ME/CFS Research Foundation @mecfsresearch.bsky.social Fรผr mehr ME/CFS Forschung!
We promote & finance #MECFS research!
ME/CFS: Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
Linkรผbersicht: https://t.ly/Tt3W8
Andrew Gregory @andrewgregory.com Editor, Health @theguardian.com
Shaun Lintern @shaunlintern.bsky.social Health Editor at The Sunday Times. Health Journalist of the Year 2023. Helped expose #MidStaffs. Public interest journalism matters #E17 #patientsafety
๐ฐ https://www.thetimes.co.uk/profile/shaun-lintern
๐ DMs open
๐จ shaun.lintern@sundaytimes.co.uk
zeynep tufekci @zey.bsky.social It is said that there may be seeming disorder and yet no real disorder at all
Shalida A. Askanazi โฟ๐ @shalidaask.bsky.social Author & poet based in Cleveland, OH. I'm also super disabledโSacral Agenesis, wheelchair, urostomy, diabetic, and mentally ill. So, y'all get the picture. My memoir is out!! ๐๐๐
https://www.loganberrybooks.com/shalida-askanazi-girls-wheelchair-book-launch
sleepy babushka (Momo) @garleanblue.bsky.social 31 ๐| they/them & ๐ | me/cfs, COPD, lung scarring & schizophrenia | always tired ๐ช | tarot cards, Furbies, FFXIV, ACNL/ACNH, house plants ๐ชด| attempting to not kill Bonsai | Mom to two pigeons (Bubbers & Kazoo)
Joao @joao-walker.bsky.social Wegen Long Covid die meiste Zeit zu Hause
Co-Founder @aktionskalender.bsky.social
Robyn Ruth @robyn-truth.bsky.social Medically Complex Human | Patient and Health Care Advocate | #HealthCareVoter | #ProtectOurCare | #DemocracyWarrior |
@busydizzylizzy.bsky.social @busydizzylizzy.bsky.social Chronically ill baddie who wants to vibe and fight the current administration
Stockfloh @stockfloh.bsky.social #mecfs #chronicIllness #art #actuallyAutistic and Cmdr Stockfloh in #Elitedangerous
desperatedan @fiveacre.bsky.social rewilding things on behalf of every tree, bee and blade of grass, fighting Myalgic Encephalomyelitis and watching the ongoing collapse of civilisation
trying to be nice, often fail, they/them
Wade Herter @whitesox1967.bsky.social Born and Raised in Chicago 46 years, Portland, Or 1 Year, And currently in LA for 11 years. I'm a real person not a bot.
TYMED @tymed.bsky.social Learning about the importance of having a positive attitude and understanding your own strengths and limitations is essential for success and growth.
https://www.linktr.ee/TYME_INC
Country Over Party ๐ต @mmc123.bsky.social 5th generation Arizonan. Politically homeless (former Republican). Member of The Church of Jesus Christ of Latter-day Saints
@ComeUntoChrist 
Kristi Durazo @krash63.bsky.social Social justice builder, curious about everything, appreciative of ecclectica
American Heart Association Director Strategic Planning and Equity. Views are my own.
No DMs
@stephsits.bsky.social @stephsits.bsky.social 
Origami Crane Creations @ocranecreations.bsky.social โ๏ธLet Your Ideas Take Shape
๐Embracing Life One Day At A Time
๐ ๏ธDigital Tools and Tips | Notion | Spreadsheets | Graphic and Website Design
www.notion.com/@origami_crane_creations
www.origamicranecreations.co
Cllr. Paul White @tootingpaul.bsky.social Cllr for Tooting Bec, Wandsworth Council Cabinet Member for the Environment. Advocate of an equitable and sustainable future.
Marianne @mariannehout.bsky.social Dutch. Bedbound with severe ME. Trying to find my way back to life.
Jay ๐ฆ๐๐๐ง๐ปโโ๏ธ๐ฟ๐๐ณ๏ธโ๐๐ณ๏ธโโง๏ธ๐ค๐๏ธ @adnasjur.bsky.social 
My Friend Kaylen @myfriendkaylen.bsky.social ๐๏ธ Former Radio DJ - Philly, CO, NY
โฟ NeuroSarcoid = Medically fascinating
๐งถ Knitting, Making, Project Person
โ Rain, trees, animals, night
๐ฅ Occasional round of Disc Golf
๐ฅ Sports fan ๐ฅง Pie
๐ Married, Empty nest
The Lone Masker @wndrtsy.bsky.social Public Air Sanitation is the future.
@wonderartsy on Xitter
Pierre Lovato @pierre-lovato.bsky.social Medieval historian. MA student (Rennes 2). Research on Dominican justice and disciplinary practices in Poland (1451โ1517). Interested in mendicant orders, manuscripts and digital humanities.
@lawremukolwe.bsky.social @lawremukolwe.bsky.social 
Penelope Bobelope @larougeabeille.bsky.social Invisible Kingdom Dweller
(Sheโs come undone)
Lolephant @lolephant.bsky.social Australian (very).
1. Trans Rights are Human Rights.
2. Human Rights generally also very excellent.
3. Keen on access & equity for all.
4. Massive feminist. Feministing all over the place.
5. Coffee.
@zebejay.bsky.social @zebejay.bsky.social 35 years old. I like video games.
@chill-claws.bsky.social @chill-claws.bsky.social 
Denise Kotalik @deniseskis.bsky.social Loves to ski, dance, read, and bake.
LC.
Lyra Green @lyragreen.bsky.social I was born in Shenzhen, China, and have lived in the United States for over 16 years. I came to beautiful Seattle 8 years ago. Now, I'm looking for those little moments of joy that brighten my daily life.๐ซ No pornography.
Sally Strawberry Fields @hecateri.bsky.social I refuse to be afraid.
Debbie Cole @liddledeeb.bsky.social Democrat abroad who enjoys books, music, food, wine, travel, sports and life in Mexico.
Thirdeye @thirdeyeerisian.bsky.social Drum tracks go brrrrr.
Anime addict.
Farther left than most Americans.
I hold and will state radical ideas. I am willing to discuss them politely. Insults get you disregarded.
hard/speed/digi/break-core enjoyers should check out #ShitEyeLikes
Cathy Samtbird @cathysamtbird.bsky.social #ChildlessParrotLady
Lifelong Dem. #RoeVWade
NO DMs
Vote Blue!!! #FBaRmy #BlueCrew
Go Bruins! Go Patriots!
Sandieglo @sandieglo.bsky.social ๐ ๐๐ฆ ๐๐ง ๐๐๐ฎ๐๐๐ญ๐จ๐ซ, ๐ฉ๐จ๐๐ญ, ๐๐๐ฌ๐ค๐๐ญ๐๐๐ฅ๐ฅ ๐๐ง๐ ๐ญ๐๐ง๐ง๐ข๐ฌ ๐ฉ๐ฅ๐๐ฒ๐๐ซ. ๐ ๐ฉ๐ฎ๐๐ฅ๐ข๐ ๐ฌ๐ฉ๐๐๐ค๐๐ซ, ๐๐จ๐ง๐ฌ๐ฎ๐ฅ๐ญ๐๐ง๐ญ ๐๐ง๐ ๐ ๐ฌ๐๐๐ค๐๐ซ ๐จ๐ ๐ค๐ง๐จ๐ฐ๐ฅ๐๐๐ ๐. ๐๐จ ๐๐'๐ฌ. ๐ญ๐ซ๐ฎ๐ฆ๐ฉ ๐ข๐ฌ ๐๐ฏ๐ข๐ฅ. 
Pinky @pinky1259.bsky.social Chicago-Auntie-Animal lover๐พClassicMovies๐ฅLove Kliban๐ปUniversal Healthcare
ProChoice-ProUnion
LGBTQ+๐ณ๏ธโ๐๐ณ๏ธโโง๏ธDACA
BanAssaultWeapons
Wokeโ๏ธHere to connect,
share strength, anger, outrage, sadness, support, hope & joy,
share words of wisdom
hear voices of reason๐
๐ฆ๐โ๐ฆบ๐บLadyWillow๐๐พ๐ฆ @ladywillow.bsky.social NO LAB-Grown Chocolate or FOOD!! Good TROUBLE! PNW. FiberARTist. Gardener. UpCYCLE/ReCycle. NATURE/Bees, TREEs, RescuePETs, ORIGAMI, History, BOOKs! SJS, Fibro, EDs, EBV. Photographer. CREATIVE, Whimsical, NON-Obey Senior. BLUE Rebel. /;)
๐ฆ๐โ๐ฆบ๐ฆ๐ชด๐ฆ๐ป๐ฆ๐บ๐ฆฌ๐ฆ๐พ๐ฆ๐๐ฆ
Sally Lord @lordsally.bsky.social Happily married to husband Chris. Plymouth, UK. Argyle, FK Vidar & Spurs fan, occ Boro fan. NO DMs Not into crypto, either. I despise EVERYTHING TACO stands for. Awaiting his downfall with relish.
MarySoup @maryhutch76.bsky.social Mom of 3, grandma of 2, cat lover, person in recovery, ally, NO MAGA, arts/crafts, cares about nature and the environment, preserving our democracy and resisting fascism
Chris Nagano @charliesaito22.bsky.social Retired US Fish & Wildlife Service endangered species biologist (27 yrs), former Center for Biological Diversity
Writing a book on the international trade in insects & invertebrates
Butterflies, imperiled species, & especially golden retrievers ๐ฆค๐ฆฎ
@blueeyedlion.bsky.social @blueeyedlion.bsky.social #TruthWarriors
#TrueBlue
#Bluecrew
#Strongertogether
Avid gardener..
Lover of nature.. Dragonflies..
Mother..
Grandmother..
Cat /Dog rescuer.. Rock painter .. Fairy garden builder..
Seeker of Truth..
Blue dot in a Red Sea.. Be Kind.. Love is All there Isโฆ
Cap Wilhelm-Safian @capws.bsky.social Retired educator/union rep, #singer-songwriter, #progressive trouble maker, cyberbusker. (Songs to comfort the afflicted and afflict the comfortable. Purveyor of emotional life preservers for the trumpocalypse.) #Resist. Rinse. Repeat. #folkrock #folk
Janet Scott @drjanetscott.bsky.social NHS Highland Consultant in Infectious Disease and NRS Research Fellow. Long COVID, post Ebola Syndrome, post treatment Lyme. Global Health.
Bymyown Pawz @bymyownpawz.bsky.social anyms, dsbld & autistic nb cryptid
๐๐ค๐๐ค ๐ณ๏ธโ๐๐ณ๏ธโโง๏ธ๐บ๐ฆ๐ต๐ธ
โค๏ธโ๐ฅcompassion (for all life) & human rights 4all hmns.
Fight hate crimes & h8ful l@ws too!
WETOLDYOUSO
U ๐ซme, I ๐ซyou back & u go on my ๐ซlist.
U list me negatively, I'll list you back. Ustart it
๐ซTrmprs๐ซmaga
๐บ๐ฒ
Jill Piggott @jillpiggott.bsky.social Philosophy & lit professor, now disabled by migraine & ME/CFS. Cofounder, headsUPmigraine. Volunteer prison educator, Equal Justice Initiative. Progressive activist. In Midcoast Maine & on the lake in New Brunswick, Canada.
Protest @protest-for-me.bsky.social 
@sarahmblair.bsky.social @sarahmblair.bsky.social 
Dee @dee4ever.bsky.social Mother of 7, grandmother of 17, veteran educator of 40 years.
https://www.amazon.com/baby-reg/dietra-blanding-august-2025-monckscorner/1BCVTXA0K5PGM
Helen The OT @helentheot.bsky.social Independent OT in private practice, coming soon | Supporting Long Covid, ME/CFS, POTS, neuro & cognitive challenges | Lived + clinical insight ๐
โฟ hiding from plagues - Always masked - N95 or bust @smollestbunny2.bsky.social โ๏ธAotearoa
Uppity disabled poor person
Political commentator
Knowledgeable but always learning
AuDHD
#StillCoviding
#landback
Human made only
Consider supporting me and my projects/survival
https://ko-fi.com/systemerror
https://payhip.com/Smollestbunny
@curemecfs.bsky.social @curemecfs.bsky.social 
Leslie Kasza @lesliekasza.bsky.social 
Moira California @moiracalifornia.bsky.social Eco-Friendly Art & Culture from the Sierra Foothills
Photography. Dogs. Flowers. Climate. Art. Rage. Divinity in Nature.
โBeautiful Things for Catastrophic Timesโ
{pronounced mora}- J @justindstern.bsky.social @justindstern.bsky.social
Faith @faith13.bsky.social We the people ๐๐๏ธโค๏ธ
๐โฎ๏ธโฟ๏ธ๐จ๐ฅ๏ธ
Speak your truth
Vote ๐๐๏ธ๐ฉท
#AnimalRights #HumanRights
Dignity for all ๐
๐Artist watercolor & ink & embroidery designer/digital/Dyslexic
My online Etsy shop
Mostly embroidery designs ๐ท
https://www.etsy.com/shop/FRenee2Embroidery
@mellowpurple.bsky.social @mellowpurple.bsky.social 
Veblen Director Programme @veblendirectors.bsky.social Helping ambitious people get their first board seats. Regardless of your background.
Auntie Jellyfish @auntiejellyfish.bsky.social Re-distributor of your Unconsidered (and Considered) Trifles
"an obvious paragon of grammar and sentence structure"
Artist's Gopher
PeopleWith @peoplewith.bsky.social The people first approach, PeopleWith has developed an innovative health platform for everyone to monitor all aspects of their health. Enabling and empowering everyone to record and share evidence of their health presentation and progression.
Natasha Woodward @happytree.bsky.social Priest in London and some other stuff.
ChevoBeatz @chevobeatz.com ๐ธ๐ท Music Producer | Recording Artist | Multi-Genre Visionary
Founder of ChevoProductions
๐ Nominated Award Best Reggae Act Musician / Billboard AR Hot 100 Chart
๐ณ๐ฑ Based in The Netherlands
https://linktr.ee/chevobeatz
Raplapla et porte-voix @raplapla-portevoix.bsky.social #DisabilityJustice
#BedboundActivism
#EncephalomyeliteMyalgique
fhronesis @fhronesis.bsky.social Me/cfs severe Housebound, mostly bedbound. Used to love arts, philosophy, painting, theater, gardening, human sciences... Neuro issues, I can't enjoy or easily do that anymore. Antivalidist.
Michelle Mahoney @michellemahoney.bsky.social Neurodivergent Activist, Writer, Educator, Disability Advocate.
Author of Strange Fellow Bobby: The Neurodivergence of Robert F. Kennedy, Sr.
Substack: michellemahoneyautisticadvocate.substack.com
End Frozen Pensions Campaign @endfrozenpensions.bsky.social End Frozen Pensions.
No UK state pensioner left behind. Unfreeze them all.
Fairness. Justice. Dignity for UK state pensioners abroad.
โ Join the fight: www.EndFrozenPensions.org
#FrozenPensions #UKPensions #JusticeForPensioners
You Will Kill Me @youwillkillme.bsky.social ๐ Virtual and in-person die-in to demonstrate the estimated 51k lost lives if the so-called โBig Beautiful Billโ is approved.
Youwillkill.me
๐Online and In Person in Portland,OR
Pioneer Courthouse Square
๐ 7/4 12-1
#youwillkillme
@skellou.bsky.social @skellou.bsky.social 
AllSeerX ๐๏ธ โช @allseerx.bsky.social Fan des rรฉseaux, de la musique , du cinรฉma, des sรฉries , de la WWE . Des sports tv
https://linkfly.to/WinterAnge
Sparrow Zennik (They/Them) @sparrowzennik.bsky.social Climate destabilization, me/cfs, infectious disease tracking, food security, city design, green transportation, passive architecture, and others
Long distance travel and flight free since 2020.
Stands with Palestine, Ukraine, and Sudan.
Isabelle @invisibleisabelle.bsky.social Posting about my live with #LongCovid in order to find new ways of engaging with it and making an invisible illness visible
Gary Anderson @grandsong.bsky.social Formerly in healthcare - Long Covidian now 
Sophie Elizabeth, MSW @philliesfemme.bsky.social (She/They) East Coast guy - Midwest transplant - Capital Mitigation Specialist - COVID Long Hauler - Horror nerd - Lover of tattoos
cardinal @pollybergen.bsky.social flint :: detroit :: toledo
disabled & chronically ill ๐ค๐ป๐ค
๐ต๐ธ๐จ๐ฉ๐ธ๐ฉ๐ช๐น๐ธ๐พ๐ฑ๐ง๐ฏ๐ด๐พ๐ช
"the only way to survive is by taking care of one another." โgrace lee boggs
Kristy B @easterparkgazebo.bsky.social Twin Peaks, Long Covid, tarot, bipolar, Buffy, wrestling, cats (sometimes wrestling cats). I correct people for money.
Max Xaine @maxxaine.bsky.social Meine Damen und Herren, heute Abend sinkt fรผr Sie: Das Niveau
.Sonny Gerundly Braciole. @gerund.bsky.social . HS Lit Tchr in PHL // lover of the Oxford comma // Madonna Louise Veronica Ciccone forever //Dystopia Nerd // ๐ณ๏ธโโง๏ธ .
.he/they. .transanachronistic.
Greta Hawes @gretahawes.bsky.social Mythologist, MANTOneer, MEep, Macquarier, needlewoman, gardener. Secretly just wants to be a cowgirl. 
Biggerthanfrogs @biggerthanfrogs.bsky.social Lurking, learning, maybe commenting. "Conscientious objector from the culture war." Reposts โ 100% agreement
@sue6oo.bsky.social @sue6oo.bsky.social 
MJ Nabuurs @mjnabuurs.bsky.social Trying to remain human in a world determined to challenge humanity. Extrovert with a need for quiet time, despite appearances to the contrary. Co-host of @theresisters.bsky.social โNo Ostriching Here.โ pod with @coopspeak.bsky.social.
@lighthouse-inc.bsky.social @lighthouse-inc.bsky.social 
OldeNaturalist @oldenaturalist.bsky.social IT Consultant, Naturalist and Drone Pilot. Advocate for clean air in schools and vaccines for all. Covid is not over.
The_Maltese_Autist @themalteseautist.bsky.social Neurodivergent (AuDHD and co.), Queer, Chronically Ill, Disabled, Mad...
...MALTESE ๐ฒ๐นโฟ๏ธโพ๏ธ๐ณ๏ธโ๐
Amy Leach @amyleach.bsky.social Comms @cleanairfund.bsky.socialโฌ | Ex. ODI / UN Foundation | Interested in the future of philanthropy, storytelling around climate + health, narrative building and inclusive comms
Alexandria Stuart @alexandriandria.bsky.social An appropriately miffed Gen-X, late-diagnosed AuDHD, pinball witch, Swiftie.
She/her. Advocate. Mother. Researcher. Writer. Plain Language Practitioner. Team Oxford Comma.
Uninvited on the traditional territory of the Snuneymuxw First Nation.
Pilar @pilaresme.bsky.social Just a lurker thru this
Bigots & TERFS & Patriarchy not welcome
Matahari @mataharilm.bsky.social #EncefalomielitisMialgica #ME #MEcfs #EMsfc #CIE10-G93.3 #MillonesAusentes #CIE11-8E49
Long Covid Safety Net @longcovidsafetynet.bsky.social Advocacy for people with post-viral illnesses facing homelessness, domestic violence, and poverty. We need a safety net for Long Covid and ME/CFS.
New York City | longcovidsafety.net
@merricat1.bsky.social @merricat1.bsky.social 
@science-enthusiast.bsky.social @science-enthusiast.bsky.social 
@jhuff.bsky.social @jhuff.bsky.social I generally donโt deal in absolutes
stygimoloch @stygimolochu.bsky.social extant! poet, insufferable dittymaker, largely housebound charmer. collecting my ME/CFS research here w attempts at translating jargon into more accessible language
they/them, as relevant
betancur . n @nelbeu.bsky.social art & architectural historian / visual, material & religious culture