olivemartel.bsky.social @olivemartel.bsky.social 🐈 roommate: archie
♿ professional wheelchair operator
☕ powered by caffeine and poor decisions
📍 currently not allowed to leave house
National Consumers League @nationalconsumers.bsky.social America’s pioneering consumer advocacy organization, representing consumers and workers on marketplace and workplace issues since 1899.
Icons of Change™ News Network @iconsofchange.bsky.social Global Changemakers news and inspiring stories on SDGs & sustainable impact powered by the Icons of Change International
https://www.facebook.com/TheIconsOfChange
Chronic Illness Resource Library @spoonieresources.bsky.social Sharing fact sheets, how-to guides, online tools, worksheets, research, and other helpful info for people living with chronic illness(es).
Not a health professional.
Requests/suggestions welcome.
🚫 No AI
linktr.ee/chronicillnessresourcelibrary
Folkert Veenstra 🔶 @folkertveenstra.bsky.social Liberal Democrat, European in the UK. Trustee at Living Streets.
#FBPE #Disability
London, United Kingdom
One Nation, Overcharged @onenationovercharged.com Fighting for lower healthcare costs & a system that works for everyone. Together. 🤝
Cure CMD @curecmd.bsky.social Advancing research toward treatments for the congenital muscular dystrophies & empower those living w/ CMD through engagement & community support.- P @peaceflowerusa.bsky.social @peaceflowerusa.bsky.social #ALS Caregiver & Advocate
Mike Quigley @quigley.house.gov Representing Illinois' 5th District. House Appropriations & Intel Member, amateur hockey player, and proud Cubs fan. He/Him.
hmvip.bsky.social @hmvip.bsky.social HMViP is a collaboration of healthcare professionals working within the field of home mechanical ventilation, patients and carers which aims to improve patient education.
@rampant-cytokines.bsky.social @rampant-cytokines.bsky.social 
Junie von Esch @junievonesch.bsky.social TwitchAff Chicagoland Streamer, Writer, Artist, Actor, Browncoat; Storyteller @ McStabber Studios, https://linktr.ee/junievonesch
NeurologyLive® @neurologylive.bsky.social Delivering healthcare professionals treating neurological diseases quality and relevant information to help achieve the best patient care possible. #MindMoments
Read our coverage: neurologylive.com
C.P. Life - Cerebral Palsy @cplifecerebral.bsky.social 
Altum Inc. - ProposalCentral.com @proposalcentral.bsky.social Altum powers grantmakers worldwide with market-leading grants management software. Via proposalcentral.com, we connect funders, researchers & institutions
spt79.bsky.social @spt79.bsky.social Living in Cornwall with my husband and 2 Cornish Rex cats.
Battling Muscular Dystrophy.
Enjoy gaming (PS5), music, movies, reading and creativity.
B🌻 @bstings.bsky.social Maine
@allandruide.bsky.social @allandruide.bsky.social 
J.-P. Ch. Bach {aka p!J} @jpcbach.bsky.social 🇨🇭 Citoyen, Geek, Curieux etc…- A @anitacavaleiro.bsky.social @anitacavaleiro.bsky.social
Benjamín Cartes-Saavedra @btcartes.bsky.social Mitochondrial Biologist. Postdoctoral Research Fellow at MitoCare, Thomas Jefferson University.
Eidrees Ghariq @ghariq.bsky.social Radiologist. Interested in neuroimaging, molecular imaging and therapies, particularly theranostics.
Utrecht, NL
Loubet Michel @loubetmichel.bsky.social 
Virginia Arechavala @varechavala.bsky.social Scientist and mum. Ikerbasque Professor @ Biobizkaia HRI
Interested in #RNAtherapy for #neuromuscular disorders. De Bilbao de toda la vida and adopted Londoner.
https://www.linkedin.com/in/virginia-arechavala-gomeza-a482509/
Manchester Neuromuscular Research Group @neuromuscularmanc.bsky.social 
John D. Lueck @johndlucky.bsky.social Associate Professor at the University of Rochester School of Medicine and Dentistry. Doing research from soup to nuts.
Variety BC @varietybc.bsky.social Variety – the Children’s Charity of BC steps in where healthcare ends providing vital support to children with disabilities and complex health needs. variety.bc.ca
BrightEyes500 @brighteyes500.bsky.social 
@leenyann.bsky.social @leenyann.bsky.social 
Tracy Zamost @tracyzamost.bsky.social 
@andygoldfine.bsky.social @andygoldfine.bsky.social 
@markcstahlmd-phd.bsky.social @markcstahlmd-phd.bsky.social 
CharityVillage @charityvillage.bsky.social Connecting professionals with meaningful nonprofit and charitable jobs since 1995. Check out Canada’s top job board and resource hub for the nonprofit sector!
https://charityvillage.com/
Envisioning Access @envisioningaccess.bsky.social Collaborating with tech start-ups and universities to develop innovative assistive technology to help people living with physical disabilities.
Mirouse lab @mirouse-lab.bsky.social How to make the first cell of your life : an egg
Group leader at iGReD Clermont-Ferrand, Drosophila and cell biology, oogenesis and also a bit of muscle !
outdoor sports & comics
theWrightCoaching and Consulting Services LLC @twccs.bsky.social theWrightCoaching and Consulting Services LLC offers a range of coaching services designed to facilitate personal and professional growth. 
Bill Brown @eyesofibad.bsky.social Elementary Math Intervention Teacher, Father of a child with Muscular Dystrophy,
Politics, Nature, Science
Mathilde Sanson @mathildesanson.bsky.social Postdoc on muscular dystrophies 🧫 Part of MAGIC Horizon 🧬 Here for muscle news and research in general!
EveryLife Foundation for Rare Diseases @everylifeorg.bsky.social We empower the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments, and cures.
Accuguide | Discover Accessibility @accuguide.org Discover and rate millions of locations based on various accessibility features with Accuguide!
Check us out at https://accuguide.org/
support@accuguide.org
@gaylaurel.bsky.social @gaylaurel.bsky.social 
savoir innover 🇨🇦 @savoirinnover.bsky.social Vidéos & balados sur l’innovation canadienne | Videos & podcasts on Canadian innovation 🇨🇦
youtube.com/@SavoirInnover
savoirinnover.ca
Muscular Dystrophy News Today @mdnewstoday.bsky.social Your source for all things MD.
Flowers in the sun @queale.bsky.social Every petal contains the warmth of the sun, and every scent is a whisper of nature. In the interweaving of light and shadow, flowers use the most brilliant colors to write the poetry of summer.
pharmaphorum @pharmaphorum.bsky.social pharmaphorum.com, and its magazine Deep Dive, is a leading online destination for pharmaceutical industry and healthcare news, insight, and debate
@drjonhastie.bsky.social @drjonhastie.bsky.social 
@waldotsp.bsky.social @waldotsp.bsky.social 
JARDIN Joint Action @jardinjointaction.bsky.social To improve the accessibility of the ERNs for patients across Europe, the EU has funded a pioneering 3-year project involving all member states (MS) plus Norway and Ukraine, the Joint Action on Integration of ERNs into National Healthcare Systems (‘JARDIN’)
Mitch @6ft2.bsky.social 
Jen Gabriel @jenlgabriel.bsky.social 🧠 Neuroscientist at UoEdinburgh
SMA/MND/NMJs
⚧️ She/her
📢 Research communicator
👥 Advocate for research involvement and engagement
All views are my own
@arvadagal.bsky.social @arvadagal.bsky.social 
Jessica Day @jessicaaliceday.bsky.social RMH Rheumatologist, WEHI clinician-scientist, NHMRC fellow.
Wayne O'Cohen / 上野公園 @wayneocohen.bsky.social Maryland native, adopted New Jerseyan, current Tokyoite whose heart's in Hong Kong. Syracuse grad; postgrad at Gutenberg Universität Mainz. Entertainment writer formerly of Japan's Mainichi Shimbun and Asahi Shimbun. Interests: Media biz, Asian history
SMA Europe @sma-europe.bsky.social SMA Europe is a non-profit umbrella organisation of spinal muscular atrophy (SMA) patient organisations from across Europe. All together. One goal.
Visit our website: https://www.sma-europe.eu/
MAGIC @magic-horizon.bsky.social Accelerating the development of gene therapies for muscular dystrophies. Funded by @horizoneu.bsky.social, @ukri.org and Swiss State Secretariat for Education, Research and Innovation (SERI)
Centre for Muscle Research (CMR) @unimelbcmr.bsky.social Advancing muscle biology and its importance in health and disease. #myoblue #sarcopenia #myology #skeletalmuscle #musculoskeletal #neuromuscular #cachexia
http://unimelb.edu.au/muscle-research
@neurologyemg.bsky.social @neurologyemg.bsky.social 
Muscular Dystrophy Pakistan @mdpakistanorg.bsky.social Our mission is to empower the muscular dystrophy community through education, advocacy, collaboration, and compassionate outreach.We actively engage with healthcare providers, researchers, policymakers, and global partners to improve the quality of Life.
@woodshannon.bsky.social @woodshannon.bsky.social 
Jill Dash @jilldash.bsky.social Here only for the political engagement.
Mid-lifer dedicated to healthy aging + equal rights for all regardless of race/religion/sexual orientation + a women’s right to choose when they become a mother + centrist politics + democracy + lie flat seats 💪🏻
Ali Fein @alifein.bsky.social Hello? Is this legit?
Berkehan OK, MD @berkehan.bsky.social 
David Gale 😀 🔵🔴⚪️⚽️🏴🏴 @djgale.bsky.social Dad, Husband, Civil Servant, Volunteer for Muscular Dystrophy UK and Carlisle United fan. “Life moves pretty fast. If you don’t stop and look around once in a while, you could miss it.” Templand, Scotland 🏴
Willis Kern @wekern.bsky.social Husband/Dad, 51 year radio veteran 1975-2025; now WGCU-Florida fill-in. Public radio news director-emeritus WGLT, 7-time loser, 4-time winner-- Illinois AP Best Reporter; #stlcards. RIP my dog Yadi. Know what I'm talkin bout. No DMs.
ndulj @ndulj.bsky.social The blue runs deep in this one. Fuck the patriarchy.
Lover of all things flowers. Too old to GAF. DM=🚫
👩🍳🐈⬛🐈⬛🐝🫘🏴☠️🌻🏳️🌈🏳️⚧️
Smidt Heart Institute @smidtheart.bsky.social Smidt Heart Institute at Cedars-Sinai
#1 in California for Cardiology, Heart & Vascular Surgery, ranked by US News & World Report
Institut de Myologie @institutdemyologie.bsky.social Centre d'expertise sur le #muscle et ses pathologies, créé en 1996, l'Institut de Myologie, avec ses 300 experts, a pour objectif de favoriser l’existence, la reconnaissance et l’essor de la myologie dans le monde.
http://www.institut-myologie.org- E @erikalbr.bsky.social @erikalbr.bsky.social 🏳️🌈
NeuroCRU @neurocru.bsky.social Clinical Research Unit at the Montreal Neurological Institute-Hospital - a leading centre affiliated with McGill University | L'Unité de recherche clinique de l'Institut-hôpital neurologique de Montréal, un centre de pointe affilié à l'Université McGill
Trisha Elliott @trishaelliott.bsky.social Interested in life in general & people in particular.
Living in Edinburgh, now enjoying a non clinical role, but still a doctor at heart.
Posting about medicine, health, social inequalities, sport, politics, Scotland, sustainability, veggie food & cats.
National Association of Letter Carriers @lettercarriers.bsky.social Founded in 1889, NALC is the union of city letter carriers employed by the U.S. Postal Service.
Rare Disease Advisor @rarediseaseadvisor.bsky.social Trusted knowledge base of practical information and resources focused on treating and diagnosing #RareDisease.
https://www.rarediseaseadvisor.com/
@commsma.bsky.social @commsma.bsky.social 
Russell Rogers, Ph.D. @russellrogers.bsky.social Assistant Professor, @SmidtHeart.bsky.social
Regenerative biology of heart and skeletal muscle.
Lab Website: https://www.cedars-sinai.edu/health-sciences-university/research/labs/rogers.html
Views are my own.
Melissa Bowerman @bowermanlab.bsky.social Professor of Neuromuscular & Skeletal Disorders, Keele University. I research pathologies and new treatments in rare neuromuscular & skeletal disorders.
www.thebowermanlab.com
Alltrna @alltrna.bsky.social Alltrna is the world’s first transfer RNA (tRNA) platform company, and we are unlocking the vast therapeutic potential within #tRNA biology. #StopCodonDisease
Learn more: https://www.alltrna.com/
Yusuke Nishimura @nishimuy.bsky.social Postdoctoral Research Associate in Muscle Proteomics at Liverpool John Moores University
Marie-Pier Roussel 🇨🇦 @mproussel.bsky.social 
@sidewiththeseeds.bsky.social @sidewiththeseeds.bsky.social 
ALS United Rocky Mountain @alsunitedrm.bsky.social Our mission is to unite and empower the ALS community through a collaborative approach of providing comprehensive care and support to individuals and families affected by ALS, advancing national and state advocacy, and fostering bold research 
Sean Kerrigan @seankerrigan.bsky.social Clinton, Mass. | Writer/editor | Hoosier for life | Born-again runner | Full-time dreamer
Kate P @katiekat25.bsky.social - P @pnm2158.bsky.social @pnm2158.bsky.social
Lisa @reeneroo.bsky.social 
Viviane Poupon @vivianepoupon.bsky.social President and CEO at Brain Canada Foundation
ALS United Greater New York @alsofgny.bsky.social We provide local, on-the-ground services to patients and families living with ALS throughout the Greater New York area, including New York City, Long Island, lower and mid-Hudson Valley, and northern and central New Jersey. als-ny.org 
VikingNerd @vikingnerd.bsky.social Powerlifter, gamer (WoW, Guild Wars 2 & POE 2 currently but also BG3, ACV, Skyrim, ESO, and more), Viking enthusiast, craft beer & mead drinker, metalhead. Diagnosed myasthenia gravis June 2024.
She/her, 40, bisexual.
https://www.twitch.tv/vikingnerd793
Neuromuscular Disease Network for Canada @nmd4c.ca Canadian network connecting clinicians, scientists, patients, and industry to improve neuromuscular disease outcomes.
Funded through CIHR-IMHA and Muscular Dystrophy Canada
Visit us at: https://neuromuscularnetwork.ca/
@kinesin.bsky.social @kinesin.bsky.social 
Activity Uplift @activityuplift.bsky.social Fun activities for Dementia & Alzheimer's Caregivers, Seniors, and Activity Professionals. https://activityuplift.com
Jon @jonu235.bsky.social $SRPT #Duchenne #Elevidys #GeneTherapy data which STATnews, Fierce Biotech, BiopharmaDIVE, and BioCentury REFUSE to report! https://investorrelations.sarepta.com/news-releases/news-release-details/sarepta-therapeutics-announces-results-part-2-embark-study
@lnelsonpt.bsky.social @lnelsonpt.bsky.social 
Youknowwhaticantstand♿ @ukwicsrobyng.bsky.social I'm a full-time powerchair user, have Muscular Dystrophy, a mum and fiance, advocate for the disabled. I want to make a difference, in-between the tears, anger and frustration.
@leah-gross.bsky.social @leah-gross.bsky.social 
Devesh Pant @deveshp.bsky.social Dedicated to advancing research in rare human juvenile & adult neuromuscular disorders 🦓
Cristina @sleepypotatoes.bsky.social 34 years old
Chronically ill/Disabled
Myasthenia Gravis, Chronic Migraines, IST, Ankylosing Spondylitis
Stay at home furmom to Lady Luna and Fenrir