ME Advocates Ireland (MEAI) @meadvocatesireland.bsky.social Advocating for People with Myalgic Encephalomyelitis (ME) of all ages & severities.
Webpages:
https://meadvocatesireland.blogspot.com
Email: info@meadvocatesireland.com
#LongCoid + #Philosophy (Wild Strain 2020) 🏳️⚧️🏳️🌈🩵 @be-herenow.bsky.social https://www.online-tribute.com/AdamWolk
Long COVID takes lives, but we can keep their legacy alive. 🩵
Don’t erase them a second time.
Philosophy @
https://doi.org/10.5281/zenodo.20779467
@chill-claws.bsky.social @chill-claws.bsky.social
Miri @miri2.bsky.social Idk man I’m just here to get weather news and talk about being chronically ill
Whitney Dafoe @whitneydafoe.bsky.social Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
Disability Rights Oregon @disabilityrightsor.bsky.social Disability Rights Oregon promotes and defends the rights of people with disabilities. Oregon’s nonprofit Protection & Advocacy system since 1977, we transform systems, policies, and practices to give more people opportunities to reach their full potential.
Solveig Marie Stenbæk @sunroadstonecreek.bsky.social Living with Myalgic Encephalomyelitis, ME—not CFS.
@kathleenoneill.bsky.social @kathleenoneill.bsky.social
Penelope Bobelope @larougeabeille.bsky.social Invisible Kingdom Dweller
(She’s come undone)
Julie Patchouly @juliepatchouly.bsky.social Psychologist, Clinical Therapist, Writer, Avid Reader and Lover of Humanity. I am salt and light.
Jenny @me-cfsgirl.bsky.social ME-CFS since 1995. Love crafting when I can find the energy. One of the WIMEL writers.
Liz Burlingame @lizmeactga.bsky.social Living with ME/CFS since 1991. Here for the long haul. I am one of the #MillionsMissing.
Oregon Health Forum @oregonhealthforum.bsky.social Advancing health policy through community discourse. Learn more about our events: www.oregonhealthforum.org
https://linktr.ee/OregonHealthForum
Portland Jobs with Justice @jwjpdx.bsky.social A coalition of over 100 labor, community, faith, and student groups fighting for Workers' Rights and Economic Justice!
jwjpdx.org
Subscribe to our Newsletter Here: https://actionnetwork.org/forms/join-the-mailing-list?source=direct_link&
Too Tired To Make @tootiredtomake.bsky.social Too Tired To Make: An act of thinking in public about how creativity actually happens under constraint.
#M.E.
#CFA
#MyalgicEncephalomyelitis
#ChronicFatigueSyndrome
#ADHD
#Creators
#Makers
@tanyamshively.bsky.social @tanyamshively.bsky.social
Emma Smith @3mm4sm1th.bsky.social Science journalist, Editorial Fellow at @sierramagazine.bsky.social
Chris Wexler @chriswexler.bsky.social ME/CFS, POTS, and Disautotomia triggered by Long Covid. LC since April 2020, life fully redefined by illness November 26, 2022.
Former Tech CEO & Ad Exec.
Shanna's Treasure Trove! ~ @jami-jam.bsky.social I am Shanna Lee James, Author. Click on link to view my Author website. www.shannaleejamesauthor.com I am also an advocate for nature, wildlife, and animals. Click on link for 1st site: @2bdynamic.bsky.social
Financial Media Group @financialmedia.bsky.social Financial Media Group offers full digital marketing turn key solutions for small to medium sized & publicly traded companies.
Suzanne Forbes aka Slurketta @suzanneforbes.bsky.social Queer disabled MECFS (and Filth!) Elder in Berlin, housebound retired artist. Still respirator masking. Trans rights FOREVER. Sex worker ally. Baby vegan. Location: Atlantis by Gaslight. She/her.
Bookshelfie ⭐️ @bookshelfie.bsky.social The Self-Pub Hub (Book Review and Story Site)
Submissions open now:
https://book-shelfie.com/submissions
Postscript (Book Formatter, Cover Designer and Socials Post Maker): https://book-shelfie.com/postscript
Elly Brosius, MS @ellybrosius.bsky.social Pets, nature, physics, health, sewing, crafts, ME/CFS/OI/LC science & symptoms, medicinal metaphors, gratefulness practice. Volunteer for Renegade Research including R50, NoVA ME/CFS, OI & Long Covid Support Group, MEAction NC.
@msmarquartpoetry.bsky.social @msmarquartpoetry.bsky.social
Emily Elżbieta Chomicz | QLR @queerloveriot.com 💼 Professional Investigative Reporter.
Across London and across the North West. Senior DevOps Engineer, Project Manager.
📰 Queer Love Riot: queerloveriot.com
📚 My Memoir: transitioninagony.com
🌈 Pride: wythenshawepride.com
🔗 Website: emilychomicz.com
Gillian Kent @cambridgegill.bsky.social
@valebodi.bsky.social @valebodi.bsky.social Surviving MyalgicE aka ME/CFS & AAG to tell the story, pwME & advocate w/ a JD. Into MEdical, Social, Climate Justice & Arts. ME-dical apolide, Human Neutrino, Gnarled pacer
MEssland Worldwide https://www.tandfonline.com/doi/pdf/10.2217/fmb-2022-0031
Jeremy Jeffs | photography & documentary @jeremy-jeffs.bsky.social Documentary photographer & film maker at Magnetofilms.com, editor/writer at PersonalWork.online
Currently working on projects about ME/CFS (I have lived experience), loneliness and men's mental health.
https://linktr.ee/jeremyjeffs
JR Margelidon @jrmargelidon.bsky.social Fendeur de bûches, fan de fantasy, tireur à l’arc hésitant, CTO, ex motard, ex Londonien, vrai râleur.
Sue Poncin @sueponcin.com After Jan 2021: #Disabled by Long COVID & #BookSky author #LongCOVID memoir
Before Jan 2021: overachiever, #MathSky Calculus teacher, Mom Uber driver
www.sueponcin.com
In The Space Between: https://a.co/d/0fkSZMd
SAGE POETESS, WRITER, EDITOR @sagetaylorkingsley.bsky.social 🌊💙🌀Protest + Mystic POET *BEAUTIFUL LATE BLOOMER* Best-Selling Author EDITOR GHOSTWRITER 100 books. LoA~Self-Love~Lover of democracy, nature, dogs, life! Kindness is my religion 🙏
TONS of poetry ➡️ https://sagepoetess.substack.com
ME-CFS Spoonie Bibliophile
Avishek ghosh @avishekcolours.bsky.social
Thea @theajs.bsky.social
#MEAction NC @meactionnc.bsky.social Support and advocacy group for people with ME/CFS and Long Covid, their allies, caregivers, and practitioners.
C.Buchkremer @cbuchkremer.bsky.social Description, you know me or not.
Not anonymous but private.
Bridget @brid41.bsky.social Chair, #MEAction Maryland
@meactmaryland.bsky.social
https://linktr.ee/meactmd
adolescent onset #MECFS, #LongCovid, #POTS, #dysautonomia, #MCAS, CPT2, #migraines, #PostHerpeticNeuralgia, #TrigeminalNeuralgia, recurrent #shingles
Erin Lee @erinmarilee.bsky.social ME/CFS since 2001 | Passionate about improving med ed, increasing access to care, and finding a cure | Faith, Hope, Love
@normanroots.bsky.social @normanroots.bsky.social 🇨🇦 Grandpa of 9, genealogist, MS Access developer, economist
Schelmy @schelmy.bsky.social ✨️🦋 WELCOME and WARM HUGS🦋✨️
🍪 Have a cookie 🍪
Formerly Y Not on X hehehhe
or @schelmy
Ahimsa @ahimsa-pdx.bsky.social Vegetarian, book lover📚
ME/CFS since 1990 ♿️
She/Her
What's ME/CFS? = https://www.s4me.info/threads/science-for-me-fact-sheets.43310/#post-596527
Mastodon = https://disabled.social/@ahimsa_pdx
Profile: Tabby cat w/white chest & paws
Banner: Green trees
Donia ♾️ ♿️ @ethyricalartist.bsky.social Disabled artist 🇵🇷🏳️🌈
HOMELESS since 2025 🔗🌲⬇️🆘
Cats, art, nature, knit, crochet
PNW 🇱🇸
Create in bed when able bc of #MyalgicEncephalomyelitis
#SevereME since 2015
Late #ActuallyAutistic 🖖
Abolitionist
Anti-imperialist
Anti-AI
https://linktr.ee/EthyricalArtist
Robin LaRose @rlarose101.bsky.social Afternoon Drive Host @rock101van podcaster, narrator, traveller
S. Preston @pootpoot.bsky.social Sports artist for @MLB @NHL and @TeamUSA / Member of @BaseballHall ⚾️/ Creator of the #MinimalistBallpark series & the #BallParkPrincess ⚾️👸
@science-enthusiast.bsky.social @science-enthusiast.bsky.social - J @justindstern.bsky.social @justindstern.bsky.social
Leslie Kasza @lesliekasza.bsky.social
DMovies @dmovies.bsky.social your platform for thought-provoking cinema
Something Chronic @somethingchronic.bsky.social Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness
#MEAction Scotland @meactionscotland.bsky.social
THE ANOINTED ATHEIST @theanointedatheist.bsky.social Welcome to my little corner of heaven. This is where I write about politics and religion with a dose of humor. However, if you find my posts offensive, just turn the other cheek. Have a blessed day!
@wamesmecfs.bsky.social @wamesmecfs.bsky.social
Patrick BERNARD @29pat.bsky.social @Renaissance
@Renaissance29 @RenaissanceQBO
adore #MacronardsFM !...
Comptes #X (ex-Twitter) : @29Pat2 et @29Pat
Compte #threads : patrickbernardmahe
Compte #instagram: patrickbernardmahe
Compte #Facebook : Patrick Bernard-mahe,
Compte #Pinterest : 29pat🇨🇵
@terrygarcia.bsky.social @terrygarcia.bsky.social
CAT UTOPIA @catutopia.bsky.social Welcome to cat kingdom
Steve / Pinderb @pinderb.bsky.social Roller Derby Non-Skating Official, retired Software dev, Long Island, NY. Merrick Chorale. he/him
Maternova Inc. @maternova.bsky.social The leading marketplace for cutting-edge medical innovations in maternal, newborn & reproductive health. Focused on diagnostics and devices for lower resource settings.
#globalhealth #maternalhealth #neonatalhealth #SDG3 #femtech #RMNCH
Charlie Eaton @charlieeaton.bsky.social Economic sociologist, professor, University of California, Merced.
Research: Wall Street, Big Tech, oligarchs, elites, universities.
Bylines: NYT, WaPo, LAT.
Newsletter and website: https://www.charlieeaton.net
Jenny Zenner 🏞️ Stress Response Playbook @jennyzenner.bsky.social To the Home inside of all of us & to making others feel at Home | Coach |
Songwriter | Check out Home Home on Soundcloud | WIP book The Stress Response Playbook: Go Beyond Fight or Flight to Grace
https://jennyzenner.com/
linktr.ee/jennyzenner
@nicknamethy.bsky.social @nicknamethy.bsky.social
Vince Warren @vincewarren.bsky.social
Lynn Arditi @lynnarditi.bsky.social
City Club of Portland @pdxcityclub.bsky.social A 501(c)(3) membership organization fostering informed, respectful public dialogue on local issues and civic engagement in Portland, Ore. Est. 1916 📜
Join, subscribe or donate at pdxcityclub.org- M @mum2twins.bsky.social @mum2twins.bsky.social
@donpedrocastillo.bsky.social @donpedrocastillo.bsky.social
Bernhard Hack @benhack.bsky.social Digital ecologist, father, climber. I'd rather be outdoors.
Hart Cunningham @hart28.bsky.social ‘28 Progressive Dem candidate Hart28.com
1) End genocide globally
2) Pardon 100k protestors
3) Nuremberg type trials
4) Free Healthcare for every citizen
5) END fascism/zionism
I Quit Smoking 🚭 📚 🐕 @iquitcigs.bsky.social Anti-Smoker My Website campralquitsmoking.net See How I Quit 20 Years Ago Fought Nicotine 35 Years Supporting others who Quit 🚭 STL MO ❤️To Promote Authors 📚 & Ozarks 🌄 Photographer 📷 Pez Add @piperformissouri.bsky.social @jesspiperfanpage.bsky.social 💙
@jak9.bsky.social @jak9.bsky.social
Biotech Digest @biotechdigest.bsky.social Complex chronic illness patient advocacy
Jahan @e-ffervescent.bsky.social Professional dreamer and coffee addict ☕️ Loves art, photography, games, works on computers for a living 🎲
@ronpare.bsky.social @ronpare.bsky.social
Craig Teper @ctep.bsky.social Shoots video horizontally. Adverb averse.
@africano09.bsky.social @africano09.bsky.social