AQEM - Association québécoise de l'encéphalomyélite myalgique @aqem.bsky.social L’AQEM vise l'avancement de la connaissance, de la reconnaissance de l' #EMSFC du mieux-être des #paEM | #Canada #Quebec | www.aqem.ca | IG/X @aqem_sfc
#EncephalomyeliteMyalgique #MyalgicEncephalomyelitis #MECFS #pwME #CovidLongue #CovidLong #LongCovid
Treaty of Westphalia @twestphalia.bsky.social Academic background: Comparative Literature (European 19th c)
Bluesky focus: LC/ME, Russian invasion into Ukraine, Arts/Culture
The Real ME 🏴👩🦽➡️♿️ 👩🦼🇵🇸 @therealmecfs.bsky.social Chronically ill & disabled person with lots of personal opinions, who sometimes likes a hat. Occasionally an advocate for PwME, gamer and proudly on the Autism spectrum. I’ve low tolerance for ignorance and assholery so if you come for a fight, expect one.
Terhi❤️🩹 @terhivirtanen.bsky.social 🌞🌈🌏❤️🩹🇪🇺🇫🇮😻
"Olen täällä keskellä vieraiden, tarkoituksella, sattumalta kohdattujen"
Matthew Dalby @matthewjdalby.bsky.social 
ME/CFS News @mecfsnews.bsky.social News, interesting information and commentary on ME/CFS.
MEActMaryland @meactmaryland.bsky.social #MEActionMaryland
Maryland chapter of the #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in MD/DMV
https://youtube.com/@meactmaryland
https://linktr.ee/meactmd
Hannah Davis @ahandvanish.bsky.social Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
Matt Lazell-Fairman @mfairma.bsky.social ME. Spouse w LC, ME. Writer, bread baker, daydreamer. Still waiting on fair funding and apology from HHS. Masking like someone’s life depends on it.
DrMichelleBull💙 @michelleb4.bsky.social A mixture of stuff
#MECFS #LongCovid #frailty #mtb #cycling
#feelthefearanddoitanyway
co-founder @PhysiosForME
Views are all my own
#MillionsMissing Aus @mmissingaus.bsky.social There are #MillionsMissing from their lives due to ME (Myalgic Encephalomyelitis or #MECFS). We're fighting to make their voices heard. Sadly, many ppl with #LongCovid meet #ME diagnostic criteria - adding many more to the ME ranks.
Millions Missing Podcast @millionsmissingpod.bsky.social Share your story / Amplifying the chronically ill / #MyalgicEncephalomyelitis #LongCovid et al / #MillionsMissing / Contact: millionsmissingpodcast@gmail.com / linktr.ee/millionsmissingpodcast
Dialogues ME/CFS @dialoguesmecfs.bsky.social https://www.dialogues-mecfs.co.uk Website with videos created by Natalie Boulton & Josh Biggs with a Wellcome Public Engagement Fund Award. Professionals and patients explain key aspects of #ME/CFS and a longer film explores the wider context and history. 
Dr Nicola Clague-Baker @claguenjc36.bsky.social Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise physiology/ME/Longcovid/EDI/all views my own
she/her
Physios For ME @physiosforme.bsky.social A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Find out more at physiosforme.com
Janet Dafoe @janetdafoe.bsky.social ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist. 
Anil van der Zee @anilvanderzee.bsky.social Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
Elizabeth @neuroweaveratl.bsky.social GSU • UNG
Chronic Disease Researcher
ME Action • Board Member
#Neuroscience #ChronicIllness
*views my own*
Pina @pinam.bsky.social GRADUATE PRODUCT DESIGNER,
INTERIOR DESIGN
Against FASCISM, any kind of RACISM and STIGMATIZATION of illness.
Live with:
Primary immunodeficiency (PID)
Systemic Exertion Intolerance Disease (SEID) - ME(CFS)
with humor, sarcasm, irony
Brian Shuell @bshuell.bsky.social 
StarDust949 @stardust949.bsky.social Aspiring to write for stage & screen. Dyslexic ball of chaos. She/ her. #pwME #MECFS #POTS #BLM #TransRightsAreHumanRights. Twitter account: @StarDust949
MillionsMissingNL @mmissingholland.bsky.social Actiegroep #MillionsMissing Holland wil betere zorg & sociale gelijkheid voor ME-patienten.
Carole Bruce @cabruce.bsky.social Previously a psychotherapist.
Bedridden #ME 32years
Daughter severe ME, eldest son MS.
I like art, nature, books, people, music, poetry and podcasts!
britborg.bsky.social @britborg.bsky.social Dutch. Severe ME #Fraudevinkje #code98 @brit_borg on Twitter/X #JournalismIsNotACrime
#MillionsMissing Sweden @millionsmissingswe.bsky.social #MillionsMissing is a global campaign for ME health equality!
https://meaction.net
#MillionsMissingSweden #MEAction #MECFS #pwME #svmed #MEAwarenessHour
Emmi Skyten @emmiskyten.bsky.social Sustainability science studies on hold because of POTS + Long covid / suspected ME. Previously interesting, now mostly into resting.
Here to connect with other sick people and for science stuff.
Waldmeer @waldmeer.eurosky.social ME/CFS | Medizin | Wissenschaft
Website: https://bit.ly/waldmeer
Auch unter: @waldpol.eurosky.social
Brian Hughes @bmhughes.bsky.social Prof Psych • Writer • Galway • he/him
New book 'Psychology's Quiet Conservatism': https://link.springer.com/book/9783032077233
Blog: https://thesciencebit.net/
Bio: https://brianmhughes.com/
📷 https://www.photoblogism.net
Ruth SG #FBLC @ruthsg.bsky.social #FBLC #LongCovid #LongCovidKids #MECFS ally. #MillionsMissing #MaskUp #Ireland
Adam @adamleed.bsky.social Here for ME/CFS info. Fatigue & brain fog limit my interactions quite a bit.
Love animals, the outdoors and happy stories, work in art department for photo and video production.
Ceasefire in Gaza, open fire on CEOs.
What Would John Brown Do?- Z Elja @zorgvoorme.bsky.social Here for ME/CFS awareness
Kerstin @sannara.bsky.social #MECFS #MILLIONSMISSING #MEAwareness
#PEM #POTS #MCAS
#PostCovid #LongCovid
#TeamWissenschaft #GdB
https://www.mecfs.de/was-ist-me-cfs/
https://www.psychotherapie-mecfs.de/
Leonie Potgieter @despicablemebsky.bsky.social Fur mamma to Sammy & Twinx
#pwME #PoTS
Supports Invest In ME Research
elisa @mildtin.bsky.social Usually a lurker, Chronically Online for #LongCovid and other #IACC | Australia
Marianne @mariannehout.bsky.social Dutch. Bedbound with severe ME. Trying to find my way back to life.
Dan Wyke @danwyke.bsky.social Severe M.E. patient, person-centred counsellor (currently not practicing), recovering poet (Rack & Waterloo Press)
Long Covid Support @longcovidsupport.bsky.social UK charity dedicated to supporting people with Long Covid
• Support • Research • Advocacy • Education •
www.longcovid.org
https://linktr.ee/longcovidsupport
📧info@longcovid.org
Ebidemiologi Kalmanen @ekalmanen.bsky.social Valtion viraalinen ebidemiologi. N:nnen aallon tukahduttaja. Viruslogian asiantuntia.
Kausivaihtelun mukaan parodiaa, satiiria ja sarkasmia tai suoraa asiaa.
Ed Yong @edyong209.bsky.social Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him
📷 Canon R6mkii + RF 800mm
Edyong.me
- S Simon McGrath @simonmcg.bsky.social I occasionally try to explain and comment on ME research, or even contribute to it. And I advocate for more and better research.
@kahicks.bsky.social @kahicks.bsky.social COO/CFO/Treasurer of OMF
| Funding outcome-driven research and changing the global landscape for chronic complex diseases: http://omf.ngo | #mecfs #longcovid
Tom Kindlon @tomkindlon.bsky.social 95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.
With ME/CFS 37 years, severe ME 32 years.
@IrishMECFSAssoc trustee 29 years
26 publications in peer-reviewed journals
Social media: https://me-pedia.org/wiki/Tom_Kindlon
It's ME(Jaime) @exceedhergrasp1.bsky.social Scientific Director, #MEAction
Affiliations: Stanford Genome, Université de Montréal
TIME100 Health
#ME, #EDS, #POTS, #LongCOVID
Views my own
Julie Rehmeyer @julierehmeyer.bsky.social Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.