappeal.org/donate/
Sign up for our newsletter: https://theappeal.org/newsletter-subscribe/
Prism @prismreports.org An independent, nonprofit newsroom that goes where justice requires.
🗞️ Visit: prismreports.org
💫 Donate: https://www.zeffy.com/en-US/donation-form/support-independent-nonprofit-news-led-by-journalists-of-color
NPR @npr.org This is NPR 🎙️
Erin Reed @erininthemorning.com Independent LGBTQ+ journalist, mom, D&D DM. Tips: http://ko-fi.com/erininthemorn // Booking: http://erinreedwrites.com // Venmo erin888
Bylines @TheGuardian.com, @advocate.com, @xtramagazine.com
Subscribe to support my journalism www.erininthemorning.com
It's ME(Jaime) @exceedhergrasp1.bsky.social Scientific Director, #MEAction
Affiliations: Stanford Genome, Université de Montréal
TIME100 Health
#ME, #EDS, #POTS, #LongCOVID
Views my own
Dr. Raven the Science Maven @ravenscimaven.bsky.social I'm Raven Baxter, Ph.D. I'm molecular biologist and science educator who loves sharing science with the world! thesciencemaven.com
Hannah Davis @ahandvanish.bsky.social Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
Patient-Led Research Collaborative @patientled.bsky.social Patient-Led Research for #LongCovid! http://patientledresearch.com
rthm_health @rthm.bsky.social RTHM is a secure health platform that makes it easy to gather your records, connect the dots with AI, and affordably access treatments.
Jess @jesspearce.bsky.social Interested in public policy, public health, planetary health, risk, philosophy, and ethics.
Living with long covid since 2022.
Taylor Lorenz @taylorlorenz.bsky.social Subscribe to my tech and online culture newsletter UserMag.co
Listen/watch Power User podcast on all platforms!!
Support my work on Patreon: https://www.patreon.com/cw/taylorlorenz
Jennifer Brea @jenbrea.bsky.social 
Nate @riffraffnath.bsky.social stuck at home with long covid
community organizer, educator, video artist
🌈♿🤒🕎 (they/she)
Ravi Veriah Jacques @ravihvj.bsky.social Post-Covid ME/CFS since March 2021. Before then, a life I loved.
Stanford History | 2021 Schwarzman Scholar
brendan @schlage.town making @leaflet.pub ⁂ in brooklyn ⁂ sol's dad ⁂ ⚭ @jinjin.bsky.social
books, basketball, cities, constraints, learning, libraries, poetry, patterns, reading, rhymes, walks, websites, &c
more lists & links @ schlage.town
Rebecca Williams @rebeccawilliams.info Writer, professor, artist exploring the internet.
Privacy @ACLU.org · Board @MuckRock.com · Teaching @PrattiSchool.bsky.social
rebeccawilliams.info · rebecca.411 on Signal
@farsiforeplay.bsky.social @farsiforeplay.bsky.social 
sicky sicky boi (they/them) @sickyb0ii.bsky.social 💊 0% chill 100% ill
🦠 long covid gang '22
✨ abolish my dad
https://linktr.ee/sickyb0i
blairhere @blairhere.bsky.social poet \ researcher
of words in space
+ as materials
Post-Viral Trials @postviraltrials.bsky.social News and information about interventional trials for Long Covid, ME/CFS, POTS, and other post-viral illnesses. Message or tag me if you’re in a trial or otherwise have information to share.
Ed Yong @edyong209.bsky.social Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him
📷 Canon R6mkii + RF 800mm
Edyong.me
Science for ME (S4ME) @s4me.info We're an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and carers, clinicians, scientists and advocates who support us.
Facts about ME/CFS:
https://www.s4me.info/threads/science-for-me-fact-sheets.43310
#MEAction Network @meactnet.bsky.social A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
The Sick Times @thesicktimes.org Award-winning nonprofit news site chronicling the #LongCOVID crisis. Founded by @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social
Website: thesicktimes.org
Newsletter: thesicktimes.org/newsletter
Donate: the-sick-times.fundjournalism.org
Open Medicine Foundation (OMF) @openmedf.bsky.social OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
RemissionBiome MECFS/LongCovid Patient-led Research Project @remissionbiome.bsky.social Project run by #RenegadeResearch @renegaderesearch.bsky.social a non-profit 501c3 decentralized org pioneering patient/caregiver led research focused on #MECFS & #LongCovid • Renegade-Research.org • RemissionBiome.org 💙 Donate now ▶️ tinyurl.com/44azdsxm