Patients with Power @ptswithpower.com Patient-scientist fighting for medicine based in SCIENCE; NOT BIAS⚡Calling out harmful healthcare culture⚡Breaking down difficult doctor behaviour✍️🧐
Something Chronic @somethingchronic.bsky.social Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness
Colleen Steckel @colleensteckel.bsky.social Advocate for #MyalgicEncephalomyelitis using ME-ICC.
Contracted ME in 1989
Substack: https://colleensteckelmeiccinfo.substack.com/
Volunteer at www.MEadvocacy.org
Aspiring writer of paranormal fiction
~ Shanna Lee James~ Author @2bdynamic.bsky.social Retired Nurse and Author who loves writing about 'real life' stuff. Visit my Author website @ shannaleejamesauthor.com to see my bio and books. And my 2nd site @ https://bsky.app/profile/jami-jam.bsky.social
jazzrat2000 AKA Bonsai anonymous @jazzrat2000.bsky.social #ND #Artist #Spoonie #Retired #Mentalhealth #jazz #trumpet. S FL, #LGBT #ally, #trans! 71, #married 50, #sober 20: #AA. #Suicide, #animalrehab. All posts: IMHO. No DMS, I FB. he/him/not yours
"Please put the #trumpet down and slowly back away"
Whitney is Wicked @itswhitneywitch.bsky.social Disability Justice
Living with ME, EDS, POTS, MCAS, vascular compressions, spinal comorbidities & more
Ambulatory wheelchair user
Cozy gamer, lazy gardener, hopeful baker
Christian Latin Music Records® LLC. @christianlatinm.bsky.social •The World’s Leading Christian Latin Music •Media/News Company. •Record Label •Info@christianlatinmusic.net •(877) 370-1345
Harrison @harrison565.bsky.social CLB💚ALB 💙JRW💛77.10.20RIPDADDY🕊️
I divorced since 3 years ago 💔
Sharing their testimony and the Gospel with others.Regularly reading and applying the Bible📕 to their life.
Dr. Emily Arndt 🏳️⚧️ @brachinus.bsky.social Polymer chemist & engineer in industry. Spent some quality time studying bombardier beetles. CWRU Macro & MIT PPSM alumna. Loves science, animals esp insects & cats, photography, computers, cooking, & the outdoors. Trans queer autistic woman. She/her
Goalie Host Canada 🇨🇦 @littleriverk.bsky.social Mom, Nana,Septuagenarian runner, retired skilled trades / English teacher, artist, progressive, gardener, designer, carpenter/woodworker, rural living urbanist
KimK @kimk-research.bsky.social Retired 🪷 Grandmother ♿️ amputee 🤍 domestic violence advocacy 🥄 longCOVID advocacy @renegaderesearch.bsky.social 🥩 animal-based keto
Eleanor Fielding @meownersclub.bsky.social ‘We’re driving in the dark with our sunglasses on!”
#RLS #ME #PEM
Retired lecturer/therapist
Open University, CCCS B’ham, feminism, politics, culture, disability, science, music, languages.
meownersclub@bsky.social
Maker of #FanningTheFlames
Derrick Orphanage @littlepalacehome.bsky.social Just an orphan trying to change the lives of these poor kids and orphans to give them hope for a better future.
DONATE HERE 👇👇
https://gofund.me/cdd67c27
Renegade Research @renegaderesearch.bsky.social Patient-led 501c3 nonprofit focused on #MECFS & #LongCovid 💙 https://linktr.ee/renegaderesearch • Runs @remissionbiome.bsky.social
Au Contraire @jcontraire.bsky.social Interests: Civility | Democracy
| Long Covid | ME/CFS | MCAS | Autism | PDA | Alexithymia | Repost/Follow/Like doesn't imply endorsement
@shanalittle45.bsky.social @shanalittle45.bsky.social 
Jess Badger @jesshoneybadger.bsky.social Chaotic good writer and scientist with severe, bed bound MECFS. Writing wholesome stories, science stuff, and funny anecdotes from bed. Lover of memes.
jesshoneybadger.substack.com
JenCruz4Change @jacbluesky.bsky.social 
@harryroys.bsky.social @harryroys.bsky.social 
Bateman Horne Center @batemanhornecenter.bsky.social The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
Lori Tindall 🔘 @loritindall.bsky.social 🖤 Art + Science of Deep Health
Coaching: Nutrition, Sleep, Movement, Mindfulness, Breath
• Everything is political.
• Fueling better, feeling better.
www.LoriTindall.com
Belasco @belasco.bsky.social Queer disabled chronically ill nature-loving nerd trapped in Texas
Isabel Ramirez-Burnett @isabelrb.bsky.social CEO | Renegade Research | Project Director of Remission Biome
NBC-HWC, AIP-C
@remissionbiome.bsky.social
Ous @hamabi136.bsky.social 
Shematologist, MD @shematologist.medsky.social Peds hematologist oncologist, mother, dreamer, pacifist, justice seeker. Retweeted by Wonder Woman #HemeSky #MedSky #CakeForBreakfast #IronMatters http://www.HCWvsHunger.org- A Andrew Green @andrewg76201347.bsky.social ME/CFS, POTS, MCAS, lupus, Hashimoto’s. Patient & carer. Disabled scientist. Female - using fake name bc I post about son's illness. Location: Australia
Billy Hanlon @bhanlon15.bsky.social ME/CFS | Long COVID | IACC
Tony Hayes @tonyhayes299.bsky.social Easy Going
One step at a time
Snow Leopard @snowypanthera.bsky.social Animagus. Hearty but not hale. Celebrant of beautiful action. Likes bicycles. Note: The only time I post with my real name is in scientific journals. Kaurna Country. She/Her.
Fiona Wood @mewarrior1.bsky.social Wife, mum, Severe ME, 💙✝️♿️Fibromyalgia
Observe small things, don't rush, love & forgive
#loveyourself #loveothers ❤️
#chronicillnesswarrior1 on X & IG
Opinions are my own 🤓
Sandcastle Kat @sandcastlekat.bsky.social A cat trying to survive in a world without adequate public health protections.
Kenny Boy @kenkers10.bsky.social Let’s cook!! I’ll show you…If at all possible, please subscribe to my cooking YouTube channel https://youtube.com/@kenkers10?si=_OwLZ0YRFxuC-zMZ Ken…married 2 children, and I love gardening, dogs, strong IPA beer, and bourbon. Go NY Giants, NJ Devils!!!
Manpreet Singh @gorichodni.bsky.social 
Elly Brosius, MS @ellybrosius.bsky.social Pets, nature, physics, health, sewing, crafts, ME/CFS/OI/LC science & symptoms, medicinal metaphors, gratefulness practice. Volunteer for Renegade Research including R50, NoVA ME/CFS, OI & Long Covid Support Group, MEAction NC.
Anderbergskan @anderbergskan.bsky.social Born at 320, learning anew 😷♿ 🐸
#CallForPublicHealthAction
Flo-mask ✨ Zimi ✨ Dräger ✨ Zekler ✨ Aura
Don’t Inhale Virus @dont-inhale-virus.bsky.social My profile picture honors Dr Wu Lien-teh & his pioneering work in Malaysia in 1910 on masking to prevent pneumonic plague. The French doctor Gérald Mesny who came to replace Dr Wu thought he knew better, refused to mask & died.
Juicy Burgers @juicyburgerssd.bsky.social Juicy Burgers in San Diego’s Midway District serves up gourmet burgers, crispy wings, and rich cheesecake. Enjoy dine-in, takeout, or delivery near Liberty Station! Permanently closed.
Toby Mac @tobymac00.bsky.social My new song "Nothin'Sweeter" is available now, wherever you listen to music...
J Willson @zhaydub.bsky.social 
OhTWIST @ohtwist.bsky.social Oh That's Why I'm So Tired - Ehlers-Danlos syndromes blogger and medical educator, co-author EDS Toolkit for Doctors 2018, book on EDS and autism coming 2026 (tbd) (toes crossed)
https://ohtwist.com
Colandme (Extremist Allegedly) 🏴 @coldon1983.bsky.social Aberdeen fan. Passionate about an independent Scotland. SNP member. Live by the sea and a Loch. ME for 13 years #pwME #rejoin #FBPE 🏴
Molly Gordon, she/her @mollyboom.bsky.social Typically preoccupied with wisdom & justice. Occasionally unwise or unjust.
Tough canary. Ecstatic cranky. Queer.
#LongCovid #MECFS FUNCAP 1.1
Tara F, PhD, MPH @taraf.bsky.social Health Equity & Translational health researcher | Improving healthcare services & experiences for marginalized | Part-time research associate | Renegade Research volunteer
Tampa, FL
😷🌈☮️📊📚🫂🩼♿️🗣️
#Disabled #LongCovid #PostVax #MECFS #POTS #hEDS #Lyme #AuDHD
Merve Tepe, PhD @mervetepephd.bsky.social PhD MICROBIOLOGIST
AMR, Biofilms, Phage Therapy, Drug Design and some other similar topics 🤫🔜
@remissionbiome.bsky.social team
@renegaderesearch.bsky.social volunteer
DEFEND SCIENCE, RESIST IGNORANCE 🚫
#SonKale06
Ankara
@Niksterbum @niksterbum.bsky.social Westcoast Grandmother with #MECFS/#POTS/#PEM
Pro humanity pro democracy
#IStandWithCarney #Resist
no DMs please
Dawn Drazek @dawndraz.bsky.social Hepatology NP. Former Transplant Coordinator. Art and Drama Mom. #liversky #hepatologyassociate #hepaology
Naomi Harvey PhD @naomidharvey.bsky.social Zoologist & veterinary research. She/her.
22yrs with #MEcfs Pro-vax but vaccine injured. Life on pause due to moderate/severe ME/CFS ♿️
Patient Expert in ME/CFS, POTS and syndromic Long Covid.
Please excuse my typos.
鬼翠たくみ@Vtuber @sikuisumire.bsky.social 👹齢5022歳の鬼姫Vtuber👹
ゲーム🎮廃人
栄養源はコーヒー☕
✨９月４日生まれ✨
好物は焼鳥🐓と和菓子🍡🍘
目指せ受肉‼️
応援よろしくなのじゃ👹✨
⚠️DMは変なのがいっぱい来るので
基本見てません。皆も変なURL踏まないように気をつけてな❓
X https://x.com/takumi_kisui
Youtube https://www.youtube.com/@kisuitakumi
- L Lei Yang @leowestler1.bsky.social Dog and kitten lover..
echo @sexykenjatimegg.bsky.social 
Amanda Finley Digs All the Things @rubyslippahs.bsky.social COVID long-hauler. Former archaeologist, opera, fed employee. Kids & homeless. Feral princess. Topes #WearAMask Comms: @publichealthaction.bsky.social
📍 Ba'al Pit
FB: is.gd/bp2vTA
Media: covidlonghaulers@gmail.com
YouTube.com/@covidlonghaulers
She/her- B Long Covid Is Real @brailemom.bsky.social NJ mom with Long Covid caring for Long Covid kid.
Copyeditor when time & energy allow.
Masking is both self and community care.
#LongCovidKids
#LongCovid
Need masks? Happy to help.
Amar jeet @amarjeat.bsky.social 
OThingstodo @othingstodocom.bsky.social Checkout latest travel photos and Videos.
Naylor007 @naylor007.bsky.social #pwME #MyalgicEncephalomyelitis One day at a time ... will do what I can to help others 
OThingstodo @othingstodo.bsky.social Checkout latest travel photos and Videos.