Har Linssen Maastricht @harmaastricht.bsky.social Poëtisch maker van poweeziejewel.nl, 45 jaar basisschoolleraar, opa, biologische groentetuinier, vegetarisch kok (oprichter van Ouagadougou Wereldkeuken en kinderkookclubs De Hond in de Pot & de Kwartjesclub), creatieveling & dwarsdenker.🐌
@sienappeltje.bsky.social @sienappeltje.bsky.social 
#LongCoid + #Philosophy (Wild Strain 2020) 🏳️⚧️🏳️🌈🩵 @be-herenow.bsky.social https://www.online-tribute.com/AdamWolk
Long COVID takes lives, but we can keep their legacy alive. 🩵
Don’t erase them a second time.
Philosophy @
https://doi.org/10.5281/zenodo.20779467
Suzanne Forbes aka Slurketta @suzanneforbes.bsky.social Queer disabled MECFS (and Filth!) Elder in Berlin, housebound retired artist. Still respirator masking. Trans rights FOREVER. Sex worker ally. Baby vegan. Location: Atlantis by Gaslight. She/her.
Ginger Billie @gingerbillie.bsky.social 
@joshmanson.bsky.social @joshmanson.bsky.social 
Something Chronic @somethingchronic.bsky.social Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness
Patricia Donnellan, MPH 🇺🇦📎 @stpaulsbay.bsky.social Patricia Donnellan, MPH | Found the unifying cause of chronic disease: rs5522-driven inflammation. Cured my own 29-yr CFS. Proving it’s fluid, not fat—from Long COVID to Maternal Mortality. 🧬
www.beyondbloodtests.org
Baby Richman @babyrichmanband.bsky.social REMEMBER TO HIT THE BELL (🔔+ ) 👆
MePu @mendaciumpugnator.bsky.social People who deviate from the norm are usually more fun. Passion for music and bondage. Humanist. Kitchen prince. Tech nerd. Amps, guitar and bass. Antifascist🔻
Posts in English and Dutch.
#longcovid since 2020.
Siamo tutti antifascisti.
@ivaneck.bsky.social @ivaneck.bsky.social Love family, felt, stones, rockart, my 3 cats and nature. Afgekeurd leerkracht PO.
Longcovid ( 2020)
Academy for Energy Medicine @energymedicine.eu If you ignore energy, you miss 99% of reality - James Oschman
https://linktr.ee/energetischegeneeskunde
https://energymedicine.eu
Jeannette Metaal @jeannettemetaal.bsky.social Brugge
It's ME(Jaime) @exceedhergrasp1.bsky.social Scientific Director, #MEAction
Affiliations: Stanford Genome, Université de Montréal
TIME100 Health
#ME, #EDS, #POTS, #LongCOVID
Views my own
Illustrator Interrupted @franceyme.bsky.social https://amandafrancey.com/ Australian illustrator, graphic designer, photographer. Advocating for myalgic encephalomyelitis #MECFS #LongCovid #ClimateAction
Brenda Rosendahl @crearose.bsky.social Je hoeft niet sterk te zijn om krachtig te wezen'
Trots op CreaRose🌹
(HSD dd Heds) en NAH.LongCovid
Sinds 6-7 '21 een trotse kabouter🍄
Maakt typfouten omdat mijn hoofd anders denkt dan mijn handen, verbeteren is pijnlijk. Snap je me niet dan dm. 🧠🐸
Valerie van de Velde @lievalerie.bsky.social 🪫 Life on hold // 🦠 long-COVID since march 2020 // 📍Zeeuws-Vlaanderen
stanske.bsky.social @stanske.bsky.social 
Niko Suvisto @nikosuvisto.com Life on hold by severe #MECFS, currently 99% bedbound 🛌
Documenting my life like it is now, advocacy through photography 📷
📍Finland
https://nikosuvisto.com/
Jacqueline @keuningin.eurosky.social Nothing is certain and even that may be false. Don't judge others, you have no clue what they’ve been through. 4 sons. Proud Grandma. Posts in Dutch & English. #LongCovid #MCAS #Breastcancer #Iamnotmyillness #antifascist
Alexis M. 🎃 @turnoftheshrew.bsky.social begrudgingly online for chronic illness research & disability justice community. living meaningfully & unapologetically as a hermit against my will.
Fred Verdult @fredverdult.bsky.social Passie voor Perry, fietsen in Alpen, zweten in sauna | Levensgeluk verknald door lyme | Directeur Lymefonds | Trots Ridder op voorspraak Nobel laureate
Elke Hausmann @drelke.bsky.social German, English, Spanish
Sociology, Medicine, General Practice
@valebodi.bsky.social @valebodi.bsky.social Surviving MyalgicE aka ME/CFS & AAG to tell the story, pwME & advocate w/ a JD. Into MEdical, Social, Climate Justice & Arts. ME-dical apolide, Human Neutrino, Gnarled pacer
MEssland Worldwide https://www.tandfonline.com/doi/pdf/10.2217/fmb-2022-0031
María Richardson @diatoma.bsky.social Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS #LongCovid
Billy Hanlon @bhanlon15.bsky.social ME/CFS | Long COVID | IACC
Stefanie Weichselbaumer @sweichselbaumer.bsky.social (Former) DGKP | BSc Nursing Science
Life on hold since Sept 2022 due to SARS-CoV-2 → #MECFS #POTS #Dysautonomia #MCAS #hEDS
Tania J. Spencer @taniaspencer.bsky.social 🇨🇦🇿🇦 • writer • photographer • social anthropology • former journalist • Long COVID first waver • vaxxer • masker • maker of Corsi-Rosenthals • Antifa, obviously
📌 Whitehorse, YT
Rieke @itsmerieke.bsky.social moeder•vrouw•vrolijk•doorbijter•hoopvol•sarcastisch•eigenwijs•ik❤️te veel van gifjes•typgriep•huis/bedgebonden:MEcvs•
I AM ONE OF THE #MillionsMissing•
Ik ben #NietHersteld
Josse de Voogd @jossedevoogd.bsky.social Ruimte, politiek & samenleving.
Verkiezingsgeografie/(on)gelijkheid/stedenbouw. Onderzoeker & publicist. ZZP. Atlas Afgehaakt NL. #mecvs #longcovid
Michiel @murtoz.bsky.social Horizontal advocate for #pwME. 🇳🇱 in 🏴.
Ally. Cis. PwME/LC. Volunteer with @meactionscotland.bsky.social. He/Him. #SaveSavannah #BIPOCLivesMatter #TransLivesMatter #EndGenocide #CovidIsAirborne #YallMaskin #CleanTheAir
Sjoerd Slagman @sjoerdslagman.bsky.social Long COVID patient 🤕 Former researcher & teacher 🧑🔬 Poor puns & dad jokes 🃏 Boardgame addict 🎲 Biocatalysis connaisseur ⚗️
Slowly transitioning to 🦋
EN/NL - He/him
Katie Klocksin, by the wayside @katieklocksin.bsky.social One of the #MillionsMissing with #LongCovid #MECFS JohnVsJon.com // Once a radio and podcast producer, always a Transom alum // native plants
🌻🪻🌼
Katy B @katybrc.bsky.social Myalgic Encephalomyelitis - M.E + POTS for 38 years
Donor to the UK MEcfs Biobank for 10 years & @DecodeMEstudy
Please watch http://dialogues-mecfs.co.uk/videos/
London, UK
No DMs please
#pwME 
Anil van der Zee @anilvanderzee.bsky.social Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
Alex @admiringbog.bsky.social person with ME/CFS
professional slug
TeeJay 🦋 @notthatimportant66.eurosky.social 🇧🇪 | International Politics | Sports | Cycling | Tech | I block AI bot accounts | Dutch, English, French skeets
Gerard @gerardtb.bsky.social Brave huisvader die graag de onderbouwde discussie aangaat. Meer links dan rechts.
Sargasso @sargassoblog.bsky.social Hopeloos Genuanceerd (sinds 2001) met dagelijks artikelen op sargasso.nl
Geïnteresseerd in uw mening, of bijdrage als schrijver.
Jacqu Thüss @jacqth.eurosky.social 
Maaike @maaikeverbruggen.bsky.social non-practicing intellectual on war & tech
NL/EN
Johan De Messemaeker @jdmssmkr.bsky.social Geek, Techno-optimist, Music, Games, Life, Privacy Advocate.
Sigrid C. Degener @esceedee.bsky.social Horizontaalvirtuoos
Nachthaker
Runt af en toe een bed & brakdag
Maakt* de wereld graag mooier
(*handwerken, koken, fotograferen, schrijven) wanneer het lijf het toelaat
🇳🇴Trøndertun ‘90/‘91
#pwME
Anna - Please boost pinned tweet.🙏 @halcionandon.bsky.social Diary of #ChronicIllness & #abuse
👉Safe housing needed 🏡
#Melbourne 🇦🇺
Human biology experiment w limited energy
#SevereME #LongCovid #POTS #ChronicPain +
Crowdfund me to safety: chuffed.org/project/161937-help-anna-escape
bexlogan.bsky.social @bexlogan.bsky.social Living with Long Covid induced ME since April 2020 | Existing from bed | Advocate | POTS | Former NHS staff nurse & fitness instructor |
Dan Wyke @danwyke.bsky.social Severe M.E., person-centred counsellor (not practicing), recovering poet (Rack & Waterloo Press)
Nick Benton @nickbenton.bsky.social Writer living with myalgic encephalomyelitis (ME) for five years.
Substack for all things ME: https://thepersonalme.substack.com/
I'm not on here much. For enquiries email nicholasbenton1997@gmail.com
Chronic Living Therapy (a directory) @chronicliving123.bsky.social Soon launching - a directory of therapists who understand the biomedical nature of #MECFS, #LongCovid and many other chronic illnesses. https://chroniclivingtherapy.com/
Elisabeth Klaar @lammasleaves.bsky.social Marketing support and WordPress websites for small businesses and organisations, sole traders, authors and more...
www.oaktreestudio.co.uk
Oevie @oevie.eurosky.social Schaamteloos linkse deugneus. Zuur bovendien.
Hart ❤️ voor groen 🌱🐛, blauw 💨🌊🇪🇺 en alle vredelievenden onder de regenboog 🌈
Heimwee (toen: 🏊🚵🏼🥾⛵️ nu: 🦠😴♿️)
joostifant @joostifant.bsky.social Hier voor muziek, koers, wetenschap en leven met MEcvs.
Bart Dhondt @bartdhondt.bsky.social Gemeenteraadslid Stad Brussel
Former Party Leader for the Greens and Alderman of Mobility and Public Works @ City of Brussels
Didier @medidier.bsky.social ME after covid infection Feb'22. Bedbound. 🛌 #ThereForME #GreatestMEdicalScandal #PEM 🇬🇧🇲🇫🇪🇦🇧🇪
Jamie Liu @joshlmj.bsky.social Currently I am working as a Manager for Growth Strategy - Charles Schwab (SF Office) my Responsibility: Deal Leadership, Portfolio Value Creation and Fund Strategy & LP Relations.
Eleanor Fielding @meownersclub.bsky.social ‘We’re driving in the dark with our sunglasses on!”
#RLS #ME #PEM
Retired lecturer/therapist
Open University, CCCS B’ham, feminism, politics, culture, disability, science, music, languages.
meownersclub@bsky.social
Maker of #FanningTheFlames
@fowlo.bsky.social @fowlo.bsky.social 
Miska Knapek @miskaknapek.bsky.social Data analyst/scientist making data analysis software, #datavis, #datascience , etc, nature photography, some creativity and hobbyist personal complex medical research . ( Did I miss anything?... well, #mecfs ;)
miskaknapek.eu
@marsdeelstation.bsky.social @marsdeelstation.bsky.social 
Sander Zurhake @zurhake.bsky.social Journalist over Volksgezondheid voor de NOS.
Eva Loena @evaloena.bsky.social One of the #MillionsMissing Koester herinneringen aan literatuur, IT, sport, avontuurlijke reizen en veel meer
jim faas 🍀 @jimfaas.bsky.social zo nodig dwars |verzekeringsarts | jurist | phd | docent | schrijven | lezen | zingen | radio dj | kunst & kunde | semper fi | www.jimfaas.nl
Bart @bartdebacker.bsky.social Randstedeling, omgeving Rotterdam. Doet iets in Finance bij een grote corporate. Mijmert. Hobbyt. Volgt nieuws, maar niet altijd aandachtig.
Kirsty 🌻 @kirstysmestory.bsky.social Living with moderate/severe M.E. 🦋 severely affected by the Pfizer vaccine 💉 in 2021 and health issues from covid infection ‘23
Not anti-vaccine
Giorgi Ninos @giorgininos.com Independent Journalist focused on LGBTQIA+ rights; Human rights and EU enlargement. 🇪🇺🇬🇪
☕️ Support me: https://ko-fi.com/giorgininos
💼 Portfolio: https://muckrack.com/giorgininos
🕸️ Website: www.GiorgiNinos.com- I Ingrid Jijbakker @ingridjijbakker.bsky.social
Bea Dekkers @beadekkers.bsky.social LongCovid, MEcvs, POTS en MCAS sinds oktober 2020.
Voorheen autisme specialist MSEN, persoonlijk begeleider VG zorg, nu WIA, IVA
Samen met @marcbalemans en labrador Fiep
Otrosdías @otrosdias.bsky.social For music go to: @otherdays.bsky.social
For COVID, public health, politics, etc.. stay here...
Becky Ancira Robertson @ancirabecky.bsky.social Survivor. Proud mother. Teacher. Activist. Trying to make a difference.
#PatientAdvocate #longcovidawareness #LCDC #March15 #ValueCognition #WHN
Interview with @theWHN :
https://youtu.be/YUgcqJ-m7C0
Anke Zoontjens @ankezoontjens.bsky.social Veganist 🍃 ME (myalgische encefalomyelitis) LongCMV 🤷♀️ LongEBV 🤷♀️ 💙✊🏳️🌈 IBD (colitis ulcerosa) 💜✊🏳️🌈
ME félag Íslands @mefelag.bsky.social The Icelandic ME association #MEawareness #mefelag #longcovid #vitundarvakning
NikkiCutes @nikkicutes.bsky.social Long Covid, POTS, CFS
BC 🇨🇦
Pilot Wife ✈️
Armoede Maakt Moedeloos (AMM) @armoede.bsky.social Team AMM geeft de te grote, vergeten groep mensen in #armoede een stem, en helpt waar mogelijk! Help je ook mee? Armoede moet structureel aangepakt worden! (BE/NL)
Ook aanwezig op X, Mastodon en Facebook.
WEES EMPATHISCH, HET IS GRATIS!
Rien de Böck @riendebock.bsky.social Former mathematician. Life came to a sudden halt due to #LongCovid/ME, tweets in Dutch and English.
@LongCovidNL.
@Cross_theIine @cross-theline.bsky.social The Human race has a serious Control Freak problem
@Cross_theline and YOU are going to resolve that
I support the Iranian people 🇮🇷
#EndWar #EndTyranny #Cross_theline
@farfelu66.bsky.social @farfelu66.bsky.social 
Emmy @emmeke.bsky.social 🐈⬛🐈 🌱 🎼 🎮 ºIIIIIIIº
David Tuller @davetuller1.bsky.social Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
Renegade Research @renegaderesearch.bsky.social Patient-led 501c3 nonprofit focused on #MECFS & #LongCovid 💙 https://linktr.ee/renegaderesearch • Runs @remissionbiome.bsky.social
Sugarblood @sugarblooduk.bsky.social Electronic Indie Music. Debut album, I Am Digital and latest single release, Electricity available to stream and download from online stores. New album out soon.
Martine Brandt @minofmeer.bsky.social Myalgische Encefalomyelitis,
POTS, 22/7 bedgebonden
https://minofmeer.blog
https://www.facebook.com/share/1CwgxEYgQNZSDevd/
KimK @kimk-research.bsky.social Retired 🪷 grandmother ♿️ amputee 🤍 domestic violence survivor 🥄 longCOVID advocacy @renegaderesearch.bsky.social 🥩 animal-based keto
Lumia @wearlumia.bsky.social What you feel is real. Lumia tracks blood flow to the head. Designed for #pots #orthostatichypotension #syncope #longcovid #myalgicencephalomyelitis #fainting #dysautonomia #chronicillness Currently for USA, iPhone, and adults 18+ only. www.lumiahealth.com
Annelies Gramsma @anneliesgramsma.bsky.social Schrijver & mafketel van beroep. En o ja: ook nog chronisch ziek. #mecvs
Je vindt mij ook op Pixelfed!
Els ten Napel @fiederels.bsky.social Lost geographer. Washed ashore on the island of Texel. Living in the parallel universe of chronic illness. MECFS with a generous dollop of Long Covid
A Jansen @ajansen118.bsky.social www.omf.ngo
Jess Badger @jesshoneybadger.bsky.social Chaotic good writer and scientist with severe, bed bound MECFS. Writing wholesome stories, science stuff, and funny anecdotes from bed. Lover of memes.
jesshoneybadger.substack.com
LLC @liesllr.eurosky.social LET LOVE RULE! Talking about my daily struggles and thoughts ‘living’ with Long Covid, PEM & POTS in Amsterdam.
Robert @robertb1.bsky.social Post covid, 100% disabled (WIA, Netherlands). Father of three. Msc in ecological crop protection and plant breeding. Loves photography, forever DM for my family and adults, and short story teller. Now learning how to cook smarter with LC.
No DM's please
Open Medicine Foundation (OMF) @openmedf.bsky.social OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.