Katy B @katybrc.bsky.social Myalgic Encephalomyelitis - M.E + POTS for 38 years
Donor to the UK MEcfs Biobank for 10 years & @DecodeMEstudy
Please watch http://dialogues-mecfs.co.uk/videos/
London, UK
No DMs please
#pwME 
ME Advocates Ireland (MEAI) @meadvocatesireland.bsky.social Advocating for People with Myalgic Encephalomyelitis (ME) of all ages & severities.
Webpages:
https://meadvocatesireland.blogspot.com
Email: info@meadvocatesireland.com
Michael Companioni @spimichael.bsky.social Observer and adviser on planet Earth. Creator of multiple educational materials in the areas of psychology, spiritual concepts, and new discoveries.
Long Covid Scotland @longcovidscot.bsky.social Long Covid Scotland is a charity & action group led by & advocating for people living with Long Covid.
https://www.longcovid.scot
ME/CFS warrior @justjones43.bsky.social Standing at the corner of Social determinants of health & Common sense and wondering where everyone else is.
Free-thinker. Sometimes my thoughts wander off and I have to go look for them.
📷 are mine, unless reposts.
🌻I🌺walk🌼in🌸Rage🌷🌹🏵 is my name @readwellalaska.bsky.social Dyslexic person.
Dyslexia Specialist teaching all ages to read, write, & spell.
If I can randomly be taught to read at 13 y/o, anyone can learn to read when instructed as early as possible with #SoR.
Please! Never be a science denier. 🔬🔭🧪
Marion Michell @marjojo2004.bsky.social Visual artist, writer, M.E. advocate (have severe M.E. and POTS). Author of SUPINELY SUBLIMELY. Queer. Pronouns she/her.
HERITAGE Long COVID and ME/CFS study @heritage-study.bsky.social HERITAGE is a UK research study on Long Covid Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) study. Led with patients, studying care models, outcomes & costs to improve services nationwide. NIHR funded.
https://heritage.leeds.ac.uk/join/
Becky Ancira Robertson @ancirabecky.bsky.social Survivor. Proud mother. Teacher. Activist. Trying to make a difference.
#PatientAdvocate #longcovidawareness #LCDC #March15 #ValueCognition #WHN
Interview with @theWHN :
https://youtu.be/YUgcqJ-m7C0
Kerstin @sannara.bsky.social #MECFS #MILLIONSMISSING #MEAwareness
#PEM #POTS #MCAS
#PostCovid #LongCovid
#TeamWissenschaft #GdB
https://www.mecfs.de/was-ist-me-cfs/
https://www.psychotherapie-mecfs.de/
Cat Fraser @catsocialintel.bsky.social Building a new way for business + society to protect people (like we protect the planet) #biosysystemsprotection #bioscience #bioreality #data #design #green Community-led always 💛 #pwME #fbLC @laboflivedexp.bsky.social
🌍 protecthumanbiosystems.world
Katie As @katieas.bsky.social 🏳️🌈💙pw/ME #LwiththeT arty activist MyalgicE -Still Masking 😷
(I have left the other place permanently, please interact with me here!)
Solveig Marie Stenbæk @sunroadstonecreek.bsky.social Living with Myalgic Encephalomyelitis, ME—not CFS.
The Nonconformance Report @qmsnews.bsky.social curated medical-device quality & regulatory news · FDA · MDR · ISO 13485 · eQMS releases · every post links its source
Sarah O'Brien @qmssarah78.bsky.social quality director @ a dublin pharma-adjacent CM. 30yrs in the trenches. 8 FDA inspections survived. tin whistle thursdays. two jack russells
Jenny @me-cfsgirl.bsky.social ME-CFS since 1995. Love crafting when I can find the energy. One of the WIMEL writers.
MePu @mendaciumpugnator.bsky.social People who deviate from the norm are usually more fun. Passion for music and bondage. Humanist. Kitchen prince. Tech nerd. Amps, guitar and bass. Antifascist🔻
Posts in English and Dutch.
#longcovid since 2020.
Siamo tutti antifascisti.
UK's HowToEnjoy @howtoenjoycouk.bsky.social DISCOVER JOY in UK (England, NI, Scotland, Wales) events, biz, health, music, tourism, on linktr.ee/HowToEnjoyCoUk. Unleash fun nationally, from villages to cities and tourist hotspots. Embrace togetherness through the four home nations | HowToEnjoy.co.uk
🦊Lauren🦊 @lollyfox12.uk Living with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome / Long Covid since 2022.
Big fan of: McLaren F1 🏁 ★ Foxes 🦊 ★ Stars ✨ ★ PC Gaming 🖥️ ★ Nature 🌿
Monica Lennon @monicalennon.bsky.social Former Scottish Labour MSP for Central Scotland (May 2016-April 2026)
Free Period Products Act and Ecocide Bill 🏴
Rebecca @softgothkitten.bsky.social She/her, chronically ill, writer.
BA degree in Disability Studies
Anti-eugenics, pro-masking & clean air.
RFK Jr & MAHA hater
Free Palestine
Maggie Chapman (she/her) @maggiechapman.bsky.social Scottish Green MSP for North East Scotland | Rector of Dundee University | Eco-Socialist & Intersectional Feminist | She/Her
https://linktr.ee/maggiechapman
Lucibee @lucibee.bsky.social Science defender and eco-worrier.
(she/her)
No DMs please (can't access).
Chris Persky @thegreatpersky.bsky.social Childless Cat Man Pro Science Pro Choice Pro Democracy (The North will rise again!!) I pay for good journalism and give it away. Branded affiliate for vegan fashion accessories. https://www.corkor.com/wwwlinkedincominchrispersky
bexlogan.bsky.social @bexlogan.bsky.social Living with Long Covid induced ME since April 2020 | Existing from bed | Advocate | POTS | Former NHS staff nurse & fitness instructor |
JK @fyttirakkernagitt.bsky.social "I was in the minority. As a matter of fact, I was the entire minority."
Skeptisk til dømmingen i norsk fotball.
JourneyDude in Scotland @scottishinsider.org 🪬🧿 Freemason | Traveller | Historian | Novel Author | Filmmaker & Photographer
www.youtube.com/c/journeydude
www.weescotland.com
www.sendmeonadventure.com
🇸🇰 living in 🏴
🕊️ Love you all!, Photos taken by me - NO AI!
I follow people who love art & nature
Nick Benton @nickbenton.bsky.social Writer living with myalgic encephalomyelitis (ME) for five years.
Substack for all things ME: https://thepersonalme.substack.com/
I'm not on here much. For enquiries email nicholasbenton1997@gmail.com
Elisabeth Klaar @lammasleaves.bsky.social Marketing support and WordPress websites for small businesses and organisations, sole traders, authors and more...
www.oaktreestudio.co.uk
Hamburgerabroad @hamburgerabroad.bsky.social A Hamburger on the Isle of Man. Living and pacing one day at a time while waiting for more treatment, research and answers for ME/CFS and POTS. In the meantime being kept company and being kept sane by two Miniature Schnauzers.
Louise Foster @louisefoster.bsky.social @SfpLouise on X, much prefer to be here!
Anti Brexit, pro immigration, humanist, (actually Marxist), studied & am passionate about politics & economics. Hate current journey of travel in UK, US & on X. Diminished by Long Covid, Fibro, ME & PoTS.
Martin Grimshaw Has Long Covid @thrivingplanet.bsky.social Was: Facilitation & organisational culture nerd for do-gooders; climate & sustainability. Healthy, athletic; MTB, ski, mountaineering, outdoors. Everything on pause: Long Covid is brutal.
A lot funnier IRL
Lancaster, North West England (Plague Island) ⓥ🇨🇭
Myra Batchelder @myrabatchelder.bsky.social Advocate. Consultant. Health Equity. Gender Equity. Social Impact. SRHRJ.
New Yorker. Midwesterner.
She/her.
jo @moerakijo.bsky.social Living with Long Covid and ME
Love books, libraries, histories
she/her
Aotearoa New Zealand
#LongCovid #ME #WearAMask😷
#CovidIsNotOver
#LongCovidAwareness
Kristin Houlihan, Writer @kristinwrites.bsky.social Poet, Wife, Mom, LongCovid/MECFS. Looking to connect and learning to advocate. EIC, Poetry @epistemiclit.Bsky.social, @nimblewitlit.bsky.social. Micropoetry chapbook Lift the Mask available widely. www.kristinhoulihan.com
Yvie Juniper-Johnson @yviejohnson.com 🌈Illustrator & Storyteller & Poet
♿️ ME & TN // ✨AuDHD // 🪴Intuitive
🦋 Disability, Creativity & Feeling Whole
🏴 Denbigh, Wales // dw i'n dysgu 🏴
Delightful: https://yviejohnson.com
Lisa Geiszler @melovewarrior.bsky.social Chronically ill/disabled poet, activist. A dancer in my dreams. 🦥🐌🐢Part of the go-slow, rest often club.
@artandlongcovid.bsky.social @artandlongcovid.bsky.social Living w/ Long Covid, still trying to make art.
Tom Anderson @macanders.bsky.social #pwme |Mild-mannered author Henry Anderson| chronically hopeful | Sign up for my FREE course on writing https://linktr.ee/henry.anderson
@pwme.bsky.social @pwme.bsky.social 
Comprendre l'EM @comprendrelem.bsky.social Comprendre L’Encéphalomyélite Myalgique est une publication par et pour les personnes avec EM. Il est voué à la diffusion des savoirs sur l’EM/SFC, en français, de manière simple et didactique. Et aux réflexions politiques.
Shaun Peter Qureshi MBChB MD @shaun-qureshi.bsky.social Equity in palliative care
https://linktr.ee/shaunqureshi
SunCat Trinkets @suncattrinkets.bsky.social Hand-made bracelets and beadwork specializing in custom and intentional pieces ✨
Online Shop:
www.suncattrinkets.com
Whatnot:
https://www.whatnot.com/user/moondrivezee
TikTok :
https://www.tiktok.com/@suncat.trinkets
Dan Wyke @danwyke.bsky.social Severe M.E., person-centred counsellor (not practicing), recovering poet (Rack & Waterloo Press)
Beverly Stark 🌻💙💛 @beverlystark.bsky.social Writer, carer, tea drinker. Probably out walking the dog. Trying to stay hopeful.
Chronic Living Therapy (a directory) @chronicliving123.bsky.social Soon launching - a directory of therapists who understand the biomedical nature of #MECFS, #LongCovid and many other chronic illnesses. https://chroniclivingtherapy.com/
FarmerHoggit @farmerhoggit.bsky.social Guitarist for SilburnBand |
Co-founder of TheSpookatorium
he/him
Edinburgh Planning Updates @ediplanningupdates.bsky.social @harryjwilliams.bsky.social
Planning bot powered by www.city-scope.co.uk
Lynn @wonkyparent.bsky.social 
@controlsrecruiting.bsky.social @controlsrecruiting.bsky.social 
Arwen White @arwenwhite.bsky.social Teacher, Anglican, coffee lover. #books, #pilates, #yoga, #History, #Radio4 fan. #Classicalmusic, #Science, #Immunology
Julie Nelson @juliedell.bsky.social History buff and political junkie. Since the first time I voted for LBJ in 1964. Anti maga. Anti ICE. Despise Trump.
J B Pritzer is my governor. I was born and raised in Chicago.
Ariane Burgess MSP @ariane-burgess.bsky.social Scottish Green MSP for Highlands and Islands
Steve Fifield @stevefifield.bsky.social Informed decisions & verifiable facts please, not opinion & belief. UK. 🇬🇧
Mine of occasionally useful information.
NHS and healthcare 💙
#Equality #Justbe #Inclusion
#LGBTQ+ 🌈 ally
#pwME
#MECFS
#Activetravel 🚲
#Sustainability
#Gardening
#VisibleApp #Oura
Didier @medidier.bsky.social ME after covid infection Feb'22. Bedbound. 🛌 #ThereForME #GreatestMEdicalScandal #PEM 🇬🇧🇲🇫🇪🇦🇧🇪
Eleanor Fielding @meownersclub.bsky.social ‘We’re driving in the dark with our sunglasses on!”
#RLS #ME #PEM
Retired lecturer/therapist
Open University, CCCS B’ham, feminism, politics, culture, disability, science, music, languages.
meownersclub@bsky.social
Maker of #FanningTheFlames
Morag Perkins @moragperkinsphoto.com Photographer, mostly film, mostly plants. Looking straight into the light with the lens wide open.
Also occasionally touching on disability, MECFS, and rare types of diabetes (specifically MODY)
She/her
Glasgow, Scotland
www.moragperkinsphoto.com
Lauren Towler, Ph.D. @laurentowler.bsky.social Lecturer in health psychology and sex researcher @University of Southampton | Interests include: sexual wellbeing, condom use, sexual aging, body image, health inequalities, disability/chronic illnesses and sexuality | spoonie 🥄♿️| she/her
sarah boothby @swastrosarah.bsky.social Speaking up for everyone affected by severe/very severe ME/LongCovidME. #MEKills #MaeveInquest #pwME
backstory: https://x.com/swastrosarah?lang=en-GB Justice4ME.uk
ME is much more than chronic fatigue; it kills every year.
#MEAction Network @meactnet.bsky.social A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
Minnesota Monarch 🌱🐛🦋 @jnp-mn.bsky.social Nature lover. Loves all creatures, including dogs, cats, and monarch butterflies. (Except that one cat. You know who you are…)
Committed to supporting #Monarch #Butterflies & other #pollinators. #GrowMilkweed #Bees | 🇺🇸 USDA #zone4b
Emily Johnson @emilyrj.bsky.social News/book edits, marketing, linguistics, research. #EDS Iowa admin. #Dysautonomia Iowa, #MastCell & http://Disabled.Social mod. @RenegadeResearch.bsky.social volunteer. Patient Advocate. #SevereME Same pic, a bit different handles on X, Substack. #Iowa ♿️🏳️🌈📚
Chef Finney @cheffinney.bsky.social Executive Chef, Culinary Consultant, Guerilla Improv Comic, Anti-Fascist/Racist, Irish Polymath, Former Lots of Stuff, I am Stabby the MF Leprechaun. NSFW
(Ridire Créachta on Fashbook)
"I paint houses..."
"Tiocfaidh ár lá!"
"There is NO THEM!"
NO DM's
Arthur @unrealarthur.bsky.social ME Patient-ly Waiting for Biomedical Research | Volunteer @crunchme.bsky.social
#GreatestMEdicalScandal @unreal_arthur crunchme.org
It's M.E. Linda @happyhoundhouse.bsky.social 2001 PVFS 'Recovered' to 90% by 2006. Sepsis 2013 resulted in M.E. / relapse. Brain/fitness not 'what it used to be'. Beloved Lisnakill Myles-Happy Hound himself 🌈
Disability Rebellion @disrebellion.bsky.social Welcome to the Disability Rebellion - a feisty fightback against ableism and cruel government cuts! • DM for Discord invite • DR links: linktr.ee/DRDRebellion
Alisha @alishawhittam.bsky.social Living with ME. Disability advocate. Sharing life from my bed to raise awareness, build community, and remind others they’re never alone.
The Messy Ecologist @themessyecologist.bsky.social I’m campaigning for more messy spaces for nature, join our messy mission and let’s Rewild together by doing less- and letting nature do the rest!
PhD researcher - Rewilding with Beavers 🦫
Founder of the Wee Pond Project 🐸
PapaGolf @pfgweb.bsky.social Healthcare professional passionate about Spiritual Care, Person-Centred Care & Staff Wellbeing. Ultimately the secret of quality is love! Personal views.
@skellou.bsky.social @skellou.bsky.social 
Michelle Mahoney @michellemahoney.bsky.social Neurodivergent Activist, Writer, Educator, Disability Advocate.
Author of Strange Fellow Bobby: The Neurodivergence of Robert F. Kennedy, Sr.
Substack: michellemahoneyautisticadvocate.substack.com
Dr Nicola Clague-Baker @claguenjc36.bsky.social Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise physiology/ME/Longcovid/EDI/all views my own
she/her
JuliefaithmcmurrayArt @juliefaithmcmurray.bsky.social Artist, long term sick, campervan adventurer, adopted Pomskies and married to a wonderful Hubby.
Ko-Hi
https://ko-fi.com/snowdragonsart0782
Mastadon
https://wandering.shop/@juliefaithmcmurrayart
Linktree
https://linktr.ee/SnowdragonArt
Martijn van den Broek @mfamyfuerza.bsky.social 🧬 Biology of ageing
🌍 Exploring systems, synthetic, regenerative, computational biology, and complexity science
🇪🇺🏴😷
@jobax69.bsky.social @jobax69.bsky.social 
Raplapla et porte-voix @raplapla-portevoix.bsky.social #DisabilityJustice
#BedboundActivism
#EncephalomyeliteMyalgique
Stripy Lightbulb CIC @stripylightcic.bsky.social Award-winning #SocialEnterprise working to improve the lives of people living with #MEcfs by educating professionals who have a duty of care.
CPD accredited online training courses.
www.stripylightbulb.com
Biotech Digest @biotechdigest.bsky.social Complex chronic illness patient advocacy
Ian Stark @ian.stark.scot 
Ross Clements @el-clemente.bsky.social Mostly posting about: gigs, open data, Motherwell FC & Toronto Blue Jays
Whitney is Wicked @itswhitneywitch.bsky.social Disability Justice
Living with ME, EDS, POTS, MCAS, vascular compressions, spinal comorbidities & more
Ambulatory wheelchair user
Cozy gamer, lazy gardener, hopeful baker
Mike Smith @m-smith1978.bsky.social Pro democracy
Team Blue
Pro-Union.
Army Vet
Shih tzu dad.
#Maine Life.
#Bruins #Red Sox #Celtics #Patriots fan
#MS sucks
Puddi Whop @puddiwhop.com One and only vtuber made entirely of butterscotch pudding! Check me out on Twitch Profile pic by @goodnightfira
rs21 Edinburgh @rs21edinburgh.bsky.social Ecosocialist. Feminist. Anti-racist. We are a Marxist organisation with branches around Britain. See https://revsoc21.uk/
Fair Political Coverage - we want to hear from ALL our parties @fairpoliticsnow.bsky.social 2029 election a long way off but are we hearing ALL the issues being raised at Westminster, Holyrood & in the Senned? Some parties get constant coverage. To make informed choices u need to hear & see all parties on radio/tv. Let’s keep pressure on media.
Neurological Alliance of Scotland @neuroalscotland.bsky.social The Neurological Alliance of Scotland is an umbrella body of organisations that represent people with a neurological condition and those who support them. We work to improve the care and support that people receive.
Jessica Taylor-Bearman @jayletay.bsky.social Author of A Girl Behind Dark Glasses, A Girl in One Room and A Girl Beyond Closed Doors. Casual artist and public speaker too
Stephanie Ko @sinistralscribe.bsky.social Disabled & chronically ill admin, advocate, pixel pusher, plant enjoyer, costumier. She/her/hers.
💙 #MECFS et al. | 🎭 GM at @operamariposa.bsky.social
📍MST Territories (Greater Vancouver, BC)
https://stephanieko.carrd.co
Karen Radenkova @laradenkova.bsky.social Artist,partner, mother, keen archaeologist and baker of cakes! Carer for daughter with M.E. for twelve years, housebound for ten of those years.
Based in East of England.