Adam @adamleed.bsky.social Here for ME/CFS info. Fatigue & brain fog limit my interactions quite a bit.
Love animals, the outdoors and happy stories, work in art department for photo and video production.
Ceasefire in Gaza, open fire on CEOs.
What Would John Brown Do?
Flax Towels @loosewheel.bsky.social Space Hopper. 3rd Rock.
Ho/Hum
@ltollet91.bsky.social @ltollet91.bsky.social
@john0634.bsky.social @john0634.bsky.social Retired and living in Hampshire. Follows Southampton FC, Hampshire CC. Irish heritage. Long Covid. Simple Minds 1979 to 1984, Factory Records and Postcard Records. The Cure and Post Punk. Politically, the centre left and after a "fairer" society. No DMs
@barbaralavelle.bsky.social @barbaralavelle.bsky.social
ME Advocates Ireland (MEAI) @meadvocatesireland.bsky.social Advocating for People with Myalgic Encephalomyelitis (ME) of all ages & severities.
Webpages:
https://meadvocatesireland.blogspot.com
Email: info@meadvocatesireland.com
Cas✨// Snap @snapcracklepoppies.bsky.social 🥄 Medical Hot Mess with too many acronyms 🦓
• ARC reviewer • Monster romance enthusiast 📚
• BL/GL manga lover
• SKZ fan 🐰 🐺 🐷🐇 (polyOT8)
• Geology & Climate Science nerd
• Anti-GenAI ⛔️
😷 Still Masking 😷
🌈 Queer AF | 30+ | 🔞NSFW
Neuroscience Research Highlights @nsrhighlights.bsky.social Neuroscience Research 掲載論文の新しい発見を、研究者にも一般の方にも届く形で紹介します。Independent, unofficial account sharing discoveries from papers published in Neuroscience Research.
https://www.sciencedirect.com/journal/neuroscience-research
Britta Berlin @brittaberlin.bsky.social Team Vegan, Love all animals the same way, Crazy about Gardening, MECFS since 2007, Tax the Rich and make the right things: an der fehlenden Steuergerechtigkeit zerbrechen unsere Demokratien. Wir sind die letzte Generation.
Kater der Vereinten Nationen @katerderun.bsky.social I like birds. And cheese. And social justice.
SWA @swalexander.bsky.social
gnommy goblin 😷🐦⬛ @nijomikandaifuku.bsky.social this and that, stuff and what have you
Science for ME (S4ME) @s4me.info We're an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and carers, clinicians, scientists and advocates who support us.
Facts about ME/CFS:
https://www.s4me.info/threads/science-for-me-fact-sheets.43310
aaron @amdesign.bsky.social architectural designer. science and technology enthusiast
Claire Richardson @clairehistory.bsky.social PhD candidate at ARU Cambridge studying the Norman Cross PoW material culture at Peterborough Museum. Author of Exploring the Lives of Victorian Prostitutes. Member of Peterborough Women’s History Group #ME/CFS
Michiel @murtoz.bsky.social Horizontal advocate for #pwME. 🇳🇱 in 🏴.
Ally. Cis. PwME/LC. Volunteer with @meactionscotland.bsky.social. He/Him. #SaveSavannah #BIPOCLivesMatter #TransLivesMatter #EndGenocide #CovidIsAirborne #YallMaskin #CleanTheAir
Pete Clark @peteclark.bsky.social Tolkien fan, occasional folk singer. Some of my songs and poems are at https://apoolofsong.wordpress.com/
@riverbythesea.bsky.social @riverbythesea.bsky.social
Marion Michell @marjojo2004.bsky.social Visual artist, writer, M.E. advocate (have severe M.E. and POTS). Author of SUPINELY SUBLIMELY. Queer. Pronouns she/her.
Jane Gough @coxypippin.bsky.social Living with Long Covid. Mum to Long Covid kids. Lover of nature.
In a world where you can be anything, be kind ❤️
Avishek @avisghosh.bsky.social I am a self taught artist,living in kolkata india .. I am born in 1991 , here I will post my every days works .
hiyd.uk @hiyd.uk Hiyd - the Jekyll companion app for iOS
https://apps.apple.com/gb/app/hiyd/id6746853559 & https://hiyd.uk made by @thechels.uk
HERITAGE Long COVID and ME/CFS study @heritage-study.bsky.social HERITAGE is a UK research study on Long Covid Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) study. Led with patients, studying care models, outcomes & costs to improve services nationwide. NIHR funded.
https://heritage.leeds.ac.uk/join/
Liminal glimpses & absurdity @francescaprada.bsky.social Filmmaking, story seeking, flaneur, friend
Ahimsa @ahimsa-pdx.bsky.social Vegetarian, book lover📚
ME/CFS since 1990 ♿️
She/Her
What's ME/CFS? = https://www.s4me.info/threads/science-for-me-fact-sheets.43310/#post-596527
Mastodon = https://disabled.social/@ahimsa_pdx
Profile: Tabby cat w/white chest & paws
Banner: Green trees
Karen @eethie.bsky.social Mainly here to look at dog photos.
Might occasionally chat #Pompey 💙 | #F1 🧡 | #ME/CFS 💙 | #MentalHealthNursing 💚
@jhuff.bsky.social @jhuff.bsky.social I generally don’t deal in absolutes
Panda Queen @jaycee888.bsky.social In my Rebellious Queen Era - living life in PJs. Compassion, Creativity, Self-Love & Long Covid. With just a little bit of glitter.
#longcovid #mecfs
#emotionalwellbeing #selflove #mentalhealth
Mandy @mandylifeboats.bsky.social Happily married, cat loving Londoner. Leftie, activist, journalist (sub) but ME shrank my world … now housebound but still smiling. Mostly!
#pwME #ChronicIllness #ME/cfs #Spoonie #ChronicPain #cats #CatsOfBlueSky #DadJokes #BeKind
Tony Britton @thewestonmale.bsky.social Retired UK journo and charity PR/fundraiser. Proud dad and grandad. Such an Oddfellow. Soft spots for @MillMedia.bsky.social, @newjournal.bsky.social and @FenlandOF.bsky.social. By the way, I also ❤️ #Tasmania
Patricia Donnellan, MPH 🇺🇦📎 @stpaulsbay.bsky.social Patricia Donnellan, MPH | Found the unifying cause of chronic disease: rs5522-driven inflammation. Cured my own 29-yr CFS. Proving it’s fluid, not fat—from Long COVID to Maternal Mortality. 🧬
www.beyondbloodtests.org
Grace Solutions Ltd. @grace-solutions.bsky.social A tech services and support company here to help you achieve your goals by crafting aligned, best-value tech solutions. Specialises in supporting and providing discounted services to not-for-profit organisations.
Based in Cambridge, UK.
HercuWise @hercuwise.bsky.social UK 🏴 start-up focussed on preventive workplace health | Evidence-based digital solutions for all sizes of organisations | hercuwise.com | info@hercuwise.com | Posts by @drsuzannebarr.bsky.social (Senior Research Fellow (Visiting) @KCL)
Andrew Gifford @andrewgiffordphoto.bsky.social Depleted human. Slowly making photographs about a life with ME/CFS, like Long Covid.
https://linktr.ee/andrewgifford.photography
Bristol, UK. 335.42 ppm. He/him/oi.- M @mslillis.bsky.social @mslillis.bsky.social Mostly here in the hopes that news delivered via comedians is more palatable :-)
Oevie @oevie.eurosky.social Schaamteloos linkse deugneus. Zuur bovendien.
Hart ❤️ voor groen 🌱🐛, blauw 💨🌊🇪🇺 en alle vredelievenden onder de regenboog 🌈
Heimwee (toen: 🏊🚵🏼🥾⛵️ nu: 🦠😴♿️)
Citizens Advice Wirral @citadvicewirral.bsky.social Welcome to Citizens Advice Wirral, your local charity offering free, independent, confidential, and impartial advice 💙
We help residents of Wirral tackle a wide range of issues, including debt, benefits, employment, housing, and more.
Avilien Dard @avdar66.bsky.social #MSCA #Postdoc, Van Breusegem Lab #VIB -UGent Center for Plant Systems Biology #plantscience #redox
https://linktr.ee/Avilien.dard
Leslie Kruize @kroozl.bsky.social Consummate lurker. My opinion is not important enough to post, but I want to learn and add value. PNW
@ravenfingers.bsky.social @ravenfingers.bsky.social They/them. Against oppression, patriarchy + psychopaths in positions of power. Egalitarian. Democratic eco-something. Lover of all wildlife, not a lover of homo sapiens. Unwell neurodivergent zebra. Love 60s/70s/90s culture
Richard Lewis @z3r0gravitas.bsky.social Extropian sci/tech geek. Improving moderate #MEcfs, #non24-hour sleep. #ADHD-PI, #AuDHD, #dyslexic. "ZeroGravitas" in PC gaming. He/him. 43. Please correct me. https://linktr.ee/ZeroGravitas
The Magic Squirrel @onemagicsquirrel.bsky.social
Rebecca @softgothkitten.bsky.social She/her, chronically ill, writer.
BA degree in Disability Studies
Anti-eugenics, pro-masking & clean air.
RFK Jr & MAHA hater
Free Palestine
Swifts and Swallows @swiftsandswallows.bsky.social My daughter had Severe ME, POTS & MCAS and died in 2024 after years of medical neglect.
I am also the parent carer of a younger daughter with ME & POTS.
Loves to see cute photos of cats, birds & animals so I can share with my daughter to brighten her day
bexlogan.bsky.social @bexlogan.bsky.social Living with Long Covid induced ME since April 2020 | Existing from bed | Advocate | POTS | Former NHS staff nurse & fitness instructor |
Ronald Buitendijk Fotografie @ronaldbuitendijk.nl Dutch wildlife and macro photographer trying to make the most of it while living with Long Covid.
🌱
www.ronaldbuitendijk.nl
Mads @blueforpwme.bsky.social 🇬🇧DxwM.E.1995-EBV.ex-dancer,⛱️lifeguard,performer,working on writing my 1st novel to rep #pwME! #PAIS I’m a dreamer,nature lover & surfer 🏄♂️🛹1-2 times a yr if I’m lucky. AuDHD Many undiagnosed comorbidities! Ie.MCAS.OI/DYSAUTONOMIA.EDS. GASTRO.CHIARI/SPINAL🦋
@danirmt.bsky.social @danirmt.bsky.social
@freddyiskrueger.bsky.social @freddyiskrueger.bsky.social
@ghirlfriday.bsky.social @ghirlfriday.bsky.social
Katie As @katieas.bsky.social 🏳️🌈💙pw/ME #LwiththeT arty activist MyalgicE -Still Masking 😷
(I have left the other place permanently, please interact with me here!)
@cm297.bsky.social @cm297.bsky.social
sarah boothby @swastrosarah.bsky.social Speaking up for everyone affected by severe/very severe ME/LongCovidME. #MEKills #MaeveInquest #pwME
backstory: https://x.com/swastrosarah?lang=en-GB Justice4ME.uk
ME is much more than chronic fatigue; it kills every year.
Dr. with Mask😷💉6x @sonas893.bsky.social Dr. in Physik, #NoAFDP, #TeamWissenschaft, #CovidIsNotOver #MaskUp, #DavosStandard für alle
Hamburgerabroad @hamburgerabroad.bsky.social A Hamburger on the Isle of Man. Living and pacing one day at a time while waiting for more treatment, research and answers for ME/CFS and POTS. In the meantime being kept company and being kept sane by two Miniature Schnauzers.
Callum Laing @callumlaing.bsky.social I help ambitious people raise capital, get board seats, take companies public. Let's get more entrepreneurs and builders on bsky!
Author of 4 best selling business books
Gillian Kent @cambridgegill.bsky.social
Mel @melwin7777.bsky.social Disabled veteran with Ehlers Danlos Syndrome and ME/CFS
AuDHD - passionate about weather, music, books, animals, and kayaking/exploring nature
I live in the state of Misery
Gardener🪴 @lat611.bsky.social Nature loving, tree hugging, cat mom.
Stephanie Ko @sinistralscribe.bsky.social Disabled & chronically ill admin, advocate, pixel pusher, plant enjoyer, costumier. She/her/hers.
💙 #MECFS et al. | 🎭 GM at @operamariposa.bsky.social
📍MST Territories (Greater Vancouver, BC)
https://stephanieko.carrd.co
Open Research and Public Engagement Roadmap @engagedroadmap.bsky.social Co-Creating Ireland's Public Involvement in Open Research Roadmap
ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.
@pwme.bsky.social @pwme.bsky.social
Nobody @davidepike.bsky.social Teaching. Geography. Urban Planning & Design. Geosciences. Biological Sciences. Climate. Anti-fascism. Anti-racism. Anti-ignorance. Music. Art. History. Basset Hounds. Bicycles. Lichen. Cryptobiotic soil crusts. Pandemics. Books. Reading. Learning.
Comprendre l'EM @comprendrelem.bsky.social Comprendre L’Encéphalomyélite Myalgique est une publication par et pour les personnes avec EM. Il est voué à la diffusion des savoirs sur l’EM/SFC, en français, de manière simple et didactique. Et aux réflexions politiques.
Harriet Carroll: Long Covid Scientific Consultancy @angryhacademic.bsky.social #LongCovid Scientific Consultant
PhD Nutrition & Metabolism
Hon Research Fellow, Lund Uni
Posts: nutrition ▪ health ▪ all-things-science ▪ activism ▪ fun facts ▪ #PostVac
Donations: https://ko-fi.com/drsmash
Facebook: https://www.facebook.com/LongCovidSC
Steven Devote @stevendevote.bsky.social AuDHD and dyslexic. Eats meat. OAP. Lefty., 81% Celt. 🔻
Chelsea Without Barriers @chelseawbc.bsky.social Chelsea’s Official Global community uniting disabled Chelsea fans worldwide.
https://chelseawithoutbarriers.com/
Beverly Stark 🌻💙💛 @beverlystark.bsky.social Writer, carer, tea drinker. Probably out walking the dog. Trying to stay hopeful.
Still COVIDing Canada @stillcovidingca.bsky.social https://stillcoviding.ca/ | https://linktr.ee/stillcovidingcanada
#StillCoviding #COVID #CovidIsntOver #LongCovid #CovidLongue #BringBackMasks #Never51
Dr Nigel Fletcher @nigelfletcher.bsky.social Wanderer in the fourth dimension. British political and constitutional historian. Co-founder, Centre for Opposition Studies.
Distracted by cats and camp classic telly. Will run for cake.
🖊️ 📖 🇬🇧 🏰 🐈⬛ 🏳️🌈 📺 🍰🏃🏻♂️
www.nigelfletcher.org
Fiona Eccles @fionaeccles.bsky.social Research into psychological impact of living with neurological conditions, including Parkinson's, Huntington's disease, dystonia and FND. Clinical psychology trainer. Own life restricted by ME/CFS.
Photo coming!
@penelopidia.bsky.social @penelopidia.bsky.social
no @no-map.myatproto.social human evolution & migration; public health; cozy distractions
Joanna Redfeather @joannaredfeather.eurosky.social MSc Data Science student. BSc Hons Zoology grad.
Interests: Behavioural ecology, rewilding, HORSES! 🐴, communication, data, coding, ML, EDI&A 🏳️🌈. Ex tech SEO & analytics.
Kindness. Hope > hate 💚
AuDHD. #pwME. UK 🇬🇧
Nicky Proctor @nickyproctor.bsky.social New here...
Writing up my PhD in coach learning and development.
Love learning, family, ancestry and tolerance.
Campaigning for better healthcare for ME
#Biggest Medical Scandal of 21st Century
Michael Swan @michael-swan.bsky.social
Susan Tomlinson, BSc, DipPsych, PGDip, MSc, PhD, GMBPsS. @susantomlinson.bsky.social Research Fellow, School of Health Sciences, University of Nottingham. Interested in clinical academic careers, research culture, hospice & palliative care, medical complexity, clinical, health, & social psychology.
Sophie Keane Incredulous @totallyincredulous.bsky.social absolutely incredulous.
Ellie @ellie9.bsky.social Climate lawyer on pause with ME/CFS and LC
ME/CFS research @cfsresearch.bsky.social Interested in research into ME/CFS/MECFS, FND and related conditions. https://medium.com/@cfs_research
fractalozelot @fractalozelot.bsky.social #HumanRights #DisabilyRights #UniversalDesign #Environment #ClimateChange
#Intersectionality #vegan #plantbased #SignLanguage #Teckenspråk
Am Chima @ace9801.bsky.social ME - patient/advocate LC, ME/CFS & more; RACE - human; RELIGION - truth; BIAS - unbiased integrity/evidence based science/reality; AVERSIONS - money, ego & power driven DEMENTORS; ASPIRATIONS - a DEMENTOR-free world & satisfying my “cerebral nerd crushes'!
monique d'hooghe ♿ they/she @moniquedhooghe.bsky.social They, she
♿ peace & social justice activist
anarchist
Nothing about us without us
Aoife Kiely @aoifemk.bsky.social
@easypublic.bsky.social @easypublic.bsky.social Studies and Information on Long Covid, Post Vac, MECFS
Lynn @wonkyparent.bsky.social
Dickon Young @dickonyoung.bsky.social
@fowlo.bsky.social @fowlo.bsky.social
Wallflower 🌸 @princessofthedark.eurosky.social 🦼 #ME/CFS
Hungry for life, future, perspective.
Instead, stagnation, trapped in MECFS hell
"and then you have no choice but to search for life in the ruins" (A. L. Tsing)
#LearnaboutME https://www.mecfs.de
Matrix: @princessofthedark:matrix.org
Lauren Towler, Ph.D. @laurentowler.bsky.social Lecturer in health psychology and sex researcher @University of Southampton | Interests include: sexual wellbeing, condom use, sexual aging, body image, health inequalities, disability/chronic illnesses and sexuality | spoonie 🥄♿️| she/her
PH 🕊️🌱😷 @ph-ph-ph.bsky.social 🕊 2050 is too late 🌏 it’s a climate + biodiversity EMERGENCY 🦋 SARS-CoV-2 is in the AIR: ventilate/HEPA #BetterMasks 😷 #ZeroCovid 🌱 PUBLIC Health
EVERYTHING is connected
30,000(+) 💔 AUS SARS2
@sickroll.bsky.social @sickroll.bsky.social Part time artist, full time sick person
Living Not Existing @livingnexisting.bsky.social Reaching out to others with #ME/CFS. Learning to live a new life after Sepsis
Todd Blume @toddblume.bsky.social
Au Contraire @jcontraire.bsky.social Interests: Civility | Democracy
| Long Covid | ME/CFS | MCAS | Autism | PDA | Alexithymia | Repost/Follow/Like doesn't imply endorsement
@cazzie-d.bsky.social @cazzie-d.bsky.social Associate Professor of Neuroscience and Genetics, Biomolecular Sciences Research Centre and Advanced Wellbeing Research Centre, Sheffield Hallam University
Long COVID, ME/CFS, pharmacogenetics
Rob L @robll.bsky.social Woodworker, Science, Architecture, OSINT, Politics, A Multipotentialite. Greatly afflicted by what I'm told is MECFS
Dorset Resident