Kristin @ksayan.bsky.social I'm 42, an RN, and a mother to two beautiful children, Katja and Alija. I've lived in IN, Japan, Pakistan, Saudi Arabia, NY, and now PA. I love to sing and have a passion for education and helping people. I also LOVE traveling and books. 📚 ✈️ 🎶
I Overcome ME @iovercomeme.bsky.social ☀️☺️ SARAH 😷🥱😴 (she/her)
Severe ME due to LC (2023)
ME/CFS (1999 dx 2008)
UC/IBD (2002)
ADHD (Birth😝)
Ginny @ginflo2.bsky.social stocks, caregiving, parenting, advocate for clean indoor air #CorsiRosenthalBox until the ventilation revolution finally arrives 💨📦 💉😷
🇸🇪🇫🇮➡️MN➡️NY 🐸
Dame Sa @damesa.bsky.social Long Covid sufferer since 2020. #FBLC
Will mostly be banging on about #Covid and #LongCovid and criticising governments for their diabolical public health policies. #CleanAir
https://petition.parliament.uk/petitions/700304
Patients with Power @ptswithpower.com Patient-scientist fighting for medicine based in SCIENCE; NOT BIAS⚡Calling out harmful healthcare culture⚡Breaking down difficult doctor behaviour✍️🧐
Meganne Masko @drmommtbc.bsky.social Multiply disabled, wife, mom, music therapist, bi-modal CI and HA user, college professor, researcher, seminarian, studying to be an ELCA deacon, disability rights, liberation theology, critical pedagogy, general maker of trouble. 
Sarah @chronicpain247.bsky.social I’m a wife and mummy, disabled spoonie 🥄chronically ill, trying to advocate for remote work for disabled people in media 🫶♿️
KnightHawk @knighthawk899.bsky.social Millennial him/he
Disabled & Chronically ill,
Into Movies, Video Games,
♿ Disability Awareness♿+Politics
Needs of the disabled are not being met in the US, help me change that!
My Links💌
💙 https://ko-fi.com/knighthawk899
💙 venmo.com/u/Knighthawk899- A Andrew Green @andrewg76201347.bsky.social ME/CFS, POTS, MCAS, lupus, Hashimoto’s. Patient & carer. Disabled scientist. Female - using fake name bc I post about son's illness. Location: Australia
Ben @hateorangeturds.bsky.social Broncos fan. Retired. Live in Denver. 5 Grandkids. Swimming is my favorite exercise.
Cherry Pie @cherrywishniak.bsky.social "If you hear the dogs, keep going. If you see the torches in the woods, keep going. If there's shouting after you, keep going. Don't ever stop. Keep going. If you want a taste of freedom, keep going."
― Harriet Tubman
NO DMs. Make lyng wrong again.
Narcolepsy Barbie @maricotona.bsky.social Childless Spinster 💅
Mexicana en Chicago 🇲🇽
FuckSCOTUS
AuDHD
Severe MECFS POTS MCAS Sjogren's
Mask so you don't get the yuppie flu too 😷
Lolly Lolly Lolly @bluecheesier.bsky.social *SLAVERY WAS REAL*
"Be strong & of good courage" via Richard
BLACK LIVES STILL MATTER
ICE LOSERS KIDNAP & KILL PEOPLE
Hope to be brave enough for Good Trouble.
#Chutzpah
Kendall Guillemette @k3nd477.com Live by the golden rule: don’t be a dick.
🏳️🌈 he/him
https://merch.k3nd477.com/collections/pride-2026
https://somanyquestions.show
Healthy Minds and Bodies @healingminds.bsky.social Welcome to the path of healing your mind, your body, and your soul. We believe your best investment is in your mind and body.
Sharing tips, tricks, and ideas to calm the mind, heal the body, and extend our journey in this life.
@jestra.bsky.social @jestra.bsky.social BDS since they bulldozed Rachel Corrie.
Xandria K 👩🦽📖🏳️🌈📝♾️♿ @terpsichoreolympia.bsky.social 🖤🤍💜 they/them
23 y/o in an Old Body
JIA/RA/FMS/IST/mild IIS/gait ataxia/hand tremors
Disabled ♿ Neurodivergent ♾️ Ambulatory Wheelchair User👩🦽Chicane 🇺🇸🇲🇽🫔 PanAroAce Enby 🏳️🌈🏳️⚧️
NHL Fan 🏒 (Pens, Stars, Avs)
Reader 📖 Writer 📝 Artist 🎨
🇵🇸🍉
@elizabethtryon.bsky.social @elizabethtryon.bsky.social 
@hotmessexpress.bsky.social @hotmessexpress.bsky.social Just ur average chronically ill disabled witchy pagan neurodivergent weirdo gaming account https://bsky.app/profile/psychodelickitten.bsky.social. https://linktr.ee/Diariesofadisabledmom heds epilepsy pots audhd and more. Language learner
Vickyy B 🦋 @vickyy.bsky.social Progressive dog mom interested in economics, history, public policy, universal healthcare and equality.
Hoping we all survive the three years. 💙
#Medicare4All #NotMeUs #Resist
🚫🍊🤡 🚫DM 🚫Crypto
Louise Foster @louisefoster.bsky.social @SfpLouise on X, much prefer to be here!
Anti Brexit, pro immigration, humanist, (actually Marxist), studied & am passionate about politics & economics. Hate current journey of travel in UK, US & on X. Diminished by Long Covid, Fibro, ME & PoTS.- R Raegen @raegen.bsky.social
#9 Dream @gayfabfourfan.bsky.social Married gay man & Beatles/music nerd sharing science and takes on everyone’s all-time favorite topic: the ongoing but forgotten pandemic. Also some humor as we slouch towards our Soylent Green era. #COVIDIsAirborne #COVIDIsVascular
Ash @ashrev.bsky.social Witch. Queer. Sapphic. Poly. Late thirties. Enby. They/them. Neurodivergent. Black AF.
@keepinghopealive.bsky.social @keepinghopealive.bsky.social Disabled Advocate ♿️🦓ME,LC,AuDHD🌈💙
Nature Lover 🌱 she/her
Trying to find a space of calm in all the chaos. 🫶
Brain Pain Sheeks 🇭🇹 🇺🇸 @chronicallysheeks.bsky.social Hi 👋 I am Sheeks an outspoken chronically ill mom, WIFE and #dog mom #cat nanny and I have #iih which is an #invisibleillness I would ❤️ to connect with other Spoonies!
Positive Vibes Only🙏 I don’t respond to DMs from randos🙄 Follow #spooniesky feed!
rare bird @sarahhnicotra.com on a midlife creative renaissance
Liv | ADHD. fibro. hEDS 🌈 @ripuptheending.bsky.social Mental health/chronic illness advocate💪
ADHD/Fibro/hEDS 🦓
Writer 📚
Unapologetic fangirl 🤓
Sociologist & counselor-in-training 💙
INFJ. Pan/Demi. She/her 🌈
ripuptheending.com
Nuwuzoho @nuwuzoho.bsky.social Former athlete taken down by covid
Here for research & discussion about #longcovid #POTS #MCAS and related conditions
Trying to work my way out of the pain cave
Phoenix 🏳️⚧️ - free hugs 💜 @anyaphenix.bsky.social they/she, demi/autistic/sapphic disabled by long covid
trying to take care of my kids & help all marginalized folks
I love nature and everything in it, including you 🥰
🌎🌞🌙 - my trinity
Paypal.me/anyaphenix
https://gofund.me/8f262228
pics by me- K @karenpol.bsky.social @karenpol.bsky.social
Too Long Covid 💚 @toolongcovid.bsky.social Long Covid sucks. Wear a mask. Collective care. Aotearoa NZ.
#longcovid #mecfs #covidcareful #disability #toitutetiriti
https://buymeacoffee.com/toolong
Colleen Steckel @colleensteckel.bsky.social Advocate for #MyalgicEncephalomyelitis using ME-ICC.
Contracted ME in 1989
Substack: https://colleensteckelmeiccinfo.substack.com/
Volunteer at www.MEadvocacy.org
Aspiring writer of paranormal fiction
Laurie Bertram Roberts-Abortion Pills Are Safe @smartstatistic.bsky.social unapologically Black-Queer-NB-Feminist-Disabled-Mama of 8-Abortion Storyteller-Pro Abortion mom of the year according to lifesite-MS Repro Freedom Fund ED/Co-Founder
they/she
#ReproductiveJustice
Chloë Lum @compulsiveobserver.bsky.social Installation artist. Perfume fanatic. Chronically ill. Concordia University PhD student(disability studies + performance studies + practice-based research.) Ex jammer, current failure. She/her Montréaler in Edmonton. https://linktr.ee/ChloeLum
Michael Askren @yungfetus.bsky.social Former video game industry person disabled by Long COVID. Leftist. I like vinyl, animation, and reading.
Meg Samuelson @coastalthinking.bsky.social Sea-creature, shore-dweller, gardener. #LongCovid #MECFS #POTS. Engaged Buddhism.
i used to think read write teach (literatures of the South/Africa/Australasia/Indian Ocean & climate, colonialism, environment, littorals, the sea, water, women’s stories)
Grassy Lemon @lemongrass-og.bsky.social #CovidIsNotOver
Curious Orca 🐌 @curiousorca.bsky.social Disabled ex-clinician
People > Profits
Bedbound rabblerouser
Citizen scientist
Making art keeps me sane-ish
#VermontStrong
#LongCovid #PwME
#MyalgicEncephalomyelitis #hEDS #POTS #neuroqueer #auDHD #decolonizer
Billy Hanlon @bhanlon15.bsky.social ME/CFS | Long COVID | IACC
Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpe @buddug.bsky.social 
Neha Sampat @nehas.bsky.social Found my voice & using it. #Belonging builder. Do-Betterer. Mama, Speaker, Writer, Poet, #ChronicMigraine Warrior, #Spoonie (but no chamcha!), Box-Breaker, Former Lawyer and current BelongLab CEO.
Jenny Marie @jennymarie84.bsky.social permanently dizzy munchkin
#migraine #vestibularmigraine #POTS #longcovid #invisibleillness #chronicillness #disability
loves #crochet, cute animals, and geeky stuff
Liza Martin (she/her) @quicktolaughter.bsky.social contemplative sarcoma caregiver, widowed
raised by a pack of wild librarians
Western NC/Atlanta
My hope is in the youth. 🔥❤️🏆❤️🔥
Dyxe @dyxe.bsky.social Mother of 2 grown children, 1 son and 1 non-binary offspring. 🏳️🌈🏳️⚧️🌈💙 Animal advocate, blue dot. #disabled, and spend much of my time babysitting my great-niece and pups. Only looking for friends. 🚫MAGA. No DMs. #resister #cats #adhd
#congestiveheartfailure
@emmamo.bsky.social @emmamo.bsky.social 
Katharina 🦋🍋🍀 @katha1970.bsky.social Here for research and info on #Migraines #MECFS #LongCovid #MCAS #MCS #ChronicPain #MetabolicHealth #Neuroscience #Psychology #MedicalGaslighting, posts German & English, hobby songwriter
Horizontal Views @horizontalviews.bsky.social Visual Artist and Writer | Posts from the sick bed #ME #pwME #LongCOVID #ZeroCOVID #Crip #ChronicIllness #DisabilityJustice #ContemporaryArt #ConcretePoetry #PostdigitalPoetry #PoeticWeb
n=50 @remissionbiome.bsky.social
Poetry @diktgymnasiet.bsky.social
Tara F, PhD, MPH @taraf.bsky.social Health Equity & Translational health researcher | Improving healthcare services & experiences for marginalized | Part-time research associate | Renegade Research volunteer
Tampa, FL
😷🌈☮️📊📚🫂🩼♿️🗣️
#Disabled #LongCovid #PostVax #MECFS #POTS #hEDS #Lyme #AuDHD
Kristin Houlihan, Writer @kristinwrites.bsky.social Poet, Wife, Mom, LongCovid/MECFS. Looking to connect and learning to advocate. EIC, Poetry @epistemiclit.Bsky.social, @nimblewitlit.bsky.social. Micropoetry chapbook Lift the Mask available widely. www.kristinhoulihan.com
Krakbloc @oceanwaterfire.bsky.social Seattle Kraken, Climate, Packers, Cascadia
mossyrhoads @mossyrhoads.bsky.social looking to find the good green road. 
Sebastian (they/them) @sickseb.bsky.social Probably resting right now
I care about disability justice, PIC abolition, & staying safe in the ongoing pandemic
Into nerdy nature stuff, crafting, cozy video games
Trans, 40s, survivor, disabled (long covid, ME, POTS, PTSD, migraines)
Nina Hatfield @ninahatfield.bsky.social she/her, Writer, Learner, Mythologist, chronically ill with #MECFS
I host community peer groups www.co-resting.org
#PWME #Mythology #MyalgicEncephalomyelitis #ChronicFatigue #CFS #Resting #CoResting #Pacing #PEM #MCAS #NEISvoid