ME Advocates Ireland (MEAI) @meadvocatesireland.bsky.social Advocating for People with Myalgic Encephalomyelitis (ME) of all ages & severities.
Webpages:
https://meadvocatesireland.blogspot.com
Email: info@meadvocatesireland.com
Rahul @rahulchaudhary0008.bsky.social Perth/WA📌
Explorer | Cricket | News | Education | Political & History 🙊🧏🏼♂️✌️☠️
Temme Tacsume @tem-me.bsky.social #CitizenScientist living with challenging chronic illnesses, among them severe skin conditions triggered by allergies. #ME/CFS. Promoting advocacy and efforts to improve research into these debilitating illnesses. Mastodon: @Temme@chaos.social
Patients with Power @ptswithpower.com Patient-scientist fighting for medicine based in SCIENCE; NOT BIAS⚡Calling out harmful healthcare culture⚡Breaking down difficult doctor behaviour✍️🧐
American Medical Journal @americanmedicaljournal.com AMJ: #1 open access destination for HCPs. Peer-reviewed journals & diverse content hub. Interviews, podcasts, webinars, infographics.
🔗: https://www.emjreviews.com/en-us/amj/
Donia ♾️ ♿️ @ethyricalartist.bsky.social Disabled artist 🇵🇷🏳️🌈
HOMELESS since 2025 🔗🌲⬇️🆘
Cats, art, nature, knit, crochet
PNW 🇱🇸
Create in bed when able bc of #MyalgicEncephalomyelitis
#SevereME since 2015
Late #ActuallyAutistic 🖖
Abolitionist
Anti-imperialist
Anti-AI
https://linktr.ee/EthyricalArtist
Dr. Sneha Deb @snehadeb.bsky.social
Helen The OT @helentheot.bsky.social Independent OT in private practice, coming soon | Supporting Long Covid, ME/CFS, POTS, neuro & cognitive challenges | Lived + clinical insight 💚
Cyber Anakin ✨💫🗽🇺🇦🌐🔱🏴🦁☀️🖤💜🤍😷 @cyberanakinvader.bsky.social Hacktivist ● #OpUkraine ● #NAFO ● #LongCOVID patient since 2022 ● #TakeDemocracyBack ● May the force be with you, always.
sarah boothby @swastrosarah.bsky.social Speaking up for everyone affected by severe/very severe ME/LongCovidME. #MEKills #MaeveInquest #pwME
backstory: https://x.com/swastrosarah?lang=en-GB Justice4ME.uk
ME is much more than chronic fatigue; it kills every year.
Beverly Stark 🌻💙💛 @beverlystark.bsky.social Writer, carer, tea drinker. Probably out walking the dog. Trying to stay hopeful.
ME Neddie @menana.bsky.social Another MECFS-Warrior. Mother of 3, located in the social sector, now retired due to my state.
Against all odds I keep my head up.
For more recognition, research and care.
PEM is non-negotiable!- J @justindstern.bsky.social @justindstern.bsky.social
Leslie Kasza @lesliekasza.bsky.social
Nic @lilnic000.bsky.social
❄❄Warthog Elsa❄❄🌊🇺🇦🇹🇼🎮😷 ☂️🗽🌏🏴🎗️🧡☀️🦁 @socookre.bsky.social Robloxian. #LongCOVID patient. #FreeLanternSociety supporter. I'm also known as Elsa Fidelis. Slava Ukraini! 🇺🇦
https://linkat.blue/socookre.bsky.social- M @mum2twins.bsky.social @mum2twins.bsky.social
Beth F W @omfcharitymugs.bsky.social Severe ME/CFS patient since 2006, fundraising for the Open Medicine Foundation, all proceeds from all sales go directly to OMF, Worldwide shipping🩵
https://omfcharitymugs.teemill.com
Jeff Turner 🦋🌈🦋🌈@loveneverhate @loveneverhate.bsky.social ✔️ NOW & FOREVER: WE WANT JUSTICE, LIBERTY & FREEDOM FOR ALL
✔️ Future generations will enjoy these GOD given rights because of our courage and integrity
✔️ LOVE is more powerful than fear & hate
✔️ l believe in:
LOVE NEVER HATE
✔️ JOIN OUR FIGHT FOR FREEDOM!
Tuuli-Marjatta @knitphysio.bsky.social Physiotherapist who loves knitting, sustainable clothing, science and writing. Former sports enthusiast. Life on hold due to long covid.
@benafo12.bsky.social @benafo12.bsky.social Respect, be good, be loyal, and have understanding
Cozy @drcozy.bsky.social We all need each other.
Chronic illness.
S.Jones @seastarsal.bsky.social Chronically enraged that I've had ME/CFS since 1992.
cfsgraphics.com
Chris Dixon @avalanchechris.bsky.social Mental health book author who is attempting to archive as much of MAGA's misdeeds on Bluesky as humanly possible.
Terraclash.co.uk fantasy board game. Sign up to the mailing list and get an exclusive Character if you back the Kickstarter.
Betty the tired teapot @bettyteapot.bsky.social
AnkeWe @ankijoy.bsky.social ME/CFS Warrior not by choice but destiny
(Profilbild: sick not tired in Schönschrift, große Fahne: moderate ME, darunter ein Haus, vor dem ein Rollstuhl steht, während drumherum alles weggebrochen ist)
Moira California @moiracalifornia.bsky.social Eco-Friendly Art & Culture from the Sierra Foothills
Photography. Dogs. Flowers. Climate. Art. Rage. Divinity in Nature.
“Beautiful Things for Catastrophic Times”
{pronounced mora}
Anne-Cath R @anne-cath.bsky.social Kronisk syk kolonihageentusiast 🌺 og tidligere crazy cat lady 😿💔
🇳🇴
Callirhoé @callirhoe.bsky.social Between illness and rebellion.
Climate, healthcare, anti-ableism, ophthalmology. EDS,MCAS, ME/CFS.
Climat, santé, antivalidisme, ophtalmo.
Engineer by training, activist by heart.
Fantasy &SF. Good Omens &Andor.
Posting in 🇫🇷/🇬🇧
https://linktr.ee/callirhoe_
QuyetPawz @quyetpawz.bsky.social 43 - Disabled polyam quest non-binary femme, geek living in Ottawa, Canada.
Loves board games & 3D Printing. Retired CanFURence Co-Chair
PFP is by Jinxsis
Ask to DM because my DMs are off.
https://voggtech.ca/qp/
Liz Meddings @lzmddings.bsky.social Heat, vent engineer. Energy efficiency. Passivhaus Designer, Retrofit Coordinator. Life indefinitely paused: disabled after a concussion.
Jessie @jessie-siobhan.bsky.social Hi! I'm Jessie. Full time Covid Longhauler surviving in Meanjin/Brisbane, Australia with my fluffy little demon cat, Harry.
Nanette Suzanne Danielsson @nanettedanielsson.bsky.social 🦋 Activist with ME ♿️ PhD in Psychology 🎓Former researcher 📚 & integration strategist💡Expat in Sweden 🇺🇸➡️🇸🇪 #Latina🌶🐕🌳🎨🖼✍️ #Democracy #ProChoice #HumanRights #SocialJustice 🏳️🌈🏳️⚧️♀️♻️✊🏾⚖️🌎🙏🕊💙 #ChronicIllness #ME #MECFS
#MillionsMissing 🚫Crypto 🚫DMs 🟰 Block 🚫Porn
Suzanne Forbes aka Slurketta @suzanneforbes.bsky.social Queer disabled MECFS (and Filth!) Elder in Berlin, housebound retired artist. Still respirator masking. Trans rights FOREVER. Sex worker ally. Baby vegan. Location: Atlantis by Gaslight. She/her.
MastcellMadness @mastcellmadness.bsky.social Mad mastcells and petulant PEM from Long Covid.
More precisely, LC of the subgroup MEcfs and MCAS.
Michaela Neumann @michaelaneumann.bsky.social Yoga and Bellydance Teacher 🪷
#NoAfd | #ME/CFS | #OneLove
https://www.neumann-michaela.de
Manderella @manderella.bsky.social Cat, dog & human mum. Shambling through mid-life, caring for daughter with ME/CFS.
AlisonRTB @atb15.bsky.social Politics 🌹 Comms, Community Development, Facilitator. 🏳️🌈🏳️⚧️ Equality, simplicity, integrity, peace, community. 🐱 🐕 slave. Like 🍷 🧀 🥖 📚 & laughing. ADHD. ME/CFS. Mum of fab 👩❤️💋👨 Quaker ☸️🧘🇬🇧🇪🇺
Gro @mesnag.bsky.social Clarinettist. Conductor. Caregiver.
4 cats, 2 kids, 1 husband.
Linda Bringedal @libri.bsky.social ME-mamma, hageglad og grønn
Beate 🖇️ @beate.bsky.social Livet har alltid og til alle tider handlet om å henge i ei liane utfor et stup, med en tiger over og en tiger under, se en mus komme og gnage på liana, strekke ut armen til markjordbærne som vokser der, og nyte smaken.
Dyslektiker
Claudine Prud’homme @clau-prudhomme.bsky.social #MECFS #POTS #Fibro patient/atteinte d’EM/POTS/Fibro- since 2008 🇨🇦
New caregiver of my 19yr old son with severe #LONGCOVID/ME #POTS 😢😭
Former veterinarian
Membre comité scientifique AQEM-
post infectious illness interest
El Zorro, der maskierte Reiter @elzorro777.bsky.social Antifaschismus, Politik, Literatur, Musik, Film, Gaming
#ME/CFS #MillionsMissing #MEAwareness #TeamWissenschaft #TeamVorsicht
#FCKNZS #noAfD #wirsindmehr
#Games
Wholesome Animals 🐶 @wholesomeanimals.bsky.social Sharing the most wholesome animals on the internet 😍
Katharine Sutton @katharinesut.bsky.social Director of Aspire, Betterforus campaign - all for blue sky thinking - posts on labour markets, discrimination, procurement, equality, poverty, inequality and regeneration www.aspirecommunityworks.com www.betterforus.org.uk
Kenny Lenny Kirk @kenkirk.bsky.social #YEG #Alberta #Marijuana Party #NDP
#Politics #Legalize #Cannabis #Democracy #Socialism #Music #Audio #Video #ESLtutor #ABpoli #ABleg #CanPoli #CDNpoli
reverbnation.com/DoctorReefer
facebook.com/kennylennykirk
linkedin.com/in/kenneth-leonard-dr-reefer-kirk
Emily Chatelet @emilychatelet.bsky.social Biochemistry Geek, Research Analyst, Dogged Advocate, Optimist In Spite of The Deluge.- P Patrick Halston @patrickhalston.bsky.social Literary critic
My Favourite Bench @myfavouritebench.bsky.social Hi Everyone 👋 My name is Paul and I like many others love Benches and thier wonderful views. Many of the Benches I post will be Benches that have been sent by Bench Fans from across the world. Please give me a follow and lets just have a bit of fun 🙏
Mamgu With M.E @mamguwithme.bsky.social Mild M.E 2010-15; Severe M.E 2015-date.
🏴From Bed, Beddingham
🎄🎅🎁Christmas lover. Advocado hater🥑 Coeliac & PCOS.
⏳️Patiently waiting for a cure or treatment for M.E⌛️
@dawncollett.bsky.social @dawncollett.bsky.social
@slow-blinks4cat.bsky.social @slow-blinks4cat.bsky.social Person with ME/CFS, formerly a science teacher
PhillyPhile215 @phillyphile215.bsky.social Just a Philly girl, livin' in a lonely world…and a Luddite learning (now) to BlueSky. #LongCovid since March 2020
steffi @mecfshawaii.bsky.social Patient Advocate / pwLC / Caregiver to pwME 🦓🦒 #ME #EDS #POTS #MCAS #LongCOVID #MEActionHawaii
Emory 🩶 @emory-f8.bsky.social I write dark Victorian fiction and specialize in the long 19th century.
She/Her 🏳️🌈🇪🇸✡️ (I'm always kind)
#writer #historian #Lesbian #sapphic #wlw #Hispanic #feminist #goth #vampires #jpop #bibliophile
NO DMs | Terfs & Narcissists DNI
Cffnthmrnng @cffnthmrnng.bsky.social #LongCovidKids #LongCovid
#ME/CFSKids #ME/CFS
#MillionsMissing #CureME
Venus Garcia @venusgarcia.bsky.social Marketing
@lifeatthewindow.bsky.social @lifeatthewindow.bsky.social Disabled. Living with severe M.E. Watching the world from the window while bedbound. Excuse typos etc, sometimes the cognitive bits don’t work. Also posting on endometriosis and a little on mental illness too 🏴
Shosha Capps @sacapps.bsky.social Co-Director, Community Engagement Core @ UC Davis Environmental Health Sciences Center
Anne @anneinayrshire.bsky.social Long term living with ME (over 30 yrs)
Have a lot of crashes but
Still trying
Still hoping
Largs, Scotland
Michael-Anne @michaelannewrites.bsky.social Queer crippled writer.
Disability advocate
Tired
Niko Suvisto @nikosuvisto.com Life on hold by severe #MECFS, currently 99% bedbound 🛌
Documenting my life like it is now, advocacy through photography 📷
📍Finland
https://nikosuvisto.com/
Mark Joyella 🚫👑 @standupkid.bsky.social Senior contributor, Forbes. IBMer. Adjunct professor, Iona University. 5-time Emmy-winning reporter. Emory. UGA #GoDawgs. Arsenal FC.
https://www.forbes.com/sites/markjoyella/
https://www.menshealth.com/author/231297/mark-joyella/
Alison Twycross RN PhD @alitwy.bsky.social Living with Long Covid.
Doing my bit to support UK healthcare workers with Long Covid.
Chair of Supporting Healthcare Heroes UK.
Associate Member Long Covid Support.
Former Professor of Children’s Nursing. #FBLC
monique d'hooghe ♿ they/she @moniquedhooghe.bsky.social They, she
♿ peace & social justice activist
anarchist
Nothing about us without us
Felix @simiaexmachina.bsky.social Ex theoretical physicist and current software engineer/metallurgist/AI developer "enjoying" his fifth year of long covid/ME
Scott Kominers @skominers.bsky.social Market Design/Entrepreneurship Economist • Harvard
Research Partner • a16z crypto
Editor • Review of Economics and Statistics
Puzzle writer & NFT enthusiast, QED | http://scottkom.com/
Arthur @unrealarthur.bsky.social ME Patient-ly Waiting for Biomedical Research | Volunteer @crunchme.bsky.social
#GreatestMEdicalScandal @unreal_arthur crunchme.org- S Simon McGrath @simonmcg.bsky.social I occasionally try to explain and comment on ME research, or even contribute to it. And I advocate for more and better research.
Lucinda Crimson @elsiemagenta.bsky.social Artist/teacher with me/cfs, adhd, cats and a vegan kitchen 😷
Living on Whadjuk Noongar Boodja.
https://www.lucindacrimson.com
Karen Denmark @kmdenmark.bsky.social Mostly just crocheting these days. Former USAF and maternity RN. #ME/CFS
Wilhelmina Jenkins @wilhelminaj.bsky.social Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
Anne @annekhlr.bsky.social 42-jährige Münchnerin mit #MEcfs nach einer Corona-Infektion im April 2022, die Hörbücher 📚, Podcasts 🎙️ und die #kleineKunstklasse 🎨 mag.
sandraleurs @sandraleurs.bsky.social Beruf: Altenpflegefachkraft
Hobby: Musik alle Genres