Environmental Film & Screenplay Festival @environmentalfest.bsky.social A festival designed to showcase the best of new environmentally themed films (shorts, features) and screenplays (shorts, features, TV pilots) from around the world. We accept any genre.
https://filmfreeway.com/EnvironmentalFestival
Aidan @aidanmoon.bsky.social Massive. Science, art, humanity, jokes. Not selling anything.
Compassion in Dying @compassionindying.bsky.social We want people to be in control of their end-of-life decisions because there is no-one better to make them.
ALS United Mid-Atlantic @alsmidatlantic.bsky.social Supporting ALS families in Pennsylvania, New Jersey, and Delaware. Learn more at www.alsmidatlantic.org
Susan Myers in Central Iowa @smtherapist.bsky.social New Therapist. Feminist, humanist, Quaker, older and more curious than ever, love mindfulness based self-compassion, gardening, beauty, humor, folks in recovery, Mystery of life, poetry, the wonder of little kids and animals. SO much to learn yet!!
David Maidstone @davidofnorwich.bsky.social
Icons of Change News Networkโข @iconsofchange.bsky.social Global Changemakers news and inspiring stories on SDGs & sustainable impact powered by the Icons of Change International
https://www.facebook.com/TheIconsOfChange
Simon Carter @simoncarter1872.bsky.social
Children's Health Scotland @childhealthscot.bsky.social We're a Scottish #charity who support #vulnerable #children whose #health (mental & physical), #wellbeing & #rights are most at risk. We work directly with children and those who love and care for them, including families, parents, foster & kinship carers.
MO-KAN HASH @mokanhash.bsky.social ๐ฉ๐ฉ๐ฉ๐ฉ๐ฉ๐ฉ๐ฉ๐ฉ๐ฉ๐ฉ๐ฉ๐ฉ๐ฉ๐ฉ
๐ป LET KANSAS GROW ๐ป
Cannabis reform โข Psychedelic awareness/Veterans Advocate
Education โข Art โข Community
IBEW LOCAL 124
Missouri + Kansas
๐ตLAWRENCE, KS DEMOCRAT๐ต
TechAbility @techability.bsky.social Training and consultancy in Assistive and Enabling Technology.
Supporting education and care settings, and influencing policy makers.
https://www.techability.org.uk/
WILDsound Feedback Festival @wildsoundfestival.bsky.social Telling stories through film and conversation. WILDsound showcases the best of new films & screenplays from around the world in a daily film festival.
www.wildsound.ca
https://filmfreeway.com/WILDsoundFilmandWritingFestival
Open Research and Public Engagement Roadmap @engagedroadmap.bsky.social Co-Creating Ireland's Public Involvement in Open Research Roadmap
ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.
Miriam Rivas-Aguilar @miriamra.bsky.social Proud COO at Care Opinion CIC I Independent non-profit careopinion.org.uk
@careopinion.org.uk
Kylie Noble @ksen12.bsky.social Irish journalist living in Sheffield, Yorkshire.
Interests: healthcare, sexual health, public health, gender, queerness, relationships, society...
Aunt, plays football and enjoys Star Trek. AuDHD.
Scott Trust and Washington Ireland alum.
Malnutrition Task Force @malnutritiontf.bsky.social
FRONTIER Research Group @frontier-usyd.bsky.social The FRONTIER Research Group is the largest specialist #frontotemporaldementia research clinic in Australia. Since 2007, we have specialised in the diagnosis, prognosis, and care of people with #FTD and related conditions. #endFTD https://frontierftd.org
Minnesota Mary @minnesotamarys.bsky.social โฎ๏ธ ๐๐บ๐ฆ๐ ๐๐ฆ๐ #RESIST/OPPOSE ๐ณ๏ธโ๐ Anti-racist #ProChoice ๐๐๐ #Democracy
PRO-DEMOCRACY MOVEMENT. Support UKRAINE. GOOD TROUBLE.
DMs only if I know you.
Lyle W. Ostrow MD PhD @lyleostrow.bsky.social Neurologist/Neuroscientist at Lewis Katz School of Medicine, Temple University, and the ALS Hope Foundation. Director, TUHS ALS Postmortem Core collab with CDC ALS Registry. Chair, DoD (CDMRP) ALS Research Programmatic Panel. Views my OWN.
Andrea R @andping.bsky.social
LifeArc @lifearc.bsky.social Self-funded medical research organisation with one clear purpose โ transforming the lives of people living with rare diseases and drug-resistant infections.
Learn more at lifearc.org
Gary Parker @garyparker83.bsky.social space geek :) member of the Cody Astronomical Society. planetary sciences. geology. F1 fan but aviation mad, #MND #MNDA
The BIS Services @thebisservices.bsky.social The UK's leading provider of Cognitive Rehabilitation Services. Raising the standard in brain injury and neurological support.
Oh Mad One @d3d3d.bsky.social It was a bad time
for the Empire.
The Shogun just stayed inside his
castle, and he never came out.
People said his brain
was infected by devils.
@abzlou.bsky.social @abzlou.bsky.social
MND Research @mndresearch.bsky.social Every day we drive research into motor neurone disease โ from understanding causes to finding treatments. Because every day matters.
@cullfiona.bsky.social @cullfiona.bsky.social
Nichola Leeper @nicholaslt.bsky.social Speech & Language Therapist. SLT (BSc) ๐ Drama & Theatre Studies (BA) ๐ญ MH First Aider. she/her. Views my own
Disability Daily Podcast @disabilitydaily.bsky.social
Discover a new figure or event in disability history each day!
Subscribe and tell your friends!
Katie Healey (she/her), PhD, CPACC โจ
AccessibleHigherEd.com
DisabilityDaily.podbean.com
https://ko-fi.com/disabilitydaily
Dr. Elli Wilson @elliwilson.bsky.social Dr. Elli Wilson - Associate Professor, School of Health Sciences, University of Nottingham. UK.
Qualitative researcher, palliative+end of life care, MND, complex homecare
https://www.nottingham.ac.uk/healthsciences/people/eleanor.wilson
Views are my own
Dr David Canty @drdavidcanty.bsky.social Academic Cardiac and Mobile Anaesthetist | University of Melbourne and Medical School | Medical Director of Sleep Dentistry Services | Day Care Anaesthesia Special Interest Committee
๐ www.sleepdentistryservices.com.au
๐ 0429 058 878
ghost ermine ๐ต๐ธ๐น๐ฑ๐บ๐ฆ๐ณ๏ธโโง๏ธ @dellway.bsky.social Turning bright young things into boring old farts since 2003. NSFW language inside. Living on unceded Nyoongah boodja. Palestinian lives matter. ๐ซAI
I walk, so you don't have to: https://www.mndawa.asn.au/my-fundraising/4804/the-dogbomb-walkers
James B. Ray @rxpalli8r.bsky.social Palliative care pharmacist teaching goal-concordant pharmacotherapy in serious illness | fortunate husband | appreciative Band Dad
https://pharmacy.uiowa.edu/people/james-ray
My Future Care @myfuturecare.bsky.social Plan for tomorrow and live for today! | #MyFutureCare Handbook, Training & Community Support | ๐ myfuturecare.org | A project of ๐ mycarematters.org
Michael Berger, LSW @alittlebitkinder.bsky.social Founder of A Little Bit Kinder & Practice Kinder. Sharing science-backed strategies for growth and healing. Training mental health pros in kind conversations: MI, crisis de-escalation, and suicide discussion
https://alittlebitkinder.substack.com/
Challenge Works @challengeworks.bsky.social World-leading experts in challenge prizes, supporting global innovators to tackle society's biggest issues. We are part of Nesta, the research and innovation foundation.
Kimbo @kimbojayne.bsky.social Runner โข Vinyl Lover โข Bloonwatcher
Melbourne
@mcintyfam.bsky.social @mcintyfam.bsky.social Educator, parent, Scottish, European, environmentalist. Scotland is a country, not a county. Love books and witty craic. Saor Alba. "Do not obey in advance."
That dog is not mine - sadly.
Paul Ridley @paulridley5.bsky.social Minnesota Vikings NFL is my passion, happily married & proud father of of my grown up children with Autism & Aspergers. Parent & Carer & campaigner @PaulRidley5on x/twitter
Michael Wilson @michaelwheelson.bsky.social Mechanical Engineer. Star Wars better than Star Trek. Agnostic Atheist. Oklahoma Blue Dot. ALS'ing since Feb. 2017.
Bridging Voice @bridgingvoice.bsky.social Non-profit supporting ALS clients with communication technology. Learn more at www.bridgingvoice.org.
MND Scotland @mndscotland.bsky.social Making time count for people living with motor neuron disease.
https://linktr.ee/MNDScotland
Lucy Whitehead @lucywhitehead95.bsky.social Acute Clinical Lead Speech and Language Therapist. NHS.
Anna-Lisa Palombo ๐ฌ๐ง๐ธ๐ช๐ฎ๐น @citronbokbinderi.bsky.social PLS/MND warrior ๐ช๐ฉโ๐ฆฝโโก๏ธ
Book bindery; Citron Bokbinderi Njutรฅnger ๐๐๐
Photographer; fotograf anna-lisa ๐ธ๐
Living in northern Sweden ๐ธ๐ช
www.citronbokbinderi.com
#PLS #MND #ChronicIllness #Bookbinding #Photography
EndMalnutritioninME @malnutritionme.bsky.social Campaign for improvements in medical care for ME patients with gastrointestinal symptoms. http://25megroup.org
North East & Yorkshire Genomics @neygenomics.bsky.social Embedding Genomics into routine clinical care, delivering faster & more accurate diagnoses, personalised treatment & prevention.
Web: https://ney-genomics.org.uk
Podcast: https://ney-genomics.org.uk/about-genomics/podcast/
Healthwatch Somerset @healthwatchsom.bsky.social Your independant voice in health and social care across Somerset
Kirsty Tanton @kirsty88.bsky.social PDN for workforce and Career Pathways at EKHUFT. Passionate about quality care, assurance, development & wellbeing of our patients and workforce.
Providing opportunities to develop, up-skill and invest in our workforce โจ X @kirsty_tanton
Suvankar Pal @suvankarpal.bsky.social
Rhys Hurst @rhysresppt.bsky.social Physiotherapist now working as an Advanced Clinical Practitioner in a Home Mechanical Ventilation Service @royalpapworth.bsky.social
Burning ๐ฅ Iceberg @burningiceberg.bsky.social Fighting for a ๐งฌ cure for familial #ALS in honor of my family living with #FALS. #Remembering dad & grandma #FundNIH 5calls.org
Julie Brose @juliebrose.bsky.social PhD โข Postdoc research fellow @perroninstitute.bsky.social and Honorary @UWA/University of Bristol/NIHR ARC West โข Foodie ๐จ๐ฆ๐ฆ๐บ๐ฌ๐ง
Research includes #PalliativeCare #PublicHealth #NeuroRehab #PalliativeRehab #OT #Evaluation
linkedin.com/in/julie-brose
@juliapieinthesky.bsky.social @juliapieinthesky.bsky.social
Brain and Mind Centre @brainandmindcentre.bsky.social We are at the forefront of #mentalhealth & #neuroscience #research. We collaborate across industries & disciplines to find answers to global #health challenges.
@iamals.bsky.social @iamals.bsky.social I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS. Weโre fueled by urgency to find a cure and a track record of real impact.
Colm Peelo @cpeelo.bsky.social BioInnovate Fellow
PhD Clinical Medicine, finding my niche in MedTech.
Brain๐ง neurodegeneration๐ง health๐ฅ heart failure๐ environment๐ tech๐ป mountainsโฐ
Wannabe nerd ๐ค
LinkedIn: www.linkedin.com/in/colm-peelo
Melissa Fagan @liss-liss.bsky.social Writer, reader, surfer, swimmer | on unceded Bundjalung country | author 'What Will Be Worn' ๐ | Co-pilot, stepmum, dogmum, auntie | gardener-in-training | PhD survivor | Sessional academic - creative writing
http://melissafagan.com/
Bhinge Lab @bhingelab.bsky.social Bhinge Lab @lsiexeter.bsky.social works on "RNA Dysregulation in Neurodegeneration" | Passionate about curing Neurodegenerative Diseases | We love neurons, stem cells, animals
https://www.bhingelab.com/
https://experts.exeter.ac.uk/26305-akshay-bhinge
Jen Benson @jbslt.bsky.social Independent Speech and Language Therapist, specialising in all things neurological.
https://jbensonspeechtherapy.co.uk/
@terrierbr.bsky.social @terrierbr.bsky.social
dbRotas @dbrotas.bsky.social dbRotas.com โ
๐ง help@dbrotas.com โ
Creating bespoke rotas around leave request + preferences ๐๏ธ โ
Algorithm driven personalised rota creation ๐
Owen Peters @owenpeters.bsky.social Neuroscience Senior Lecturer (Assistant Prof) at Cardiff University, Wales UK
Neurodegeneration, ALS/MND and Dementia
Tim Atkinson @timjatkinson.bsky.social East Midlands Regional Organiser for @amnestyuk.bsky.social
#activism, #volunteering, #ukpolitics, #sciencefiction, #organising, #environment, #health #socialcare.
Personal account. Views expressed here are entirely my own.
https://magpiemoth.com/
@davidcamburn.bsky.social @davidcamburn.bsky.social Journalist / Video Director.
Kirsty @kirstyrobi.bsky.social NHS dietitian stroke and neuroscience. Loves travel, music and ๐ฅ spicy food
Keir @keir75.bsky.social Love music and gigs, Liverpool FC, photography and nature
Activity Uplift @activityuplift.bsky.social Fun activities for Dementia & Alzheimer's Caregivers, Seniors, and Activity Professionals. https://activityuplift.com
Suzanne Maguire @suzannemaguire66.bsky.social
Charlotte ๐ @charlottesage.bsky.social Paediatric nurse, Team Lead CYP Community Nursing, Queens Nurse. MSc, BSc, Specialist Practitioner CCN. Wife and mother to 3 beautiful children. All views expressed are my own.
MND Australia Research @mndaus-research.bsky.social Motor Neurone Disease Australia is the peak body for the MND community in Australia. We have built & sustained Australian MND research for 40 yrs and partner with other Australian and international MND/ALS organisations.
Rachel Raybould @rachray7.bsky.social Pharmacy Technician with over 20 years experience acquired in Acute hospitals, Primary Care, Community Pharmacy and Education Settings.
Views expressed are my own
@simonharr.bsky.social @simonharr.bsky.social
International Observatory on End of Life Care @ioelc.bsky.social The International Observatory on End of Life Care undertakes research and education to improve palliative and end of life care. Home of the PhD in Palliative Care. Lancaster University, UK. https://www.lancaster.ac.uk/health-and-medicine/research/ioelc/
Sancha Brody-Stalker @sanchabrodystalker.bsky.social Communications Officer - Research, Motor Neurone Disease Association
@mndassoc.bsky.social
@mndresearch.bsky.social
Social Work Today @socialworktoday.bsky.social Your social work community: Social work news, events, podcasts, practice updates and jobs from direct employers. ISFW media partner. socialworktoday.co.uk
Ben Messer @drbenmesser.bsky.social Home Mechanical Ventilation physician|Intensivist|Clinical lead of the North East Assisted Ventilation Service
ALS United Greater New York @alsofgny.bsky.social We provide local, on-the-ground services to patients and families living with ALS throughout the Greater New York area, including New York City, Long Island, lower and mid-Hudson Valley, and northern and central New Jersey. als-ny.org
FTD Disorders Registry @ftdregistry.bsky.social The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure for frontotemporal degeneration. Numbers have power. Join the Registry. Advance the science. #EndFTD www.ftdregistry.org
@garybirkenhead.bsky.social @garybirkenhead.bsky.social
@paulinefrear.bsky.social @paulinefrear.bsky.social
The Association For Frontotemporal Degeneration @theaftd.bsky.social AFTD offers support, education, and research updates about frontotemporal degeneration (FTD) for families, caregivers, and healthcare professionals.
https://www.theaftd.org/
Anne Rowling Regenerative Neurology Clinic @annerowlingclinic.bsky.social We are no longer using BlueSky as a social media platform. We look forward to you following us on LinkedIn and Facebook for all our latest research news.
Faculty of Health | University of Sheffield @fohsheffield.bsky.social We combine cutting-edge research with exceptional education to tackle global health challenges and improve lives. www.sheffield.ac.uk/health
Nick D. @sussexmouette.bsky.social Living with #MND. Making hay while the sun shines & raising awareness & ยฃ for research at MND Assoc. #FightMND. No longer running but still walking
https://gofund.me/39bfa1ce
We Care Campaign @wecarecampaign.bsky.social Multi-award winning grassroots campaign for unpaid carers in the UK. Led by carers, for carers.
wecarecampaign.org.uk
My Name'5 Doddie Foundation @mndoddie5.bsky.social Our vision: a world free of MND ๐๐
Lisa Cousins @lisacousins.bsky.social Professional Resources Lead at the MND Association.
MND Association @mndassoc.bsky.social Every day we support people affected by motor neurone disease. Because with MND, every day matters.
Dementia Researcher @dementiaresearcher.bsky.social A support service for Early Career Dementia Researchers Worldwide. Delivered by UCL funded by Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society, Race Against Dementia & the NIHR - https://www.dementiaresearcher.nihr.ac.uk
Fergal Waldron @fergalwaldron.bsky.social Advanced Research Fellow, University of Aberdeen | ALS/MND/FTD | Early diagnosis & precision-prevention | Biomarkers | Disease Heterogeneity | Non-motor symptoms
Ammar Al-Chalabi @ammaralchalabi.bsky.social Professor of Neurology and Complex Disease Genetics, King's College London. Co-Director UK MND Research Institute https://ukmndri.org #MND #ALS Specialist. Deputy Editor, Brain
Hilary Bekker @hilarybekker.bsky.social Prof. Medical Decision Making, University of Leeds, UK. Curious about how people make healthcare choices, research to inform decision aids, clinical practice and shared decision making interventions. Views are my own, some are informed.
Patient Information Forum @pifonline.bsky.social PIF is the independent voice of health information. We promote access to trusted, evidence-based health information for all. We run the PIF TICK โ the independent credibility mark for health information.
www.pifonline.org.uk www.piftick.org.uk