Good to Know @goodtoknowhq.bsky.social Site to find your new favorite thing | Give/get feedback!
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Tiger-Lily Snowdon @tigerlilywrites.bsky.social Freelance Journalist
London School of Journalism Diploma
Bylines: The Guardian, The i Paper, The Lead, Inspire the Mind, Shout Out UK
https://linktr.ee/tigerlilywrites
Solveig Marie Stenbæk @sunroadstonecreek.bsky.social Living with Myalgic Encephalomyelitis, ME—not CFS.
Jon Lebkowsky @weblogsky.com Podcaster at https://plutopia.io. Blogs at https://unshaved.substack.com/ and https://weblogsky.com. Co-host of Plutopia News Network https://plutopia.io Exploring both digital culture and the dharma.
Jenn Jackson, MPH, RDN, LD (she/they) @lovejennik.bsky.social Fat liberationist, COVID realist😷, queer AF 🏳️🌈, trauma-responsive eating disorder dietitian (she/they) - lived experience=disability, T2DM, perimenopause + neurodivergence 🎙️ podcast: https://bsky.app/profile/embodimentrestofus.bsky.social
Jenny @me-cfsgirl.bsky.social ME-CFS since 1995. Love crafting when I can find the energy. One of the WIMEL writers.
European Medical Journal @emjreviews.com #1 open access destination for healthcare professionals globally.
🔗 emjreviews.com- K @keyrn.bsky.social @keyrn.bsky.social
American Medical Journal @americanmedicaljournal.com AMJ: #1 open access destination for HCPs. Peer-reviewed journals & diverse content hub. Interviews, podcasts, webinars, infographics.
🔗: https://www.emjreviews.com/en-us/amj/
Nev @alphukit.bsky.social Outdoors and all things nature type of guy.
I love camping, hiking, foraging and travelling anywhere, anytime.
SDenise 🌱ⓥ🏳️🌈 @sdenises.bsky.social •Retired adult education teacher (literacy, GED, ESL/ESOL/EFL, etc)
•Love science, fiber arts, linguistics (English/español)
•Ehlers-Danlos Syndrome (hypermobility), multiply neurodivergent, vegan, childfree cat lady in ATX
•Progressive, of course!
Kate @mcgammarayz.bsky.social Liberal, voting 💙 since 1978. Generation Jones. Mom, grandma, wife. Retired teacher. Covid long hauler, living with dysautonomia and me/cfs. I ❤️ books, movies, art, music, naps, social justice and blocking right-wing wing nuts. No DMs.
❤️ 🏜 ☮️ ♍️
Quality Trust for Individuals with Disabilities @dcqualitytrust.bsky.social Our mission is to be a force for change in the lives of people with developmental disabilities and their families so they can succeed, thrive, and experience full membership in the community. Learn more: www.dcqualitytrust.org.
Chris Persky @thegreatpersky.bsky.social Childless Cat Man Pro Science Pro Choice Pro Democracy (The North will rise again!!) I pay for good journalism and give it away. Branded affiliate for vegan fashion accessories. https://www.corkor.com/wwwlinkedincominchrispersky
Shannon Has Notes @sweetdsstr.bsky.social Medically inconvenient cryptid.
Haunted pancreas.
A disabled witch, advocating for disability rights, HUMAN rights, and radical empathy.
Burn it down 🔥 Start again. Keep fighting.
Niek @sesquipedalo.eurosky.social work: innovation in social non-profit - persons with disabilities
non-work: boardgames, futsal, drums, film
family: wife, daughters, basset
interests: all of it, everything, share your passion, i want to know it all
Vanessa Global @vanessaglobal.bsky.social 196K LIBRARY: universities,libraries,politicians,scientists,academics, lawyers,economists,linguists,historians,writers,BLUE, ANTIFA!
Me: brown NA,Oregonian,veteran,globetrotter,critical thinker,linguist,teacher,reader,atheist,constructive,ANTI-TRUMPIST
Hannah Sanchez @nutzlikeabeech.bsky.social CW : fundraising , stage 4 colorectal cancer , colostomy , medical trauma , disability , neurodivergent , addiction , politics , poetry , grief , rest is resistance
@greenspringrise.bsky.social @greenspringrise.bsky.social If not love, what are we here for!
Will @willgarcia820.bsky.social Feel free to share my posts. Get the message out there. Inform everyone.
Pa.
FB: Will Garcia
Comprendre l'EM @comprendrelem.bsky.social Comprendre L’Encéphalomyélite Myalgique est une publication par et pour les personnes avec EM. Il est voué à la diffusion des savoirs sur l’EM/SFC, en français, de manière simple et didactique. Et aux réflexions politiques.
George @nonlinearbotanist.bsky.social Baroque mind that loves Baroque music. Broken mind that loves breakaway minds. I am 68. A radical environmentalist. Happily married for 36 years. Dual citizen. In Canada - NDP or Green Party. In the US - straight Democratic ticket. I am sort of retired.
Solve M.E. @solveme.bsky.social Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.
@inthelonghaul.bsky.social @inthelonghaul.bsky.social 
Michelle Steiner @michellesmission.bsky.social Wife, Writer, Photographer, and , Para Educator
Find me on my blog www.michellesmission.com
still @still.support Process-oriented chronic illness management. No optimization, just observation.
Evidence-based • Disability justice • Works at 20% capacity
📝 Weekly on Substack: https://stillsupport.substack.com
🔧 Free trackers: still.support
#ProcessNotGoals
CatCmdr1 @catcmdr1.bsky.social Welcome to the Resistance!
NO Porn ! No funds. 🇨🇦🇬🇧 🇲🇽
No DMs, please. #FDT
#FreeFarid. #AntiFacism
#Resister #FEM
#Resistance. #StrongerTogether
#BlueCrew🦋. #NEVERTRUMP
Am Chima @ace9801.bsky.social ME - patient/advocate LC, ME/CFS & more; RACE - human; RELIGION - truth; BIAS - unbiased integrity/evidence based science/reality; AVERSIONS - money, ego & power driven DEMENTORS; ASPIRATIONS - a DEMENTOR-free world & satisfying my “cerebral nerd crushes'!
me with ME 🇬🇧 📷 🍂 ❤️☮️ 🇺🇦🇪🇺🇨🇦 @me-with-me.bsky.social Just a #pwME/CFS, an #unpaidcarer for my wife who has rheumatoid arthritis and for our #SEN son, navigating my way through life and #ElectiveHomeEducation. In an increasingly volatile society.
#childloss #stillbirth #rainbowbaby #miscarriage
@saveterra.bsky.social @saveterra.bsky.social 
✨ Soft Grit Spoonie ✨ @softgritspoonie.bsky.social Chronic illness advocate | Disability awareness | Spoonie | Mental health | CPTSD | Migraine | Fibromyalgia | Invisible illness | Daily life, support, humor & healing.
Österreich WTF?! @oesterreichwtf.bsky.social Wir sind Quati @katquat.at und Sarah @veelana.bsky.social und stellen unseren Podcast-Gästen die Fragen, die ihnen sonst keine*r stellt. Zu Themen, die uns alle bewegen.
Linksammlung & alle Folgen: https://linktr.ee/oesterreichwtf
Davewata 🌱 @davewata.bsky.social 
@valebodi.bsky.social @valebodi.bsky.social Surviving MyalgicE aka ME/CFS & AAG to tell the story, pwME & advocate w/ a JD. Into MEdical, Social, Climate Justice & Arts. ME-dical apolide, Human Neutrino, Gnarled pacer
MEssland Worldwide https://www.tandfonline.com/doi/pdf/10.2217/fmb-2022-0031
Diana Cosma @dianacos.bsky.social Poet, translator, language enthusiast, music lover trying to build skills. 🇷🇴 She/her
https://linktr.ee/dianaacosma- L Liminal @liminal-citizen.bsky.social Please take a moment to look up Millions Missing Podcast (Myalgic Encephalomyelitis testimonies) on your podcast platform of choice and share - https://linktr.ee/millionsmissingpodcast - thank you
Chef Finney @cheffinney.bsky.social Executive Chef, Culinary Consultant, Guerilla Improv Comic, Anti-Fascist/Racist, Irish Polymath, Former Lots of Stuff, I am Stabby the MF Leprechaun. NSFW
(Ridire Créachta on Fashbook)
"I paint houses..."
"Tiocfaidh ár lá!"
"There is NO THEM!"
NO DM's
@sickroll.bsky.social @sickroll.bsky.social Part time artist, full time sick person 
Alexandria Stuart @alexandriandria.bsky.social An appropriately miffed Gen-X, late-diagnosed AuDHD, pinball witch, Swiftie.
She/her. Advocate. Mother. Researcher. Writer. Plain Language Practitioner. Team Oxford Comma.
Uninvited on the traditional territory of the Snuneymuxw First Nation.
@lighthouse-inc.bsky.social @lighthouse-inc.bsky.social 
Sparrow Zennik (They/Them) @sparrowzennik.bsky.social Global Warming, me/cfs, infectious disease tracking, food security, city design, green transportation, passive architecture, and other diverse interests.
Long distance travel and flight free since 2020.
Stands with Palestine, Ukraine, and Sudan.
You Will Kill Me @youwillkillme.bsky.social 🛑 Virtual and in-person die-in to demonstrate the estimated 51k lost lives if the so-called “Big Beautiful Bill” is approved.
Youwillkill.me
📍Online and In Person in Portland,OR
Pioneer Courthouse Square
📆 7/4 12-1
#youwillkillme
Michelle Mahoney @michellemahoney.bsky.social Neurodivergent Activist, Writer, Educator, Disability Advocate.
Author of Strange Fellow Bobby: The Neurodivergence of Robert F. Kennedy, Sr.
Substack: michellemahoneyautisticadvocate.substack.com
Jthomas-AZBuckeye @jthomas-azbuckeye.bsky.social Married to @zonafrank.bsky.social 💙Former squid - Go Navy 💙 I use common sense 💙Equal Rights💙Pro Democracy 💙Your Body, Your Decision 💙I prefer animals💙fluent in sarcasm 🚫Maga 🚫DM 🚫Porn 🚫Solicitations 🚫Go-Fund me 🚫No posts
fhronesis @fhronesis.bsky.social Me/cfs severe Housebound, mostly bedbound. Used to love arts, philosophy, painting, theater, gardening, human sciences... Neuro issues, I can't enjoy or easily do that anymore. Antivalidist.
Avishek ghosh @avishekcolours.bsky.social 
MEActMaryland @meactmaryland.bsky.social #MEActionMaryland
Maryland chapter of the #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in MD/DMV
https://youtube.com/@meactmaryland
https://linktr.ee/meactmd
Litsa Dremousis @litsadremousis.bsky.social ALTITUDE SICKNESS (Future Tense Books). Upcoming: A EULOGY FOR THE LIVING. Left WaPo b/c of Bezos. The Blvr, Esquire, Flare Lit Mag, McSwy's, NPR, NY Mag, NYT, Pictura Journal, P&W, PW, The Rumpus, Short Beasts, et al. #pwME https://litsadremousis.com
Pan African Marxist-Leninism and chill ✨ @contestedmilk.bsky.social Former neurobiologist, currently a M.S. in computer science and AI
99.9% of your issues with AI are actually issues with capitalism 🤷🏿♀️
Your shill for local, ecologically sustainable AI 👍🏿
(All generations used 100% renewable energy + no water)
Nic @lilnic000.bsky.social 
EarthMother30 🇨🇦🍁️🌈🌎☮️🕊️🦋 @earthmother30.bsky.social Feminist mom of 3 ace kids, nurse. I worry about the my kids' future, want them to learn to be decent, capable, loving people. And a goofy husband who still rocks my boat! Heartbroken about Gaza, Sudan, the Ukraine, try to help refugees.
Ishy @ishyblue.bsky.social She/her
I like blue things and do great things okay sometimes.
GelfyCheriru @gelfycheriru.bsky.social 🎨🖌️Artist/Designer/Photographer/Crafter 🖼️📷
🥄 Spoonie/Disabled ♿ Neurodivergent
🕸️ Alternative&Witchy🕸️
🦹♀️She/her🧙♀️
🚫No Ai/NFT
https://linktr.ee/gelfycheriru - for all links
https://ko-fi.com/gelfycheriru - for support, memberships, and shop
KimK ... one day at a time 🇨🇦 @topazstudioscom.bsky.social Retired 🪷 Grandmother • 3 chronic illnesses since early 2020 🥄 #longCOVID #ESKD #IgGdeficiency 💙 Volunteer at @renegaderes 🥩 animal-based keto ♿️ amputee
SeattleSanta @seattlesanta.bsky.social Part Time Santa; Wood Worker; Craft Beer Lover; Progressive
Every tRump voter and MAGAt is on my naughty list.
I will BLOCK anyone that is a bot; No Bio; No Background photo; No Human picture in profile.
the laboratory @handle.invalid home of scribeonhigh: a creative strategy research hub and consulting practice
All things in moderation including moderation itself @mysticunicorn9.bsky.social 
MEAction UK @meactionuk.bsky.social Our movement fights for recognition, education, and research so that one day all people with ME (myalgic encephalomyelitis) will have access to rapid diagnosis, and compassionate, effective care. 
Suyeta Rose (She/Her) @suyetarose.bsky.social She/Her: Mom♀️,Wife 👰🏻 , Programmer💻, Gamer🎮, Nature Lover 🌹,Fan of common sense🏳️🌈 with ME/CFS 👩🦽.
Sherilynn Bollacker @sheriballheim.bsky.social 
ConsumedByCovid @consumedcovid.bsky.social Long Covid since March 2020.
Previously fit and healthy healthcare worker and mum.
Lisa Wiedemann @lisawiedemann.bsky.social researcher/lecturer/STS science and technology studies/working on ME/CFS/LongCovid/digital health/type 1 diabetes care/material semiotics
@emmapuce.bsky.social @emmapuce.bsky.social 
Breanna Weigel @breannaweigel.bsky.social Public Health PhD Candidate by day, Piano Teacher by afternoon | she/her
Vanessa Smith @normalsystems.bsky.social Systems strategist for chronically ill/neurodivergent/disabled business owners. Lived experience consultant for corporates.
Cyberflaneurs @cyberflaneurs.bsky.social 
Rich Holmes @fablecorp.bsky.social Ex-Navy. Ex-athlete. Ex-X (kinda funny). Philosopher. Master debater. Jack-of-all-Trades, Master of some. Historian. Writer. Broke Philanthropist. Supporter of Civil Rights. Believer in meritocracy. Realist to moderate Woke. 🚫MAGA 🚫PORN 🚫CRYPTO 🚫DM
Renegade Research @renegaderesearch.bsky.social Patient-led 501c3 nonprofit focused on #MECFS & #LongCovid 💙 https://linktr.ee/renegaderesearch • Runs @remissionbiome.bsky.social
Ninni @katfat2.bsky.social Sweetness n’Lightenment, anti-invisibility potions, and fog horns to find lost spoons.
Got mostly A's: Activist Anti-fascist Ace Agender Animist Arab-American AuDHD & Aged ACLUer; 2 C's: Caregiver & ChronicME; 1 D: Disabled. 
Morphème @morpheme.bsky.social 🔥♿️
🚫 AI
@car45all.bsky.social @car45all.bsky.social 
Digiguard Inc. @digiguardsecurity.com Specialized Cybersecurity Services for Small and Midsized Businesses, Firms and Medical Practices.
@donnalb2.bsky.social @donnalb2.bsky.social 
Parallel Films Studio @parallel-films.bsky.social ✝️ Young Adult Christian Sci-Fi
Parallel Films, LLC | God Focused Film Saga
💥 Action Adventure
🙏 Trust God’s Plan- I Inactive account @inactiveaccount27k.bsky.social
ȶɨɢɛʀʟɨʟʏ @tlilyok.bsky.social 
Buddy Friend Guy @buddyfriendguy.bsky.social I'm here to share mental health tips, positive quotes, and loads of smiles! 😄 I want to crush mental health stigma and brighten your day, one cheerful, informative post at a time! 🌟 Let's strive to improve ourselves and embrace every moment!
Cozy @drcozy.bsky.social We all need each other.
Chronic illness. 
Futurists Society @fusoone.bsky.social A platform for business opportunities, Knowledge based Society and a book publishing business . Here we are Entrepreneurs, Builders, Dealers ,Deal Makers and Facilitators. Founded by RHAL. Visit us here: https://linktr.ee/alpharayangossio
Satcha EM @satcha.bsky.social Encéphalomyélite myalgique
#mecfs #emsfc @voxem.bsky.social
Handie 🛌🏽👩🏽🦼
Jemma Lee @jemmaleeca.bsky.social #PWD #ChronicIllness Brit/Canuck🇨🇦 🇬🇧 living in #Kwakwaka'wakw territory
Pix are mine. No poaching please.
Not all who wander are lost
Although no doubt we are searching!
🫶 Do no harm & take no shit 🫶
One Heart: One Love ❤️🌈 🌎
🕊️🌎 Fight Fascism 🌎🕊️
Alex @drglammie.bsky.social #pwME #Cavies
Donia ♾️ ♿️ @ethyricalartist.bsky.social Disabled artist 🇵🇷🏳️🌈
HOMELESS since 2025 🔗🌲⬇️🆘
Cats, art, nature, knit, crochet
PNW 🇱🇸
Create in bed when able bc of #MyalgicEncephalomyelitis
#SevereME since 2015
Late #ActuallyAutistic 🖖
Abolitionist
Anti-imperialist
Anti-AI
https://linktr.ee/EthyricalArtist
Madelinenerd @madelinenerd.bsky.social IamMadelinePOD #podcast: https://anchor.fm/i-am-madeline
#myalgicE #disability
Fb/inst/X @madelinenerdfighter
LATEST https://www.thecanary.co/global/world-analysis/2024/12/20/marcia-mecfs-canada/
WORLDWIDE PETITION pls sign https://bit.ly/Marcia_petition
SpoonFellas#NAFO NC Gen❌🦋🇺🇸🇺🇦🇬🇪🏳️🌈🇨🇦🇬🇱🇩🇰🇦🇺🌈💙democrat 💛 @spoont51.bsky.social We stand together with these nations and the people of these nations 🇨🇦🇬🇪🇲🇽🇲🇽🇺🇦 #NAFO #FAFO .
Gouda Sofia @updrafter.bsky.social #ProsecuteMAGA
Free Palestine! 🍉 🇵🇸 Slava Ukraine! 🌻 🇺🇦, NAFO, Yooper, Stoopall League of America, He/Him, BLM, Amplifier
It’s a lot.
Me. You. This.
All of it.
Too much really.
Ok, if you insist!
You have been warned.
Let us away!
Long Covid Advocacy Ireland-LCAI @lcaireland.bsky.social The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ireland for all patients.
https://longcovidadvocacyireland.com
Sarah O'Connell @sarahoc1.bsky.social #pwME patient 12 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
@lunanymeria.bsky.social @lunanymeria.bsky.social 
@beckarich.bsky.social @beckarich.bsky.social 
Taylor Zerkee @taylorzerkee.bsky.social Climate activist, Mental health advocate, neurodivergent. Proud to be Canadian🇨🇦. Please do not DM me without asking first. I am married. I have a 12 year old black lab. I love to cook, bicycle ride, walk.
Clare @clrblwrs.bsky.social 
Tammy @schnauzeraddict.bsky.social Twice survived cancer! Disabled. Multiple Chronic Illnesses. Pro Choice, Pro Civil Rights, Pro Women’s Rights, Pro BLM, Pro LGBTQIA+, Pro Immigrants, Pro Democracy, Pro Universal Healthcare. Advocate, Activist & Feminist. Pianist & former educator.
Alissa Doth @alissadoth.bsky.social Minnesotan who believes that COVID is airborne, people should be kind, and that everyone needs more ice cream in their life. Caregiver to spouse with #LongCovid and ME/CFS, ADHD mom, health policy nerd.
Loves democracy, reading, and a good Montepulciano.
Tom @tom-schmitt.bsky.social One of millions missing ME/CFS
TheRGBvision @thergbvision.bsky.social 30. he/him. Married. #Spoonie
Books, art, fantasy, and tenderness
Disabled, queer, and creating as I can.
Living somewhere between books and art
Fantasy worlds, fandom joy, and honest feelings.
https://linktr.ee/thergbvision
Lawrence Carter-Long @lcarterlong.bsky.social Community. Culture. Creativity. #DISABLED #SayTheWord! Dir. of Engagement, ReelAbilities Int'l. Occasional cool stuff with Turner Classic Movies, Film Quarterly & PBS. Proud member: Americans for the Arts, Association of Independents in Radio, PEN America
Low Energy Lounge @lowenergylounge.bsky.social Coping with confidence, together.
ME/CFS-focused
https://linktr.ee/LowEnergyLounge?utm_source=linktree_profile_share<sid=c2537ded-e594-4115-9a8f-d9a63c91277d
MariKula@bsky.social @marikula.bsky.social My home; the pale blue dot commune: Earth. Wretched refuse yearning to breathe feminist freedom fighter. Illinois Indivisible social justice blue worrier. Persister for universal self determination. Resister for Pax Americana, and against united abnormies.
Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social Disabled, chronically ill, homeschooling socialist. Hobbies include birds, books, fiber arts & intractable chronic migraine. Avatar by @marimigraine on IG