HSE Technology and Transformation @hsetandt.bsky.social Delivering #digital health for Ireland | @HSElive #HIT #ConnectedHealth | Not monitored 24/7
Content on #DigitalForCare #Benefits #Leadership #eHealth4All
Sarah O'Brien @sarahobrien.bsky.social 👩🏼🏫 autism trainer across North Central London
🎓 inclusive public involvement PhD @kcl.ac.uk
📚 So, I'm Autistic out now
she/her - autistic and disabled
generally funny, views + typos own
@SarahMarieOB on Twitter
Andi Skilton @andiskilton.bsky.social I support capacity and capability building for societal impact and participatory research practices | Chair of trustees for a rare disease charity | Cat daddy | LGBTQIA+ | he/him
Louise, Prof/Dr @louiselocock.bsky.social Mostly retired qualitative health services researcher, linguist, europhile, cat lover. Other animals welcome.
Mostly in Oxford, occasionally in Aberdeen
I block if you have no bio or posts
She/her
https://orcid.org/0000-0002-8109-1930
Dr Rebecca Goulding @rgouldinguom.bsky.social reh-beh-kah gold-ing (she/her). Researcher at The University of Manchester. Researching health communication, access to care, patient involvement, patient safety and treatment burden, particularly for people with (multiple) long-term conditions
Sarah Hutchinson @sarahhutchinson.bsky.social Heath and social care policy. Maternity and patient and public involvement. Feminist mum to boys.
Vanessa Bennett @nessbennett.bsky.social Creating safe, #compassionate spaces & partnership approaches to support change
#psychology, #psychiatry #coproduction, #Involvement, #Health #Social research #ethics #evaluation #youngpeople
PPIE specialist/Patient Partner/Med Comms
Annette Boaz @annetteboaz.bsky.social Professor of Health and Social Care and Director of the Policy Research unit for the Health and Social Care Workforce (https://www.kcl.ac.uk/hscwru), Kings College London, Co-lead https://transforming-evidence.org
LaIslaBonita @laislabonita.bsky.social ❤️ music, arts, literature, poetry, travel, health, co-pro, PPI, equality, spirituality, theology, psychology, cats, nature. Celt, Christian, socialist, activist. Up for new adventures albeit small ones. Woke & proud!
Kim Ozano @kimozano.bsky.social Global health researcher, expert in participatory research & co-production approaches. Director of The Stop Collaborate and Listen Agency and Host of Connecting Citizens to Science Podcast https://bit.ly/Follow_CCS
Julie Roberts @drjulieroberts.bsky.social Research Fellow, Sapphire, University of Leicester.
Sociologist, Qualitative health researcher interested in maternity and neonatal care, visual culture of reproduction, PPIE, qualitative research methods
Olly Benson @ollybenson.uk NHS Englander. Ex VCSE and BBC.
Mainly interested in volunteering, VCSE sector, public participation and engagement, so stuff around people, building communities, health, power, digital, media etc.
Husband | 🚸 Dad x2 | 💔 #ACHD
🌍 Warwickshire, UK
Laura Crane @lauramaycrane.bsky.social Professor of Autism Studies at the University of Birmingham, UK.
Passionate about participatory autism research that truly benefits autistic people.
Research interests include education, healthcare, employment and criminal justice.
Daniel Masterson @danielmasterson.bsky.social Associate Professor in Social Psychology at the University of Skövde, Sweden
#Coproduction #Codesign #Cocreation
#healthpsychology #healthcommunication
#healthyurbanplanning #behaviourchange
www.co-produce.com
Gobby.io @gobbyio.bsky.social Qualitative surveys – discover attitudes, ideas, and lived experiences.
Experience the power of peer interaction with Gobby. Analyse overlapping experiences and ideas to uncover nuanced trends within interconnected communities.
https://gobby.io
Mark Brown @markoneinfour.bsky.social Mental health/tech stuff. Sell ads for local newspapers, keeping local public interest news alive. Former writer in residence @centreforMH. Ask me to write MH things. Director Social Spider CIC. DMs open. Podcast @BBCOuch
(he/they)
Barbara Molony-Oates @barbaramolony.bsky.social Public Involvement Manager, Neurodivergent, #2e, Dyslexic, Late Diagnosed Autistic, INFJ, Advocate, Amateur Photographer, Runner, Mum, Dog mum
Cristina Serrao (she/her) @acserrao76.bsky.social 🇵🇹🏳️🌈♿️💃🏽💃🏼
National Lived Experience Ambassador, NHS England - OWN VIEWS #QICopro #CoProSky
#London born but #Madeira where my ❤️ longs for
#DisabilityPower100 2021 and 2022 #AuADHD #ADHD #Autism diagnosed ‘24 at 47 #EDS #MSK
🪩🎤#LadyLXA @LemonadeRadio
Mary Madden @feministgothic.eurosky.social Twitter migrant. Retired senior academic precariat. Sociologist. Applied qual research (health and lack of social care). Concerned about research quality and integrity. Monsters. Lit. Cult.
'A woman's place is in the resistance'
@azza-warraitch.bsky.social @azza-warraitch.bsky.social PhD student | Global health | Adolescent Mental Health | Youth involvement in research using participatory approaches. 🇮🇪🇵🇰
Holly Schofield @hollscho.bsky.social Patient and Public Involvement Officer and Adviser. Clinical trials PPIE and inclusive research.
Experienced PPI lead in stroke research. Personal interest in mental health and neurodiversity research
Love music, visual arts, nature walking and gaming
Emma Nielsen @dremmanielsen.bsky.social Suicide Researcher | netECR co-founder @netecr.bsky.social | Interested in suicide prevention, patient safety, co-production and evidence-based (autism-informed) mental health care
Dr. Jonas Thorborg Stage @jtstage.bsky.social Postdoc at the Health Services Research section at the University of Copenhagen. Visiting Research Fellow at @King’s College London. Researching health inequities, digital health, and participatory approaches for inclusive, sustainable healthcare systems.
Angela Catley @angelacat.bsky.social Overly enthusiastic & talkative doer
Believer in citizens & community
Finding creative, quirky ways to think about care & wellbeing. Co founder When I Get Old www.WIGO.org.uk. Roles @TLAP.bsky.social @Commcats.bsky.social @learningdiseng.bsky.social
Sarah Craggs @sarahcraggs.bsky.social Together we really are better. Work in Notts adult social care. Would always prefer to be in or on the water. All views my own
Think Local Act Personal @tlap.bsky.social We’re a network of people and organisations working to make health and social care more personalised, so that everybody can live life their way. thinklocalactpersonal.org.uk
@tricianicoll.bsky.social @tricianicoll.bsky.social
Alexis Paton @dralexispaton.bsky.social Writer, academic and communicator #MedicalEthics, #DecisionMaking, #Health, #HealthInequalities, #SocialDeterminantsOfHealth, #MedicalSociology #Sociology. www.dralexispaton.com
Centre for Health and Society @chsresearch.bsky.social Research centre at Aston University looking at all things health and society including: health inequalities, all determinants of health, public health, digital health and more. https://www.aston.ac.uk/research/bss/research-centres/centre-health-society
Jessie Cunnett @jessiecunnett.bsky.social Leadership | Social Innovation | Strategy | Engagement | People | Health & Care - always hopeful! Independent support, advice and practice. Assistant Professor at Sussex Uni #healthcare #leadership Trustee National Voices. Mentor Fabian Women's Network.
Prof. Bethan Evans @drbevans.bsky.social Professor of Human Geography at Uni of Liverpool, research on chronic illness, energy limiting conditions, fat embodiment. Feminist, Fat Activist, Spoonie, PwME, Friend, Sister, Daughter, Person. Hobbies: SF, cats, knitting/crochet. she/her or they/their 🏳️⚧️
Louise Ting @neuro-observant.bsky.social Neurodivergent. LGBTQ+ 🌈 Passionate about autism advocacy, mental health, and research. Community volunteer. Love 🐈, PPI, art and learning
Creator of this popular PPI resource (used by research orgs & universities globally):
tiny.cc/PPIdiagram
Mark Fabian @markfabian.bsky.social Ass-Prof of Public Policy at Warwick. Work mostly on wellbeing from an interdisciplinary perspective. Interested in *everything*. Run ePODstemology: https://www.buzzsprout.com/1763534/episodes
Ethan @drbeef.bsky.social Gender, Sexuality and Women’s Studies Prof by day. Elder emo by night. Critical public health, the science of sex(uality) science, disability justice. Not your average guy (Auti he/they).
Neil Chadborn @neilchadborn.bsky.social Researcher at University of Nottingham & NIHR Applied Research Collaboration East Midlands.
Interested in dementia, inequalities & digital
ORCID: 0000-0003-1368-7983
#publichealthsky #gerontology
Lynn Laidlaw @lynnlaidlaw.bsky.social Living with a rare rheumatic disease and MLTC’s
Vocal about Co production and Public Patient Involvement.
Peer researcher
Interested and involved in Health research/ Policy
Trustee @hsruk.bsky.social
Elspeth Mathie @elspethma.bsky.social
Matthew Tosh @matthewtosh.com Presenter, pyro, science, live event & safety specialist (he/him). BHF Data Science Centre PAG member. I 💜 arts, bells, equality, #PPIE and tea. 🏳️🌈 #ARVC ❤️🩹 #Cardiomyopathy
www.matthewtosh.com
Co-production Network for Wales @copronetwales.bsky.social We want a fairer, more sustainable Wales where everyone has a voice that's heard. Come and join us!
https://linktr.ee/copronetwales
Sue Caton @suecaton.bsky.social Reader (Associate Prof) in intellectual disabilities, Dept Social Care & Social Work, Manchester Met Uni. Researching social & health inequalities, digital inclusion, qual, creative, participatory research methods
Avril Kennan @avrilkennan.bsky.social CEO, Health Research Charities Ireland @hrci.bsky.social (views own). PhD in genetics. Ambitious for a better world through collaboration & inclusion. She/Her
🤹♀️ PPI | research impact | health data | evidence-based policy | genomics | rare diseases...
Gabriela Pavarini @gabrielapavarini.bsky.social Senior Lecturer at the University of Oxford @DSPI
Co-design and Mental Health (COM) Team Lead
Youth participation, digital innovation, community wellbeing, equity and social justice.
Dr Kate Womersley @katewomersley.com Psychiatry Dr 🏴 | Research fellow @georgeinstitute @ImperialCollege | MESSAGE Co-PI www.messageproject.co.uk | www.katewomersley.com | #medsky #psychsky
Nicky Hill @nickyjanehill.bsky.social Interested in all things young people, co-production, violence, criminal exploitation, safeguarding, trauma, policing, crime.
Living with Rheumatoid Arthritis in London, UK
mindy ptolomey @mindyptolomey.bsky.social disability, neurodivergence, girls, creative methods + zines | University of Leeds | Gender + Education Association Exec | books + weights + flowers 📚🏋️♀️💐
Charlotte Augst @charlotteaugst.bsky.social Londoner, mother of two, consultant around questions of health, care, community, influence and impact (previously CEO Richmond Group of Charities and National Voices). Head and heart. 🐈⬛ 🪴 ☕️ 🇪🇺 🌳
Ola Demkowicz @olademk.bsky.social Researching adolescent mental health mechanisms & inequality | Mixed methods | Senior Lecturer, Psychology of Education | University of Manchester | She/her | 🐝🌱📚🏳️🌈🐈
Jess Redway @tuesdaymccoy.bsky.social Lived Experience Lecturer for UK Nursing programme. Health and social care researcher. Co-founder of Lived Perspectives Film Festival.
Autistic with added mental health stuff.
Likes cats and coproduction... mainly cats to be fair...
Jess Brock @jessbrock.bsky.social Postdoc Research Fellow at University of Hertfordshire. Using qualitative and participatory methods with the public to generate actions for a healthier, sustainable food system. She/her
Professor Laura Abbott @midwifeteacher.bsky.social Professor of Maternal Health and
Criminal Justice. Midwife. Nurse. Mother. Researcher. Pregnancy & Motherhood in prison. ESRC Lead researcher on The Lost Mother’s Project www.lostmothers.org
orcid ID:
0000-0002-5778-7559
University of Hertfordshire.
Birth Companions @birthcompanions.bsky.social Birth Companions is a national charity delivering better care, equity and justice for pregnant women, mothers and babies. 30 years of supporting women with kindness, love and compassion.
www.birthcompanions.org.uk
Julie Brose @juliebrose.bsky.social PhD • Postdoc research fellow @perroninstitute.bsky.social and Honorary @UWA/University of Bristol/NIHR ARC West • Foodie 🇨🇦🇦🇺🇬🇧
Research includes #PalliativeCare #PublicHealth #NeuroRehab #PalliativeRehab #OT #Evaluation
linkedin.com/in/julie-brose
Susan Wallace @susan-wallace.bsky.social Senior Research Engagement and Involvement Manager at The Healthcare Improvement Studies Institute (@thisinstitute.bsky.social) at the University of Cambridge,
Chemistry PhD, mum, wife, cheese and mountain enthusiast, beginner crocheter, she/her.
THIS Institute (The Healthcare Improvement Studies Institute) @thisinstitute.cam.ac.uk We are The Healthcare Improvement Studies Institute. We're strengthening the evidence base for healthcare improvement.
Based at the University of Cambridge and made possible by the Health Foundation.
thisinstitute.cam.ac.uk
Libby Humphris @libbyhumphris.bsky.social Public contributor | Honorary Research Associate @CardiffUni | Advocate for women’s health, rare diseases & shared decision-making | Co-lead, Public Engagement @EvidenceCentre | Breaking down barriers for patients & the public ✨ Crocheter & Rescue Dog Mum
Co-Production Collective @coprocollective.bsky.social We are a #co-production community where everyone is welcome! Together we learn, connect and champion co-production for lasting change.
www.coproductioncollective.co.uk
Linzi Ladlow @drlinziladlow.bsky.social Sociology and Social Policy. Research Fellow in Family Research. Utilising qualitative longitudinal, creative and participatory methods to research with children, young people and families.
School governor.
Soon-to-be Leverhulme Trust ECF.
Amy Knight @amyknight.bsky.social Doctoral researcher and tutor exploring school mental health; qualified teacher; interested in creative and participatory research
Gill Phillips @whoseshoes.bsky.social 🍋Catalyst for change in health care ++ Creator of Whose Shoes? approach to coproduction, helping people work together to improve lives. https://padlet.com/WhoseShoes/overview
#HSJ100 Wild Card ♥️♦️♠️♣️
Host of ‘Wild Card - Whose Shoes?’ podcast @WildCardWS 🎤
‘Wild Card - Whose Shoes?’ - podcast @wildcardws.bsky.social Wild card. Walking in the shoes of more interesting people. 🍋🍋🍋 Podcast by Gill @WhoseShoes and friends. https://whoseshoes.buzzsprout.com
Florence Wilcock @fwmaternity.bsky.social NHS obstetrician and creator of TheObsPod podcast . TEDxNHS speaker. interests: Coproduction, personalised care, maternity improvement,creativity and fun. Human not robot.
Lyse_e @lyse-e.bsky.social Mum of twins and #NHS manager. #Proud2bOps member, Nye Bevan Graduate. User and sharer of #liberatingstructures. Personal account.
Dr Karen Burnell @karenburnell.bsky.social Chartered Psychologist | Accredited Coach | Visiting Professor | Author | I help people flourish through change | Karateka | Newbie “watercolourer” | She/her
Sarindi Aryasinghe @sarindiary.bsky.social Global health equity, reproductive justice, coproduction | PhD candidate researching community advocacy to tackle racism in maternity @imperialmed.bsky.social | Head of Implementation @nhs-rho.bsky.social | Cat whisperer | She/her
📍London, UK
Camille Warrington @camillelw.bsky.social Social Researcher focused on children’s rights in context of violence and abuse.
Kirstin Eccles @kirstineccles.bsky.social Mental Health Lead in a special school, doctoral student researching interoception curriculum/wellbeing/ regulation. Likes cats, garden, tea, bed.
Chris Gray @traumasupervision.bsky.social #Psychodynamic #Psychotherapist #Psychologist #SocialWork #Researcher #Feminist -interested in amplifying marginalised voices,relational working,systems change,social justice,sexual violence,MVAWG,class,material realities,sexuality,critical thinking
Eleni Chambers @elenichambers.bsky.social Disabled researcher/activist. Inclusion, access, involvement and co-production (mainly, but also wildlife, gardening, music, modern art, photography...)
Works for different UK H&SC organisations, particularly likes Disabled People’s Organisations (DPOs).
Lawrence (Larry) Mróz @drmroz.bsky.social Vancouver BC Canada (Formerly @DrMroz on twitter)
#PatientOrientedResearch Patient & Community Engagement, BC SUPPORT Unit, Michael Smith Health Research BC. #SPOR, #CIHR #PatientEngagement in research, #POR, #LearningHealthSystems & #LearningCommunities
Dr Bronia Arnott @broniaarnott.bsky.social Evidence, practice, & public involvement to improve health & wellbeing from infancy. Newcastle University
Public Involvement & Engagement Methodologist - NIHR RSS
Knowledge Exchange Broker - NIHR PHIRST
Voluntary Sector Evaluation Scheme lead - NIHR SPHR
Dr Adam Benkwitz @drbenkwitz.bsky.social Reader at Birmingham Newman University.
Public health, mental health, physical activity, social recovery. PFHEA, CATE.
AVFC STH.
https://www.newman.ac.uk/staff/adam-benkwitz/
Simon Denegri OBE @sdenegri.bsky.social Executive Director, Academy of Medical Sciences
Marie-Therese Schultes @mtschultes.bsky.social Educational & health psychologist | implementation scientist @lmumuenchen.bsky.social| interested in implementation evaluation, implementation capacity, participatory research | mum | bookworm
https://www.implementierung.eu
Sue Duncombe @sueduncombe.bsky.social Proud to volunteer, campaign and fundraise for CRUK and support research as a Patient and Public Collaborator with a range of academic institutions, charities and the NHS. Attitude to life “What are you waiting for?!”
Christine Bienvenu @suissepatient.bsky.social Swiss🇨🇭Montrealer🇨🇦 #ePatient #ASD/Aspie #ADHD Mom💙 #PatientPartner Université Patients @USorbonne graduate #BCSM #cancerdusein #TheWalkingGallery jacket313 #impliquonslespatients! #letpatientshelp! #PatientsUseAI enseignement recherche🔬 #PPI #PPIR 🧩 @HE_Arc
I Am Charlene @iamcharleneyoung.bsky.social 💎Inspirational Mother of the Year Award Winner 2023
💎Nominated Patient Advocate 2021
💎Advisory Board Member
💎Workshop Facilitator
Interests: #PublicInvolvement #PPI #PPIContributors #HealthResearch #ClinicalTrials #Patients #Engagement #EDI #Diversity
Ruth Naughton-Doe @ruthndwrites.bsky.social Research Fellow at the Family Wellbeing Research Team @ Uni of York, UK. Perinatal mental health, loneliness, and addressing the social determinants of mental illness. Mum + lover of the outdoors. Views my own. http://lonelyparents.org
New Possibilities @annageyer-np.bsky.social A visual practitioner with purpose. Enabling people to have their voice seen and heard by capturing important conversations in a visually engaging way.
Kellie O’Callaghan @kellieocallaghan.bsky.social Lived Experience, Patient & Community Engagement 🧩 Governance & Regional Development 🔗 Wayfinding 💭
Chair, Regional Development Australia - Gippsland 🦘 Chair, Mental Health & Wellbeing IRB 💬 Mayor, Emeritus 👩⚖️
Gunaikurnai Land, Gippsland Australia 🏡
Sarah PICKARD 🍃 @sarahpickard2.bsky.social Prof Brit pol: Uni Sorbonne Nouvelle
Research: Young people's political participation, #youthpolitics, vote, protest, environment #climateactivism🌳
Author: Politics Protest & Young People + Civilisation britannique📕
Convenor: PSA Young People's Politics
Lucy Bray @lucybray9.bsky.social Professor of Child Health Literacy,
work focussed on child rights, creative qualitative approaches and working with and empowering children and families to improve access and experiences of health care. Lead of international ISupport right-based standards.
Colin Dunkley @drcolindunkley.bsky.social #apaediatriclife reflections! | Children seen & heard...better outcomes | More baking | Consultant Paediatrician Sherwood Forest | Epilepsy12 Lead | BPNA course content Mx | Views own
𝕐𝐨𝐮𝐭𝐡𝐫𝐢𝐯𝐞 (𝔹𝐞𝐜𝐤𝐲 𝕎𝐚𝐫𝐝) @youthrive.bsky.social Researcher helping charities demonstrate their impact and raise their profile. Creating spaces for marginalised voices to be heard.
Bramble Gardiner (they/them) @bramblegardiner.bsky.social #FoodSystem PhD @plymuni.bsky.social
Exploring #FoodDemocracy
#CreativeMethods inc.
#poetry
#animation
#drawing
#collage
Interests
#coproduction #posthumanism #NewMaterialism
#ClimateJustice, #SocialJustice
Aims
transformed society, disrupted power
Sarah Griffiths @sgriffiths-6.bsky.social Dementia Researcher University College London. Views my own. Interested in communication aspects of #dementia care and research. Qualitative methods. Public Involvement.
https://profiles.ucl.ac.uk/83178-sarah-griffiths/about
Dr Anastasia Rousaki @anastasiarousaki.bsky.social Postdoc at Uni of Manchester. Qualitative Research,Critical Discursive Psychology. Marxism, Technology, Politics&Ideology. @EQUiP committee member.Views own.
Maria Loades @marialoades.bsky.social Clinical Psychologist, Professor & Researcher at University of Bath - passionate about helping young people live thrive #singlesessioninterventions #scalable #LMICs
Involve North East @involvene.bsky.social We are a trusted, independent charity specialising in qualitative research that amplifies community voices and drives meaningful change across health, wellbeing, and beyond.
Want to find out more? https://www.involvene.org.uk/
Raluca Terry-Enescu @ralucahippie.bsky.social Health policy wonk. Start-up co-founder. Data cruncher, purveyor of pretty graphs. Relentlessly hopeful. Kitchen gadgets addict, poster of cat pics, wearer of too many florals. Mum. She/her. Views my own. #QISky
Dr Rebecca Johnson @researching-reb.bsky.social Participatory Researcher and Youth Worker 🌱 | Research into Mental Health Stigma, Youth Experiences, Measurement Design and Transformative Change | Lecturer in Psychology @Glasgow Caledonian University 🏴 | she/her + you’re safe with me 🏳️🌈🏳️⚧️
Dr Rhys Archer @drrhysarcher.bsky.social #CitizenScience methods researcher 🌍| #ActuallyAutistic & 🏳️🌈 | Youth #participatoryresearch | #Co-design | #EDI advocate | #Coproduction & #co-creation methods for #sustainability & #environment
Stockholm Environment Institute at the Univeristy of York
Dawn Richards, PhD @dawnrichards.bsky.social Living life with #Arthritis along for the ride. Posting & passionate about #Research, arthritis, #PatientEngagement, #PPI. Opinions my own.
Rae Martens ♿️ @coffeeandresearch.bsky.social Research Knowledge Broker, speaker, knowledge mobilization, cancer, childhood disability, rare disease, spoonie, coffee drinker. Opinions are my own.
Amy Price @amyprice.bsky.social Welcome! I’m a scientist, advocate, editor, and mentor. I value meaningful, professional connections and prioritize messages related to advocacy, mentoring, and collaboration. I do not engage in personal/unsolicited inquiries. Thanks for understanding
Isabel Jordan (she/her) @seastarbatita.bsky.social New platform. New bio. Nerd. Disabled. Honesty is kindness. Even when it’s hard. #PatientsIncluded #ItDoesntHaveToHurt #PatientPartnership #PatientEngagement
(avatar by @blackmudpuppy)
PxP (For Patients, By Patients) @pxphub.bsky.social 👉For Patients, By Patients 👈 The PxP initiative brings together resources for the patient engagement community in health research.
Christine Chambers @drcchambers.bsky.social Busy mom of 4, PhD Psychologist, Scientific Director @CIHR_IHDCYH, Scientific Director @KidsInPain, Professor & Tier 1 @CRC_CRC in Children's Pain @DalhousieU.
Bryn Robinson, PhD @brynphd.com Writing poetry and photographing all the birds on Wolastoqey lands @ https://www.brynphd.com. Reviewing books @theseaboardreview.ca. First chapbook now available from Emergency Flash Mob Press. UNB PhD '10. Wife, stepmom, she/her. 🏳️🌈🏳️⚧️☕️
Chloe Apter (she/her) @chloeapter.bsky.social Autistic ADHDer, mental/physical illness, iatrogenic harm, co-production, @uoppald.bsky.social student. Views own, personal account.