ME/CFS Science @mecfsscience.org · Jun 6 1) There is now also an paper on caring for patients with (very) severe ME/CFS. The guide describes how care should be adapted, from nutrition and personal hygiene to communication and dealing with energy limits and stress.
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Irgendwie komme ich hier gerade überhaupt nicht zurecht. Gibt es einen Link für diesen Leitfaden? Ich sehe nur das Foto, wenn ich darauf klicke. 🤷♀️
2) The guide explains that care for severe ME/CFS can often be counterintuitive. Even basic procedures such as repositioning, feeding, quiet communication, can trigger post-exertional malaise. And the overexertion is not always immediately visible ( the crash comes later).