Canadian AYA Neuro-Oncology Network @ayabraincancer.bsky.social A national Neuro-Oncology network focused on improving outcomes for #AYA patients with #braintumours
Ryan Marino, MD @ryanmarino.bsky.social Human Doctor • Toxicology • Addiction • Emergency • #WTFentanyl & more often just WTF • drugs are misunderstood but people are misunderstood more • he/him • YouTube.com/@RyanMD • #MedSky
Tod Maffin 🇨🇦 @todmaffin.com Your Emotional Support Canadian 🇨🇦 ♥️
📰 𝗡𝗘𝗪𝗦𝗟𝗘𝗧𝗧𝗘𝗥: newsletter.todmaffin.com
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Support my work: support.todmaffin.com
Contact my team: contact.todmaffin.com
Everything else: links.todmaffin.com
André Picard @picardonhealth @picardonhealth.bsky.social André Picard is the health columnist at The Globe and Mail and the author of six bestselling books. I share stories and opinion pieces from a broad range of publications. Shares are not endorsements.
Steve Schulz @itssteveschulz.bsky.social He/him. San Josean. Surviving #BrainCancer (g2 diffuse astro). Too many interests, but ❤️ #FFXIV, APs, #TTRPGs, and 🙌 our savior Camina Drummer.
Mj @mariahjae.bsky.social Too wide for your narrow mind
she/her
Matthew Zachary @matthewzachary.bsky.social Patient Rights Activist, Keynote Speaker and Author, We the Patients (Wiley 2026). 30 year brain cancer survivor. Host, healthcare's #1 independent podcast. Healthcare's Unfiltered Voice of Reason.
Stacey Tinianov, MPH @coffeemommy.bsky.social Strategic Advocacy Partnerships & Patient Engagement.
Co-Creation & Community Building. 💗
Coffee drinker. Gardener. Wife. Mom. Breast Cancer. 🙃
Advocates for Collaborative Education (@advocatecollab.bsky.social) #MakeCancerLessShitty #PublicHealth
ThanksCancer @thankscancer.bsky.social Growth is overrated and occasionally fatal
American Brain Tumor Association @theabta.bsky.social The ABTA provides resources to support the needs of brain tumor patients & caregivers and funds critical research in the pursuit of discovering breakthroughs.
Julia Robertson @ailujnostrebor.bsky.social Harbouring brain tumour #2.
Raising awareness and funding for brain tumour research.
PhD Candidate
6E/GA
#BTSM #BrainTumorSocialMedia #MentalHealthMatters
Stanley Currier @scurrier.bsky.social Left handed vegan. Curious about our world, languages, cultures, bhakti yoga, health and well-being. Brain cancer survivor.
Michele @michele502.bsky.social forensic analyst, dog lover, wine drinker, brain cancer patient (stable).
Wendy Santana @2ndchance2live.bsky.social
Krishan Jethwa @krishanjethwa.bsky.social
Lifeiskitsch @lifeiskitsch.bsky.social “quirky, defiant, messy, odd, & absolutely charming”- me, according to my 6th grade teacher
Also: passionate patient advocate; social media wackadoo; current brain cancer survivor; most excellent source of words
Lisa @lisainnjusa.bsky.social Wife of GBM patient, mother of 3, first time puppy person.🐶
Currently in Playa Vista, CA for UCLA clinical trial for #DCVAX for my husband's #GBM brain tumor for 3 months.
WilleverStrong.com
#GBM #GBMWIFE
#NWBO #DCVAX
#RESIST
Professor Richard Scolyer AO @richardscolyer.bsky.social Surgical Pathologist Royal Prince Alfred Hospital. Prof Sydney University. 2024 Joint Australian of Year. Editor WHO Skin Tumour Classification (4th ed). American Joint Committee on Cancer, Vice Chair Melanoma Expert Panel. All posts/comments are personal.
Dr. Gelareh Zadeh @gelarehzadeh.bsky.social Chair & Prof, Dept of Neurological Surgery
Mayo Clinic Rochester William J and Charles H Mayo Professor
Editor-in-Chief, Neuro-Oncology Advances.
zadehlab.com
Dr James Perry @gliomadoc.bsky.social Professor of Neurology. 🇨🇦. #YYZ.
Paul A. Northcott, PhD @doctorpauln77.bsky.social Director, Center of Excellence in Neuro-Oncology Sciences (CENOS)
Member, Dept. of Developmental Neurobiology, St. Jude Children’s Research Hospital
Tamra Ogilvie @tamraogilvie.bsky.social Professor at Texas Children’s Hospital/Baylor College of Medicine working on medulloblastoma, mom of 2, 🎗️
Childhood cancer, stem cells, alternative splicing, targeted therapies
https://www.texaschildrens.org/ogilvie-lab
Alexander Jucht @ajucht.bsky.social Single cell multiomics in brain cancer.
𝑲𝒂𝒕𝒆 𝑯𝒊𝒕𝒄𝒉𝒄𝒐𝒄𝒌 𝑴𝑫 𝑷𝒉𝑫 𝑹𝒂𝒅𝑶𝒏𝒄 𝑼𝑭 @k-hitch.bsky.social 𝙰𝚜𝚜𝚝 𝙿𝚛𝚘𝚏 𝚁𝚊𝚍𝚒𝚊𝚝𝚒𝚘𝚗 𝙾𝚗𝚌𝚘𝚕𝚘𝚐𝚢 @𝚄𝙵 ☢️
𝙿𝙸 @𝚄𝙵𝙷𝚎𝚊𝚕𝚝𝚑𝙲𝚊𝚗𝚌𝚎𝚛 🐊
#navyvet #𝚎𝚗𝚐𝚒𝚗𝚎𝚎𝚛 🏳️🌈𝙼𝚘𝚖
Opinions mine. I love vaccines.
Con los pobres de la tierra
Quiero yo mi suerte echar
#ʀᴀᴅᴏɴᴄ #ʀᴀᴅᴏɴᴄsᴋʏ #ᴏɴᴄsᴋʏ
Saskia Freytag @saskiafreytag.bsky.social Lab Head at the WEHI and the Brain Cancer Center by CB4BC. BioinfoMagician using computational biology, spatial and single cell omics so that one day no lives will be lost to brain cancer.
Carol Chen @carolchen.bsky.social Studying epigenetic mechanisms of brain cancer & neurodevelopmental diseases. Scientist, BC Cancer | Assistant Professor, Biochemistry & Molecular Biology, University of British Columbia.
Krembil Brain Institute 🧠 @kbi-uhn.bsky.social 🧠 The Krembil Brain Institute, part of the University Health Network (UHN), Canada's #1 Hospital, is dedicated to advancing research and clinical care for those living with diseases and disorders of the brain and spine.
🔗 https://linktr.ee/krembil
A. P @apbeaverhousen.bsky.social 🧳: 🏥💻
Fan of Nigella Lawson and Celine Dion: Lover of quality libations, eats and all things Scottish.
Opinions my own.
gj-🇨🇦political senior @gj-politicalsenior.bsky.social
Michelle Clark PhD @biomedmichelle.bsky.social Research Scientist at Trogenix 🇦🇺 🏴
Film buff & theatre nerd. She/her | Views my own.
Smart Patients @smartpatients.bsky.social Smart Patients - a peer-to-peer support forum where patients learn from each other about treatments, challenges, and how it all fits into the context of their experience.
www.smartpatients.com
https://linktr.ee/smartpatients
Lurie Cancer Center @luriecancer.bsky.social Robert H. Lurie Comprehensive Cancer Center of Northwestern University. Translating scientific discoveries into better cancer care. Chicago, IL https://www.cancer.northwestern.edu/ #OncSky #MedSky
Amy Price @amyprice.bsky.social Welcome! I’m a scientist, advocate, editor, and mentor. I value meaningful, professional connections and prioritize messages related to advocacy, mentoring, and collaboration. I do not engage in personal/unsolicited inquiries. Thanks for understanding
Christian Sinclair @ctsinclair.bsky.social palliative medicine doctor in Kansas City trying to make suburban KC more bike and walk friendly, one city council meeting at a time.
| #KCCurrent | #PalliativeCare | #hapc | #boardgames
Derek Tsang @dtsang.ca Radiation Oncologist #RadOnc Princess Margaret Cancer Centre 🇨🇦 | Associate Professor UofT | he/him
Scientific Writer @ CENOS St. Jude Children's Research Hospital @sjcenos.bsky.social Discussing groundbreaking research at St. Jude’s Center of Excellence in Neuro-Oncology Sciences advancing understanding and improving outcomes for children with #braincancer, including #medulloblastoma, #ependymoma, and #glioma. 🧠🔬
European Organisation for Research and Treatment of Cancer @eortc.org We define better treatments for all cancer patients to prolong survival and improve quality of life.
Shawn Carey @shawncarey42.bsky.social Healthcare PR&Comms professional | Relentless brain tumor advocate | Disney junkie
Dr. Emily Drake @emilydrake.ca Assistant #Professor, Mount Allison University 🇨🇦 Adjunct Professor, McGill + Dalhousie University • #CancerResearcher • Co-Founder #AYACSM • 🌎 #Speaker • Consultant • Knowledge Mobilization • #PalliativeCare • Views my own • EmilyDrake.ca (She/Her)
Sarah Funes @sarahfunes.bsky.social SSF Planning Commissioner I Former White House, Senate, & House Intern l Founder & Executive Director @WeTurnOut | 👩🏽🦯👩🏽🦽Salvadorian 3rd tense Ella
Memorial Sloan Kettering Cancer Center @mskcancercenter.bsky.social Where you're treated first, matters. To make an appointment: 833-637-6698
Radiation Medicine Program @radmedpm.bsky.social #RMPatPM is Canada's largest radiation treatment centre - advancing radiation medicine through patient-centred care, research & education @pmresearch-uhn.bsky.social @uhntoronto.bsky.social
Joshua Budhu @jbudhu.bsky.social Neuro-Oncologist at Memorial Sloan Kettering Cancer Center, Health Disparities Researcher
Lisa O’Leary @lisaoleary524.bsky.social
Alicia Staley (@Stales) @stales.bsky.social Co-founder of #BCSM, POWER TWEETER, eternal optimist, 3x #cancersurvivor #PatientDriven - VP of Patient Engagement @Medidata
OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social OurBrainBank is an innovative patient-led movement designed to move glioblastoma from terminal to treatable, powered by patients. It’s the first non-profit created by, with, and for people living with this aggressive brain cancer. We believe in data.
Terri Armstrong @tsarmstrong.bsky.social NIH Scientist Emeritus
Mom, Feminist trying to see the good who believes in patient-centered care, kindness matters, and that your character is your destiny
Matt Katz, MD 🟦 🇺🇸 @subatomicdoc.bsky.social Interim Chair and Residency Program Director in Radiation Oncology at Tufts Med Center. Dedicated to improving health and cancer care. Trust, learn, collaborate. Neutral good.
Neurosurgery @ Northwestern @neurosurgerynm.bsky.social 🧠Dept. of Neurosurgery at Northwestern Feinberg School of Medicine & Northwestern Medicine in Chicago.
Patient Care: 312-926-2000
Viviane Poupon @vivianepoupon.bsky.social President and CEO at Brain Canada Foundation
Adam Marc @adammarc.bsky.social Stories shape systems. Systems shape lives. I write about mortality, AI, and politics. Glioblastology + Adam Marc Writes.
Mommy Has Cancer @mommyhascancer.ca Using my story to advocate for better screening, cancer care and research in Canada. Author of an animated comic strip series about a young family with a terminally ill parent, based on my and my kids’ experiences.
🔗 https://linktr.ee/mommyhascancer
Brain Tumor Social Media Chat @btsmchat.bsky.social The official braintumor community chat organizer handle. Follow us for updates on dates, topics, etc. Grab our #BTSM starter pack!
NEXT chat: June 8, 7 pm ET.
Centre for Discovery in Cancer Research (CDCR) - McMaster U @cdcrmcmaster.bsky.social The Centre for Discovery in Cancer Research at McMaster University unites scientists and clinicians to tackle treatment-resistant cancers. By focusing on high-unmet-need subtypes, our holistic approach drives discoveries from bench to bedside worldwide.
Stuart Selby @stuartselby.bsky.social In my 50s, married to a wonderful husband, living in Toronto, Canada with incurable brain cancer. Pharma, Pun and Food geek. Brain Cancer Canada ambassador.
Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social 10+ yrs. Brain Cancer Patient, Advisor & Advocate. #BTSM #skychat Organizer & Moderator. Rock Climber, Dual Citizen 🇺🇸🇩🇪, 11yo Mom, Chocolate Addict.
Lea Alhilali, MD @teachplaygrub.bsky.social Senior editor American Journal of Neuroradiology; Associate Editor, Radiographics; Associate Editor, Radiology; Deputy Editor, Clinical Neuroimaging.
I try to make learning neuroimaging and neuroanatomy fun. If I can make you laugh, I can help you learn.
Dr. Glaucomflecken @glaucomflecken.bsky.social Ophthalmologist. Comedian. Speaker. Jonathan.
Paola Suarez Meade, MD @paosmeade.bsky.social Postdoc Fellow @MayoClinic @doctorqmdlab • Executive Secretary @missionbrainorg • @Mayomrfa Florida Co-Chair • Aspiring Neurosurgeon Scientist
Svenja Tetzlaff @svenjaktetzlaff.bsky.social MD student at Heidelberg University | Cancer Neuroscience @ Venkataramani lab🔬🧠
Duke Neurosurgery @dukeneurosurgery.bsky.social Excellence in neurosurgical care, research, and education. A multidisciplinary, team-based approach to care. Excelling at translational research, moving innovations rapidly from bench to bedside.
Martine Lamfers @martinelamfers.bsky.social Associate professor, dept of Neurosurgery Erasmus MC Rotterdam.
Brain tumors, personalized medicine, & human rights
Isabelle Stetter @isabellestetter.bsky.social 🧠MD, Neurology, Neurooncology
📍University Hospital of Cologne, Germany
Inês Neves @inesmpdneves.bsky.social Research Fellow at Dana-Farber Cancer Institute/Harvard Medical School @ Filbin Lab
MJ Lim-Fat @mjlimfat.bsky.social Neuro-oncologist | CNS Site Lead at Sunnybrook | Assistant Professor U of Toronto | Canadian AYA Neuro-Oncology Network
Monica Pomaville @pomavillem.bsky.social Pediatric hematology/oncology fellow at CHOP
Aspiring physician-scientist 🧪
RNA modifications in pediatric solid and CNS tumors 🧠
Kevin Johnson @kevin-johnson.bsky.social Research Scientist in Department of Neurosurgery Yale University studying glioma evolution
Yi Zhang @yi-zhang-compbio.bsky.social Assistant Professor@Duke #compbio #machinelearning #genomics👩🔬 💻 Alumni UIUC/DFCI/Harvard. https://yi-zhang-compbio-lab.github.io/ Recruiting postdoc!
Sam Emerson, MD, PhD @samemerson.bsky.social Neurosurgeon-scientist at the University of Washington
Iyad Alnahhas @ialnahhas.bsky.social A passionate neuro-oncologist. Producer and Co-Host of “Neuro-Oncology: The Podcast” @TJUHospital @KimmelCancerCtr
Jan Werner @jmwerner.bsky.social MD, Clinician-Scientist. Neurology @UKKoeln - @UniCologne. Research focus on Neuro-Oncology, imaging and amino acid PET. Postdoc @MedUniWien
Marlowe Tessmer @marlowetessmer.bsky.social Executive Editor of Clinical Cancer Research, published by AACR @theaacr.bsky.social. Brown & Northwestern Alum, home chef by night. Opinions are my own. @aacrjournals.bsky.social
Kirit Singh @kiritsingh.bsky.social Immuno-engineering at Duke Brain Tumor Center & Adaptin Bio | MD, PhD @QMULBartsTheLon, @DukeUBME | 🇬🇧 in 🇺🇸
Michael Platten, MD @michael-platten.bsky.social Neurologist, Chair of Neurology
Brain Tumor Immunotherapy
@dkfz.bsky.social
@platten-lab.bsky.social
@uniheidelberg.bsky.social
Medical Faculty Mannheim
Founder Tcelltech
President @eanoassociation.bsky.social
Ambassador for the @erc.europa.eu
Emre Kocakavuk @ekocakavuk.bsky.social Emmy Noether Group Leader | Forbeck Scholar | Clinician Scientist in Hematology/Oncology
kocakavuklab.com
Fred Varn @fsvarn.bsky.social Assistant Professor at The Jackson Laboratory studying brain tumors and their microenvironment
Suva Lab @suvalab.bsky.social Brain cancer, single cell and spatial genomics. Mass General. Broad Institute. Harvard Medical School.
Kadir Akdemir @kcakdemir.bsky.social Husband & father | Asst prof at MD Anderson Cancer Center | Our lab focuses on tumor evolution, chromatin folding & instability
akdemirlab.github.io
Samir Amin @samiramin.com Comparative Genomics #glioma; #aneuploidy #evolution 🧑💻 🧬 | ❤️ 😋 🥘🧑🍳 📷 | @yaleschoolofmed.bsky.social | Views = own | ❤️ 🔄 ≠ endorsement | sbamin.com/about
📍 BDL | Prev. HOU, BOS, BDQ
Pratiti (Mimi) Bandopadhayay @bandolab.bsky.social www.bandolab.org
Genomic approaches for childhood brain tumors
Pediatric Neuro-Oncologist/Scientist
@DanaFarber, @Broadinstitute, @BostonChildrens
Views are my own
Amanda Van Swearingen, PhD @drvanswearingen.bsky.social Scintific Program Manager @Duke Center for Brain and Spine Metastasis. Fan of all things science, art, and cute. Posts, likes, views, etc are my own.
RajuBrainLab @rajubrainlab.bsky.social Physician-scientist; Director, Pediatric Neuro-Oncology @radychildrens, @UCSDNeuroDept, @UCSDCancer, #medulloblastoma,#DIPG,#infantbraintumors, #Neurofibromatosis/NF
Sarah Best @sarahannbest.bsky.social Co-lead Brain Cancer Research Lab @WEHI and Brain Cancer Centre in Australia
Johanna Joyce Lab @joycelab.bsky.social We are dedicated to understanding and ultimately helping treat cancer
Led by @johannajoyce.bsky.social
@unil.bsky.social, @ludwigcancer.bsky.social, @fbm-unil.bsky.social
www.joycelab.org; https://agora-cancer.ch/laboratory/joyce-lab/
Leila Akkari @leilaakkari.bsky.social Cancer Biologist. Group Leader @NKI_nl Amsterdam, @oncodeinstitute. Microenvironment addict. Macrophage groupie.
http://akkarilab.com
Johanna Joyce @johannajoyce.bsky.social Professor, University of Lausanne 🇨🇭 and Ludwig Institute for Cancer Research
President, European Association for Cancer Research
Mentor, Teacher, Advocate, Mum
@joycelab.bsky.social
The Lund Lab @thelundlab.bsky.social The Laboratory for Lymphatic Immunobiology at NYU Langone Health. Studying lymphatic transport, immunology, and cancer. www.thelundlab.com
Elizabeth McKenna @elizsmckenna.bsky.social Executive Editor of Cancer Discovery, published by AACR. Harvard BBS/Dana-Farber alum. Native New Yorker. Posts are my own. She/her https://aacrjournals.org/cancerdiscovery
John Liu, MD PhD @sjohnliu.bsky.social Physician Scientist in Radiation Oncology and Neurosurgery
Assistant Professor at UCSF
https://liulab.ucsf.edu
Dionysios (Dennis) Watson @dionysioswatson.bsky.social Physician-scientist @UnivMiami dedicated to developing next-generation cancer therapies targeting the tumor microenvironment
Garth Nicholas @garthnicholas.bsky.social Medical Oncologist in Ottawa. Treats lung cancer, CNS malignancy, sarcomas.
Lynne Taylor @neulpt.bsky.social Neuro-oncologist, Clinical co-director of the Alvord BrainTumor Center at the University of Washington, Seattle
@martinvandenbent.bsky.social @martinvandenbent.bsky.social
Maximilian Mair @mj-mair.bsky.social MedOnc Resident MedUni Wien | PostDoc LMU Munich | EANO #Youngsters Committee | EORTC BTG Young Neurooncologist | #neuroonc #braintumors
Mustafa Khasraw @mkhasraw.bsky.social
Oncologist @DukeU; interested in cancer research, clinical trials, immunotherapy but many other things - Views are my own
Thekhasrawlab.com
Marjolein Geurts @marjoleingeurts.bsky.social Neurologist | Neuro-oncologist and Assistant Professor @ErasmusMC | @EORTC Brain Tumor Group | @EANOassociaton guidelines committee 🧡🇳🇱
Dr Liz O’Riordan @lizoriordan.bsky.social Professional Speaker - Author - Breast Surgeon with Breast Cancer
www.liz.oriordan.co.uk
Claire Snyman @clairesnyman.bsky.social #Braintumor | Healthcare advocate | Patient experience consultant | Pnt Engagement/Pnt Experience are essential | Author & #TEDx speaker | Two Steps Forward |
Vicky Forster @vickyyyf.bsky.social Patient engagement professional, "retired" cancer research scientist, cancer survivor, science and health writer. Leafs/Toronto Sceptres fan. Hockey player in training. https://www.drvickyforster.com/
Maria Gubbiotti, MD,PhD @mariagoobs.bsky.social Neuropathologist at MD Anderson Cancer Center 🧠🔬Amateur Equine Enthusiast 🦄
Opinions are my own and are not reflective of my employer nor are they medical advice
#medsky #pathsky #eqbsky 🐎 🦋