Icons of Change™ News Network @iconsofchange.bsky.social Global Changemakers news and inspiring stories on SDGs & sustainable impact powered by the Icons of Change International
https://www.facebook.com/TheIconsOfChange
@micahrjordan.bsky.social @micahrjordan.bsky.social 
betancur . n @nelbeu.bsky.social art & architectural historian / visual, material & religious culture
Myotonic Dystrophy Foundation @myotonicstrong.bsky.social The world's largest patient organization focused solely on #myotonicDystrophy. Our mission is Community, Care, and a Cure.
www.myotonic.org
Canadian MSK Rehab Research Network @mskrehabnet.bsky.social The Canadian Musculoskeletal Rehabilitation Research Network is a multidisciplinary national Network comprised of researchers, trainees, collaborators, and partner groups with a common goal of mitigating the MSK burden in Canada
@ror-gamma-t.bsky.social @ror-gamma-t.bsky.social 
Kristi Mae @krismaer.bsky.social Old broad learning new tricks. Happily married not looking for hookups.
Le Neuro (Institut-Hôpital neurologique de Montréal) @theneuro.bsky.social Compte officiel du Neuro (Institut-Hôpital neurologique de Montréal)
Official account of The Neuro (Montreal Neurological Institute-Hospital)
@rampant-cytokines.bsky.social @rampant-cytokines.bsky.social 
Rare Disease Advisor @rarediseaseadvisor.bsky.social Trusted knowledge base of practical information and resources focused on treating and diagnosing #RareDisease.
https://www.rarediseaseadvisor.com/
Titmouse @thiclaire.bsky.social Perambulation, e-mobilisation écocitoyenne
@ontowonka.bsky.social @ontowonka.bsky.social 
@bellmathias.bsky.social @bellmathias.bsky.social 
Société de la SLA du Québec @sla-als-quebec.bsky.social Nous soutenons les familles touchées par la sclérose latérale amyotrophique (SLA), sensibilisons le public et finançons la recherche.- A @anitacavaleiro.bsky.social @anitacavaleiro.bsky.social
Rare Disease Day Official @rarediseaseday.bsky.social The global awareness raising campaign for people living with rare diseases.
🌍 28 February 2027
arianek (she/her) @arianek.bsky.social Still alive • Public health/urban planning/open source nerd • SFU Geog • Co-founded Textillia.com w/ @brunodbo.bsky.social ✂️💕 • ♿️🌈🇦🇲🦆🐶🖖📚💌🌿 • PLEASE NO LISTS!!!
@fieldsforever.bsky.social @fieldsforever.bsky.social Free Cascadia!
Loubet Michel @loubetmichel.bsky.social 
Eidrees Ghariq @ghariq.bsky.social Radiologist. Interested in neuroimaging, molecular imaging and therapies, particularly theranostics.
Utrecht, NL
@kmloz59.bsky.social @kmloz59.bsky.social 
Office of the Federal Housing Advocate @housinglogement.bsky.social We promote the human right to housing & advocate for change on systemic issues. | Posts by the Advocate Marie-Josée Houle signed –MJH | Web: https://www.chrc-ccdp.gc.ca/individuals/right-housing | FR: @LogementHousing.bsky.social
QueenMazakeen @queenmazakeen.bsky.social I am an artist: I paint mostly atmospheric abstracts & landscapes in oils. I also love making my own paints/inks. I also woodturn.
Huge fan of human rights and democracy.
I vet followers. No bio = no follow.
If youre a bot or maga - you will be blocked.
@fswcquebec.bsky.social @fswcquebec.bsky.social QC: Améliorez mobilité & vie 🧠✨ Neuroplasticité pour tous âges (neuro/mobilité). Pour familles & enfants en situation de handicap. Santé & autonomie!
www.fswcquebec.ca
Manchester Neuromuscular Research Group @neuromuscularmanc.bsky.social 
SCPOR @scpor.bsky.social Saskatchewan Centre for Patient-Oriented Research 
Centre for Advancing Health @advancinghealth.bsky.social Advancing Health is dedicated to answering big health questions of today, while anticipating answers the world will need tomorrow.
@resqup.bsky.social @resqup.bsky.social 
✨ Soft Grit Spoonie ✨ @softgritspoonie.bsky.social Chronic illness advocate | Disability awareness | Spoonie | Mental health | CPTSD | Migraine | Fibromyalgia | Invisible illness | Daily life, support, humor & healing.
CharityVillage @charityvillage.bsky.social Connecting professionals with meaningful nonprofit and charitable jobs since 1995. Check out Canada’s top job board and resource hub for the nonprofit sector!
https://charityvillage.com/
Stephen Holland @stephenholland.bsky.social PhD Candidate @ uOttawa studying Cellular and Molecular Medicine.
Emerging role in science policy and advocacy with Support Our Science and the Ottawa Science Policy Network
Father, Husband, Science 🥼👨👩👧❤️
Kate Fallon @katefallon.bsky.social • MD/PhD Candidate | Ervasti & Lowe Labs
• University of Minnesota MSTP
• Interested in muscle, physiology, & genetics
https://scholar.google.com/citations?user=M9ahMIAAAAAJ&hl=en&oi=sra
Emma Miller 😁📚🍁 @emmadmiller.bsky.social Canadian Author & Creator of "The Doonies" children's book series! 📚🍁 https://thedoonies.ca
- Follow on: Bluesky, LinkedIn, Facebook, Pinterest, Instagram, Threads, Spotify
- Find our podcast on YouTube and Buzzsprout 📱✨️📚😁❤️🍁
Bill Brown @eyesofibad.bsky.social Elementary Math Intervention Teacher, Father of a child with Muscular Dystrophy,
Politics, Nature, Science
Income Security Advocacy Centre (ISAC) @incomesecurityon.bsky.social The Income Security Advocacy Centre (ISAC) is a specialty community legal clinic advocating for income security for low-income Ontarians. Posts ≠ legal advice. Check out our website at www.incomesecurity.org.
SMA Europe @sma-europe.bsky.social SMA Europe is a non-profit umbrella organisation of spinal muscular atrophy (SMA) patient organisations from across Europe. All together. One goal.
Visit our website: https://www.sma-europe.eu/
@oisb-ibso.bsky.social @oisb-ibso.bsky.social 
Shelley McLean @shelleymclean.bsky.social ▪️Fundraiser at The Ottawa Hospital Foundation 🫶 🩺🔬
▪️CreatingTomorrow.ca
▪️Former broadcaster 🎙️
▪️Runner 🏃🏻♀️
🇨🇦
Pride in Patient Engagement in Research @piper-uhn.bsky.social PiPER is a strategic research initiative at the University Health Network. Our mission is to make engaging patients, families, and care partners in research a new culture that can enhance health research, outcomes, and care experiences for all.
Unity Health Toronto @unityhealthto.bsky.social The official account for Unity Health Toronto, comprised of Providence Healthcare, St. Joseph's Health Centre and St. Michael’s Hospital. #BestCareExperiences
Clare Beach @clarebeach.bsky.social Professional Conference Organiser and Managing Director at Azura Events Ltd, neurodiversity and dietary champion and list lover!
Young Lee-Bartlett @youngleebartlett.bsky.social Mom, Advocate, Mentor, Medical Physicist with MBA working in Industry. Keen on eating, travelling, sports and just enjoying life! 🇨🇦🇬🇧🇰🇷 - in the order of how long I’ve lived in each place!- I Inactive Account @inactiveaccount27k.bsky.social
Geoff Power @geoffpower.bsky.social Associate Professor | Neuromuscular Performance across the lifespan | Muscle Mechanics | Aging | https://uofgpowerlab.weebly.com/
Functional Neuroimaging, Cognitive, and Mobility Lab @fnicomo-lab.bsky.social Our mission is to gain a better understanding of how the architecture of the brain and functional processes determine cognitive functioning and mobility both in patients with neurodegenerative diseases (such as Parkinson's disease) and in normal aging.
Stephanie Wales Tobin @stephcellsci.bsky.social Assistant Professor of Biology at Trent University Research: muscles, stem cells, inflammation. www.stephaniewalestobin.com
Shima Taherkhani @shimataherkhani.bsky.social 
Robert Muní Lofra @rmunil.bsky.social PT PhD, Consultant Physiotherapist, Honorary Clinical Senior Lecturer at @jwmdrc.bsky.social John Walton Muscular Dystrophy Research Centre-Newcastle Upon Tyne
Jen Gabriel @jenlgabriel.bsky.social 🧠 Neuroscientist at UoEdinburgh
SMA/MND/NMJs
⚧️ She/her
📢 Research communicator
👥 Advocate for research involvement and engagement
All views are my own
@robinartemis.bsky.social @robinartemis.bsky.social Part owner of Canada. 🇨🇦 ANTIFA 💙 55 yr old. ♿️ (Chiari 2 and Spina Bifida). Writer. Strong spirituality, Democracy Protector. Good Trouble #Resist
Brain-Heart Interconnectome (BHI) @bhi-icc.bsky.social Our vision is to transform the prevention and treatment of brain-heart interconnected conditions, improving the health and quality of life of Canadians and people worldwide.
Stem Cell Patient Fund @cellfund.bsky.social The Stem Cell Patient Fund provides financial support to patients of The Ottawa Hospital receiving stem cell transplants and other cellular therapies. Find out more by visiting stemcellpatientfund.ca
Jessica Day @jessicaaliceday.bsky.social RMH Rheumatologist, WEHI clinician-scientist, NHMRC fellow.
Centre for Muscle Research (CMR) @unimelbcmr.bsky.social Advancing muscle biology and its importance in health and disease. #myoblue #sarcopenia #myology #skeletalmuscle #musculoskeletal #neuromuscular #cachexia
http://unimelb.edu.au/muscle-research
@neurologyemg.bsky.social @neurologyemg.bsky.social 
Melike Eren @neurowithmelike.bsky.social MSc. Neuroscience &MSc.Physiotherapy| Just a researcher, microglia lover| Neuroscience PhD position wanted :) | Neuroscience, Anatomy & Exercise Physiology| Псэм ипэ напэ
Virginia Arechavala @varechavala.bsky.social Scientist and mum. Ikerbasque Professor @ Biobizkaia HRI
Interested in #RNAtherapy for #neuromuscular disorders. De Bilbao de toda la vida and adopted Londoner.
https://www.linkedin.com/in/virginia-arechavala-gomeza-a482509/
World Muscle Society @worldmusclesociety.org The World Muscle Society is a global, multidisciplinary community committed to advancing the science of neuromuscular disorders and the care for people living with them.
Curb Codependency @curbcodependency.bsky.social #advocate 📣 #socialwork 🗣️ #humanrights🧎🏼♀️ #womensrights♀️#mentalhealth 🧠 #cptsd 🤯 #dei👩🏼🦽 #education 🏫 #stopbanningbooks 📚 #lgbtqrights 🏳️🌈 #blacklivesmatter✊🏿 #transrights 🏳️⚧️ #neurodivergent ♾️ #paraprofessional #coffee #dogs #MN #millenialparent #curbcodependency
Unité de Recherche Clinique_Pitié-Salpêtrière @urc-psl.bsky.social Conception d'un projet clinique, mise en œuvre, suivi et coordination du projet jusqu’à l’analyse des données et la valorisation des résultats.
Physical & Occupational Therapy, McGill University @mcgillrehab.bsky.social The McGill School of Physical & Occupational Therapy (SPOT); creating leaders in rehabilitation practice, scientific innovation and community engagement. 
Stem Cell Network @stemcellnetwork.ca SCN is a Canadian not-for-profit supporting stem cell and regenerative medicine research, training, and knowledge mobilization.
Demir Mehmet, MD @neurologyworld.bsky.social "Neurologist 🧠|Istanbul |🚀MS, Electrophysiology, Tx innovations, multidisciplinary research | ⚛️Analytical focus,problem-solving skills |🛠️Statistical analysis📊artificial intelligence, data visualization, presentation skills,
Emirhan's & Metehan's father"
Matthew Alexander, PhD @mattmuscleguy.bsky.social Geneticist, Skeletal Muscle, Drug development, Gene therapies. Non-coding RNA, and Zebrafish Aficionado. Lover of all things muscle. All posts are my own. Instagram @thealexanderlab
Lab website: https://www.uab.edu/medicine/peds/research/division-researc
Hetty Mulhall @hettymulhall.bsky.social Associate Scientific Director at CIHR-IMHA | Views my own, reposts not endorsements | Non-practising Veterinary Surgeon
Ayça Şahin @aycasahin.bsky.social Koç University | Molecular Biology and Genetics BSc🎓 and now doing PhD in Neuroscience | SMA warrior 💪 and doing SMA research 🧬 | Future geneticist
Ewout Groen @ewout.bsky.social Biomarkers and mRNA translation | Long-read sequencing | ASOs and gene therapy | SMA & MND research lab at UMC Utrecht | Previously University of Edinburgh | Also cycling, cats, father of 2
Vanessa Smith @normalness.bsky.social We're all normal to ourselves. I write. I hate hustle. I love shiny objects. Can't even influence an ant. Anthropology & sociology graduate. Author of books. Spoonie. And much more.
www.normalness.com
Powerd Media @powerdmedia.bsky.social Powerd partners with content makers sharing authentic stories of disability. Sharing these stories drives society forward on the path to inclusion.
https://powerd.media/
@drjodiwolff.bsky.social @drjodiwolff.bsky.social 
@michaelbergeron3.bsky.social @michaelbergeron3.bsky.social 
PLP @loopypeanut.bsky.social 🏳️🌈🧧🇨🇦They/She/He
🩺🦓 Chronically Ill- EDS/POTS/MCAS/OSA
🥟🥢 Food & Bev Enthusiast
🌲🍃 Nature Lover
🥁🎹 Music Dabbler
🍁🌿 Cannabis Connoisseur
🐕🦴 Dog Parent to Nori the Galgo
Chelsea Bowkett @bowkettchelsea.bsky.social Platform Manager for @IMPaCTrials 
Catherine Stratton, MPH @cathsmstratton.bsky.social Epidemiology PhD(c) @UofT; @CIHR_IRSC CGS-D & @fdnPETF Scholar; MPH @Yale; VP & Research Chair @moyamoyafoundation #KnowledgeTranslation #KnowledgeSynthesis #RareDisease #PainScience #Disability
RareKids-CAN @rarekidscan.bsky.social RareKids-CAN is a diverse coalition of partners aimed at streamlining and accelerating rare disease clinical trials and access to innovative treatment for all patients and families in Canada. RareKids-CAN is funded by the CIHR.
Alltrna @alltrna.bsky.social Alltrna is the world’s first transfer RNA (tRNA) platform company, and we are unlocking the vast therapeutic potential within #tRNA biology. #StopCodonDisease
Learn more: https://www.alltrna.com/
zaziepoo @zaziepoo.bsky.social Catherine Roy, Accessibility Advisor at McGill University. Accessibility, Disability Pride & Justice. Views expressed on all my social media accounts are my own. For more outdated information, see www.catherine-roy.net
L'Institut de recherche du CUSM / Research Institute of the MUHC @rimuhc.bsky.social Nous faisons progresser la santé de précision par une recherche multidisciplinaire. | We advance precision health through multidisciplinary research.
@alexegreen.bsky.social @alexegreen.bsky.social 
Brain Canada @braincanada.bsky.social Brain Canada is a national non-profit organization that enables and supports excellent, innovative, paradigm-changing brain research in Canada. #BrainCanada
K Joyal @kjoyal.bsky.social 
Silvia Pozzi @silviapozzi.bsky.social 
Maxime Rousseaux @maximewc.bsky.social Associate Professor and CRC studying protein mislocalization, neurodegeneration and functional genomics at uOttawa Brain and Mind Research Institute and co-director of Genome Editing and Molecular biology core at uOttawa
Jillian C. Banfield @jillianengages.bsky.social Patient partnership in research. Team Lead, #PatientPartnership for Institute of Genetics, Canada. #RareDisease. Disabled. Opinions mine & not that of my employer.
She/her
Saeed Anwar @saeedanuj.bsky.social Genetic therapeutics researcher | Rare disease advocate | Sci-activist | Bengali SciFi writer | Overcaffeinated | Foodie | First-gen | 🇧🇩
♡︎/⟳ ≠ endorsement
Rika Maruyama @rikamaruyama.bsky.social Japan-born Canadian scientist specializing in genetic medicine. Passionate about research and enjoying the beauty of the Canadian Rockies.
Toshi Yokota @tyokota.bsky.social Molecular Geneticist| RNA Therapeutics Innovator| FCAHS Canadian Academy Fellow| Distinguished Professor@UAlberta| Driving innovation in genetic medicine
Kaori @kayoree26.bsky.social 
Natasha Chang @changlab.bsky.social 
Marco Savarese @marsavarese.bsky.social Myofin Principal Investigator@Folkhälsan Research Center.
Melissa Bowerman @bowermanlab.bsky.social Professor of Neuromuscular & Skeletal Disorders, Keele University. I research pathologies and new treatments in rare neuromuscular & skeletal disorders.
www.thebowermanlab.com
John Walton Muscular Dystrophy Research Centre @jwmdrc.bsky.social Performing world-class translational research to bring diagnosis, care and therapy to people with neuromuscular disease
uOBMRI @uobmri.bsky.social The uOBMRI is Ottawa’s largest collection of basic researchers and clinician scientists that are focused on brain and mind related health.
Stanford Neurology & Neurological Sciences @stanfordneuro.bsky.social Official Bluesky account of Stanford Neurology & Neurological Sciences Department, Stanford University, California #Neurology 🧠