NHS England @england.nhs.uk 
National Voices @nationalvoices.bsky.social A coalition of over 200 charities making what matters to people matter in health and care.
Account monitored Mon-Fri, 9am-5pm.
Compassion in Dying @compassionindying.bsky.social We want people to be in control of their end-of-life decisions because there is no-one better to make them.
RNIB @rnib.bsky.social We’re the Royal National Institute of Blind People.
Profile pic: Our logo, bold black capital letters spelling RNIB, with a bold pink underline.
The King's Fund @thekingsfund.bsky.social The King's Fund is an independent charity working to improve people's health. Our vision is a world where everyone can live a healthy life. https://www.kingsfund.org.uk/
Owen Peters @owenpeters.bsky.social Neuroscience Senior Lecturer (Assistant Prof) at Cardiff University, Wales UK
Neurodegeneration, ALS/MND and Dementia
Suvankar Pal @suvankarpal.bsky.social 
The Association For Frontotemporal Degeneration @theaftd.bsky.social AFTD offers support, education, and research updates about frontotemporal degeneration (FTD) for families, caregivers, and healthcare professionals.
https://www.theaftd.org/
Dr Rebecca Casterton @rcasterton.bsky.social Post-doc @ University of Cape Town, South Africa | Wellcome Trust Early Career Award Fellow | Cell cycle, DNA damage & cell death in ALS/FTD 🧠🧬
Adrian Isaacs @adrianisaacs.bsky.social Investigating FTD and ALS at the UK Dementia Research Institute and UCL Queen Square Institute of Neurology
ALS United Connecticut @alsunitedct.bsky.social ALS United Connecticut provides comprehensive support to improve the quality of life for people with ALS and their families while advocating for increased support and advancing innovative research for new treatments and an end to ALS.
ALS United Greater New York @alsofgny.bsky.social We provide local, on-the-ground services to patients and families living with ALS throughout the Greater New York area, including New York City, Long Island, lower and mid-Hudson Valley, and northern and central New Jersey. als-ny.org 
Marie Curie UK @mariecurieuk.bsky.social We’re the UK’s leading end of life charity. Hospice care and support, research and campaigns. Whatever the illness, we’re with you to the end 💛
Suzanne Maguire @suzannemaguire66.bsky.social 
Local Council Carers Week @carersweek.bsky.social 
Liz Worthey @lizworthey.bsky.social #AssociateProf #CompBio #Omics #WomenInScience #LGBTQ+Ally #Scottish #PrecisionMedicine #HealthCare #MDx #ME/CFS #RareDisease #Informatics #SciFiNerd #LongCovidAffected
sites.uab.edu/cgds/ she/her
Dr Ruth Carlyle FCLIP @ruthcarlyle.bsky.social Writer | Singer | Textile Artist. Co-Chair CILIP Health Libraries Group @ciliphlg.bsky.social.
Respiratory Futures @respfutures.bsky.social A platform for the UK respiratory sector, shaping debate, supporting progress and championing innovation.
Seed-funded by BTS/NHSE.
Tweets are not endorsements.
Kath Evans @kathevans2.bsky.social #ChildHealth #OurBCYPdeservebetter #PreventionPays #Healthisaneconomicgeneratorofwealth
#NHS1000miles & a bit of adventuring too 😉
Care and Support Alliance @csalliance.bsky.social The Care and Support Alliance: 60+ leading UK charities campaigning alongside the millions of older people, disabled people and their carers who deserve decent care.
Lisa Cousins @lisacousins.bsky.social Professional Resources Lead at the MND Association.
Lab4Living @lab4living.bsky.social Design for life and for living. Empowering people through partnership between design and health practice and research. https://lab4living.org.uk
Faculty of Health | University of Sheffield @fohsheffield.bsky.social We combine cutting-edge research with exceptional education to tackle global health challenges and improve lives. www.sheffield.ac.uk/health
The University of Sheffield @sheffielduni.bsky.social We're a QS World Ranking Top 100 University changing lives through education and research since 1905.
linktr.ee/sheffield
Euan MacDonald Centre for Motor Neuron Disease Research @euanscentre.bsky.social We are no longer using BlueSky as a social media platform. We look forward to you following us on LinkedIn and Facebook for all our MND/ALS/SMA research news.
Joseph Rowntree Foundation @jrf-uk.bsky.social We work to speed up and support the transition to a future free from poverty, in which people and planet can flourish.
https://www.jrf.org.uk/
Trish Greer @trish123g.bsky.social Just joined love all things sleep and home ventilation. Views on here are my own. Mother, Nana and wife. Looking forward to retirement 😂
Child Bereavement UK @childbereavementuk.org We help children, young people, parents and families to rebuild their lives when a child grieves or when a child dies.
☎️ 0800 02 888 40 | Visit: childbereavementuk.org
Oral Health Foundation @dentalhealthorg.bsky.social We're an independent charity improving oral health by talking about oral health conditions, teaching you how to look after your mouth, and running national awareness campaigns.
Professional Record Standards Body (PRSB) @profrecordsb.bsky.social The PRSB is dedicated to the development and implementation of standards in health and social care to ensure that information in health and social care records can be accessed by the right people, in the right place, at the right time.
https://theprsb.org/
Ben Messer @drbenmesser.bsky.social Home Mechanical Ventilation physician|Intensivist|Clinical lead of the North East Assisted Ventilation Service
We Care Campaign @wecarecampaign.bsky.social Multi-award winning grassroots campaign for unpaid carers in the UK. Led by carers, for carers.
wecarecampaign.org.uk
Fred (Derik) Steyn @fredsteyn.bsky.social 
Carers Scotland @carersscotland.bsky.social Carers Scotland work with and on behalf of unpaid carers who provide support to family and friends who have disabilities, long term conditions or frailty associated with older age to enable them to live independently in their own homes and communities.
Dementia Researcher @dementiaresearcher.bsky.social A support service for Early Career Dementia Researchers Worldwide. Delivered by UCL funded by Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society, Race Against Dementia & the NIHR - https://www.dementiaresearcher.nihr.ac.uk
Independent Age @independentage.bsky.social UK charity tackling the hidden reality of poverty in later life with advice, campaigns and grants.
Call our free Helpline on 0800 319 6789
https://www.independentage.org/
Liam Campbell 🏳️🌈 @liam-campbell.bsky.social Advanced Practice Physiotherapist in LTV (trache) and Weaning. Interested in long term ventilation, Cough, Weaning and Muscle weakness
Social Work England @socialworkengland.bsky.social The specialist regulator for social work in England. For all enquiries: https://www.socialworkengland.org.uk/about/contact-details/
British Association of Social Workers @basw-uk.bsky.social The official Bluesky account for the British Association of Social Workers. We are the UK's largest professional association for social work.
Mental Capacity Cat - Hannah Nicholas @thecapacitycat.bsky.social “Paws for thought” on all things Mental Capacity, Adult Social Care & Health.
Contact hannah@mentalcapacitycat.co.uk or DM us re: your training needs on:
🐾 MCA/DOLS/Court of Protection
🐾 Mental Health Act 1983
🐾 CHC and NHS
🐾 Care Act 2014
🐾 + many more
Rowcroft Hospice @rowcrofthospice.bsky.social Rowcroft Hospice is a charity, providing specialist palliative care to people with progressive, life-limiting illnesses across 300 square miles of South Devon.
Website: https://rowcrofthospice.org.uk/
The PSP Association @pspassociation.bsky.social Helping people living with Progressive Supranuclear Palsy & Corticobasal Degeneration to live the best life they can #TeamPSPA🧠
Sign-up to our Pathway to Progress Challenge here: https://www.pspassociation.org.uk/pathway-to-progress/
James Bullion CBE @jamesbullion.bsky.social Former Chief Inspector of Adult Social Care and Integrated Care, CQC, former DASS Norfolk, Essex, past Adass President. Skills for Care Trustee. Poet. Guitarist.
ADASS @adass.bsky.social ADASS is the Association of Directors of Adult Social Services, furthering the interests of those who need social care services.
British Dental Association @thebda.bsky.social The British Dental Association is the voice of dentists and dental students in the UK.
https://www.bda.org/
MND-SMART @mndsmart.bsky.social An innovative clinical trial for MND led by the Euan MacDonald Centre based at The University of Edinburgh.
http://mnd-smart.org
Sue Ryder @sueryder.bsky.social We are here to make sure that everyone approaching the end of life or living with grief can access the support they need 💙
sueryder.org
Kirsty @kirstyrobi.bsky.social NHS dietitian stroke and neuroscience. Loves travel, music and 🔥 spicy food 
Royal College of Paramedics @paramedicsuk.bsky.social The recognised professional body for all paramedics in the UK, whose role is to promote and develop the paramedic profession.
Dr Kathryn Mannix @drkathrynmannix.bsky.social Former palliative care doctor
Campaigning for better public understanding & conversations about dying
Writer: With The End In Mind & Listen
Speaker
Hopeful despite the circumstances.
www.kathrynmannix.com 
Hilary Bekker @hilarybekker.bsky.social Prof. Medical Decision Making, University of Leeds, UK. Curious about how people make healthcare choices, research to inform decision aids, clinical practice and shared decision making interventions. Views are my own, some are informed.
Lee Bolton (he/him) 🏳️🌈 @leebolton.bsky.social Speech & Language Therapy Services Manager at NHS Western Isles • Adult acquired disorders • Upper aerodigestive tract (dys)function • Healthcare management & leadership • QI • Frustrated linguist • FRCSLT
Wolfson Palliative Care Research Centre @wolfsonpallcare.bsky.social Find us at https://www.hyms.ac.uk/research/research-centres-and-groups/wolfson 
Bristol Palliative and End of Life Care Research @peolcsw.bsky.social Group of Bristol University professionals conducting palliative and end-of-life care research. Coordinated by Charlotte Chamberlain, Lucy Selman and Lucy Pocock
https://www.bristol.ac.uk/population-health-sciences/projects/palliative-end-of-life-care
Wellcome Trust @wellcometrust.bsky.social Supporting research to transform life, health and wellbeing. We’re taking on three urgent health challenges: mental health, climate change & infectious disease.
UCL Communication Clinic @clinicucl.bsky.social Speech and language therapy for adults with communication difficulties; training student speech and language therapists; research and events.
Webpage: https://www.ucl.ac.uk/brain-sciences/pals/research/language-and-cognition/ucl-communication-clinic
Ewout Groen @ewout.bsky.social Biomarkers and mRNA translation | Long-read sequencing | ASOs and gene therapy | SMA & MND research lab at UMC Utrecht | Previously University of Edinburgh | Also cycling, cats, father of 2
Fergal Waldron @fergalwaldron.bsky.social Advanced Research Fellow, University of Aberdeen | ALS/MND/FTD | Early diagnosis & precision-prevention | Biomarkers | Disease Heterogeneity | Non-motor symptoms
Nick D. @sussexmouette.bsky.social Living with #MND. Making hay while the sun shines & raising awareness & £ for research at MND Assoc. #FightMND. No longer running but still walking
https://gofund.me/39bfa1ce
Ammar Al-Chalabi @ammaralchalabi.bsky.social Professor of Neurology and Complex Disease Genetics, King's College London. Co-Director UK MND Research Institute https://ukmndri.org #MND #ALS Specialist. Deputy Editor, Brain
MND Australia Research @mndaus-research.bsky.social Motor Neurone Disease Australia is the peak body for the MND community in Australia. We have built & sustained Australian MND research for 40 yrs and partner with other Australian and international MND/ALS organisations.
MND Research @mndresearch.bsky.social Every day we drive research into motor neurone disease — from understanding causes to finding treatments. Because every day matters.
Anne Rowling Regenerative Neurology Clinic @annerowlingclinic.bsky.social We are no longer using BlueSky as a social media platform. We look forward to you following us on LinkedIn and Facebook for all our latest research news.
Richard Cave @speedoftrust27.bsky.social Consultant Speech and Language Therapist, Co-Director UCL Centre for Digital Language Inclusion (CDLI), Phd Speech Recognition Tech for Dysarthria. RCSLT advisor for voice banking, Giving Voice award 2020 & MND ALS Alliance AHP award 2022. UCL Deans List
Emma Scotter @emmascotter.bsky.social Associate Professor at the Centre for Brain Research, University of Auckland, NZ. #ALS #MND #FTD. Lover of molecules, cells, life.
Oxford MND Research @mndoxford.bsky.social Oxford MND/ALS Research Groups at @ndcnoxford.bsky.social and @kavlioxford.bsky.social
Researching MND/ALS through early disease modelling and biomarker discovery
Website: https://www.ndcn.ox.ac.uk/research/oxford-motor-neuron-disease-centre
My Name'5 Doddie Foundation @mndoddie5.bsky.social Our vision: a world free of MND 💙💛
UK MND Research Institute @ukmndri.bsky.social A national network of MND centres that work together to understand how #MND happens, what treatment works, and test possible treatments in clinical trials.
Tim Atkinson @timjatkinson.bsky.social East Midlands Regional Organiser for @amnestyuk.bsky.social
#activism, #volunteering, #ukpolitics, #sciencefiction, #organising, #environment, #health #socialcare.
Personal account. Views expressed here are entirely my own.
https://magpiemoth.com/
Patient Information Forum @pifonline.bsky.social PIF is the independent voice of health information. We promote access to trusted, evidence-based health information for all. We run the PIF TICK – the independent credibility mark for health information.
www.pifonline.org.uk www.piftick.org.uk
MND Association @mndassoc.bsky.social Every day we support people affected by motor neurone disease. Because with MND, every day matters.
Bluesky @bsky.app official Bluesky account (check username👆)
Bugs, feature requests, feedback: support@bsky.app