Niko Suvisto @nikosuvisto.com · Feb 16 ME/CFS patients have been neglected for decades. Our rights have been and continue to be violated. We are constantly gaslit by medical professionals and other institutions that should be helping us. 1/11 #Photography #pwME #MECFS
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your pictures are lovely and so so sad i’ve seen my own hand like that in the dark so many times. just lying there unable to move except to open my eyes a small while. it’s been so terrible thank you for sharing
We advocate for better treatments, adequate support, and even just basic recognition of our illness. And we do all of this from our sofas and beds—or whatever place we “rest.” The most severe would like to shout from their darkened bedrooms, but all we can hear are their silent whispers. 2/11
The system tries to postpone a diagnosis. The later it comes the later one seeks for disability and financial help First is the health administration, or insurance company, then the labour one. Every delay in our recognition is a financial gain (an expense avoidance) In the end all is 💰 #MyalgicE