Jenny @me-cfsgirl.bsky.social ME-CFS since 1995. Love crafting when I can find the energy. One of the WIMEL writers.
Publer @publer.com Schedule your Bluesky posts with Publer!
💚 Social Media Management Platform for Bluesky, Threads, Mastodon, Instagram, Facebook, TikTok, X, LinkedIn & more!
Learn more: linkie.bio/publer
Tess White MSP @tesswhitemsp.bsky.social Member of the Scottish Parliament for NE Region. Shadow Equalities Minister
Paul Sweeney @paulsweeney.bsky.social Labour & Co-operative Member of the Scottish Parliament for Glasgow
Sue Webber MSP @suewebbermsp.bsky.social Scottish Conservative MSP for Lothian Region
Shadow Cabinet Secretary for Transport
Foysol Choudhury MBE @foysolchoudhury.bsky.social Former Member of the Scottish Parliament | Former Shadow Minister for Culture, Europe & International Development.| Equality Campaigner | Dad | Edinburgh | Scotland
🌎 www.foysolchoudhury.co.uk
Alex Cole-Hamilton 🔶🇺🇦 @alex.scotlibdems.org.uk Edinburgh North Western MSP. Leader of the Scottish Liberal Democrats. Kremlin sanctioned. Dad. 🏴🇬🇧🇨🇦🇺🇦
Katy Clark MSP @katysclark.bsky.social Member of the Scottish Parliament, Scottish Labour, West Scotland - to get in touch email Katy.Clark.msp@parliament.scot
Neurological Alliance of Scotland @neuroalscotland.bsky.social The Neurological Alliance of Scotland is an umbrella body of organisations that represent people with a neurological condition and those who support them. We work to improve the care and support that people receive.
The Real ME 🏴👩🦽➡️♿️ 👩🦼🇵🇸 @therealmecfs.bsky.social Chronically ill & disabled person with lots of personal opinions, who sometimes likes a hat. Occasionally an advocate for PwME, gamer and proudly on the Autism spectrum. I’ve low tolerance for ignorance and assholery so if you come for a fight, expect one.
Bridget @brid41.bsky.social Chair, #MEAction Maryland
@meactmaryland.bsky.social
https://linktr.ee/meactmd
adolescent onset #MECFS, #LongCovid, #POTS, #dysautonomia, #MCAS, CPT2, #migraines, #PostHerpeticNeuralgia, #TrigeminalNeuralgia, recurrent #shingles
Cynthia Johnson @minetodo.bsky.social Storyteller. Advocate. Stand By ME/CFS!
#StandByMEcfs #StillSickStillFighting #UnitedForME #MEcfs since 2009
Robert Saunders (aka McMullen) @roberthmcmullen.bsky.social Author of "stranger and stranger”, letter writer, advocate and fundraiser for biomedical ME/CFS research.
FionaMECFS @fioname.bsky.social Victoria, Australia. Former professional wordsmith. 16 years living with the hell of myalgic encephalomyelitis (ME/CFS). Prone to so-called left-wing views & bingeing good TV 🤓
steffi @mecfshawaii.bsky.social Patient Advocate / pwLC / Caregiver to pwME 🦓🦒 #ME #EDS #POTS #MCAS #LongCOVID #MEActionHawaii
Pete Caruso @petecaruso.bsky.social Interested in research and awareness of invisible chronic illnesses: ME, Long COVID, Post Vaccine injury, POTS, Sjogrens, and Lyme.
Pfp: A man wearing a green face mask
Banner: Colorful MEmes from patient-led Long COVID and ME awareness
rthm_health @rthm.bsky.social RTHM is a secure health platform that makes it easy to gather your records, connect the dots with AI, and affordably access treatments.
C.H. Romatowski @chromatowski.bsky.social This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing.
ME ‘05, LC ‘23, many of their friends along the way. Very severely ill (FUNCAP 0.9). No unsolicited advice please!
Sabrina Poirier @sabrinapoirier.bsky.social #CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis +
#MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability
(Unceded) #Canada
https://linktr.ee/sabrinapoiriercanada
Alison Twycross RN PhD @alitwy.bsky.social Living with Long Covid.
Doing my bit to support UK healthcare workers with Long Covid.
Chair of Supporting Healthcare Heroes UK.
Associate Member Long Covid Support.
Former Professor of Children’s Nursing. #FBLC
Medically Induced Hermit @fallsthroughcracks.bsky.social • Spoonie🥄 • I ❤️ Nature & Wildlife photos 📷 • #ME/CFS • Healthcare worker (COTA) until disabled with multiple chronic illnesses & chronic pain • HERmit • Armchair Traveler • Slipping through the cracks = Medically Induced Hermit 👎•
Marie Jobin @whywhy.bsky.social Doctor in psychology, proud participant of #RemissionBiome first cohort, #EDSh #MCAS #ME/CFS. The pandemic is not over. #CleanAir #MaskUp #StandWithUkraine #StopGenocideInGaza- J Jessika @jessikafe.bsky.social ME sufferer from Sweden. Interested in everything that can make us/our situation better. #ME #ME/CFS
- F Rick Ford @fordski.bsky.social Retired Canadian currently living in Mexico. Mostly home-bound and bed-bound with Long Covid since mid 2022.
PurpleSpeedwell @purplespeedwell.bsky.social Mostly bedridden with #MyalgicEncephalomyelitis, a devastating illness with little funding and no treatment.
Toronto, Canada
Ally of #pwLC
#pwME #LongCovid #POTS #MCAS #MEcfs
Edna, ME Advocate & Carer 💙 @ednamacnamara.bsky.social 💙 M.E.Carer of son aged 32, ME for 13yrs 💙.
RaisingAwareness for
#PwME.
#Carers
#LCovid
#greatestMEdicalscandal
X Edna, M.E.Advocate 🇨🇮
https://www.irishexaminer.com/news/arid-40218716.html
http://www.idonate.ie/aMothersWalkforMECFSresearch
Becca @longcovidbecca.bsky.social Long Covid since 2022, ME/CFS and POTS. All damage from one infection. Former functioning person. Navigating the grief that comes with this illness taking so much from us.
#CovidIsAIRBORNE 😷
Jes B @jesbg.bsky.social Chronically Creative Person living with ME, POTS, hEDS, MCAS +
under_transformation @trans4m8tion.bsky.social Long covid brought me here, from fit to wheelchair. In a shitty club with great people #FBLC. No woowoo. #PEM #PESE #MECFS
Mastodon: @_trans4m8tion@zeroes.ca
Hanna Jo @hannajow.bsky.social Medically retired PT bc decades-long #ME/CFS, #MCAS, #hEDS, #POTS, #IIH, #CPP. Worked w/ ppl like me in a system that refuses to meet our medical needs. 🩺💉History/GINT B.A. b/f PT. #Alaskan born in #SC. 😉
Happiness is #GamecockWBB🏀🏆 #WNBA #Unrivaled
♿️👩🏼🦼➡
Madelinenerd @madelinenerd.bsky.social IamMadelinePOD #podcast: https://anchor.fm/i-am-madeline
#myalgicE #disability
Fb/inst/X @madelinenerdfighter
LATEST https://www.thecanary.co/global/world-analysis/2024/12/20/marcia-mecfs-canada/
WORLDWIDE PETITION pls sign https://bit.ly/Marcia_petition
MG @mg-10.bsky.social Love nature, good views, crafty/arty stuff, dogs, watching cycling 🚴.
M.E. Advocacy when I’m able to. Intersectional feminist 🏳️🌈♿️
@lifeatthewindow.bsky.social @lifeatthewindow.bsky.social Disabled. Living with severe M.E. Watching the world from the window while bedbound. Excuse typos etc, sometimes the cognitive bits don’t work. Also posting on endometriosis and a little on mental illness too 🏴
Fandango @sherbert-lemon.bsky.social Avid reader, occasional reviewer. Beginner genealogist & dysgu Cymraeg.
Retired by moderate-severe ME/CFS & chronic migraine.
Managed by Rowan. She/her. 
S.Jones @seastarsal.bsky.social Chronically enraged that I've had ME/CFS since 1992.
cfsgraphics.com
Medical Uncertainty @med-uncertainty.bsky.social Research project on experiences of medical uncertainty in Fibromyalgia, ME/CFS, Long Covid and Chemobrain. Hosted at @manchstm.bsky.social / University of Manchester, funded by the Wellcome Trust
https://t.ly/CYJ7V
Beth F W @omfcharitymugs.bsky.social Severe ME/CFS patient since 2006, fundraising for the Open Medicine Foundation, all proceeds from all sales go directly to OMF, Worldwide shipping🩵
https://omfcharitymugs.teemill.com
Mamgu With M.E @mamguwithme.bsky.social Mild M.E 2010-15; Severe M.E 2015-date.
🏴From Bed, Beddingham
🎄🎅🎁Christmas lover. Advocado hater🥑 Coeliac & PCOS.
⏳️Patiently waiting for a cure or treatment for M.E⌛️
Scottish Youth Parliament @officialsyp.bsky.social MSYPs are the democratically elected voice of Scotland’s young people. We want to make Scotland the best place in the world to grow up.
We're not around at the moment, but you can stay up to date on the work of our MSYPs here: linktr.ee/OfficialSYP.
The Scottish Parliament @parliament.scot The official account of The Scottish Parliament:
https://www.parliament.scot
Michiel @murtoz.bsky.social Horizontal advocate for #pwME. 🇳🇱 in 🏴.
Ally. Cis. PwME/LC. Volunteer with @meactionscotland.bsky.social. He/Him. #SaveSavannah #BIPOCLivesMatter #TransLivesMatter #EndGenocide #CovidIsAirborne #YallMaskin #CleanTheAir
@harvardhealthpub.bsky.social @harvardhealthpub.bsky.social 
#MEAction Network @meactnet.bsky.social A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
The City of Edinburgh Council @edinburghcouncil.bsky.social We provide over 700 services to Scotland’s capital city. Follow for news and information on life in Edinburgh.
If you have a service question, please contact us: https://www.edinburgh.gov.uk/contact
Open Medicine Foundation (OMF) @openmedf.bsky.social OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
The Edinburgh Reporter @edinreporter.bsky.social Our 3 million strong audience shows this is the place to read real local news with great photos all day every day. Got a tip?
Contact us - https://bit.ly/46DeluF
Website: https://bit.ly/4eOIisV
Subscribe: https://bit.ly/4gq7cRT
Newspapers: bit.ly/41UDBtS
Ben Macpherson SNP @benmacpherson.bsky.social Local, experienced SNP candidate for Edinburgh North Eastern & Leith ⚓️
Promoted by Calum Carswell on my behalf at @theSNP Gordon Lamb House, 3 Jackson’s Entry, Edinburgh, EH8 8PJ ✉️
@ScotGov Minister 🏴
Former Lawyer ✏️
Optimist ➕
Internationalist 🌍
Julie Rehmeyer @julierehmeyer.bsky.social Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.
Colin Smyth MSP @colinsmythmsp.bsky.social Scottish Labour Member of the Scottish Parliament for South Scotland. Dad. Queen of the South fan. E Mail ad: colin.smyth.msp@parliament.scot
ME Research UK @meresearchuk.bsky.social ME Research UK is a charity which funds scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS (charity number SC036942)
Scotinform Ltd @scotinform.bsky.social Whatever your research needs, we provide tangible and meaningful insights, that are tailor-made to meet your objectives. #GoodDecision
Shona Robison @shonarobison.bsky.social 
Phoebe @phoebsbo.bsky.social Life is being autistic and chronically ill with ME and writing about it. Doodle artist. Smorky's human. Scotland. She/her.
https://linktr.ee/phoebsbo
Microbetv @microbetv.bsky.social MicrobeTV is an independent podcast network for people who are interested in the life sciences. Our shows are about viruses, bacteria, parasites, evolution, immunology and neuroscience.
microbe.tv/contribute
Cort Johnson @cortjohnson.bsky.social Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
Jennifer Brea @jenbrea.bsky.social 
@postersandme.bsky.social @postersandme.bsky.social 
Cateye @cateye0611.bsky.social #ME #MECFS science & research nerd.
Focus: medical neglect & misinformation of/about infection driven severe #ME (Myalgic Encephalomyelitis) 🦠
22yrs 🛏️ 🏠 🤢
♥️ but 📛:
🚶♂️+🐕, 📚, 🕺🏻💃, 🎶, 🍹, …
Henry Anderson @macanders.bsky.social #pwme |Mild-mannered author | chronically hopeful | Sign up for my FREE course on writing https://linktr.ee/henry.anderson
It's M.E. Linda @happyhoundhouse.bsky.social 2001 PVFS 'Recovered' to 90% by 2006. Sepsis 2013 resulted in M.E. / relapse. Brain/fitness not 'what it used to be'. Beloved Lisnakill Myles-Happy Hound himself 🌈
John Peters @johnthejack.bsky.social Unbeliever (political & religious), Wales rugby, #c4news, porridge, tea, #MEcfs
'Obvious but wrong'
Also JTJ on the other place
https://johnthejack.com
@valebodi.bsky.social @valebodi.bsky.social Surviving MyalgicE aka ME/CFS & AAG to tell the story, pwME & advocate w/ a JD. Into MEdical, Social, Climate Justice & Arts. ME-dical apolide, Human Neutrino, Gnarled pacer
MEssland Worldwide https://www.tandfonline.com/doi/pdf/10.2217/fmb-2022-0031
Karen Denmark @kmdenmark.bsky.social Mostly just crocheting these days. Former USAF and maternity RN. #ME/CFS
@clairebakermsp.bsky.social @clairebakermsp.bsky.social 
ME/CFS News Aggregator @me-cfs.mastodon.social.ap.brid.gy ME/CFS News Aggregator run by
Yann @me-cfs.bsky.social.
Based on my news aggregator webpage
https://mecfsadvocacy.org/news/community/
(Run by @me-cfs.bsky […]
[bridged from https://mastodon.social/@me_cfs on the fediverse by https://fed.brid.gy/ ]
Brian Ferguson @brianjaffa.bsky.social Edinburgh-based arts and culture journalist.
Arts and Entertainment Journalist of the Year - 2026 Scottish Press Awards.
Any views expressed are mine alone.
www.heraldscotland.com
Holyrood PR @holyroodpr.bsky.social 
Karen Radenkova @laradenkova.bsky.social Artist,partner, mother, keen archaeologist and baker of cakes! Carer for daughter with M.E. for twelve years, housebound for ten of those years.
Based in East of England.
Nice Convos @niceconvos.bsky.social Now also on here. Still me. You might remember me from over there.
Scottish by Choice. YES & pro EU. Atheist. Love rural life, nature, animals, history, music, science & astronomy. Disabled. Intersectionality, human rights & equality. Ally. Say hi! 🙂
Evening Express @eveningexpress.bsky.social Official account of the Aberdeen Evening Express.
Local journalism for the north-east of Scotland worth supporting.
Anne @anneinayrshire.bsky.social Long term living with ME (over 30 yrs)
Have a lot of crashes but
Still trying
Still hoping
Largs, Scotland
@nick-pwme.bsky.social @nick-pwme.bsky.social 🙋♂️ 20+ years severe #MEcfs.
Mostly horizontal. Dorset uk.
⛵🏎
Marion Michell @marjojo2004.bsky.social Visual artist, writer, M.E. advocate (have severe M.E. and POTS). Author of SUPINELY SUBLIMELY. Queer. Pronouns she/her.
Catherine Hale @catherinehale.bsky.social Founder, Disability Insight. Independent research and policy consultant on disability employment and social security. Founded Chronic Illness Inclusion. #pwME and survivor of medical abuse.- M @marydimmock.bsky.social @marydimmock.bsky.social US ME patient advocate. Mother of a son and his wife who have ME and Long COVID. My other focus is on US politics and what's coming
Irish ME/CFS Association @irishmecfsassoc.bsky.social Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association-for Information, Support & Research
NB: Posts ≠ advice.
Registered Charity RCN 20100254.
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
Mama Chill Music @mamachillmusic.bsky.social #Watford Underground Hiphop/Rap/Storyteller. Not to be confused with a Womble 😜 #PWME #ADHD 🙏💜😜 x
Jessica Taylor-Bearman @jayletay.bsky.social Author of A Girl Behind Dark Glasses, A Girl in One Room and A Girl Beyond Closed Doors. Casual artist and public speaker too
Toasted Digital @toasteddigital.bsky.social We produce digital projects for people with purpose in education, culture, charity and social change.
The Lancet @thelancet.com Welcome to The Lancet, one of the world’s leading medical journals, published weekly since 1823.
🌐 thelancet.com
Bateman Horne Center @batemanhornecenter.bsky.social The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
NICE - National Institute for Health and Care Excellence @nicecomms.bsky.social National Institute for Health and Care Excellence.
We produce useful and usable guidance for the NHS and wider health and care system.
https://www.nice.org.uk/
Adam "Beyonce" Lowe @adambeyoncelowe.bsky.social Occasional drag queen in verse. Writer, performer, educator, activist Adam Lowe (he/his) as possessed by Beyonce Holes (she/her). 
Dan Wyke @danwyke.bsky.social Severe M.E., person-centred counsellor (not practicing), recovering poet (Rack & Waterloo Press)
christina4hope @christina4hope.bsky.social 👋ME/CFS ,Fibromyalgia , lyme Boriliose,Longcovid,MCS ,Vax Injured (not corrona vax),Hearing loss ect… Posts English and German.
Bavaria ,Germany
Adam @abrokenbattery.bsky.social Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbattery
Black Triangle Anti-Defamation Campaign Disability Rights @blacktriangleuk.bsky.social NGO Human rights and anti-defamation campaign in defence of disability rights. Scotland and U.K. - wide. Edinburgh 🏴 Established June 2010
blacktrianglecampaign.org
facebook.com/blacktriangle11
@blacktriangle1 on the fascist’s X 😉
Ruth Lampard @ruthlampard.bsky.social Looking out for blessings: in wildlife, nature, & kindness. Fan of rewilding, life too. Slow Pilgrim, priest.
Usually moderate to mild in views, occasionally sharp. No DMs, will block
Liz Nevra A. @nlizaki.bsky.social #MEActionNetwork health activist. Patient, project manager, translator & polyglot. ✊🏾 #Stoic #WoC @NLizaki & @SaveLizNevra on Twitter. #MyalgicEncephalomyelitis since 6. 28 now. #PMDD #hEDS #POTS #MCAS #LongCovid
Carole Bruce @cabruce.bsky.social Previously a psychotherapist.
Bedridden #ME 32years
Daughter severe ME, eldest son MS.
I like art, nature, books, people, music, poetry and podcasts!
Richard Vallée @richardvallee.bsky.social I play language. Mostly irreverent. Debugger.
AI. Global warming. Integrity. Health. Science.
Chronically ill punk rocker.
I think about the future a lot.
Cornell Center for Enervating Neuroimmune Disease @cornellmecfs.bsky.social Collaborative #research center based at Cornell directed by Dr. Maureen Hanson encompassing a variety of projects on #MECFS. Visit our website below for more info.
https://neuroimmune.cornell.edu
Simone @phoenixme.bsky.social Bed-bound activist with severe ME/CFS.
ME/CFS, chronic illness, #AusPol, #USPol, climate justice, social justice, crochet, cats, sci fi. Views expressed are my own.
If I had any spoons, I'd be dangerous.
Boonwurrung country, Australia
It's ME(Jaime) @exceedhergrasp1.bsky.social Scientific Director, #MEAction
Affiliations: Stanford Genome, Université de Montréal
TIME100 Health
#ME, #EDS, #POTS, #LongCOVID
Views my own
Jacqz-MEwarrior_au @mewarriorau.bsky.social ME advocate longing for a cure, or some form of treatment. Mum of 3, grandmum of 3. Lived with the horrendous & disabling disease #ME (not CFS) for 28 years.
#MyalgicEncephalomyelitis #pwME #MyalgicE (#MECFS #CFS) #LongCovid #ChronicIllness
Science for ME (S4ME) @s4me.info We're an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and carers, clinicians, scientists and advocates who support us.
Facts about ME/CFS:
https://www.s4me.info/threads/science-for-me-fact-sheets.43310
Valerie Eliot Smith @valerieeliotsmith.bsky.social Independent researcher living with myalgic encephalomyelitis (ME) since 1981. Barrister (ret'd) #TMTlaw Visiting scholar @QMUL Blog at http://valerieeliotsmith.com
Based in London, UK
Tina Rodwell @tinarodwell1.bsky.social Eclectic Mother and ME Advicate. Bag maker and same with a passion.